Protocol - Eye Diseases and Treatment in Young Children

Description

A series of 20 questions administered to parents to assess whether or not their child has/had any eye diseases and treatments. There are also questions addressing family history of eye disease.

Specific Instructions

None

Availability

Available

Download PDF

Protocol

1. During the past 12 months have you noticed (name of child) frequently squinting?

1[ ]yes

2[ ]no

8[ ]refused

9[ ]dont know

2. During the past 12 months has (name of child) had difficulty drawing or coloring?

1[ ]yes

2[ ]no

3[ ]unable to color

8[ ]refused

9[ ]dont know

3. During the past 12 months has (name of child) appeared to have difficulty seeing?

1[ ]yes

2[ ]no

8[ ]refused

9[ ]dont know

4. Does (name of child) close one eye when he/she is in bright sun light?

1[ ]yes

2[ ]no

8[ ]refused

9[ ]dont know

5. Does (name of child) close or cover one eye when he/she is concentrating?

1[ ]yes

2[ ]no

8[ ]refused

9[ ]dont know

6. When was (name of child)s last complete eye examination, one that included dilating of pupils where the doctor used bright lights to look in the back of his/her eyes? (this would have made the child temporarily sensitive to bright light)

1[ ]within past 12 months

2[ ]1-3 years ago

3[ ]3-5 years ago

4[ ]never

8[ ]refused

9[ ]dont know

7. Has a doctor ever told you that (name of child) had amblyopia, that is poor vision that cannot be corrected with glasses or contact lenses?

1[ ]yes

2[ ]no (skip to Q9)

8[ ]refused (skip to Q9)

9[ ]dont know (skip to Q9)

a. Was that his/her...

1[ ]right eye

2[ ]left eye

3[ ]both

8[ ]refused

9[ ]dont know

8. Has the child ever been treated in the past for amblyopia, that is poor vision that cannot be corrected with glasses or contact lenses, or needing to wear an eye patch?

1[ ]yes

2[ ]no

8[ ]refused

9[ ]dont know

9. Do or did any of his/her relatives have amblyopia that is, poor vision that cannot be corrected with glasses or contact lenses?

1[ ]yes

2[ ]no (skip to Q10a)

8[ ]refused (skip to Q11)

9[ ]dont know (skip to Q11)

10a. Which relative(s)? We are only interested in blood relatives.

(READ CATEGORIES AND CODE ALL THAT APPLY)

1[ ]mother

2[ ]father

3[ ]both parents

4[ ]sister (ask Q10b)

5[ ]brother (ask Q10b)

6[ ]grandparents (ask Q10b)

7[ ]other relative (specify:_____________) (ask Q10b)

8[ ]refused

9[ ]dont know

10b. How many of his/her (relative) have, had, or were suspected of having amblyopia?

(code refused as 8, dont know as 9)

___ sisters

___ brothers

___ grandparents

___ other relatives

8[ ]refused

9[ ]dont know

11. Does (name of child) have strabismus — that is one or both eyes are turned in, or turned out, or up or down, or crossed or wall eyes?

1[ ]yes

2[ ]no (skip to Q13)

8[ ]refused (skip to Q13)

9[ ]dont know (skip to Q13)

a. Was that his/her.....

(READ CATEGORIES)

1[ ]right eye

2[ ]left eye

3[ ]both

8[ ]refused

9[ ]dont know

12. Has (name of child) ever been treated for his/her strabismus that is if one or both eyes are turned in, or turned out, or up or down?

1[ ]yes

2[ ]no (skip to Q13)

8[ ]refused (skip to Q13)

9[ ]dont know (skip to Q13)

12a. What treatment did (name of child) receive?

1[ ]glasses or contact lenses

2[ ]patching

3[ ]eye drops

4[ ]vision therapy

5[ ]eye muscle surgery

6[ ]botulinum injections

7[ ]other (specify:_________)

8[ ]none

88[ ]refused

99[ ]dont know

13. Do or did any of his/her relatives have strabismus that is if one or both eyes are turned in, or turned out, or up or down?

