New COVID-19 Research Collections, click here.

COVID-19 Protocol Library

The PhenX COVID-19 library provides COVID-19 related measurement protocols (CRFs, DCFs, instruments, surveys, questionnaires) that are currently in use. We hope that investigators will consider choosing from these protocols rather than developing new ones. The source of each protocol has been verified and contact information is provided in case additional information is needed. In the future, we plan to provide data dictionaries to enhance data interoperability and to support data harmonization. Modules are subsets of full instruments. Full instrument can be found through View by Source. Please note, these protocols have not been selected via the standard PhenX consensus process and cannot be considered broadly validated; investigators are encouraged to perform validation studies.

Another important resource is the NIH Public Health Emergency and Disaster Research Response (DR2). The NIH DR2 provides a wide array of data collection tools and resources for use in public health emergencies and disasters, including the COVID-19 pandemic. To visit the NIH DR2, click here.

SEAN is a network of experts in the social, behavioral, and economic sciences poised to assist decision makers at all levels as they respond to COVID-19. To visit SEAN, click here.

View our new COVID-19 Variable Compare Tool here!

To submit a COVID-19 related instrument and study protocols for consideration, please click here.

Available COVID-19 Full Instruments (185)

Academic Network for Sexual and Reproductive Health and Rights Policy (Ghent University) Contact 1 , Contact 2	PhenX Sub-topic(s)
International Sexual Health And REproductive (I-SHARE) Health Survey during COVID-19: Study Protocol for Online National Surveys and Global Comparative Analyses	Avoidant Behaviors; Violence; Sexual Behavior

All India Institute of Medical Sciences (AIIMS) University of Southern California Contact	PhenX Sub-topic(s)
Longitudinal Aging Study in India - Diagnostic Assessment of Dementia (LASI-DAD)
COVID19-related knowledge and behaviors	Social Distancing; Hygiene; Knowledge
COVID19 and Heath care and food security	Health Care; General Symptoms; Food Security
COVID19 and Economic Effects	Economic Impact
COVID19 and Discrimination and (mis) information	Sources of information about COVID-19; Social Impact
COVID19 and Mental Health, coping and wellbeing	General Mental Health; Overall Impact

American Society for Health Care Engineering (ASHE) ASHE Contact	PhenX Sub-topic(s)
COVID Response Tactics Sharing - Healthcare Engineering	Health Care; Critical Care Facilities; Employer Policies

The Center for AIDS Research Network of Integrated Clinical Systems (CFAR-CNIS) CFAR-CNIS Contact	PhenX Sub-topic(s)
COVID-19 Impacts on HIV Care	Substance Use; Overall Impact; HIV

Center for Dissemination and Implementation Science, University of Illinois at Chicago Contact	PhenX Sub-topic(s)
COVID-19 Experiences among South African Adolescent Girls and their Mothers
Mental Health	General Mental Health
Personal and Family Impacts	Family Impact
Risk-Reduction Behaviors	Substance Use; Sexual Behavior; Housing Security

Center for Economic and Social Research (CESR) CESR Contact	PhenX Sub-topic(s)
Coronavirus Tracking Survey of the Understanding America Survey (UAS)
COVID-19 Symptoms, Status, and Healthcare	General Symptoms; Status; Health Care
COVID-19 Knowledge, Attitudes, and Avoidant Behaviors	Knowledge; Attitudes; Avoidant Behaviors
Mental Health and Substance Use	General Mental Health; Substance Use
Labor Market Outcomes	Labor Market
Economic Insecurity	Economic Insecurity
Educational Impact Due to COVID-19	K-12 Education Impact

Center for Pediatric Traumatic Stress (CPTS) CPTS Contact 1 , CPTS Contact 2	PhenX Sub-topic(s)
COVID-19 Exposure and Family Impact Survey (CEFIS)
Family Exposure items	Overall Impact
Family Impact items	Family Impact
COVID-19 Exposure and Family Impact Survey (CEFIS) - Adolescent/Young Adult
Family Exposure items - Adolescent/Young Adult	Overall Impact
Family Impact items - Adolescent/Young Adult	Family Impact
COVID-19 Exposure and Family Impact Survey (CEFIS) (Spanish)
Family Exposure items (Spanish)	Overall Impact
Family Impact items (Spanish)	Family Impact
COVID-19 Exposure and Family Impact Survey (CEFIS) - Adolescent/Young Adult (Spanish)
Family Exposure items - Adolescent/Young Adult (Spanish)	Overall Impact
Family Impact items - Adolescent/Young Adult (Spanish)	Family Impact

Centers for Disease Control and Prevention (CDC) CDC Contact	PhenX Sub-topic(s)
CDC Novel Coronavirus Case Report Form	General Symptoms; Diagnosis; Foreign Travel
CDC COVID-19 Community Survey Question Bank (Draft)
Useful Demographic Covariates	Employment; Chronic Health Conditions; Personal Demographics
Epidemiology Questions	General Symptoms; Health Care; Diagnosis
Community Interventions Questions	Attitudes; Avoidant Behaviors; Hygiene
At-Risk Populations questions	Economic Insecurity; Social Distancing; Family Impact
Questions that are useful but are lower priority	Knowledge; Attitudes
COVID-19 Case Report Form	General Symptoms; Diagnosis; Foreign Travel

Chronic Obstructive Pulmonary Disease Gene Study (COPDGene) COPDGene Contact 1 , COPDGene Contact 2	PhenX Sub-topic(s)
COPD Gene COVID-19 Survey	General Symptoms; Diagnosis

Collaborative Cohort of Cohorts for COVID-19 Research (C4R) C4R Contact	PhenX Sub-topic(s)
C4R COVID-19 Questionnaire
COVID-19 Health and Exposure Status	Diagnosis; Recovery; Treatment
COVID-19 in Your Community and Social Network	Social Impact
COVID-19 Vaccine Attitudes and Beliefs	Attitudes
COVID-19 Pandemic Impact on Healthcare and Finances	Health Care; Economic Impact
COVID-19 Pandemic Impact on Behavior	Avoidant Behaviors; Substance Use; Sleep Changes
COVID-19 Pandemic Impact on Social Interactions	Social Impact; Personal Demographics
COVID-19 Pandemic Impact on Mood	General Mental Health; Social Impact; Stress
COVID-19 Beliefs and Attitudes	Attitudes

Columbia University Irving Medical Center (CUMC) CUMC Contact	PhenX Sub-topic(s)
COVID-19 Healthcare Personnel Study (CHPS)	Health Care; Exposure; Personal Demographics

Complementary and Integrative Research (CAIR) CAIR Contact	PhenX Sub-topic(s)
Complementary and Integrative Research (CAIR) Pandemic Impact Questionnaire (PIQ)
COVID-19 Health and Negative Behavioral Impacts	General Symptoms; Health Care; Economic Insecurity
COVID-19 Mental Health Impacts	General Mental Health; Sleep Changes
COVID-19 Positive Impacts	Positive Impacts

Cornell University Contact	PhenX Sub-topic(s)
Telling our stories in the age of COVID-19 (TOSC)
COVID-19 Situational and Contextual Factors	Employment; Locational Demographics; Personal Demographics
COVID-19 Regional Restriction Status	Government Response
COVID-19 Concerns About Health, Finances, and Overall Impact	Health Care; Economic Insecurity
COVID-19 Health Status	Status; Diagnosis
COVID-19 Impact	Overall Impact

The Coronavirus Anxiety Project Contact	PhenX Sub-topic(s)
Coronavirus Anxiety Scale (CAS)	General Mental Health
Obsession with COVID-19 Scale (OCS)	General Mental Health

Coronavirus Health Impact Survey (CRISIS) CRISIS Contact	PhenX Sub-topic(s)
CRISIS Surveys: Adult Self-Report Baseline Current Form
CRISIS Baseline Current Form- Background	Locational Demographics; Health Care; Personal Demographics
Coronavirus/COVID-19 Health/Exposure Status	General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis	Life Changes
Daily Behaviors During COVID-19	Sleep Changes; Physical Activity
Emotions/Worries During COVID-19	General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19	Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19	Substance Use
CRISIS Surveys: Youth Self-Report Baseline Current Form
CRISIS Baseline Current Form- Background	Locational Demographics; Health Care; Personal Demographics
Coronavirus/COVID-19 Health/Exposure Status	General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis	Life Changes
Daily Behaviors During COVID-19	Sleep Changes; Physical Activity
Emotions/Worries During COVID-19	General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19	Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19	Substance Use
CRISIS Surveys: Parent/Caregiver Self-Report Baseline Current Form
CRISIS Baseline Current Form- Background	Locational Demographics; Health Care; Personal Demographics
Coronavirus/COVID-19 Health/Exposure Status	General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis	Life Changes
Daily Behaviors During COVID-19	Sleep Changes; Physical Activity
Emotions/Worries During COVID-19	General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19	Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19	Substance Use
CRISIS Surveys: Adult Self-Report Follow-up Current Form
Coronavirus/COVID-19 Health/Exposure Status	General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis	Life Changes
Daily Behaviors During COVID-19	Sleep Changes; Physical Activity
Emotions/Worries During COVID-19	General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19	Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19	Substance Use
CRISIS Surveys: Youth Self-Report Follow-up Current Form
Coronavirus/COVID-19 Health/Exposure Status	General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis	Life Changes
Daily Behaviors During COVID-19	Sleep Changes; Physical Activity
Emotions/Worries During COVID-19	General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19	Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19	Substance Use
CRISIS Surveys: Parent/Caregiver Self-Report Follow-up Current Form
Coronavirus/COVID-19 Health/Exposure Status	General Symptoms; Diagnosis; General Mental Health
Life Changes Due to Coronavirus/COVID-19 Crisis	Life Changes
Daily Behaviors During COVID-19	Sleep Changes; Physical Activity
Emotions/Worries During COVID-19	General Mental Health
Media Use (e.g., mobile devices, media, etc.) During COVID-19	Media Use
Substance Use (e.g., tobacco, alcohol, other drugs) During COVID-19	Substance Use

