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Protocol - Removal of Female Reproductive Organs

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Description:

The participant answers a question about whether she has had a hysterectomy. If so, she answers a question about whether she has also had any ovaries removed.

Protocol:
  1. Have you ever had a hysterectomy, that is, surgery to remove your uterus?

[ ] 1 Yes

[ ] 5 No

Asked if Respondent is not currently pregnant

  1. Have you ever had both of your ovaries removed?

[ ] 1 Yes

[ ] 5 No

{Asked for all Respondents}

Protocol Name from Source:

National Survey of Family Growth (NSFG)

Availability:

Publicly available

Personnel and Training Required

None

Equipment Needs

Pencil and paper

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Life Stage:

Adult

Participants:

Women aged 18-44

Specific Instructions:

The Expert Review Panel notes that although the National Survey of Family Growth (NSFG) only includes women 18-44, this protocol could be used for all women who are over 18.

Selection Rationale

The National Survey of Family Growth (NSFG) 2013-2015 includes questions that address the causes and treatment of infertility. The survey includes both male and female respondents and represents the household population of the United States aged 15-44 years.

Language

English

Standards
StandardNameIDSource
Common Data Elements (CDE) Female Reproductive System Excision Assessment Description Text 3007446 CDE Browser
Process and Review

The Expert Review Panel #5 (ERP 5) reviewed the measures in the Reproductive Health domain.

Guidance from ERP 5 includes the following:

· Replaced protocol

· Changed name of measure

· New Data Dictionary

Back-compatible: there are changes to the Data Dictionary, previous version of the Data Dictionary and Variable mapping in Toolkit archive (link)

Source

National Survey of Family Growth (NSFG) 2011-2013, Female Questionnaire, Part D, Questions DA-2 and DA-3. http://www.cdc.gov/nchs/nsfg/nsfg_questionnaires.htm

General References

Merrill, R. M. (2006). Impact of hysterectomy and bilateral oophorectomy on race-specific rates of corpus, cervical, and ovarian cancers in the United States. Annals of Epidemiology, 16(12), 880-887.

Wu, J. M., Wechter, M. E., Geller, E. J., Nguyen, T. V., & Visco, A. G. (2007). Hysterectomy rates in the United States, 2003. Obstetrics & Gynecology, 110, 1091-1095.

Protocol ID:

100502

Variables:
Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
Research Domain Information
Measure Name:

Removal of Female Reproductive Organs

Release Date:

April 11, 2017

Definition

Questions to assess whether the participant has had a hysterectomy or has had her ovaries removed.

Purpose

The purpose of these questions is to assess the occurrence of hysterectomies with or without ovary removal. This measure identifies the impact of surgery on a woman’s hormonal system and will be important in any gene/environmental studies of hormones or hormonal-related diseases.

Keywords

Reproductive health, hysterectomy, ovaries, oophorectomy, National Survey of Family Growth, NSFG