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Protocol - Ultraviolet Light Exposure

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Description:

The interviewer asks the respondent several questions about sunburn, use of tanning booths and sunlamps, and time spent outdoors in the midday sun.

Protocol:

The following questions focus on your complexion and your exposure to the sun.

1. If you spent an hour in the midday sun for the first time without sunscreen, which of these reactions best describes what would happen to your skin:

1 [ ] A blistering sunburn,

2 [ ] A sunburn without blisters,

3 [ ] A mild sunburn that becomes a tan,

4 [ ] A tan with no sunburn, or

5 [ ] No change in skin color?

2. Did you ever get a blistering sunburn?

1 [ ] YES

2 [ ] NO (Go to 3)

2a) How old were you the first time you got a blistering sunburn?

|___|___| YEARS OLD

98 [ ] DK

2b) IF DK EXACT AGE, SAY: About how old were you? PROBE FOR CATEGORY.

01 [ ] UNDER 5 YEARS OLD

02 [ ] 5-14 YEARS OLD

03 [ ] 15-24 YEARS OLD

04 [ ] 25-39 YEARS OLD

05 [ ] 40-64 YEARS OLD

06 [ ] 65 YEARS OLD OR OLDER

2c) How old were you the last time you got a blistering sunburn?

|___|___| YEARS OLD

98 [ ] DK

2d) IF DK EXACT AGE, SAY: About how old were you? PROBE FOR CATEGORY.

01 [ ] UNDER 5 YEARS OLD

02 [ ] 5-14 YEARS OLD

03 [ ] 15-24 YEARS OLD

04 [ ] 25-39 YEARS OLD

05 [ ] 40-64 YEARS OLD

06 [ ] 65 YEARS OLD OR OLDER

2e) How many blistering sunburns have you gotten in your life?

|___|___| BLISTERING SUNBURNS

98 [ ] DK

2f) IF DK EXACT NUMBER, SAY: About how many? PROBE FOR CATEGORY.

1 [ ] 1 OR 2

2 [ ] 3 OR 4

3 [ ] 5-9

4 [ ] 10-19

5 [ ] 20 OR MORE

3. Did you ever get a skin rash from sun exposure?

1 [ ] YES

2 [ ] NO (Go to 4)

3a) How old were you the first time you got a skin rash from sun exposure?

|___|___| YEARS OLD

98 [ ] DK

3b) IF DK EXACT AGE, SAY: About how old were you? PROBE FOR CATEGORY.

01 [ ] UNDER 5 YEARS OLD

02 [ ] 5-14 YEARS OLD

03 [ ] 15-24 YEARS OLD

04 [ ] 25-39 YEARS OLD

05 [ ] 40-64 YEARS OLD

06 [ ] 65 YEARS OLD OR OLDER

3c) How old were you the last time you got a skin rash from sun exposure?

|___|___| YEARS OLD

98 [ ] DK

3d) IF DK EXACT AGE, SAY: About how old were you? PROBE FOR CATEGORY.

01 [ ] UNDER 5 YEARS OLD

02 [ ] 5-14 YEARS OLD

03 [ ] 15-24 YEARS OLD

04 [ ] 25-39 YEARS OLD

05 [ ] 40-64 YEARS OLD

06 [ ] 65 YEARS OLD OR OLDER

3e) How many times you have gotten a skin rash from sun exposure in your life?

|___|___| SKIN

98 [ ] DK

3f) IF DK EXACT NUMBER, SAY: About how times? PROBE FOR CATEGORY.

1 [ ] 1 OR 2

2 [ ] 3 OR 4

3 [ ] 5-9

4 [ ] 10-19

5 [ ] 20 OR MORE

4. Have you ever used a sunlamp?

1 [ ] YES

2 [ ] NO (Go to 5)

4a) How old were you the first time you used a sunlamp?

|___|___| YEARS OLD

98 [ ] DK

4b) IF DK EXACT AGE, SAY: About how old were you? PROBE FOR CATEGORY.

