PhenX Toolkit Release Details

May 18, 2022, Ver 41.0

Release includes: 1) Sickle Cell Disease: Pain Specialty Collection; 2) Update to Pediatric Development protocols; 3) Update to protocols from PROMIS; 4) News update

Details for this release:

Data:

Sickle Cell Disease: Pain Specialty Collection - protocols now available
Peer Relationships - Self Report, and Peer Relationships - Proxy Report - protocols now available
Updated Emotional Distress, Quality of Life - Pediatric, Quality of Life - Adult, and Cognitive Function with specific instructions from PROMIS
Spanish translation of Questionnaire on Eating and Weight Patterns - Adult protocol now available

News:

Updated Funding Opportunity Announcements (FOAs) and PhenX Toolkit Use Statistics

Resource:

Updated Publications Citing PhenX and Project Participants