1[ ]yes

2[ ]no (skip to Q15)

8[ ]refused (skip to Q15)

9[ ]dont know (skip to Q15)

14a. Which relative(s)? We are only interested in blood relatives

(READ CATEGORIES AND CODE ALL THAT APPLY)

1[ ]mother

2[ ]father

3[ ]both parents

4[ ]sister (ask Q14b)

5[ ]brother (ask Q14b)

6[ ]grandparents (ask Q14b)

7[ ]other relative (specify:_____________) (ask Q14b)

8[ ]refused

9[ ]dont know

14b. How many of his/her (relative) have, had, or were suspected of having strabismus?

(code refused as 8, dont know as 9)

___ sisters

___ brothers

___ grandparents

___ other relatives

8[ ]refused

9[ ]dont know

15. Has a doctor ever told you that (name of child) has myopia (nearsightedness) or needs to wear glasses to see far away?

1[ ]yes

2[ ]no (skip to Q17)

8[ ]refused (skip to Q17)

9[ ]dont know (skip to Q17)

a. Was that his/her...

(READ CATEGORIES)

1[ ]right eye

2[ ]left eye

3[ ]both

8[ ]refused

9[ ]dont know

16. Has name of child ever been treated for his/her myopia (nearsightedness)?

1[ ]yes

2[ ]no (skip to Q17)

8[ ]refused (skip to Q17)

9[ ]dont know (skip to Q17)

a. What treatment did (name of child) receive?

1[ ]yes

2[ ]no

3[ ]glasses or contact lenses

4[ ]none

5[ ]other (specify:_______)

8[ ]refused

9[ ]dont know

b. In the past 12 months, how many times has he/she seen an eye doctor for his/her myopia (nearsightedness)?

_____ # times

8[ ]refused

9[ ]dont know

17. Do or did any of his/her relative have myopia or (nearsightedness)?

1[ ]yes

2[ ]no (skip to Q19)

8[ ]refused (skip to Q19)

9[ ]dont know (skip to Q19)

18a. Which relative(s)? We are only interested in blood relatives.

(READ CATEGORIES AND CODE ALL THAT APPLY)

1[ ]mother

2[ ]father

3[ ]both parents

4[ ]sister (ask Q18b)

5[ ]brother (ask Q18b)

6[ ]grandparents (ask Q18b)

7[ ]other relative (specify:_____________) (ask Q18b)

8[ ]refused

9[ ]dont know

18b. How many of his/her (relative) have, or had myopia or nearsightedness?

(code refused as 8, dont know as 9)

___ sisters

___ brothers

___ grandparents

___ other relatives

8[ ]refused

9[ ]dont know

19. Does your child have or has (he/she) had any other eye or vision problems?

1[ ]yes

2[ ]no (skip to end)

8[ ]refused (skip to end)

9[ ]dont know (skip to end)

a. What treatment did (name of child) receive?

Specify:________________

b. When did your child receive this treatment?

Date:_________

20. Has a doctor ever told you that (name of child, for each child) ever had:

a. cataract?

1[ ]yes

2[ ]no

8[ ]refused

9[ ]dont know

(if yes) type of treatment:_________

(if yes) when:__________

b. glaucoma?

1[ ]yes

2[ ]no

8[ ]refused

9[ ]dont know

(IF YES) type of treatment:_________

(IF YES) when:__________

c. retinopathy of prematurity?

1[ ]yes

2[ ]no

8[ ]refused

9[ ]dont know

(IF YES) type of treatment:_________

(IF YES) when:__________

d. eye tumor/retinoblastoma?

1[ ]yes

2[ ]no

8[ ]refused

9[ ]dont know

(IF YES) type of treatment:_________

(IF YES) when:__________

e. optic nerve hypoplasia?

1[ ]yes

2[ ]no

8[ ]refused

9[ ]dont know

(IF YES) type of treatment:_________

(IF YES) when:__________

f. nasolacrimal duct obstruction?

1[ ]yes

2[ ]no

8[ ]refused

9[ ]dont know

(IF YES) type of treatment:_________

(IF YES) when:__________

g. cortical visual impairment?

