Working Group Roster:

WG Members:

Robert J. Adams, MD, MS, Co-Chair Medical University of South Carolina Charleston, SC	Julie A. Panepinto, MD, MSPH, FAAP, Co-Chair Medical College of Wisconsin Milwaukee, WI
F D. Armstrong, PhD University of Miami Miami, FL	David C. Brousseau, MD, MS Medical College of Wisconsin Milwaukee, WI
Judith A. Paice, PhD, RN Northwestern University Evanston, IL	Steven Pavlakis, MD Maimonides Medical Center Brooklyn, NY
Marsha J. Treadwell, PhD Children's Hospital Oakland Research Institute Oakland, CA

Sickle Cell Disease Panel Liaison, WG Manager and WG Supervisor:

Wayne Huggins, PhD, WG Supervisor RTI International Research Triangle Park, NC	Tracey L. Grant, MS, WG Manager RTI International Statistics and Epidemiology Division Research Triangle Park, NC

Sickle Cell Disease Research and Scientific Panel (SRSP) Liaison:

James R. Eckman, MD Emory University School of Medicine Atlanta, GA	Kathryn L. Hassell, MD University of Colorado, Denver Denver, CO
Ellen M. Werner, PhD, MA National Heart, Lung, and Blood Institute (NHLBI) Blood Diseases Branch Bethesda, MD

NIH National Heart, Lung and Blood Institute Liaison:

Susan M. Czajkowski, PhD National Heart, Lung, and Blood Institute (NHLBI) Bethesda, MD	Michael M. Engelgau, MD, MS National Heart, Lung, and Blood Institute (NHLBI) Bethesda, MD
Joylene I. John-Sowah, MD, MPH National Heart, Lung, and Blood Institute (NHLBI) Bethesda, MD	Harvey Luksenburg, MD National Heart, Lung, and Blood Institute (NHLBI) Bethesda, MD
Emmanuel K. Peprah, PhD National Heart, Lung, and Blood Institute (NHLBI) Bethesda, MD

National Human Genome Research Institute (NHGRI) Liaison:

Vence L. Bonham, Jr., JD National Human Genome Research Institute (NHGRI) Bethesda, MD	Keisha Findley, PhD National Human Genome Research Institute (NHGRI) Bethesda, MD

National Cancer Institute (NCI) Liaison:

Denise Stredrick, PhD National Cancer Institute (NCI) Rockville, MD

National Institute of Arthritis and Musculoskeletal and Skin Diseases Liaison:

Phil Tonkins Jr., DrPH National Heart, Lung, and Blood Institute (NHLBI) Bethesda, MD	James Witter, Md, PhD, FACR National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) Bethesda, MD

Eunice Kennedy Shriver National Institute of Child Health and Human Development Liaison:

Tina Urv, PhD Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) Rockville, MD

National Institute of Diabetes and Digestive and Kidney Diseases Liaison:

Kevin Abbott, MD, MPH National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) Bethesda, MD

National Institute on Minority Health and Health Disparities Liaison:

Bridgett Rahim-Williams, PhD, MPH, MA National Institute on Minority Health and Health Disparities (NIMHD) Bethesda, MD

National Institute of Neurological Disorders and Stroke Liaison:

Joanne C. Odenkirchen, MPH National Institute of Neurological Disorders and Stroke (NINDS) Rockville, MD

National Library of Medicine Liaison:

Clement J. McDonald, MD National Library of Medicine (NLM) Bethesda, MD	Jerry Sheehan, MS, BS National Library of Medicine (NLM) Bethesda, MD

Health Resources & Services Administration Liaison:

Edward D. Ivy, MD, MPH Health Resources & Services Administration Rockville, MD

Centers for Disease Control and Prevention Liaison:

Mike Soucie, PhD Centers for Disease Control and Prevention Atlanta, GA