Coronavirus Impact Scale Contact 1 , Contact 2	PhenX Sub-topic(s)
Coronavirus Impact Scale	Overall Impact

COVID-19 and Perinatal Experiences Study Contact	PhenX Sub-topic(s)
Coronavirus Perinatal Experiences Impact Survey (COPE-IS)
Prenatal Experiences of COVID-19	Current Pregnancy; Health Care
Perinatal Experiences of COVID-19	Past Pregnancy; Health Care
Exposures and Symptoms	General Symptoms; Diagnosis; General Mental Health
Financial Impacts	Employment; Economic Insecurity
Social Support Impacts	Social Impact
Social Distancing and Restricted Activities	Social Distancing; Home Life
Coping and Adjustment	General Mental Health; Substance Use; Dietary Intake
Emotional Impact	Stress; Sleep Changes; Daily Impact
Health Background, Mental Health, and Substance Use	Health History; Substance Use
Demographics	Locational Demographics; Personal Demographics
COVID-19 - Coronavirus Perinatal Experience - Impact Update
Exposures and Symptoms	General Symptoms; Exposure
Adjustments	Daily Life; Stress; Overall Impact

COVID-19 Prevention Netwrok Statistical and Data Management Center (CoVPN) CoVPN Contact	PhenX Sub-topic(s)
Prospective Study of Acute Immune Responses to SARS COV-2 Infection
Concomitant Medications	Treatment; Health History
COVID-19 Symptoms - Enrollment	General Symptoms; Participant Enrollment
COVID-19 Hospitalization	Critical Care Participants; Health Care; Treatment
Demographics	Personal Demographics; Locational Demographics
Dietary Information	Dietary Intake
Health Contact	General Symptoms; Treatment
Hematology	Diagnosis
Informed Consent	Participant Intake; Participant Enrollment
Interim Visit	Participant Follow-Up
Medical History	Health History; Chronic Health Conditions
Participant Receipt	Community Access
Participant Transfer	Participant Enrollment
Pregnancy Test Results	Participant Enrollment
SARS-CoV-2 Exposure	Current Pregnancy
SARS-CoV-2 Test Results	Exposure
Screening Outcome	Diagnosis
Specimen Collection - Blood	Participant Enrollment
Specimen Collection - Nasal Wash	Diagnosis
Specimen Collection - NP/Nasal Swab	Diagnosis
Specimen Collection - Saliva	Diagnosis
Specimen Collection - Stool	Diagnosis
Study Termination	Diagnosis

Division of Pulmonary and Critical Care Medicine University of California San Francisco San Francisco General Hospital Contact 1 , Contact 2	PhenX Sub-topic(s)
COVID-19 Questionnaire on Impact of and Barriers to Stay at Home, Self-Isolation, and Quarantine for Vulnerable Populations
Demographic	Personal Demographics
Health Literacy	Health Literacy
Perceived Stress Scale (Adult)	Stress
Perceived Stress Scale (Child	Stress
Health Risk Belief	Knowledge; Attitudes
Access To Covid19 Care And Care For Chronic Conditions	Knowledge; Telehealth; Technology Use
Covid19 Impact And Barriers To Self-Isolation	Sources of information about COVID-19; Overall Impact
Determining Economic Burden related to COVID-19 and COVID-19-like symptoms
Socioeconomic Status	Education; Employment; Home Life
Ahcm Screening Tool	Overall Impact; Fear of Violence; Housing Security
Costs associated with care-seeking for COVID19 related symptoms and COVID19 diagnosis	Economic Impact; Health Care
Income Changes	Employment; Economic Insecurity
Costs and Socioeconomic Consequences of Self-isolation and Quarantine for COVID-19 on Vulnerable Populations
Costs Associated with Social Distancing, Quarantine, and “Shelter-in-Place” Orders	Economic Insecurity; Economic Impact
Income Changes because of Social Distancing, Quarantine, or Shelter-in-Place Orders	Economic Impact
Accommodations for Employment	Economic Insecurity; Employment
Changes in Food Security	Food Security

Duke University Contact	PhenX Sub-topic(s)
RADx-UP Common Data Elements
First Session	Treatment
Consent	Consent
Second Session	COVID-19 Vaccination
Location	Locational Demographics
Sociodemographics	Current Pregnancy; Education; Personal Demographics
Housing Employment And Insurance	Economic Insecurity; Employment; Insurance
Work Ppe And Distancing	Social Distancing; Hygiene; Personal Protective Equipment
Medical History	Chronic Health Conditions
Health Status	Health History
Vaccine Acceptance	Vaccinations
Testing	Diagnosis
Covid Test	Diagnosis
Symptoms	General Symptoms
Alcohol And Tobacco	Substance Use
Identity	Locational Demographics; Personal Demographics
Tier2 Sociodemographics	Personal Demographics
Tier2 Medical History	Health Care
Tier2 Vaccine Acceptance	Vaccinations
Tier2 Testing	Knowledge; Perceived Threat
Tier2 Medications	Non-COVID-19 Symptoms and Medicines
Tier2 Alcohol And Tobacco	Substance Use
Tier2 Drug Use	Substance Use
Tier2 Disability	General Mental Health; Chronic Health Conditions
Tier2 Food Insecurity	Food Security; Dietary Intake; Economic Impact
Tier2 Housing	Housing Security
Tier2 Trust	Attitudes; Sources of information about COVID-19
Tier2 Ssn And Mrn	Personal Demographics
RADx-UP Common Data Elements (Spanish)
Consent (Spanish)	Consent
Location (Spanish)	Locational Demographics
Sociodemographics (Spanish)	Current Pregnancy; Education; Personal Demographics
Housing Employment And Insurance (Spanish)	Economic Insecurity; Employment; Insurance
Work Ppe And Distancing (Spanish)	Social Distancing; Hygiene; Personal Protective Equipment
Medical History (Spanish)	Chronic Health Conditions
Health Status (Spanish)	Health History
Vaccine Acceptance (Spanish)	Vaccinations
Testing (Spanish)	Diagnosis
Covid Test (Spanish)	Diagnosis
Symptoms (Spanish)	General Symptoms
Alcohol And Tobacco (Spanish)	Substance Use
Identity (Spanish)	Locational Demographics; Personal Demographics
Tier2 Sociodemographics (Spanish)	Personal Demographics
Tier2 Medical History (Spanish)	Health Care
Tier2 Vaccine Acceptance (Spanish)	Vaccinations
Tier2 Testing (Spanish)	Knowledge; Perceived Threat
Tier2 Medications (Spanish)	Non-COVID-19 Symptoms and Medicines
Tier2 Alcohol And Tobacco (Spanish)	Substance Use
Tier2 Drug Use (Spanish)	Substance Use
Tier2 Disability (Spanish)	General Mental Health; Chronic Health Conditions
Tier2 Food Insecurity (Spanish)	Food Security; Dietary Intake; Economic Impact
Tier2 Housing (Spanish)	Housing Security
Tier2 Trust (Spanish)	Attitudes; Sources of information about COVID-19
Tier2 Ssn And Mrn (Spanish)	Personal Demographics

The Earth Institute at Columbia Climate School Contact	PhenX Sub-topic(s)
COVID-19 and Extreme Heat Survey	Personal Demographics; Housing Security; Locational Demographics

Environmental influences on Child Health Outcomes (ECHO) ECHO Contact	PhenX Sub-topic(s)
COVID-19 Questionnaire - Adult Primary Version
COVID-19 Infection - Adult Primary Version	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Adult Primary Version	Social Impact; Employment; General Mental Health
Effects of COVID-19 Outbreak on Pregnancy - Current - Adult Primary Version	Current Pregnancy; Health Care
Effects of COVID-19 Outbreak on Pregnancy - Recall - Adult Primary Version	Past Pregnancy; Health Care
COVID-19 Questionnaire - Adult Alternate Version
COVID-19 Infection - Adult Alternate Version	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Adult Alternate Version	Social Impact; Employment; General Mental Health
Effects of COVID-19 Outbreak on Pregnancy - Current - Adult Alternate Version	Current Pregnancy; Health Care
Effects of COVID-19 Outbreak on Pregnancy - Recall - Adult Alternate Version	Past Pregnancy; Health Care
COVID-19 Questionnaire - Child Parent-Report Version
COVID-19 Infection - Child Parent-Report Version	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak on the Child Enrolled in ECHO	Social Impact; Past Pregnancy
COVID-19 Questionnaire - Child Self-Report Primary Version
COVID-19 Infection - Child Self-Report - Primary Version	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Child Self-Report - Primary Version	Social Impact; Past Pregnancy; General Mental Health
COVID-19 Questionnaire - Child Self-Report Alternate Version
COVID-19 Infection - Child Self-Report - Alternate Version	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Child Self-Report - Alternate Version	Social Impact; Past Pregnancy
COVID-19 Questionnaire - Adult Primary Version (Spanish)
COVID-19 Infection - Adult Primary Version (Spanish)	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Adult Primary Version (Spanish)	Social Impact; Employment; General Mental Health
Effects of COVID-19 Outbreak on Pregnancy - Current - Adult Primary Version (Spanish)	Current Pregnancy; Health Care
Effects of COVID-19 Outbreak on Pregnancy - Recall - Adult Primary Version (Spanish)	Past Pregnancy; Health Care
COVID-19 Questionnaire - Adult Alternate Version (Spanish)
COVID-19 Infection - Adult Alternate Version (Spanish)	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Adult Alternate Version (Spanish)	Social Impact; Employment; General Mental Health
Effects of COVID-19 Outbreak on Pregnancy - Current - Adult Alternate Version (Spanish)	Current Pregnancy; Health Care
Effects of COVID-19 Outbreak on Pregnancy - Recall - Adult Alternate Version (Spanish)	Past Pregnancy; Health Care
COVID-19 Questionnaire - Child Parent-Report Version (Spanish)
COVID-19 Infection - Child Parent-Report Version (Spanish)	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak on the Child Enrolled in ECHO (Spanish)	Social Impact; Past Pregnancy
COVID-19 Questionnaire - Child Self-Report Primary Version (Spanish)
COVID-19 Infection - Child Self-Report - Primary Version (Spanish)	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Child Self-Report - Primary Version (Spanish)	Social Impact; Past Pregnancy; General Mental Health
COVID-19 Questionnaire - Child Self-Report Alternate Version (Spanish)
COVID-19 Infection - Child Self-Report - Alternate Version (Spanish)	General Symptoms; Diagnosis
Effects of COVID-19 Outbreak - Child Self-Report - Alternate Version (Spanish)	Social Impact; Past Pregnancy

