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PhenX Toolkit Use Statistics (cumulative through September 2026)

The PhenX Toolkit offers well-established, broadly validated measures of phenotypes and exposures relevant to investigators in human genomics, epidemiology, and biomedical research. The measures in the Toolkit are selected by Working Groups of domain experts using a consensus process. The Toolkit provides detailed protocols, information about the measures, and tools to help investigators incorporate PhenX measures into their studies. Inclusion of PhenX measures facilitates cross-study analysis downstream, thus increasing the scientific impact of each individual study.

  • Number of Registered Users: 6,222
  • Number of Visits: 2,536,628
  • Number of PhenX Protocols: 1009
  • Number of PhenX Domains: 30
  • Report Downloads: 11,405
  • Number of protocols imported to REDCap: 573

Top 10 Protocols and Domains/Collections

Protocols
  1. Current Employment Status
  2. Educational Attainment - Individual
  3. Annual Household Family Income and Number of People Supported
  4. Current Marital Status
  5. Ethnicity and Race
  6. Current Age
  7. Food Insecurity
  8. Access to Health Services
  9. Screening and Severity of Substance Use Problems - Adults - Alcohol - Past 12 Months
  10. Health Insurance Coverage
Domains/Collections
  1. COVID-19 Research
  2. Sickle Cell Disease
  3. Substance Use, Use Disorders, and Recovery
  4. Mental Health Research
  5. Tobacco Regulatory Research
  6. Social Determinants of Health
  7. Psychiatric
  8. Anthropometrics
  9. Alcohol, Tobacco and Other Substances
  10. Demographics

Rankings based on additions to My Toolkit from July 1, 2026 to September 30, 2026.