01 [ ] UNDER 5 YEARS OLD

02 [ ] 5-14 YEARS OLD

03 [ ] 15-24 YEARS OLD

04 [ ] 25-39 YEARS OLD

05 [ ] 40-64 YEARS OLD

06 [ ] 65 YEARS OLD OR OLDER

4c) How old were you the last time you used a sunlamp?

|___|___| YEARS OLD

98 [ ] DK

4d) IF DK EXACT AGE, SAY: About how old were you? PROBE FOR CATEGORY.

01 [ ] UNDER 5 YEARS OLD

02 [ ] 5-14 YEARS OLD

03 [ ] 15-24 YEARS OLD

04 [ ] 25-39 YEARS OLD

05 [ ] 40-64 YEARS OLD

06 [ ] 65 YEARS OLD OR OLDER

4e) How many times have you used a sunlamp in your life?

|___|___| SUNLAMP

98 [ ] DK

4f) IF DK EXACT NUMBER, SAY: About how times? PROBE FOR CATEGORY.

1 [ ] 1 OR 2

2 [ ] 3 OR 4

3 [ ] 5-9

4 [ ] 10-19

5 [ ] 20 OR MORE

5. Have you ever used a tanning booth or tanning bed?

1 [ ] YES

2 [ ] NO (Go to 6)

5a) How old were you the first time you used a tanning booth or tanning bed?

|___|___| YEARS OLD

98 [ ] DK

5b) IF DK EXACT AGE, SAY: About how old were you? PROBE FOR CATEGORY.

01 [ ] UNDER 5 YEARS OLD

02 [ ] 5-14 YEARS OLD

03 [ ] 15-24 YEARS OLD

04 [ ] 25-39 YEARS OLD

05 [ ] 40-64 YEARS OLD

06 [ ] 65 YEARS OLD OR OLDER

5c) How old were you the last time you used a tanning booth or tanning bed?

|___|___| YEARS OLD

98 [ ] DK

5d) IF DK EXACT AGE, SAY: About how old were you? PROBE FOR CATEGORY.

01 [ ] UNDER 5 YEARS OLD

02 [ ] 5-14 YEARS OLD

03 [ ] 15-24 YEARS OLD

04 [ ] 25-39 YEARS OLD

05 [ ] 40-64 YEARS OLD

06 [ ] 65 YEARS OLD OR OLDER

5e) How many times have you used a tanning booth or tanning bed in your life?

|___|___| TANNING BOOTH/BED USES

98 [ ] DK

5f) IF DK EXACT NUMBER, SAY: About how times? PROBE FOR CATEGORY.

1 [ ] 1 OR 2

2 [ ] 3 OR 4

3 [ ] 5-9

4 [ ] 10-19

5 [ ] 20 OR MORE

Please answer the following questions about your exposure to the sun at different periods of your life. When we refer to "midday sun," it means those hours when the sun is more than halfway up in the sky. For most of the United States, that would be between the hours of 10 AM and 4PM Daylight Savings Time.

AGE GROUPS

6. On a typical weekday in the summer, about how many hours did you generally spend in the midday sun [(when you were) (AGE GROUP)]?

7. On a typical weekend day in the summer, about how many hours did you generally spend in the midday sun [(when you were) (AGE GROUP)]?

8. (When you were) (AGE GROUP), [for how many months a year did you usually have a tan]?