Fordham University's Center for Ethics Education and Applied Developmental Psychology Program Contact 1 , Contact 2	PhenX Sub-topic(s)
Coronavirus Racial Bias Scale (CRBS)	General Mental Health; Racial/Ethnic Disparities; Daily Impact
Coronavirus Victimization Distress Scale (CVDS)	Social Impact; Cyber-harassment

George Washington University (GWU) GWU Contact	PhenX Sub-topic(s)
ENhancing Assessment of Common Therapeutic Factors ENACT) Tool	General Mental Health; Social Impact; Daily Life

Global Consortium for Chemosensory Research (GCCR) GCCR Contact	PhenX Sub-topic(s)
Global Consortium for Chemosensory Research COVID-19 Survey
COVID-19 Diagnosis as it May Relate to Sense of Smell	Diagnosis; Sense of Smell
COVID-19 Diagnosis as it May Relate to Sense of Taste	Diagnosis; Sense of Taste
COVID-19 Recovery on the Experience of Smell and Taste	Recovery; Sense of Smell; Sense of Taste

Harvard T.H. Chan School of Public Health Contact 1 , Contact 2	PhenX Sub-topic(s)
Social Risk Factors for COVID-19 Exposure Questionnaire
Perceptions	Exposure
Demographics	Personal Demographics
Education and Income	Personal Demographics; Health Care
Diagnosis, Status, Treatment, Recovery	Diagnosis; Status
Personal and Family Impacts	Home Life; Family Impact
Risk Reduction Behaviors	Employment; Transportation; Personal Protective Equipment
Work and Employment – Employer Policies, Perceptions, Supports	Employer Policies

Harvard University Contact	PhenX Sub-topic(s)
HAALSI COVID Survey	Overall Impact; Social Impact; Government Response

HERO Contact	PhenX Sub-topic(s)
HERO Protective Equipment Survey	Personal Protective Equipment
HERO Daily Experience Index	General Mental Health

HIV Vaccine Trial Network Statistical and Data Management Center (HVTN) HVTN Contact	PhenX Sub-topic(s)
Characterizing SARS-CoV-2 Specific Immunity in Convalescent Individuals
Concomitant Medications	Treatment
COVID-19 Symptoms	General Symptoms
COVID-19 Treatment and Hospitalization	Diagnosis; Treatment
Demographics	Locational Demographics; Personal Demographics
Interim Visit	Participant Follow-Up
Medical History	Health History; Chronic Health Conditions
Nasal Specimen for Antibodies	Diagnosis
Nasal Specimen for SARS-CoV-2 PCR	Diagnosis
Participant Receipt	Participant Intake; Participant Enrollment
Participant Transfer	Participant Intake; Participant Enrollment
SARS-CoV-2 Exposure	Diagnosis; Exposure
SARS-CoV-2 Test Results	Diagnosis
Screening Outcome	Status; Outcomes; Participant Enrollment
Specimen Collection - Blood	Diagnosis
Study Termination	Participant Enrollment

Imperial College London Contact	PhenX Sub-topic(s)
Online Community Involvement in COVID-19 Research and Outbreak Response: Early Insights from a UK Perspective: Report 14	Attitudes; Avoidant Behaviors; Sources of information about COVID-19

Institute for Clinical and Translational Science at University of Iowa Contact	PhenX Sub-topic(s)
COVID-19 Evaluation of Risk in Emergency Departments
Participant Interest Screening Form	Participant Intake
Participant Enrollment/Baseline Form	Participant Enrollment
Facility Baseline Form	Critical Care Facilities
Participant Weekly Survey	Participant Weekly Survey
Facility Weekly Survey	Facility Weekly Survey
Participant Endotracheal Intubation/Cardiac Arrest Event Form	Critical Care Participants
Facility Endotracheal Intubation/Cardiac Arrest Event Form	Critical Care Facilities
Participant Post-Serology Follow-Up Form (Week 4)	Participant Follow-Up
Facility Organizational Factors Post-Serology Form (Week 4)	Facility Follow-Up
Participant 6-Month Follow-Up Form	Participant Follow-Up
Facility 6-Month Follow-Up Form	Facility Follow-Up
Participant Baseline Positive-Test Follow-Up Form	Participant Follow-Up

International Academies of Emergency Dispatch (IAED) IAED Contact	PhenX Sub-topic(s)
Emerging Infectious Disease Surveillance Tool (2019-Novel Coronavirus)	General Symptoms; Domestic Travel; Foreign Travel

International Severe Acute Respiratory and emerging Infection Consortium (ISARIC) ISARIC Contact	PhenX Sub-topic(s)
ISARIC Global COVID-19 Case Report Form (CRF) Survey
Presentation/Admission Case Report Form	General Symptoms; Chronic Health Conditions; Personal Demographics
Case Report Form on Admission, Critical Care, Research Sampling	General Symptoms; Treatment; Critical Care Participants
Outcome Case Report Form	Diagnosis; Treatment; Outcomes
ISARIC Global COVID-19 Follow Up Study Protocol	General Symptoms; Outcomes; Quality of Life
ISARIC/WHO Clinical Characterisation Protocol for Severe Emerging Infections	General Symptoms; Treatment; Outcomes

International Sexual Health And REproductive Health Survey during COVID-19 (I-SHARE) I-SHARE Contact 1 , I-SHARE Contact 2	PhenX Sub-topic(s)
I-SHARE Health Survey during COVID-19
Socio-demographics	Locational Demographics; Personal Demographics
Compliance with social distancing measures	Social Distancing; Economic Impact; Substance Use
Couple and family relationships	Family Impact
Sexual behavior	Sexual Behavior
Access to contraceptives	Pregnancy History; Contraceptives; Health Care
Access to reproductive health care	Current Pregnancy; Health Care
Abortion	Abortion; Health Care
Sexual and gender based violence	Violence; Partner Dynamics
Female genital mutilation/early or forced marriage	Early Marriage; Female Circumcision
HIV/STI	HIV
Mental health	General Mental Health
Nutrition	Food Security

Johns Hopkins Bloomberg School of Public Health Contact	PhenX Sub-topic(s)
Johns Hopkins COVID Long Study	General Symptoms; Treatment; General Mental Health

Johns Hopkins University (JHU) JHU Contact	PhenX Sub-topic(s)
COVID-19 Community Response Survey
Knowledge and Attitudes Toward COVID-19	Knowledge; Perceived Threat
COVID-19 Symptoms and Testing Experience	General Symptoms; Diagnosis
Health Conditions, Medications and Health Care During COVID-19 Pandemic	Health Care; Chronic Health Conditions
COVID-19 and Mental Health Impacts	General Mental Health
COVID-19 Impact and Pandemic Stress	Overall Impact
COVID-19 and Social Distancing	Social Distancing; Social Impact
COVID-19 and Violence and Trauma	Violence; Fear of Violence
COVID-19 and Substance Use	Substance Use
COVID-19 and Sexual Behavior	Sexual Behavior

Johns Hopkins University, Bloomberg School of Public Health (JHU) JHU Contact 1 , JHU Contact 2	PhenX Sub-topic(s)
National Health and Aging Trends Study (NHATS) COVID-19 Questionnaires
Participant info	Participant Intake
Symptoms of COVID-19	General Symptoms; Diagnosis
Before and During the Outbreak	Avoidant Behaviors; Social Distancing
Assisted, independent and nursing facilities	Daily Life; Exposure; Critical Care Facilities
Changes in living situation	Home Life; Housing Security
Changes in contact with family and friends	Family Impact; Social Impact
Changes in other activities	Family Impact; Daily Impact; Daily Life
Changes in Health Care	Health Care
Changes in Finance	Economic Insecurity
Changes in Well-being	General Mental Health; Quality of Life
Changes in Daily Activities	Daily Impact; Daily Life; Quality of Life

Kaiser Family Foundation (KFF) KFF Contact	PhenX Sub-topic(s)
Impact of Coronavirus on Life in America
Voting Influence	Health Care; Attitudes; Government Response
Coronavirus Response	Government Response
Individual Impact	Knowledge
Health Demographics	Female Circumcision
KFF COVID-19 Vaccine Monitor
Participant Demographics	Personal Demographics; Employment; Political Views
Health Care Laws	Health Care; Attitudes; Government Response
COVID Views	Attitudes; Perceived Threat
COVID-19 Vaccine Views	Attitudes; Sources of information about COVID-19; Opinion on vaccines
Health Care	Health Care; Personal impact of COVID-19
KFF/The Undefeated Survey on Race and Health
Trust in Community Services	Perceived Threat; Stress; Community Assistance
Respondent demographics	Personal Demographics
Discrimination and Disparate Health Care	Racial/Ethnic Disparities; Attitudes
COVID-19 Impact	Overall Impact; Economic Insecurity; Food Security
Vaccine Views	Attitudes; Opinion on vaccines
Health Care Treatment	Racial/Ethnic Disparities; Health Care
Treatment of African Americans	Racial/Ethnic Disparities