1[ ]yes

2[ ]no

8[ ]refused

9[ ]dont know

(IF YES) type of treatment:_________

(IF YES) when:__________

h. other? (specify:_________)

1[ ]yes

2[ ]no

8[ ]refused

9[ ]dont know

(IF YES) type of treatment:_________

(IF YES) when:__________

Personnel and Training Required

The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e. tested by an expert) at the completion of personal interviews.

Equipment Needs

Either a pencil and paper or computer-assisted instrument may be used. If a computer-assisted instrument is used, computer software may be necessary to develop the instrument. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.

Requirements

Requirement Category	Required
Major equipment	No
Specialized training	No
Specialized requirements for biospecimen collection	No
Average time of greater than 15 minutes in an unaffected individual	No

Mode of Administration

Interviewer-administered questionnaire

Lifestage

Infant, Toddler, Child

Participants

Multi-Ethnic Pediatric Eye Disease Study (MEPEDS): administered to parents of children aged 6-72 months old

Baltimore Pediatric Eye Disease Study (BPEDS): administered to parents of children aged 6-60 months old

Selection Rationale

The protocols selected are from standard parental questionnaires used routinely in epidemiologic studies of ocular health in children. These protocols are current, and well-established.

Language

Chinese, English, Other languages available at source

Standards

Standard	Name	ID	Source
Logical Observation Identifiers Names and Codes (LOINC)	Eye diseases young children proto	62685-3	LOINC
Human Phenotype Ontology	Abnormality of the eye	HP:0000478	HPO
caDSR Form	PhenX PX110401 - Eye Diseases And Treatment In Young Children	5971581	caDSR Form

Derived Variables

None

Process and Review

Not applicable.

Protocol Name from Source

The Multi-Ethnic Pediatric Eye Disease Study (MEPEDS), 2002-2008 & Baltimore Pediatric Eye Disease Study (BPEDS), 2003-2007

Source

University of Southern California, The Multi-Ethnic Pediatric Eye Disease Study (MEPEDS), 2002-2008.

Johns Hopkins University, Baltimore Pediatric Eye Disease Study (BPEDS), 2003-2007.

BPEDS Clinic Interview- Section E: Ocular History

General References

Varma R, Deneen J, Cotter S, Paz SH, Azen SP, Tarczy-Hornoch K, Zhao P; Multi-Ethnic Pediatric Eye Disease Study Group. (2006). The multi-ethnic pediatric eye disease study: design and methods. Ophthalmic Epidemiol, 13(4):253-62.

Multi-ethnic Pediatric Eye Disease Study Group. (2008). Prevalence of amblyopia and strabismus in African American and Hispanic children ages 6 to 72 months the multi-ethnic pediatric eye disease study. Ophthalmology, 115(7):1229-1236.

Epub 2007 Oct 22.

Friedman DS, Repka MX, Katz J, Giordano L, Ibironke J, Hawse P, Tielsch JM. (2009). Prevalence of amblyopia and strabismus in white and African American children aged 6 through 71 months the Baltimore Pediatric Eye Disease Study. Ophthalmology, 116(11):2128-34.