a) In your teens

[ ] 1 LESS THAN 1 HOUR

[ ] 2 1 OR 2 HOURS

[ ] 3 3 OR 4 HOURS

[ ] 4 5 OR 6 HOURS

[ ] 1 LESS THAN 1 HOUR

[ ] 2 1 OR 2 HOURS

[ ] 3 3 OR 4 HOURS

[ ] 4 5 OR 6 HOURS

[ ] 1 NEVER HAD A TAN

[ ] 2 1-3 MONTHS

[ ] 3 4-6 MONTHS

[ ] 4 7-9 MONTHS

[ ] 5 10-12 MONTHS

b) In your twenties

[ ] 1 LESS THAN 1 HOUR

[ ] 2 1 OR 2 HOURS

[ ] 3 3 OR 4 HOURS

[ ] 4 5 OR 6 HOURS

[ ] 1 LESS THAN 1 HOUR

[ ] 2 1 OR 2 HOURS

[ ] 3 3 OR 4 HOURS

[ ] 4 5 OR 6 HOURS

[ ] 1 NEVER HAD A TAN

[ ] 2 1-3 MONTHS

[ ] 3 4-6 MONTHS

[ ] 4 7-9 MONTHS

[ ] 5 10-12 MONTHS

c) In your thirties

[ ] 1 LESS THAN 1 HOUR

[ ] 2 1 OR 2 HOURS

[ ] 3 3 OR 4 HOURS

[ ] 4 5 OR 6 HOURS

[ ] 1 LESS THAN 1 HOUR

[ ] 2 1 OR 2 HOURS

[ ] 3 3 OR 4 HOURS

[ ] 4 5 OR 6 HOURS

[ ] 1 NEVER HAD A TAN

[ ] 2 1-3 MONTHS

[ ] 3 4-6 MONTHS

[ ] 4 7-9 MONTHS

[ ] 5 10-12 MONTHS

d) In the past ten years

[ ] 1 LESS THAN 1 HOUR

[ ] 2 1 OR 2 HOURS

[ ] 3 3 OR 4 HOURS

[ ] 4 5 OR 6 HOURS

[ ] 1 LESS THAN 1 HOUR

[ ] 2 1 OR 2 HOURS

[ ] 3 3 OR 4 HOURS

[ ] 4 5 OR 6 HOURS

[ ] 1 NEVER HAD A TAN

[ ] 2 1-3 MONTHS

[ ] 3 4-6 MONTHS

[ ] 4 7-9 MONTHS

[ ] 5 10-12 MONTHS

Protocol Name from Source:

Non-Hodgkin’s Lymphoma Study (NHL), Sun Exposures Module

Availability:

Publicly available

Personnel and Training Required

The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.*

* There are multiple modes to administer this question (e.g., paper-and-pencil and computer-assisted interviews).

Equipment Needs

While the source instrument was developed to be administered by computer, the PhenX Working Group acknowledges that these questions can be administered in a noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer or handheld computer to administer a computer-assisted questionnaire.

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Interviewer-administered questionnaire

Life Stage:

Adult

Participants:

Age 18+

Specific Instructions:

Note: "DK" denotes "Don’t Know."

Selection Rationale

Vetted against other ultraviolet light exposure questions, this set of questions was considered more complete and included questions about skin damage from the sun, types of exposure, and length of exposure.

Language

English, Spanish

Standards
StandardNameIDSource
Common Data Elements (CDE) Person Ultraviolet Radiation Exposure Text 2954215 CDE Browser
Logical Observation Identifiers Names and Codes (LOINC) Environ exp UV light proto 62538-4 LOINC
Process and Review

The Expert Review Panel #2 (ERP 2) reviewed the measures in the Demographics, Environmental Exposures, and Social Environments domains.

Guidance from ERP 2 includes:

• Revised descriptions of the measure

Back-compatible: no changes to Data Dictionary

Previous version in Toolkit archive (link)

Source

National Institutes of Health, National Cancer Institute. (2001). Non-Hodgkin's Lymphoma Study (NHL), Sun Exposures Module. 2001 Question numbers: SE-3–SE-10 (source for questions 1–8 in Protocol Text).

General References

Gonzaga, E. R. (2009). Role of UV light in photodamage, skin aging, and skin cancer: Importance of photoprotection. American Journal of Clinical Dermatology, 10, 19-24.