Kennedy Krieger Institute Contact	PhenX Sub-topic(s)
KSADS-COMP PTSD Screen items	Screen for K-SADS-COMP
KSADS-COMP PTSD Screen items - Spanish	Screen for K-SADS-COMP

London's Global University (UCL) UCL Contact	PhenX Sub-topic(s)
Online Survey on Recovery from COVID-19
Demographics	Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions	General Symptoms; Recovery; Chronic Health Conditions
Hospitalization	Health Care
COVID-19 Testing	Diagnosis
Antibody Testing	Diagnosis
Symptoms	General Symptoms; Recovery
Post-Exertional Malaise	General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale	General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances	General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning	General Symptoms; Physical Activity; Health History
Mental Health	General Mental Health; Quality of Life; Government Response
Work	Employment
Other Medical Diagnosis	Diagnosis
Diagnostics Blood Tests	Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments	Treatment; Recovery
Overall COVID Experience Text Write In	General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - Arabic
Demographics - Arabic	Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Arabic	General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - Arabic	Health Care
COVID-19 Testing - Arabic	Diagnosis
Antibody Testing - Arabic	Diagnosis
Symptoms - Arabic	General Symptoms; Recovery
Post-Exertional Malaise - Arabic	General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - Arabic	General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - Arabic	General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - Arabic	General Symptoms; Physical Activity; Health History
Mental Health - Arabic	General Mental Health; Quality of Life; Government Response
Work - Arabic	Employment
Other Medical Diagnosis - Arabic	Diagnosis
Diagnostics Blood Tests - Arabic	Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - Arabic	Treatment; Recovery
Overall COVID Experience Text Write In - Arabic	General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - Dutch
Demographics - Dutch	Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Dutch	General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - Dutch	Health Care
COVID-19 Testing - Dutch	Diagnosis
Antibody Testing - Dutch	Diagnosis
Symptoms - Dutch	General Symptoms; Recovery
Post-Exertional Malaise - Dutch	General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - Dutch	General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - Dutch	General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - Dutch	General Symptoms; Physical Activity; Health History
Mental Health - Dutch	General Mental Health; Quality of Life; Government Response
Work - Dutch	Employment
Other Medical Diagnosis - Dutch	Diagnosis
Diagnostics Blood Tests - Dutch	Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - Dutch	Treatment; Recovery
Overall COVID Experience Text Write In - Dutch	General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - French
Demographics - French	Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - French	General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - French	Health Care
COVID-19 Testing - French	Diagnosis
Antibody Testing - French	Diagnosis
Symptoms - French	General Symptoms; Recovery
Post-Exertional Malaise - French	General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - French	General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - French	General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - French	General Symptoms; Physical Activity; Health History
Mental Health - French	General Mental Health; Quality of Life; Government Response
Work - French	Employment
Other Medical Diagnosis - French	Diagnosis
Diagnostics Blood Tests - French	Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - French	Treatment; Recovery
Overall COVID Experience Text Write In - French	General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - Indonesian
Demographics - Indonesian	Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Indonesian	General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - Indonesian	Health Care
COVID-19 Testing - Indonesian	Diagnosis
Antibody Testing - Indonesian	Diagnosis
Symptoms - Indonesian	General Symptoms; Recovery
Post-Exertional Malaise - Indonesian	General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - Indonesian	General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - Indonesian	General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - Indonesian	General Symptoms; Physical Activity; Health History
Mental Health - Indonesian	General Mental Health; Quality of Life; Government Response
Work - Indonesian	Employment
Other Medical Diagnosis - Indonesian	Diagnosis
Diagnostics Blood Tests - Indonesian	Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - Indonesian	Treatment; Recovery
Overall COVID Experience Text Write In - Indonesian	General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - Italian
Demographics - Italian	Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Italian	General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - Italian	Health Care
COVID-19 Testing - Italian	Diagnosis
Antibody Testing - Italian	Diagnosis
Symptoms - Italian	General Symptoms; Recovery
Post-Exertional Malaise - Italian	General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - Italian	General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - Italian	General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - Italian	General Symptoms; Physical Activity; Health History
Mental Health - Italian	General Mental Health; Quality of Life; Government Response
Work - Italian	Employment
Other Medical Diagnosis - Italian	Diagnosis
Diagnostics Blood Tests - Italian	Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - Italian	Treatment; Recovery
Overall COVID Experience Text Write In - Italian	General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - Portuguese
Demographics - Portuguese	Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Portuguese	General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - Portuguese	Health Care
COVID-19 Testing - Portuguese	Diagnosis
Antibody Testing - Portuguese	Diagnosis
Symptoms - Portuguese	General Symptoms; Recovery
Post-Exertional Malaise - Portuguese	General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - Portuguese	General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - Portuguese	General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - Portuguese	General Symptoms; Physical Activity; Health History
Mental Health - Portuguese	General Mental Health; Quality of Life; Government Response
Work - Portuguese	Employment
Other Medical Diagnosis - Portuguese	Diagnosis
Diagnostics Blood Tests - Portuguese	Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - Portuguese	Treatment; Recovery
Overall COVID Experience Text Write In - Portuguese	General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - Russian
Demographics - Russian	Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Russian	General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - Russian	Health Care
COVID-19 Testing - Russian	Diagnosis
Antibody Testing - Russian	Diagnosis
Symptoms - Russian	General Symptoms; Recovery
Post-Exertional Malaise - Russian	General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - Russian	General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - Russian	General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - Russian	General Symptoms; Physical Activity; Health History
Mental Health - Russian	General Mental Health; Quality of Life; Government Response
Work - Russian	Employment
Other Medical Diagnosis - Russian	Diagnosis
Diagnostics Blood Tests - Russian	Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - Russian	Treatment; Recovery
Overall COVID Experience Text Write In - Russian	General Symptoms; Quality of Life; Attitudes
Online Survey on Recovery from COVID-19 - Spanish
Demographics - Spanish	Current Pregnancy; Locational Demographics; Personal Demographics
Background Section, Recovered - Total Days, Lifestyle & Pre-existing Conditions - Spanish	General Symptoms; Recovery; Chronic Health Conditions
Hospitalization - Spanish	Health Care
COVID-19 Testing - Spanish	Diagnosis
Antibody Testing - Spanish	Diagnosis
Symptoms - Spanish	General Symptoms; Recovery
Post-Exertional Malaise - Spanish	General Symptoms; Recovery; Physical Activity
Fatigue Assessment Scale - Spanish	General Symptoms; Recovery; Sleep Changes
Changes in Sensitivity to Medication or Other Substances - Spanish	General Symptoms; Non-COVID-19 Symptoms and Medicines
General Functioning - Spanish	General Symptoms; Physical Activity; Health History
Mental Health - Spanish	General Mental Health; Quality of Life; Government Response
Work - Spanish	Employment
Other Medical Diagnosis - Spanish	Diagnosis
Diagnostics Blood Tests - Spanish	Diagnosis; Non-COVID-19 Symptoms and Medicines
Treatments - Spanish	Treatment; Recovery
Overall COVID Experience Text Write In - Spanish	General Symptoms; Quality of Life; Attitudes

Massachusetts General Hospital Contact	PhenX Sub-topic(s)
COVID-19 Symptom Tracker Mobile App (CSTM)
COVID-19 Related Exposure And Use of PPE	Exposure
COVID-19 Symptoms	General Symptoms; Diagnosis; Treatment
COVID-19 Use of Personal Protective Equipment (PPE)	Personal Protective Equipment
COVID-19 Real-time Symptom Epidemiology Tracker (CORSET): Protocol	General Symptoms; Health Care; Personal Protective Equipment

Massachusetts Institute of Technology (MIT) MIT Contact 1 , MIT Contact 2	PhenX Sub-topic(s)
COVID-19 Beliefs, Behaviors & Norms Survey (KAP CoVID Study)
Information Exposure	Sources of information about COVID-19; Exposure
Knowledge and Positive Cases	Knowledge
Vaccine and Healthcare	Health Care
Demographics	Personal Demographics
Information Sources, Trust, and Need	Sources of information about COVID-19
Basic Knowledge	Knowledge
Distancing Familiarity, Importance, and Norms	Social Distancing
Risk Perceptions and Locus of Control	Diagnosis
Prevention Behaviors in Practice	Hygiene
Behavioral Measures Taken, Efficacy, & Norms	Hygiene; Daily Impact; Quality of Life
Employment and Work	Employment
Intentions to Visit Locations	Social Impact
Travel	Domestic Travel; Foreign Travel

Michigan State University Contact	PhenX Sub-topic(s)
Coping with COVID through nature: Evidence from breast cancer patients and the output from the intake form
Community Impacts	Physical Activity; Community Access
Environmental Factors	Nature Appreciation
Mental Health	General Mental Health
Cancer Impact	Non-COVID-19 Symptoms and Medicines
Personal Demographics	Personal Demographics; Health Care

Mongan Institute (Massachusetts General Hospital) (MGH) MGH Contact	PhenX Sub-topic(s)
COVID Symptom Tracker App: COPE (COronavirus Pandemic Epidemiology) Consortium IRB Tool Kit
COPE Consortium IMB Toolkit Page 37 to 38	Health Care
COPE Consortium IMB Toolkit Page 38	Health Care; Personal Protective Equipment
COPE Consortium IMB Toolkit Page 39	Personal Demographics
COPE Consortium IMB Toolkit Page 39 to 42	Health History; Life Changes
COPE Consortium IMB Toolkit Page 42 to 43	General Symptoms
COPE Consortium IMB Toolkit Page 43 to 44	Social Impact
COPE Consortium IMB Toolkit Page 45 to 46	Diagnosis
COPE Consortium IMB Toolkit Page 46 to 47	Opinion on vaccines; COVID-19 Vaccination
COPE Consortium IMB Toolkit Page 47 to 50	General Symptoms
COPE Consortium IMB Toolkit Page 50	Social Impact

