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PhenX Toolkit Use Statistics (cumulative through September 2024)

The PhenX Toolkit offers well-established, broadly validated measures of phenotypes and exposures relevant to investigators in human genomics, epidemiology, and biomedical research. The measures in the Toolkit are selected by Working Groups of domain experts using a consensus process. The Toolkit provides detailed protocols, information about the measures, and tools to help investigators incorporate PhenX measures into their studies. Inclusion of PhenX measures facilitates cross-study analysis downstream, thus increasing the scientific impact of each individual study.

  • Number of Registered Users: 5,429
  • Number of Visits: 2,137,695
  • Number of PhenX Protocols: 985
  • Number of PhenX Domains: 30
  • Report Downloads: 10,482
  • Number of protocols imported to REDCap: 545

Top 10 Protocols and Domains/Collections

Protocols
  1. Current Employment Status
  2. Annual Family Income
  3. Educational Attainment - Individual
  4. Ethnicity and Race
  5. Gender Identity
  6. Current Age
  7. Current Marital Status
  8. Health Insurance Coverage
  9. Birthplace
  10. Access to Health Services
Domains/Collections
  1. Substance Abuse and Addiction
  2. Mental Health Research
  3. Sickle Cell Disease
  4. Tobacco Regulatory Research
  5. Demographics
  6. COVID-19 Research
  7. Social Determinants of Health
  8. Hemophilia Inhibitor Research
  9. Alcohol, Tobacco and Other Substances
  10. Social Environments

Rankings based on additions to My Toolkit from July 1, 2024 to September 30, 2024.