Protocol ID

110401

Variables

Export Variables

Variable Name	Variable ID	Variable Description	dbGaP Mapping
PX110401_Amblyopia_Brother
	PX110401100104	Do or did any of his/her brother have amblyopia?	N/A
PX110401_Amblyopia_Ever
	PX110401070100	Has a doctor ever told you that (name of more child) had amblyopia, that is poor vision that cannot be corrected with glasses or contact lenses? show less	Variable Mapping
PX110401_Amblyopia_Eye
	PX110401070200	Was that his/her...?	N/A
PX110401_Amblyopia_Father
	PX110401100102	Do or did his/her father have amblyopia?	N/A
PX110401_Amblyopia_Grandparents
	PX110401100105	Do or did any of his/her grandparents have more amblyopia? show less	N/A
PX110401_Amblyopia_Mother
	PX110401100101	Do or did his/her mother have amblyopia?	N/A
PX110401_Amblyopia_Number_Brothers
	PX110401100203	How many of his/her brothers have, had, or more were suspected of having amblyopia? show less	N/A
PX110401_Amblyopia_Number_Brothers_Coded
	PX110401100204	How many of his/her brothers have, had, or more were suspected of having amblyopia? show less	N/A
PX110401_Amblyopia_Number_Grandparents
	PX110401100205	How many of his/her grandparents have, had, more or were suspected of having amblyopia? show less	N/A
PX110401_Amblyopia_Number_Grandparents_Coded
	PX110401100206	How many of his/her grandparents have, had, more or were suspected of having amblyopia? show less	N/A
PX110401_Amblyopia_Number_Other_Relatives
	PX110401100207	How many of his/her other relatives have, more had, or were suspected of having amblyopia? show less	N/A
PX110401_Amblyopia_Number_Other_Relatives_Coded
	PX110401100208	How many of his/her other relatives have, more had, or were suspected of having amblyopia? show less	N/A
PX110401_Amblyopia_Number_Sisters
	PX110401100201	How many of his/her sisters have, had, or more were suspected of having amblyopia? show less	N/A
PX110401_Amblyopia_Number_Sisters_Coded
	PX110401100202	How many of his/her sisters have, had, or more were suspected of having amblyopia? show less	N/A
PX110401_Amblyopia_Other_Relative
	PX110401100106	Do or did any of his/her other relative have more amblyopia? show less	N/A
PX110401_Amblyopia_Other_Relative_Specify
	PX110401100107	Specify other relative.	N/A
PX110401_Amblyopia_Relative
	PX110401090000	Do or did any of his/her relatives have more amblyopia that is, poor vision that cannot be corrected with glasses or contact lenses? show less	N/A
PX110401_Amblyopia_Sister
	PX110401100103	Do or did any of his/her sister have amblyopia?	N/A
PX110401_Amblyopia_Treatment_Ever
	PX110401080000	Has the child ever been treated in the past more for amblyopia, that is poor vision that cannot be corrected with glasses or contact lenses, or needing to wear an eye patch? show less	N/A
PX110401_Cataract_Ever
	PX110401200101	Has a doctor ever told you that (name of more child, for each child) ever had cataract? show less	N/A
PX110401_Cataract_Treatment_Date
	PX110401200103	When did your child receive this treatment?	N/A
PX110401_Cataract_Treatment_Type
	PX110401200102	What treatment did (name of child) receive?	N/A
PX110401_Close_One_Eye_Bright_Light
	PX110401040000	Does (name of child) close one eye when more he/she is in bright sun light? show less	N/A
PX110401_Close_One_Eye_Concentrating
	PX110401050000	Does (name of child) close or cover one eye more when he/she is concentrating? show less	N/A
PX110401_Cortical_Visual_Impairment_Ever
	PX110401200701	Has a doctor ever told you that (name of more child, for each child) ever had cortical visual impairment? show less	N/A
PX110401_Cortical_Visual_Impairment_Treatment_Date
	PX110401200703	When did your child receive this treatment?	N/A
PX110401_Cortical_Visual_Impairment_Treatment_Type
	PX110401200702	What treatment did (name of child) receive?	N/A
PX110401_Difficulty_Drawing_Coloring
	PX110401020000	During the past 12 months has (name of more child) had difficulty drawing or coloring? show less	N/A
PX110401_Difficulty_Seeing
	PX110401030000	During the past 12 months has (name of more child) appeared to have difficulty seeing? show less	N/A
PX110401_Eye_Examination_Include_Pupil_Dilating
	PX110401060000	When was (name of child)'s last complete eye more examination, one that included dilating of pupils where the doctor used bright lights to look in the back of his/her eyes? show less	N/A
PX110401_Eye_Tumor_Retinoblastoma_Ever
	PX110401200401	Has a doctor ever told you that (name of more child, for each child) ever had eye tumor/retinoblastoma? show less	N/A