Montreal Behavioural Medicine Centre (MBMC) MBMC Contact 1 , MBMC Contact 2	PhenX Sub-topic(s)
COVID-19 International Survey (CIS)
Social Distancing and Hygiene - [COVID Specific]	Social Distancing; Hygiene
Concerns of Infection - [COVID Specific]	Perceived Threat
Sources of information about COVID-19	Sources of information about COVID-19

Multi-Ethnic Study of Atherosclerosis (MESA) MESA Contact	PhenX Sub-topic(s)
MESA COVID-19 Questionnaire
COVID-19 Diagnosis, Symptoms and Recovery	Diagnosis; General Symptoms; Recovery
Non-COVID-19 Symptoms and Medicines	Non-COVID-19 Symptoms and Medicines
MESA Social Distancing and Hygiene	Social Distancing; Hygiene
MESA COVID-19 Questionnaire - Chinese
COVID-19 Diagnosis, Symptoms and Recovery - Chinese	Diagnosis; General Symptoms; Recovery
Non-COVID-19 Symptoms and Medicines - Chinese	Non-COVID-19 Symptoms and Medicines
MESA Social Distancing and Hygiene - Chinese	Social Distancing; Hygiene
MESA COVID-19 Questionnaire - Spanish
COVID-19 Diagnosis, Symptoms and Recovery - Spanish	Diagnosis; General Symptoms; Recovery
Non-COVID-19 Symptoms and Medicines - Spanish	Non-COVID-19 Symptoms and Medicines
MESA Social Distancing and Hygiene - Spanish	Social Distancing; Hygiene
MESA COVID-19 Questionnaire (Annotated)	Full Annotated Questionnaire
MESA COVID-19 Questionnaire Manual of Operations	Manual of Operations

Multicenter Aids Cohort Study Women's Interagency Hiv Study (MACS-WIHS) MACS-WIHS Contact	PhenX Sub-topic(s)
MACS-WIHS Questionnaire
COVID-19 Symptoms, Testing, and Preventive Behaviors	General Symptoms; Status; Health Care
COVID-19 Impact on Daily Life	Daily Life; Health Care
COVID-19 Psychosocial Impact	General Mental Health
MACS-WIHS Questionnaire (Spanish)
COVID-19 Symptoms, Testing, and Preventive Behaviors (Spanish)	General Symptoms; Status; Health Care
COVID-19 Impact on Daily Life (Spanish)	Daily Life; Health Care
COVID-19 Psychosocial Impact (Spanish)	General Mental Health

National Alzheimer's Coordinating Center Contact	PhenX Sub-topic(s)
COVID-19 Impact Survey
COVID-19 Impact Survey - Participant	Diagnosis; General Mental Health; Overall Impact
COVID-19 Impact Survey - Co-participant	General Mental Health; Overall Impact; Health Care
COVID-19 Technology Accessibility Survey	Telehealth; Technology Use

National Heart, Lung, and Blood Institute (National Institutes of Health) (NHLBI) NHLBI Contact	PhenX Sub-topic(s)
NHLBI-CONNECTS Common Data Elements (CDE)	General Symptoms; Diagnosis; Outcomes

National Institute of Child Health and Human Development (NICHD) NICHD Contact	PhenX Sub-topic(s)
Promoting Data Harmonization to Accelerate COVID-19 Pregnancy Research
Domain: Baseline Maternal/Pregnancy Characteristics	Current Pregnancy; Past Pregnancy; Pregnancy History
Domain: Maternal COVID-19 Treatment	Treatment
Domain: Maternal Outcomes	Birth Outcome
Domain: Obstetric/Pregnancy Outcomes	Current Pregnancy; Past Pregnancy; Pregnancy History
Domain: Neonatal Characteristics	Neonatal
Neonatal COVID-19 Testing	Neonatal
Domain: Neonatal Outcomes	Neonatal
Domain: Socioeconomic Status, Housing, and Emergent Financial Strain	Housing Security; Economic Impact
Domain: Health care access	Health Care
Domain: Impact on Parenting	K-12 Education Impact
Domain: Stressful Life Events	Stress; Daily Impact
Domain: Mental health/stress including resilience factors)	General Mental Health
Domain: Health Related Behaviors	Perceived Threat; Stress
Promoting Data Harmonization to Accelerate COVID-19 Pregnancy Research Post-Acute Sequelae of SARS-CoV-2 Infection and Vaccine Attitudes Working Group Addendum
COVID-19 Vaccination History	Health Care; Recovery; Treatment
Vaccine Attitudes	Knowledge; Attitudes
Pregnant/Postpartum	Current Pregnancy
Long COVID	Status
Menses/Menstruation Changes	Menstruation
Family Planning	Family Impact
Biospecimens Recommended Measures	Current Pregnancy
Pregnancy and Postpartum Function	Current Pregnancy; Postpartum
Infant Care Practices	Health Care; Sleep Changes
Childcare and Education	K-12 Education Impact; Household Togetherness
Attribution of Symptoms	General Symptoms; Non-COVID-19 Symptoms and Medicines
Domestic Violence	Fear of Violence; Violence
Access to Care	Current Pregnancy; Postpartum
Promoting Data Harmonization to Accelerate COVID-19 Pediatric Research
Baseline Child Health	Non-COVID-19 Symptoms and Medicines; Health History; Vaccinations
Manifestations	General Symptoms
Diagnosis, Treatment, Outcomes	Diagnosis; Treatment; Outcomes
Social Determinants of Health	Economic Insecurity; Racial/Ethnic Disparities; Personal Demographics
Educational Factors	K-12 Education Impact; Education; Child Care
Community, Family, and Peer Factors	Social Impact; Conflict; Family Impact
Social Media/Screen Time	Media Use; Technology Use
Well-being Factors	General Mental Health; Personal impact of COVID-19
Covid19 Attitudes Behaviors And Experiences	Attitudes; Exposure; Opinion on vaccines
COVID-19 Stress and Worry	Stress
Health Related Behaviors	Sleep Changes; Chronic Health Conditions
Mental And Behavioral Health	General Mental Health; Substance Use; Sleep Changes
Health Care	Health Care; Mental Health Treatment; Insurance
Demographics	Personal Demographics
Disability Functional Status	Status; Physical Activity
Baseline Child Health 2	Health History; Chronic Health Conditions

National Institute of Mental Health (NIMH) Intramural Research Program Contact	PhenX Sub-topic(s)
Psychosocial Impact of COVID-19 Survey
Psychological Impact	General Mental Health; Social Impact
Social Distancing	Social Distancing
Hopes and Dreams	General Mental Health; Attitudes
Health Concerns	General Symptoms; Diagnosis
Daily Activities	Daily Life
Daily Functioning	Daily Life

National Institutes of Health (NIH) NIH Contact	PhenX Sub-topic(s)
All of Us Covid 19 Participant Experience Survey (COPE)
COVID-19 Related Social Distancing Experiences	Social Distancing; Hygiene
COVID-19 Related Symptoms	General Symptoms
COVID-19 Related Testing	Diagnosis
COVID-19 Related Treatment	Treatment
COVID-19 Related Impact	Overall Impact; General Mental Health
All of Us Covid 19 Participant Experience Survey (COPE) (Spanish)
COVID-19 Related Social Distancing Experiences (Spanish)	Social Distancing; Hygiene
COVID-19 Related Symptoms (Spanish)	General Symptoms
COVID-19 Related Testing (Spanish)	Diagnosis
COVID-19 Related Treatment (Spanish)	Treatment
COVID-19 Related Impact (Spanish)	Overall Impact; General Mental Health

Natural Hazards Center (University of Colorado at Boulder) Contact	PhenX Sub-topic(s)
COVID-19 & Social Determinants of Health Data Collection Instrument Repository	General Mental Health; Social Impact; Food Security

New York State Psychiatric Institute Columbia University Iriving Medical Center Contact 1 , Contact 2	PhenX Sub-topic(s)
COVID-19 Experiences (COVEX)
COVID-19 Symptoms & Diagnoses	General Symptoms; Diagnosis
Vulnerability and Exposure to COVID-19	Substance Use; Exposure
Changes in Living Situation due to COVID-19	Home Life
COVID-19 Related Employment Status	Employment; Education
Worries, Mental Health Changes due to COVID-19	General Mental Health; Substance Use
Problems and Support during COVID-19 outbreak	Resources; Health Care
Coping with COVID-19	General Mental Health; Positive Impacts
Pregnancy-Related during COVID-19	Current Pregnancy; Past Pregnancy
Media Use During COVID-19	Media Use; Sources of information about COVID-19

New York University (NYU) NYU Contact	PhenX Sub-topic(s)
Novel Coronavirus (COVID) Illness
Participant info	Participant Intake; Diagnosis
COVID Testing	Diagnosis; General Symptoms
COVID Timing, Symptoms and Complications	General Symptoms
COVID Ð Becoming Ill	General Symptoms; Health Care
COVID Work Impacts	Employment
COVID Treatments	Treatment
COVID Lasting Effects	Outcomes
COVID Illness experience	Overall Impact
Current Situation	Avoidant Behaviors

NIDA-supported data sharing consortium, C3PNO Contact	PhenX Sub-topic(s)
C3PNO COVID-19 Survey
Demographics	Employment; Home Life
COVID-19 Topics	Overall Impact; General Symptoms; Diagnosis
Mental Health	General Mental Health
Healthcare and HIV	Health Care; HIV
Relationships	Sexual Behavior
Substance Use	Substance Use
Collaborating Consortium of Cohorts Producing NIDA Opportunities (C3PNO) COVID-19 Survey Protocol	Substance Use; Overall Impact; HIV

