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Protocol - Race

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Description:

The interviewer asks the respondent what race he or she considers himself or herself to be and hands the respondent a card with a list of race categories. The respondent is asked to pick one or more of the categories on the card. The interviewer enters the code for the race indicated or keys in an entry if the respondent chooses an "other (specify)" option.

Protocol:

1. What race or races do you consider yourself to be? Please select one or more.

HAND CARD 1

CHECK ALL THAT APPLY.

[ ] 1 AMERICAN INDIAN OR ALASKA NATIVE

[ ] 2 ASIAN [GO TO Q2]

[ ] 3 BLACK OR AFRICAN AMERICAN

[ ] 4 NATIVE HAWAIIAN OR PACIFIC ISLANDER [GO TO Q3]

[ ] 5 WHITE

[ ] 6 OTHER

[ ] 99 DON’T KNOW

[ ] 77 REFUSED

2. Please give me the number of the group that represents your Asian origin or ancestry. Please select one or more of these categories.

HAND CARD 2

PROBE: Where do your ancestors come from?

[ ] 10 ASIAN INDIAN

[ ] 11 BANGLADESHI

[ ] 12 BENGALESE

[ ] 13 BHARAT

[ ] 14 BHUTANESE

[ ] 15 BURMESE

[ ] 16 CAMBODIAN

[ ] 17 CANTONESE

[ ] 18 CHINESE

[ ] 19 DRAVIDIAN

[ ] 20 EAST INDIAN

[ ] 21 FILIPINO

[ ] 22 GOANESE

[ ] 23 HMONG

[ ] 24 INDOCHINESE

[ ] 25 INDONESIAN

[ ] 26 IWO JIMAN

[ ] 27 JAPANESE

[ ] 28 KOREAN

[ ] 29 LAOHMONG

[ ] 30 LAOTIAN

[ ] 31 MADAGASCAR/MALAGASY

[ ] 32 MALAYSIAN

[ ] 33 MALDIVIAN

[ ] 34 MONG

[ ] 35 NEPALESE

[ ] 36 NIPPONESE

[ ] 37 OKINAWAN

[ ] 38 PAKISTANI

[ ] 39 SIAMESE

[ ] 40 SINGAPOREAN

[ ] 41 SRI LANKAN

[ ] 42 TAIWANESE

[ ] 43 THAI

[ ] 44 VIETNAMESE

[ ] 77 REFUSED

[ ] 99 DON’T KNOW

3. Please give me the number of the group that represents your Native Hawaiian or Pacific Islander origin or ancestry. Please select one or more of these categories.

HAND CARD 3

PROBE: Where do your ancestors come from?

[ ] 1 NATIVE HAWAIIAN

[ ] 2 GUAMANIAN OR CHAMORRO

[ ] 3 SAMOAN

[ ] 4 OTHER PACIFIC ISLANDER

[ ] 7 REFUSED

[ ] 9 DON’T KNOW

4. CODE ANSWER TO “OTHER RACE.”

[ ] 10 MEXICAN

[ ] 11 PUERTO RICAN

[ ] 12 CUBAN

[ ] 13 DOMINICAN REPUBLIC

CENTRAL AMERICAN:

[ ] 14 COSTA RICAN

[ ] 15 GUATEMALAN

[ ] 16 HONDURAN

[ ] 17 NICARAGUAN

[ ] 18 PANAMANIAN

[ ] 19 SALVADORAN

[ ] 20 OTHER CENTRAL AMERICAN

SOUTH AMERICAN:

[ ] 21 ARGENTINEAN

[ ] 22 BOLIVIAN

[ ] 23 CHILEAN

[ ] 24 COLOMBIAN

[ ] 25 ECUADORIAN

[ ] 26 PARAGUAYAN

[ ] 27 PERUVIAN

[ ] 28 URUGUAYAN

[ ] 29 VENEZUELAN

[ ] 30 OTHER SOUTH AMERICAN

OTHER HISPANIC OR LATINO:

[ ] 31 FILIPINO

[ ] 32 SPANIARD

[ ] 33 SPANISH

[ ] 34 SPANISH AMERICAN

[ ] 35 HISPANO/HISPANA

[ ] 36 HISPANIC/LATINO

[ ] 40 OTHER HISPANIC/LATINO (SPECIFY)

[ ] 41 CHICANA/CHICANO

REFUSED

DON’T KNOW

Protocol Name from Source:

National Health and Nutrition Examination Survey (NHANES), 2013-2014, Demographics Module.

Availability:

Publicly available

Personnel and Training Required

The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.* The interviewer should be trained to prompt respondents further if a "don’t know" response is provided.

* There are multiple modes to administer these questions (e.g., paper-and-pencil and computer-assisted interviews).