PX110401_Eye_Tumor_Retinoblastoma_Treatment_Date
	PX110401200403	When did your child receive this treatment?	N/A
PX110401_Eye_Tumor_Retinoblastoma_Treatment_Type
	PX110401200402	What treatment did (name of child) receive?	N/A
PX110401_Frequently_Squinting
	PX110401010000	During the past 12 months have you noticed more (name of child) frequently squinting? show less	N/A
PX110401_Glaucoma_Ever
	PX110401200201	Has a doctor ever told you that (name of more child, for each child) ever had glaucoma? show less	N/A
PX110401_Glaucoma_Treatment_Date
	PX110401200203	When did your child receive this treatment?	N/A
PX110401_Glaucoma_Treatment_Type
	PX110401200202	What treatment did (name of child) receive?	N/A
PX110401_Myopia_Nearsightedness_Brother
	PX110401180104	Do or did any of his/her brother have myopia more or (nearsightedness)? show less	N/A
PX110401_Myopia_Nearsightedness_Ever
	PX110401150100	Has a doctor ever told you that (name of more child) has myopia (nearsightedness) or needs to wear glasses to see far away? show less	Variable Mapping
PX110401_Myopia_Nearsightedness_Eye
	PX110401150200	Was that his/her...?	N/A
PX110401_Myopia_Nearsightedness_Father
	PX110401180102	Do or did his/her father have myopia or more (nearsightedness)? show less	N/A
PX110401_Myopia_Nearsightedness_Grandparents
	PX110401180105	Do or did any of his/her grandparents have more myopia or (nearsightedness)? show less	N/A
PX110401_Myopia_Nearsightedness_Mother
	PX110401180101	Do or did his/her mother have myopia or more (nearsightedness)? show less	N/A
PX110401_Myopia_Nearsightedness_Number_Brothers
	PX110401180203	How many of his/her brothers have, or had more myopia or nearsightedness? show less	N/A
PX110401_Myopia_Nearsightedness_Number_Brothers_Coded
	PX110401180204	How many of his/her brothers have, or had more myopia or nearsightedness? show less	N/A
PX110401_Myopia_Nearsightedness_Number_Grandparents
	PX110401180205	How many of his/her grandparents have, or more had myopia or nearsightedness? show less	N/A
PX110401_Myopia_Nearsightedness_Number_Grandparents_Coded
	PX110401180206	How many of his/her grandparents have, or more had myopia or nearsightedness? show less	N/A
PX110401_Myopia_Nearsightedness_Number_Other_Relatives
	PX110401180207	How many of his/her other relatives have, or more had myopia or nearsightedness? show less	N/A
PX110401_Myopia_Nearsightedness_Number_Other_Relatives_Coded
	PX110401180208	How many of his/her other relatives have, or more had myopia or nearsightedness? show less	N/A
PX110401_Myopia_Nearsightedness_Number_Sisters
	PX110401180201	How many of his/her sisters have, or had more myopia or nearsightedness? show less	N/A
PX110401_Myopia_Nearsightedness_Number_Sisters_Coded
	PX110401180202	How many of his/her sisters have, or had more myopia or nearsightedness? show less	N/A
PX110401_Myopia_Nearsightedness_Other_Relative
	PX110401180106	Do or did any of his/her other relative have more myopia or (nearsightedness)? show less	N/A
PX110401_Myopia_Nearsightedness_Other_Relative_Specify
	PX110401180107	Specify other relative.	N/A
PX110401_Myopia_Nearsightedness_Other_Treatment_Specify
	PX110401160202	Specify other treatment.	N/A
PX110401_Myopia_Nearsightedness_Relative
	PX110401170000	Do or did any of his/her relative have more myopia or (nearsightedness)? show less	N/A
PX110401_Myopia_Nearsightedness_Seeing_Doctor_Times
	PX110401160300	In the past 12 months, how many times has more he/she seen an eye doctor for his/her myopia (nearsightedness)? show less	N/A
PX110401_Myopia_Nearsightedness_Seeing_Doctor_Times_Coded
	PX110401160301	In the past 12 months, how many times has more he/she seen an eye doctor for his/her myopia (nearsightedness)? show less	N/A
PX110401_Myopia_Nearsightedness_Sister
	PX110401180103	Do or did any of his/her sister have myopia more or (nearsightedness)? show less	N/A
PX110401_Myopia_Nearsightedness_Treatment_Ever
	PX110401160100	Has name of child ever been treated for more his/her myopia (nearsightedness)? show less	N/A
PX110401_Myopia_Nearsightedness_Treatment_Type
	PX110401160201	What treatment did (name of child) receive?	N/A
PX110401_Nasolacrimal_Duct_Obstruction_Ever
	PX110401200601	Has a doctor ever told you that (name of more child, for each child) ever had nasolacrimal duct obstruction? show less	N/A
PX110401_Nasolacrimal_Duct_Obstruction_Treatment_Date
	PX110401200603	When did your child receive this treatment?	N/A
PX110401_Nasolacrimal_Duct_Obstruction_Treatment_Type