NORC at the University of Chicago (NORC) NORC Contact	PhenX Sub-topic(s)
National Social Life, Health, and Aging Project (NSHAP) COVID-19 Study
COVID-19 Experiences	Diagnosis; Outcomes
Health and Health Care	Health Care
Job and Finances	Economic Insecurity; Employment
Tangible and Emotional Support	General Mental Health; Community Access
Marital Status and Relationship Characteristics	Family Impact; Partner Dynamics
Social Activity and Engagement	Social Impact; Family Impact
Living Arrangements	Housing Changes
Household Composition and Size	Home Life
Thoughts and Feelings	General Mental Health
Social Unrest	Social Impact
Health Behaviors	Substance Use; Physical Activity; Positive Impacts

Nottingham Trent University (NTU) NTU Contact	PhenX Sub-topic(s)
Fear of COVID-19 Scale	General Mental Health

NYU Langone, Division of Environmental Pediatrics Contact	PhenX Sub-topic(s)
NYU Children's Health and Environment Study - Baseline COVID-19 Stress Questionnaire	Family Impact; Diagnosis
NYU Children's Health and Environment Study - Follow-up Covid-19 Stress Questionnaire	Family Impact; Diagnosis; Participant Follow-Up

The Ohio State University Wexner Medical Center Contact	PhenX Sub-topic(s)
Impact of COVID-19 on Behaviors across the Cancer Control Continuum in Ohio
Symptoms, diagnosis, information sources	General Symptoms; Diagnosis; Sources of information about COVID-19
Personal, family, daily life impacts	Employment; Home Life
Stress, anxiety, food or economic insecurity, sleep, mental health	General Mental Health; Economic Insecurity; Diagnosis
Social distancing behaviors	Social Distancing; Social Impact
Health, health care access during pandemic, cancer-specific questions	Health Care; Non-COVID-19 Symptoms and Medicines
Healthful behaviors including physical activity, healthy diet, alcohol and drug use	Physical Activity; Dietary Intake; Substance Use
Demographics	Personal Demographics; Locational Demographics

The Osteoporotic Fractures in Men (MROS) Study Study of Muscle, Mobility, and Aging (SOMMA) (MROS/SOMMA) MROS/SOMMA Contact	PhenX Sub-topic(s)
MROS/SOMMA COVID-19 Social Impact Questionnaire
Symptoms and Diagnosis	General Symptoms; Diagnosis
MROS/SOMMA Social Distancing and Hygiene	Social Distancing; Hygiene

Pandemic Stress Index (PSI) PSI Contact	PhenX Sub-topic(s)
COVID-19 Pandemic Stress Index (PSI)	Overall Impact

Pennington Biomedical Research Center (PBRC) PBRC Contact	PhenX Sub-topic(s)
Pennington Biomedical COVID-19 Survey
Regional Social Distancing COVID-19 Mandates	Social Distancing
Impacts of COVID-19 on Food Security	Food Security
Worry about COVID-19 Infection	Diagnosis; General Mental Health
Impacts of COVID-19 on Employment	Economic Insecurity
Impacts of COVID-19 on Changes to Physical Activity and Sedentary Behaviors	Physical Activity
Impacts of COVID-19 on Dietary Changes	Dietary Intake
Impacts of COVID-19 on Sleep Changes	Sleep Changes
Impacts of COVID-19 on Well-Being	General Mental Health

RAND Corporation Contact	PhenX Sub-topic(s)
RAND American Life Panel Survey: Impacts of COVID-19
Subjective Wellbeing	Attitudes; General Mental Health
Mental Health	General Mental Health
Disruption to routine behaviors	Overall Impact; Daily Impact
Health Care	Health Care; General Mental Health
Experience with COVID-19	Diagnosis
COVID-19 Related Information and Trust in News and Government Institutions	Sources of information about COVID-19; Knowledge; Attitudes
Common ingroup identity	Attitudes
COVID-19 Related Household Finances	Economic Impact; Economic Insecurity
Online shopping and delivery	Resources; Attitudes
Schooling	Education
Employment	Employment
Domestic Conflict	Conflict
Political Affiliation	Personal Demographics

Rare Diseases Clinical Research Network (National Center for Advancing Translational Sciences) (RDCRN) RDCRN Contact	PhenX Sub-topic(s)
Impact of COVID-19 on People Living with Rare Disease and their Families	General Symptoms; Treatment; Chronic Health Conditions

Rare Diseases Clinical Research Network, Data Management and Coordinating Center (RDCRN) RDCRN Contact	PhenX Sub-topic(s)
Impact of COVID-19 on People Living with Rare Disease and their Families
Symptoms and Diagnosis	General Symptoms; Diagnosis; Treatment
Health Care Access and Service Use During the Pandemic	Health Care; Status

Rice University Contact	PhenX Sub-topic(s)
COVID-19 Registry	General Symptoms; Exposure; Economic Impact

Save the Children International (SCI) SCI Contact	PhenX Sub-topic(s)
Hidden Impact of COVID-19 on Children
Parent - Household & Health History	Locational Demographics; Personal Demographics; Daily Impact
Parent - Impact of COVID-19	Diagnosis; Daily Impact; Resources
Parent - Health History	Chronic Health Conditions; Health Care
Parent - Education	K-12 Education Impact; Media Use
Parent - Child Mental Health	General Mental Health; Social Impact
Parent - Neonatal Care	Child Care
Parent - Household Composition and Expenses	Personal Demographics; Economic Impact; Food Security
Parent - Parent Mental Health	General Mental Health; Social Impact
Child - COVID-19 Impact on Education	Personal Demographics; K-12 Education Impact
Child - Behaviors and Mental Health	General Mental Health; Daily Life; Violence
Child - Open Responses	Home Life; General Mental Health

Social Psychological Measurements of COVID-19 … Contact	PhenX Sub-topic(s)
Social Psychological Survey of COVID-19: Coronavirus Perceived Threat, Government Response, Impacts, and Experiences Questionnaires
Perceived Coronavirus Threat	Perceived Threat
Federal Governmental Response to Coronavirus	Government Response
State Governmental Response to Coronavirus	Government Response
City Governmental Response to Coronavirus	Government Response
Coronavirus Impacts	Resources; General Mental Health
Coronavirus Experiences	General Symptoms; Diagnosis; Social Distancing
Perceived Coronavirus Threat (Short Form)	Perceived Threat
Governmental Response to Coronavirus (Short Form)	Government Response
Coronavirus Impacts (Short Form)	Resources; General Mental Health
Coronavirus Experiences (Short Form)	General Symptoms; Diagnosis; Social Distancing

South Alabama University Contact	PhenX Sub-topic(s)
Multidimensional Face Mask Perceptions Scale	Attitudes; Personal Protective Equipment

Stanford Health Policy Contact	PhenX Sub-topic(s)
Impact of the novel Coronavirus (COVID-19) on Patients with Cancer
Overall Cancer Care	Health Care; Chronic Health Conditions
Care Delays or Interruptions (due to COVID-19 pandemic)	Health Care
Challenges Due to COVID-19 Pandemic	Overall Impact; Sources of information about COVID-19
Novel Coronavirus Testing	Status; Diagnosis
Demographics	Personal Demographics; Health History

Stanford University Contact	PhenX Sub-topic(s)
Psychological Stress During COVID-19 Crisis
COVID19 related Lifestyle Change	Daily Impact

Trinity College Dublin Contact	PhenX Sub-topic(s)
The Irish Longitudinal Study on Ageing (TILDA) COVID-19 Self-Completion Questionnaire
Activities During Covid-19	Home Life; Social Distancing
Health Behaviors	Social Impact; Substance Use; Physical Activity
Mental Health	General Mental Health
Work	Employment; Economic Impact
State Assistance and Care Giving	Community Assistance; Home Life
Health Care	Health Care
Media	Media Use; Sources of information about COVID-19
Age Discrimination	Attitudes
COVID-19 Impact	General Symptoms; Diagnosis
General Impact	Overall Impact

Tulane University School of Public Health and Tropical Medicine Contact	PhenX Sub-topic(s)
A new approach to controlling chlamydia transmission in young people - sexual behavior in the time of COVID-19
Housing and income due to COVID	Housing Security; Economic Impact
COVID-19 symptom check	General Symptoms; Diagnosis
PPE and COVID	Personal Protective Equipment
COVID-19 risk perceptions	Perceived Threat; Hygiene
COVID-19 related communications	Sources of information about COVID-19
STD/STI testing during COVID	Diagnosis; Non-COVID-19 Symptoms and Medicines
Sexual behaviors during COVID	Sexual Behavior
Substance use during COVID	Substance Use

UCL Great Ormond Street Institute of Child Health Contact	PhenX Sub-topic(s)
Children & young people with Long Covid (CLoCk) study	Health History; Personal impact of COVID-19
Children & young people with Long Covid (CLoCk) study - Follow-Up Questionnaire	Health History; Personal impact of COVID-19; Participant Follow-Up

University of Birmingham Contact	PhenX Sub-topic(s)
Symptom Burden Questionnaire for Long COVID (SBQ-LC)	General Symptoms; Personal impact of COVID-19

University of California Davis Contact	PhenX Sub-topic(s)
Survey for Workers
Covid-19 Infection	General Symptoms; Diagnosis
The Workplace	Employment; Personal Protective Equipment; Health Care
Demographics	Personal Demographics; Chronic Health Conditions
Changes to your life since COVID-19	Overall Impact
Financial situation	Economic Insecurity
Living situation	Personal Demographics; Home Life
Knowledge about COVID-19 protection measures	Attitudes; Knowledge
Pregnancy	Current Pregnancy; Past Pregnancy