Protocol ID:

61301

Variables:
Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX061301_Blistering_Sunburn_Ever PX061301020100 Did you ever get a blistering sunburn? 4 Variable Mapping
PX061301_First_Skin_Rash_Age_Estimate PX061301030300 About how old were you? 4 Variable Mapping
PX061301_First_Skin_Rash_Age_Exact PX061301030200 How old were you the first time you got a skin rash from sun exposure? 4 Variable Mapping
PX061301_First_Skin_Rash_Age_Exact_Coded PX061301030201 How old were you the first time you got a skin rash from sun exposure? 4 N/A
PX061301_First_Sunburn_Age_Estimate PX061301020300 About how old were you? 4 Variable Mapping
PX061301_First_Sunburn_Age_Exact PX061301020200 How old were you the first time you got a blistering sunburn? 4 Variable Mapping
PX061301_First_Sunburn_Age_Exact_Coded PX061301020201 How old were you the first time you got a blistering sunburn? 4 N/A
PX061301_First_Sunlamp_Age_Estimate PX061301040300 About how old were you? 4 Variable Mapping
PX061301_First_Sunlamp_Age_Exact PX061301040200 How old were you the first time you used a sunlamp? 4 Variable Mapping
PX061301_First_Sunlamp_Age_Exact_Coded PX061301040201 How old were you the first time you used a sunlamp? 4 N/A
PX061301_First_Tanning_Booth_Age_Estimate PX061301050300 About how old were you? 4 Variable Mapping
PX061301_First_Tanning_Booth_Age_Exact PX061301050200 How old were you the first time you used a tanning booth? 4 Variable Mapping
PX061301_First_Tanning_Booth_Age_Exact_Coded PX061301050201 How old were you the first time you used a tanning booth? 4 N/A
PX061301_Last_Skin_Rash_Age_Estimate PX061301030500 About how old were you? 4 Variable Mapping
PX061301_Last_Skin_Rash_Age_Exact PX061301030400 How old were you the last time you got a skin rash from sun exposure? 4 Variable Mapping
PX061301_Last_Skin_Rash_Age_Exact_Coded PX061301030401 How old were you the last time you got a skin rash from sun exposure? 4 N/A
PX061301_Last_Sunburn_Age_Estimate PX061301020500 About how old were you? 4 Variable Mapping
PX061301_Last_Sunburn_Age_Exact PX061301020400 How old were you the last time you got a blistering sunburn? 4 Variable Mapping
PX061301_Last_Sunburn_Age_Exact_Coded PX061301020401 How old were you the last time you got a blistering sunburn? 4 N/A
PX061301_Last_Sunlamp_Age_Estimate PX061301040500 About how old were you? 4 Variable Mapping
PX061301_Last_Sunlamp_Age_Exact PX061301040400 How old were you the last time you used a sunlamp? 4 Variable Mapping
PX061301_Last_Sunlamp_Age_Exact_Coded PX061301040401 How old were you the last time you used a sunlamp? 4 N/A
PX061301_Last_Tanning_Booth_Age_Estimate PX061301050500 About how old were you? 4 Variable Mapping
PX061301_Last_Tanning_Booth_Age_Exact PX061301050400 How old were you the last time you used a tanning booth? 4 Variable Mapping
PX061301_Last_Tanning_Booth_Age_Exact_Coded PX061301050401 How old were you the last time you used a tanning booth? 4 N/A
PX061301_Skin_Rash_Ever PX061301030100 Did you ever get a skin rash from sun exposure? 4 Variable Mapping
PX061301_Skin_Rash_Times_Estimate PX061301030700 About how many? 4 Variable Mapping
PX061301_Skin_Rash_Times_Exact PX061301030600 How many times you have gotten a skin rash from sun exposure in your life? 4 Variable Mapping
PX061301_Skin_Rash_Times_Exact_Coded PX061301030601 How many times you have gotten a skin rash from sun exposure in your life? 4 N/A
PX061301_Skin_Reaction PX061301010000 If you spent an hour in the mid-day sun for the first time without sunscreen, which of these reactions best describes what would happen to your skin: 4 Variable Mapping
PX061301_Sunburn_Times_Estimate PX061301020700 About how many? 4 Variable Mapping