	PX110401200602	What treatment did (name of child) receive?	N/A
PX110401_Optic_Nerve_Hypoplasia_Ever
	PX110401200501	Has a doctor ever told you that (name of more child, for each child) ever had optic nerve hypoplasia? show less	N/A
PX110401_Optic_Nerve_Hypoplasia_Treatment_Date
	PX110401200503	When did your child receive this treatment?	N/A
PX110401_Optic_Nerve_Hypoplasia_Treatment_Type
	PX110401200502	What treatment did (name of child) receive?	N/A
PX110401_Other_Eye_Vision_Problem
	PX110401190100	Does your child have or has (he/she) had any more other eye or vision problems? show less	N/A
PX110401_Other_Eye_Vision_Problem_Treatment_Date
	PX110401190300	When did your child receive this treatment?	N/A
PX110401_Other_Eye_Vision_Problem_Treatment_Type
	PX110401190200	What treatment did (name of child) receive?	N/A
PX110401_Other_Told_By_Doctor_Ever
	PX110401200801	Has a doctor ever told you that (name of more child, for each child) ever had other? show less	N/A
PX110401_Other_Told_By_Doctor_Specify
	PX110401200802	Specify other.	N/A
PX110401_Other_Told_By_Doctor_Treatment_Date
	PX110401200804	When did your child receive this treatment?	N/A
PX110401_Other_Told_By_Doctor_Treatment_Type
	PX110401200803	What treatment did (name of child) receive?	N/A
PX110401_Retinopathy_Prematurity_Ever
	PX110401200301	Has a doctor ever told you that (name of more child, for each child) ever had retinopathy of prematurity? show less	Variable Mapping
PX110401_Retinopathy_Prematurity_Treatment_Date
	PX110401200303	When did your child receive this treatment?	N/A
PX110401_Retinopathy_Prematurity_Treatment_Type
	PX110401200302	What treatment did (name of child) receive?	N/A
PX110401_Strabismus_Brother
	PX110401140104	Do or did any of his/her brother have strabismus?	N/A
PX110401_Strabismus_Ever
	PX110401110100	Does (name of child) have strabismus - that more is one or both eyes are turned in, or turned out, or up or down, or crossed or wall eyes? show less	Variable Mapping
PX110401_Strabismus_Eye
	PX110401110200	Was that his/her...?	N/A
PX110401_Strabismus_Father
	PX110401140102	Do or did his/her father have strabismus?	N/A
PX110401_Strabismus_Grandparents
	PX110401140105	Do or did any of his/her grandparents have more strabismus? show less	N/A
PX110401_Strabismus_Mother
	PX110401140101	Do or did his/her mother have strabismus?	N/A
PX110401_Strabismus_Number_Brothers
	PX110401140203	How many of his/her brothers have, had, or more were suspected of having strabismus? show less	N/A
PX110401_Strabismus_Number_Brothers_Coded
	PX110401140204	How many of his/her brothers have, had, or more were suspected of having strabismus? show less	N/A
PX110401_Strabismus_Number_Grandparents
	PX110401140205	How many of his/her grandparents have, had, more or were suspected of having strabismus? show less	N/A
PX110401_Strabismus_Number_Grandparents_Coded
	PX110401140206	How many of his/her grandparents have, had, more or were suspected of having strabismus? show less	N/A
PX110401_Strabismus_Number_Other_Relatives
	PX110401140207	How many of his/her other relatives have, more had, or were suspected of having strabismus? show less	N/A
PX110401_Strabismus_Number_Other_Relatives_Coded
	PX110401140208	How many of his/her other relatives have, more had, or were suspected of having strabismus? show less	N/A
PX110401_Strabismus_Number_Sisters
	PX110401140201	How many of his/her sisters have, had, or more were suspected of having strabismus? show less	N/A
PX110401_Strabismus_Number_Sisters_Coded
	PX110401140202	How many of his/her sisters have, had, or more were suspected of having strabismus? show less	N/A
PX110401_Strabismus_Other_Relative
	PX110401140106	Do or did any of his/her other relative have more strabismus? show less	N/A
PX110401_Strabismus_Other_Relative_Specify
	PX110401140107	Specify other relative.	N/A
PX110401_Strabismus_Other_Treatment_Specify
	PX110401120202	Specify other treatment.	N/A
PX110401_Strabismus_Relative
	PX110401130000	Do or did any of his/her relatives have more strabismus that is if one or both eyes are turned in, or turned out, or up or down? show less	N/A
PX110401_Strabismus_Sister
	PX110401140103	Do or did any of his/her sister have strabismus?	N/A
PX110401_Strabismus_Treatment_Ever
	PX110401120100	Has (name of child) ever been treated for more his/her strabismus that is if one or both eyes are turned in, or turned out, or up or down? show less	N/A
PX110401_Strabismus_Treatment_Type
	PX110401120201	What treatment did (name of child) receive?	N/A