University of California Division of Agriculture and Natural Resources (UCANR) UCANR Contact	PhenX Sub-topic(s)
COVID-19 Documenting Challenges Faced by California Families with Children 0-5 Years Old on WIC
COVID Impacts	Diagnosis; Overall Impact
WIC participation and enrollment	Community Assistance
WIC services	Sources of information about COVID-19
Shopping for WIC foods	Food Security
General food shopping	Food Security; Dietary Intake
Immigration status	Personal Demographics
Mental health	General Mental Health
COVID-19 Documenting Challenges Faced by California Families with Children 0-5 Years Old on WIC (Spanish)
COVID Impacts (Spanish)	Diagnosis; Overall Impact
WIC participation and enrollment (Spanish)	Community Assistance
WIC services (Spanish)	Sources of information about COVID-19
Shopping for WIC foods (Spanish)	Food Security
General food shopping (Spanish)	Food Security; Dietary Intake
Immigration status (Spanish)	Personal Demographics
Mental health (Spanish)	General Mental Health

University of California San Diego (UCSD) UCSD Contact	PhenX Sub-topic(s)
ABCD COVID-19 Impact Measure - Parent
Family Situation	Economic Insecurity; Avoidant Behaviors
Youth's Schooling	Education
Youth's Routine and Sleep	Physical Activity; Sleep Changes
Relationships	Family Impact; Hygiene; Social Impact
COVID Attitudes & Adherence	Conflict; Attitudes
Mental Health & Stress	General Mental Health; Stress
Substance Use	Substance Use
Screen Use	Media Use
Media Exposure to COVID-19	Sources of information about COVID-19
Physical Health	General Symptoms; Diagnosis; Health Care
ABCD COVID-19 Impact Measure - Youth
School Schedule	Education
Youth's Routine and Sleep	Sleep Changes
Parents/Guardians	Home Life
Relationships	Family Impact; Social Impact
Mental Health & Stress	General Mental Health
Substance Use	Substance Use
Media Exposure to COVID-19	Sources of information about COVID-19
Screen Use	Media Use
Physical Health	Physical Activity

University of California San Francisco (UCSF) UCSF Contact	PhenX Sub-topic(s)
PROmotion of COvid-19 VAX)ccination in the Emergency Department PROCOVAXED) study: NIH NIAID) RO1 AI166967-01 Patient Interview Guides

University of Connecticut School of Medicine University of Massachusetts Contact	PhenX Sub-topic(s)
Epidemic - Pandemic Impacts Inventory (EPII)
Impact of COVID-19 on Work and Employment	Employment
Impact of COVID-19 on Education and Training	Education; Training
Impact of COVID-19 on Home Life	Home Life; Conflict
Impact of COVID-19 on Social Activities	Social Impact
Impact of COVID-19 on Economic	Economic Insecurity
Impact of COVID-19 on Emotional Health and Well-Being	General Mental Health; Health Care
Impact of COVID-19 on Physical Health Problems	Health Care; Physical Activity
Impact of COVID-19 on Physical Distancing and Quarantine	Social Distancing; Hygiene
Impact of COVID-19 on Infection History	General Symptoms; Diagnosis
Impact of COVID-19 on Positive Change	Positive Impacts

University of Edinburgh (Edin) Edin Contact	PhenX Sub-topic(s)
Coronagenes	General Symptoms; Outcomes; Personal Demographics

University of Florida (UFl) UFl Contact	PhenX Sub-topic(s)
Coping with COVID-19: Impact on Technology Use, mobility, food security, depression and social isolation
Mobility Due To COVID-19	Physical Activity
Technology Telehealth Use During COVID-19	Media Use; Telehealth
Life-space Mobility During COVID-19	General Mental Health
COVID-19 Related Impact on Mood and Sleep	General Mental Health; Sleep Changes
COVID-19 Related Social Interactions	Social Impact
Physical Activity During COVID-19	Physical Activity; Daily Life
Other Activities During COVID-19	Overall Impact
Food Access During COVID-19	Food Security
Thoughts and Feelings About COVID-19 (open ended)	Overall Impact

University of Miami (UMiami) UMiami Contact	PhenX Sub-topic(s)
COVID-19 Household Environment Scale (CHES)
Demographics	Locational Demographics; Social Impact; Personal Demographics
Household	Conflict; Daily Life; Household Togetherness
Escala de Ambiente Familiar Durante la Pandemia COVID-19 (Spanish)
Demographics (Spanish)	Locational Demographics; Social Impact; Personal Demographics
Household (Spanish)	Conflict; Daily Life; Household Togetherness
Escala de Ambiente Familiar Durante a Pandemia COVID-19 (Portuguese)
Demographics (Portuguese)	Locational Demographics; Social Impact; Personal Demographics
Household (Portuguese)	Conflict; Daily Life; Household Togetherness
COVID-19 Household Environment Scale (CHES) (Mandarin)
Demographics (Mandarin)	Locational Demographics; Social Impact; Personal Demographics
Household (Mandarin)	Conflict; Daily Life; Household Togetherness

University of Miami: Department of Psychology (UMiami) UMiami Contact	PhenX Sub-topic(s)
Impact of the Pandemic and HRQoL in Cancer Patients and Survivors (IPHCPS)
COVID-19 Experiences	Diagnosis; General Symptoms; Health Care
COVID-19 Psychosocial and Practical Experiences	General Mental Health; Daily Life; Economic Insecurity
Health Related Quality of Life	Quality of Life

University of Miami School of Nursing and Health Studies (UMiami) UMiami Contact	PhenX Sub-topic(s)
COVID-19 - Cannabis Health Questionnaire (CCHQ)
COVID-19 & Comorbidities	Chronic Health Conditions
COVID-19 & Cannabis Use	Substance Use
Economic Impact of COVID-19	Health Care; Economic Insecurity
COVID-19 Symptoms, Diagnoses & Testing	General Symptoms; Diagnosis
Worry about COVID-19 Infection	Perceived Threat
Coping Strategies COVID-19	General Mental Health
COVID-19 - Cannabis Health Questionnaire (CCHQ) (Spanish)
COVID-19 & Comorbidities (Spanish)	Chronic Health Conditions
COVID-19 & Cannabis Use (Spanish)	Substance Use
Economic Impact of COVID-19 (Spanish)	Health Care; Economic Insecurity
COVID-19 Symptoms, Diagnoses & Testing (Spanish)	General Symptoms; Diagnosis
Worry about COVID-19 Infection (Spanish)	Perceived Threat
Coping Strategies COVID-19 (Spanish)	General Mental Health

University of Michigan (UMich) UMich Contact	PhenX Sub-topic(s)
Health and Retirement Study: Core Interview COVID-19 Module
Direct Experience of COVID-19	General Symptoms; Diagnosis
Health Care Access (general)	Health Care
Economic Impact Payments	Economic Insecurity
Work and Business	Employment; Economic Impact
Living Arrangements	Housing Security; Home Life
Caregiving	Community Assistance
Health and Retirement Study: Questionnaire on Your Everyday life and Well-being
Mental Health	General Mental Health
Perceptions	Attitudes; Employment
Risk Reduction Behaviors	Social Impact; Daily Life

University of Michigan, Institute for Social Research (UMich) UMich Contact	PhenX Sub-topic(s)
Panel Study of Income Dynamics Covid-19 Special Questions
Section G COVID-19 Financial Series	Economic Insecurity; Economic Impact
Section G COVID-19 Stimulus Payment	Government Response; Economic Impact
Section G COVID-19 Paycheck Protection Program	Government Response; Economic Impact
Section H COVID-19 Health Series	General Symptoms; General Mental Health; Diagnosis
Section H COVID-19 OFUM Health Series	Diagnosis; Family Impact
Section M COVID-19 Donations Series	Community Assistance

University of Michigan Center for Disability Health and Wellness (UMich) UMich Contact	PhenX Sub-topic(s)
Coronavirus Disability Survey (COV-DIS)
General health	Health Care
Depressive symptoms	General Mental Health
Social isolation	Social Impact; Daily Impact
Coronavirus infection/exposure	Status; Perceived Threat
Daily activities	Daily Impact; Daily Life
Access to medical care	Health Care
Employment and financial impact	Employment; Economic Insecurity
Transportation and information access	Daily Impact; Sources of information about COVID-19

University of North Carolina (UNC) UNC Contact	PhenX Sub-topic(s)
CTHSUS COVID-19 Survey
Tele mental health services Use	Mental Health Treatment; Telehealth
Tele mental health services Satisfaction	Telehealth; Mental Health Treatment Feedback
Tele mental health services Concerns	Telehealth; Mental Health Communications

University of North Carolina School of Medicine (UNC) UNC Contact 1 , UNC Contact 2	PhenX Sub-topic(s)
AURORA-COVID Impact Survey (AURORA-CIS)
Financial impact of COVID-19	Economic Insecurity
Health impact (self and loved ones) of COVID-19	Diagnosis
Worry about COVID-19	General Mental Health
Employment status due to COVID-19	Employment

University of Oklahoma Contact	PhenX Sub-topic(s)
Windshield Survey – COVID-19 Behaviors - Rural Responses to the COVID-19 Pandemic Rapid Assessment	Social Distancing; Personal Protective Equipment

University of Pittsburgh Medical Center (UMPC) UMPC Contact	PhenX Sub-topic(s)
COVID-19 Adolescent Symptom & Psychological Experience Questionnaire (CASPE)- Self-Report
General experience related to COVID and social distancing	Overall Impact
Emotional experience related to COVID and social distancing	General Mental Health
Cognitive experience related to COVID and social distancing	General Mental Health
Social experience related to COVID and social distancing	Social Impact
COVID-19 Adolescent Symptom & Psychological Experience Questionnaire (CASPE)- Parent
General experience related to COVID and social distancing	Overall Impact
Emotional experience related to COVID and social distancing	General Mental Health
Cognitive experience related to COVID and social distancing	General Mental Health
Social experience related to COVID and social distancing	Social Impact