PX061301_Sunburn_Times_Exact PX061301020600 How many blistering sunburns have you gotten in your life? 4 Variable Mapping
PX061301_Sunburn_Times_Exact_Coded PX061301020601 How many blistering sunburns have you gotten in your life? 4 N/A
PX061301_Sunlamp_Times_Estimate PX061301040700 About how many? 4 Variable Mapping
PX061301_Sunlamp_Times_Exact PX061301040600 How many times have you used a sunlamp in your life? 4 Variable Mapping
PX061301_Sunlamp_Times_Exact_Coded PX061301040601 How many times have you used a sunlamp in your life? 4 N/A
PX061301_Tanning_Booth_Ever PX061301050100 Have you ever used a tanning booth? 4 Variable Mapping
PX061301_Tanning_Booth_Times_Estimate PX061301050700 About how many? 4 Variable Mapping
PX061301_Tanning_Booth_Times_Exact PX061301050600 How many times have you used a tanning booth in your life? 4 Variable Mapping
PX061301_Tanning_Booth_Times_Exact_Coded PX061301050601 How many times have you used a tanning booth in your life? 4 N/A
PX061301_Tan_Months_Last_Decade PX061301080400 In the past ten years, for how many months a year did you usually have a tan? 4 Variable Mapping
PX061301_Tan_Months_Teens PX061301080100 When you were In your teens, for how many months a year did you usually have a tan? 4 Variable Mapping
PX061301_Tan_Months_Thirties PX061301080300 When you were In your thirties, for how many months a year did you usually have a tan? 4 Variable Mapping
PX061301_Tan_Months_Twenties PX061301080200 When you were In your twenties, for how many months a year did you usually have a tan? 4 Variable Mapping
PX061301_Use_Sunlamp_Ever PX061301040100 Have you ever used a sunlamp? 4 Variable Mapping
PX061301_Weekday_Sun_Hours_Last_Decade PX061301060400 On a typical weekday in the summer, about how many hours did you generally spend in the mid-day sun in the past ten years? 4 Variable Mapping
PX061301_Weekday_Sun_Hours_Teens PX061301060100 On a typical weekday in the summer, about how many hours did you generally spend in the mid-day sun (when you were) In your teens? 4 Variable Mapping
PX061301_Weekday_Sun_Hours_Thirties PX061301060300 On a typical weekday in the summer, about how many hours did you generally spend in the mid-day sun (when you were) In your thirties? 4 Variable Mapping
PX061301_Weekday_Sun_Hours_Twenties PX061301060200 On a typical weekday in the summer, about how many hours did you generally spend in the mid-day sun (when you were) In your twenties? 4 Variable Mapping
PX061301_Weekend_Sun_Hours_Last_Decade PX061301070400 On a typical weekend day in the summer, about how many hours did you generally spend in the mid-day sun in the past ten years? 4 Variable Mapping
PX061301_Weekend_Sun_Hours_Teens PX061301070100 On a typical weekend day in the summer, about how many hours did you generally spend in the mid-day sun (when you were) In your teens? 4 Variable Mapping
PX061301_Weekend_Sun_Hours_Thirties PX061301070300 On a typical weekend day in the summer, about how many hours did you generally spend in the mid-day sun (when you were) In your thirties? 4 Variable Mapping
PX061301_Weekend_Sun_Hours_Twenties PX061301070200 On a typical weekend day in the summer, about how many hours did you generally spend in the mid-day sun (when you were) In your twenties? 4 Variable Mapping
Research Domain Information
Measure Name:

Ultraviolet Light Exposure

Release Date:

May 31, 2016

Definition

Questions about the respondent’s exposure to the sun, use of tanning booths and sunlamps, and time spent outdoors.

Purpose

Ultraviolet light is damaging to the skin; without proper protection, a person may experience photosensitivity, skin aging, and skin cancer.

Keywords

Environmental exposures, ultraviolent light, UV, sunburn, skin cancer, tanning booth, tanning bed, Non-Hodgkin’s Lymphoma Study, NHL, Sun Exposures Module