Ocular

Measure Name

Eye Diseases and Treatment in Young Children

Release Date

February 26, 2010

Definition

Questions to assess various eye diseases and treatments in very young children

Purpose

A variety of eye diseases in the newborn may have life-long implications associated with visual function and ocular health. The presence of structural ocular defects in the newborn are often due to inherited ocular and/or syndromic conditions, but may also be due to environmental factors (e.g. intrauterine viruses which may cause neonatal cataracts).

Keywords

Ocular, Eye disease, Treatment of eye disease, Family history of eye disease, Multi-Ethnic Pediatric Eye Disease Study, MEPEDS, Baltimore Pediatric Eye Disease Study, BPEDS, Strabismus, Amblyopia, Myopia, Eye patching, Infants, Children

Measure Protocols

Protocol ID	Protocol Name
110401	Eye Diseases and Treatment in Young Children

Publications

There are no publications listed for this protocol.

Mapping for PX110401_Amblyopia_Ever

dbGAP Study	dbGAP Variable	dbGAP Variable Description
Multi-Ethnic Study of Atherosclerosis (MESA) Cohort	phv00085855	LAZY EYE OR AMBLYOPIA

Mapping for PX110401_Myopia_Nearsightedness_Ever

dbGAP Study	dbGAP Variable	dbGAP Variable Description
DCCT-EDIC Clinical Trial and Follow-up of Persons with Type 1 Diabetes	phv00034337	Patient has a history of: severe myopia

Mapping for PX110401_Retinopathy_Prematurity_Ever

dbGAP Study	dbGAP Variable	dbGAP Variable Description
GENEVA Study of Preterm Delivery (African-American)	phv00160017	Child diagnosed with any retinopathy of prematurity.
GENEVA Study of Preterm Delivery (African-American)	phv00160124	Child diagnosed with any retinopathy of prematurity.
GENEVA Study of Preterm Delivery (African-American)	phv00160244	Child diagnosed with any retinopathy of prematurity.
GENEVA Study of Preterm Delivery (DNBC/Iowa)	phv00024355	Child ever registered in the National Patient Register with retinopathy of prematurity (ICD10 code H35.1 = Retinopathy of prematurity)?

Mapping for PX110401_Strabismus_Ever

dbGAP Study	dbGAP Variable	dbGAP Variable Description
Pediatric Cardiac Genetics Consortium (PCGC)	phv00180787	Strabismus

Protocol - Eye Diseases and Treatment in Young Children

Essential Protocols:

Description

Specific Instructions

Availability

Protocol

Personnel and Training Required

Equipment Needs

Requirements

Mode of Administration

Lifestage

Participants

Selection Rationale

Language

Standards

Derived Variables

Process and Review

Protocol Name from Source

Source

General References

Protocol ID

Variables

Measure Name

Release Date

Definition

Purpose

Keywords

Measure Protocols

Publications