University of Texas Rio Grande Valley (UTRGV) UTRGV Contact 1 , UTRGV Contact 2	PhenX Sub-topic(s)
COVID19 Impact on Health and Wellbeing Survey (CIHWS)
COVID19 related Depression	General Mental Health
COVID19 related Anxiety/Stress	General Mental Health; Stress
COVID19 related Health literacy	Health Literacy
COVID19 related Trusted sources of information	Sources of information about COVID-19
COVID19 related Compliance	Social Distancing
COVID19 related Financial stress	Economic Insecurity
COVID19 related Physical activity	Physical Activity
COVID19 Impact on Health and Wellbeing Survey (CIHWS) (Spanish)
COVID19 related Depression (Spanish)	General Mental Health
COVID19 related Anxiety/Stress (Spanish)	General Mental Health; Stress
COVID19 related Health literacy (Spanish)	Health Literacy
COVID19 related Trusted sources of information (Spanish)	Sources of information about COVID-19
COVID19 related Compliance (Spanish)	Social Distancing
COVID19 related Financial stress (Spanish)	Economic Insecurity
COVID19 related Physical activity (Spanish)	Physical Activity

University of Utah Department of Psychology Contact	PhenX Sub-topic(s)
University of Utah MIND Lab Measures of COVID-19 Information Trust, Barriers, and Behaviors
Trust and Information COVID-19	Sources of information about COVID-19
Social Distancing	Social Distancing
Diagnosis COVID-19	Diagnosis
Exposure	Exposure
Demographics	Personal Demographics

The University of Vermont, Larner College of Medicine (UVm) UVm Contact	PhenX Sub-topic(s)
COVID-19 measures included in the PACE Vermont Study
COVID-19 concerns	General Mental Health; Overall Impact; Daily Impact
COVID-19/Substance use	Substance Use
COVID-19/School/work	K-12 Education Impact; Employment
COVID-19 Activities	Daily Impact
Policy awareness and support	Substance Use
Respiratory Symptoms	COVID-19 Vaccination
Additional COVID-19 Questions	General Mental Health; Substance Use

University of Washington, Seattle Contact	PhenX Sub-topic(s)
Participant Information
ID to BMI	Personal Demographics
Symptoms to Care	General Symptoms
Rate to Shortness of Breath	Health History; Quality of Life
Lingering Symptoms	Overall Impact; Health History; Quality of Life

UPenn in collaboration with CTSAs Contact	PhenX Sub-topic(s)
COVID-19 Patient Survey
COVID Diagnosis and symptoms	Diagnosis; General Symptoms; Foreign Travel
General health questions	Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions	Substance Use; Education; Employment
COVID-19 Patient Survey (Chinese)
COVID Diagnosis and symptoms (Chinese)	Diagnosis; General Symptoms; Foreign Travel
General health questions (Chinese)	Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (Chinese)	Substance Use; Education; Employment
COVID-19 Patient Survey (French)
COVID Diagnosis and symptoms (French)	Diagnosis; General Symptoms; Foreign Travel
General health questions (French)	Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (French)	Substance Use; Education; Employment
COVID-19 Patient Survey (Italian)
COVID Diagnosis and symptoms (Italian)	Diagnosis; General Symptoms; Foreign Travel
General health questions (Italian)	Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (Italian)	Substance Use; Education; Employment
COVID-19 Patient Survey (Japanese)
COVID Diagnosis and symptoms (Japanese)	Diagnosis; General Symptoms; Foreign Travel
General health questions (Japanese)	Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (Japanese)	Substance Use; Education; Employment
COVID-19 Patient Survey (Korean)
COVID Diagnosis and symptoms (Korean)	Diagnosis; General Symptoms; Foreign Travel
General health questions (Korean)	Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (Korean)	Substance Use; Education; Employment
COVID-19 Patient Survey (Polish)
COVID Diagnosis and symptoms (Polish)	Diagnosis; General Symptoms; Foreign Travel
General health questions (Polish)	Social Distancing; Chronic Health Conditions; Health History
Personal lifestyle questions (Polish)	Substance Use; Education; Employment

UPMC Children's Hospital of Pittsburgh Contact	PhenX Sub-topic(s)
Characteristics and Outcomes of Kawasaki Disease and COVID-19 with Cardiac Complications	Diagnosis; Treatment; Personal Demographics

US Census Contact	PhenX Sub-topic(s)
COVID-19 Household Pulse Questionnaire
COVID-19 and Employment Stability	Employment
COVID-19 and Food Security	Food Security
COVID-19 and Health	General Mental Health; Health Care
COVID-19 and Housing Security	Housing Security
COVID-19 and Education Disruption	K-12 Education Impact
COVID-19 Household Pulse Questionnaire (Spanish)
COVID-19 and Employment (Spanish)	Employment
COVID-19 and Food Security (Spanish)	Food Security
COVID-19 and Health (Spanish)	General Mental Health; Health Care
COVID-19 and Housing Security (Spanish)	Housing Security
COVID-19 and Education Disruption (Spanish)	K-12 Education Impact

Vanderbilt University Medical Center (VUMC) VUMC Contact	PhenX Sub-topic(s)
Vanderbilt Child Health COVID-19 Poll: A National Survey of the Wellbeing of Parents and Children During COVID-19	Economic Insecurity; Health Care; Overall Impact

Wellcome Trust Contact	PhenX Sub-topic(s)
UK COVID19 Questionnaire
COVID-19 Related Health Questions	General Symptoms; Status; General Mental Health; Non-COVID-19 Symptoms and Medicines
Behaviour Change and Knowledge Due to COVID-19	Overall Impact; K-12 Education Impact; Knowledge
Economic Impact Due to COVID-19	Economic Insecurity; Employment
Social Impact Due to COVID-19	Social Impact; Home Life
Environmental Changes Due to COVID-19	Housing Security

World Health Organization (WHO) WHO Contact	PhenX Sub-topic(s)
Novel Coronavirus (nCOV) Acute Respiratory Infection Clinical Characterisation Data Tool
Hospital Admission Case Record Form	General Symptoms; Diagnosis; Domestic Travel; Foreign Travel
Daily Case Record Form	General Symptoms; Diagnosis
Treatment and Outcomes Case Record Form	Treatment; Outcomes
Global COVID-19 Clincal Platform Novel Coronavirus (COVID-19) - Rapid Version
Hospital Admission Case Record Form (Rapid Version)	General Symptoms; Diagnosis; Domestic Travel
Daily Case Record Form (Rapid Version)	General Symptoms; Diagnosis
Treatment and Outcomes Case Record Form (Rapid Version)	Treatment; Outcomes
WHO Global COVID-19 Clinical Platform: Pregnancy Case Report Form (CRF)
Hospital Admission Case Record Form	General Symptoms; Diagnosis; Personal Demographics
Daily Case Record Form	General Symptoms; Diagnosis
Treatment and Outcome Case Record Form	Treatment; Outcomes
Global COVID-19 Clinical Platform: Case Report Form for Suspected Cases of Multisystem Inflammatory Syndrome (MIS) in Children and Adolescents Temporally Related to COVID-19
Hospital Admission Case Record Form	General Symptoms; Diagnosis; Personal Demographics
Treatment and Outcome Case Record Form	General Symptoms; Treatment; Outcomes
First Few X (FFX) Cases and Contact Investigation Protocol for 2019-Novel Coronavirus (2019-nCoV) Infection, Version 2
Form A0: Minimum data reporting form	General Symptoms; Exposure; Foreign Travel
Household Transmission Investigation Protocol for 2019-Novel Coronavirus (COVID-19) Infection
Form A1: Case initial report form	General Symptoms; Exposure; Health Care
Population-Based Age-Stratified Seroepidemiological Investigation Protocol for COVID-19 Virus Infection
Protocol for Assessment of Potential Risk Factors for 2019-Novel Coronavirus (2019-nCoV) Infection Among Health Care Workers in a Health Care Setting
Form A2: Case follow-up form	General Symptoms; Outcomes; Health Care
Form B1: Contact Initial Reporting Form	Exposure; Employment; General Symptoms
Form B2: Contact Follow-up reporting Form	Exposure; General Symptoms; Outcomes
Contact symptom diary	General Symptoms
Form 1A: Case initial reporting form	Personal Demographics; General Symptoms; Chronic Health Conditions
Form 1B: Contact initial reporting form (Day 1)	General Symptoms; Chronic Health Conditions; Outcomes
Form 2: Follow-up reporting form (Day 7)	Outcomes
Form 3: Follow-up reporting form (Day 14)	Outcomes
Form 4: Follow-up reporting form (Day 28)	Outcomes
Form 5: Lab results reporting form	Diagnosis
Symptom diary for household contacts of confirmed cases	General Symptoms
Report Form	Participant Intake; Personal Demographics; General Symptoms
Laboratory results	Diagnosis
Form 1: Initial reporting form for health worker	Hygiene; General Symptoms; Chronic Health Conditions
Form 2: Follow-up reporting form for health worker	General Symptoms; Diagnosis; Outcomes
Form 3: Symptom diary for health workers	General Symptoms; Non-COVID-19 Symptoms and Medicines
Form 4: Health care facility infection prevention and control assessment	Critical Care Facilities; Personal Protective Equipment; Hygiene

Yale School of Medicine Contact	PhenX Sub-topic(s)
Yale COVID-19 Recovery Study: Screening Questionnaire	Personal Demographics; Status; Diagnosis
Yale COVID-19 Recovery Study: Survey 1	Personal Demographics; Status; Diagnosis
Yale COVID-19 Recovery Study: Survey 2	General Symptoms; COVID-19 Vaccination
Yale COVID-19 Recovery Study: Survey 3	General Symptoms; COVID-19 Vaccination
Yale COVID-19 Recovery Study: Survey 4	Treatment; General Symptoms; Daily Impact

Yale University Pain Management Collaboratory Coordinating Center Contact	PhenX Sub-topic(s)
Pain Management Collaboratory (PMC) Coronavirus Pandemic (COVID-19) Measures	Overall Impact

Last Updated 6/21/23, 12:00 AM