Equipment Needs

While the source instrument was developed to be administered by computer, the PhenX Working Group acknowledges these questions can be administered in a noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Interviewer-administered questionnaire

Life Stage:

Infant, Toddler, Child, Adolescent, Adult, Senior, Pregnancy

Participants:

Any age. May be asked of children via a proxy.

Specific Instructions:

Ethnicity must be asked prior to race. Some Hispanic respondents are confused by the race question if it is asked first.

Selection Rationale

The questions meet the Office of Management and Budget (OMB) standards for capturing data on race. An important tabulation variable, it captures those who self-identify as belonging to more than one race. Several questions were considered, and the National Health and Nutrition Examination Survey (NHANES) question was selected because it meets OMB standards, was used on a major U.S. health study, and provides multiple racial response categories.

Language

English, Spanish

Standards
StandardNameIDSource
Common Data Elements (CDE) Centers for Disease Control and Prevention Race Unique Identifier Code 2200286 CDE Browser
Logical Observation Identifiers Names and Codes (LOINC) Race PhenX 56091-2 LOINC
Process and Review

The Expert Review Panel #2 (ERP 2) reviewed the measures in the Demographics, Social Environments and Environmental Exposures domains.

Guidance from ERP 2 includes:

• Updated protocol

• New Data Dictionary

Back-compatible: there are changes to the Data Dictionary, previous version of the Data Dictionary and Variable mapping in Toolkit archive (link)

Source

National Center for Health Statistics. National Health and Nutrition Examination Survey (NHANES), Demographics Module 2013–2014. Question numbers DMQ.263, DMQ.336, DMQ.350, DMQ.266.

General References

Centers for Disease Control and Prevention (CDC), Office of Minority Health and Health Disparities (OMHD). (2008). Native Hawaiian & Other Pacific Islander (NHOPI) Populations.

Centers for Disease Control and Prevention. (2000). Race and Ethnicity Code Set, Version 1.0. Atlanta: Author. http://www.cdc.gov/phin/resources/vocabulary/documents/cdc-race--ethnicity-background-and-purpose.pdf

Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity. 62 Fed. Reg. (October 30, 1997).

Protocol ID:

10602

Variables:
Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX010601_Race_Alaskan PX010601010400 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Alaskan Native 4 Variable Mapping
PX010601_Race_Asian_Indian PX010601010900 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Asian Indian 4 Variable Mapping
PX010601_Race_Black PX010601010200 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Black/African American 4 Variable Mapping
PX010601_Race_Chinese PX010601011000 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Chinese 4 Variable Mapping
PX010601_Race_Dont_Know PX010601011900 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? DON'T KNOW 4 Variable Mapping
PX010601_Race_Filipino PX010601011100 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Filipino 4 Variable Mapping
PX010601_Race_Guamanian PX010601010600 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Guamanian 4 Variable Mapping
PX010601_Race_Hawaiian PX010601010500 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Native Hawaiian 4 Variable Mapping
PX010601_Race_Indian PX010601010300 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Indian (American) 4 Variable Mapping
PX010601_Race_Japanese PX010601011200 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Japanese 4 Variable Mapping
PX010601_Race_Korean PX010601011300 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Korean 4 Variable Mapping
PX010601_Race_Other_Asian PX010601011500 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? OTHER ASIAN 4 Variable Mapping
PX010601_Race_Other_Pacific_Islander PX010601010800 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Other Pacific Islander 4 Variable Mapping
PX010601_Race_Refused PX010601011800 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? REFUSED 4 Variable Mapping
PX010601_Race_Samoan PX010601010700 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Samoan 4 Variable Mapping
PX010601_Race_Some_Other_Race PX010601011600 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? SOME OTHER RACE 4 Variable Mapping
PX010601_Race_Specify PX010601011700 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Other (Specify) 4 Variable Mapping
PX010601_Race_Vietnamese PX010601011400 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Vietnamese 4 Variable Mapping
PX010601_Race_White PX010601010100 What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? White 4 Variable Mapping
Research Domain Information
Measure Name:

Race

Release Date:

May 11, 2016

Definition

Question asking the respondent his or her race. U.S. Office of Management and Budget (OMB) standards for the classification of federal data on race and ethnicity state that "race and ethnicity may be thought of in terms of social and cultural characteristics as well as ancestry."

Purpose

Race is used to stratify study populations and to associate those populations with physical, geographic, biological, social, and cultural characteristics (e.g., African Americans). Race is a social and epidemiological factor, and individuals of some races are at greater risk for certain diseases.

Keywords

Demographics, ancestry, ethnicity, population stratification, National Health and Nutrition Examination Survey, NHANES, National Center for Health Statistics, NCHS, Centers for Disease Control and Prevention, CDC