Protocol - Sexual Orientation
Description
A multi-part question asking participants to describe their sexual orientation. Multiple response options are provided along with an open-ended option.
Specific Instructions
The three dimensions of sexuality—attraction, identity, and behavior—may not correspond to the same orientation.
Identity: A persons core internal sense of their sexuality.
Attraction: A multidimensional concept that includes the gender(s) to which a person is attracted and the strength of this attraction, including whether a person feels attraction at all.
Behavior: A multidimensional concept that includes the gender(s) of sexual partners, specific sexual activities, and frequency of activity.
A person’s sexual orientation does not always align with behavior or attraction. Sexual orientation is useful as basic demographic information.
Availability
Protocol
1a. Which of the following best represents how you think of yourself?
[ ] Gay
[ ] Lesbian
[ ] Straight; that is, not gay or lesbian, etc.
[ ] Bisexual
[ ] None of these describe me, and I’d like to see additional options
Branching logic: If ‘none of these describe me, and I’d like to see additional options’ selected:
1b. Are any of these a closer description of how you think of yourself?
[ ] Queer
[ ] Polysexual, omnisexual, sapiosexual or pansexual
[ ] Asexual
[ ] Two-spirit
[ ] Have not figured out or are in the process of figuring out your sexuality
[ ] Mostly straight, but sometimes attracted to people of your own sex
[ ] Do not think of yourself as having sexuality
[ ] Do not use labels to identify yourself
[ ] Don’t know the answer
[ ] No, I mean something else (optional free text) __________________
[ ] Prefer not to answer
Personnel and Training Required
None
Equipment Needs
The PhenX Steering Committee acknowledges these questions can be administered in a computerized or noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire."
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered or interviewer-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults aged 18 and older
Selection Rationale
This protocol was selected because it is both the most up-to-date and in use by the national All of Us research program.
Language
English, Other languages available at source
Standards
| Standard | Name | ID | Source |
|---|
Derived Variables
None
Process and Review
The NIH Sexual and Gender Minority Research Office (SGMRO) reviewed this protocol in August 2023.
- Added NASEM report reference
- Removed The Precision Medicine Initiative Cohort Program, Collins, F.S. and Varmus, H., and National Research Council references
- Updated Specific Instructions
- Updated Protocol Definition
- Updated Purpose
- Updated Keywords
Protocol Name from Source
All of Us Research Program, Participant Provided Information (PPI), 2018
Source
All of Us Research Program Participant Provided Information (PPI) Version: December 17, 2018
General References
National Academies of Sciences, Engineering, and Medicine; Division of Behavioral and Social Sciences and Education; Committee on National Statistics; Committee on Measuring Sex, Gender Identity, and Sexual Orientation. Measuring Sex, Gender Identity, and Sexual Orientation. Becker T, Chin M, Bates N, editors. Washington (DC): National Academies Press (US); 2022 Mar 9. PMID: 35286054.
Perron, T., Kartoz, C., Himelfarb, C., LGBTQ Youth Part 1. National Association of School Nurses, 2017 Mar. 32(2): 106-115.
Perron, T., Kartoz, C., Himelfarb, C. LGBTQ Part 2. National Association of School Nurses. 2017 Mar. 32(2): 116-121.
The GenIUSS Group. (2014). Best Practices for Asking Questions to Identify Transgender and Other Gender Minority Respondents on Population-Based Surveys. J.L. Herman (Ed.). Los Angeles, CA: The Williams Institute.
Protocol ID
11701
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX011701_Sexual_Orientation_Description | ||||
| PX011701020100 | Are any of these a closer description of how more | N/A | ||
| PX011701_Sexual_Orientation_Description_Other | ||||
| PX011701020200 | Are any of these a closer description of how more | N/A | ||
| PX011701_Sexual_Orientation_Identity | ||||
| PX011701010000 | Which of the following best represents how more | N/A | ||
Measure Name
Sexual orientation
Release Date
June 4, 2019
Definition
Often defined based on the gender(s) of a person's desired or actual partner(s) relative to their own gender identity.
Purpose
To obtain a person’s self-reported sexual orientation related to who they might be attracted to or partner with.
Keywords
sex assigned at birth, gender, LGBTQ, LGBTQIA, gay, lesbian, bisexual, intersex, asexual, queer
Measure Protocols
| Protocol ID | Protocol Name |
|---|---|
| 11701 | Sexual Orientation |
Publications
Levites Strekalova, Y. A., et al. (2024) Application of the Delphi method to the development of common data elements for social drivers of health: A systematic scoping review. Translational Behavioral Medicine. 2024 June; 14(7): 426-433. doi: 10.1093/tbm/ibae020
Klein, E. G., et al. (2024) A Randomized Clinical Trial of a Quitline Vaping Cessation Intervention: Baseline Characteristics of Young Adult Exclusive E-Cigarette Users Seeking Treatment. International Journal of Environmental Research and Public Health. 2024 June; 21(6): 809. doi: 10.3390/ijerph21060809
Burnett-Bowie, S. A. M., et al. (2024) The American Society for Bone and Mineral Research Task Force on clinical algorithms for fracture risk report. Journal of Bone and Mineral Research. 2024 May; 39(5): 517-530. doi: 10.1093/jbmr/zjae048
Kosyluk, K., et al. (2024) Mental Distress, Label Avoidance, and Use of a Mental Health Chatbot: Results From a US Survey. JMIR Formative Research. 2024 April; 8(17). doi: 10.2196/45959
Hatch, M. A., et al. (2024) PrEP for people who use opioids: A NIDA clinical trials network survey study in Southern US cities where HIV incidence is high. Drug and Alcohol Dependence. 2024 April; 257(9). doi: 10.1016/j.drugalcdep.2024.111133
Bartholomew, T. S., et al. (2024) Project CHARIOT: study protocol for a hybrid type 1 effectiveness-implementation study of comprehensive tele-harm reduction for engagement of people who inject drugs in HIV prevention services Addiction Science & Clinical Practice. 2024 March; 19(1). doi: 10.1186/s13722-024-00447-9
Cleverley, K., et al. (2024) The Toronto Adolescent and Youth Cohort Study: Study Design and Early Data Related to Psychosis Spectrum Symptoms, Functioning, and Suicidality. Biological Psychiatry-Cognitive Neuroscience and Neuroimaging. 2024 March; 9(3): 253-264. doi: 10.1016/j.bpsc.2023.10.011
Chan, N. W., et al. (2022) Social determinants of health data in solid organ transplantation: National data sources and future directions. Am J Transplant. 2022 October; 22(10): 2293-2301. doi: 10.1111/ajt.17096
Pomeroy, A., et al. (2022) Protocol for a Longitudinal Study of the Determinants of Metabolic Syndrome Risk in Young Adults. Translational Journal of the American College of Sports Medicine. 2022 April; 7(2): 8. doi: 10.1249/tjx.0000000000000197
Young Hye, K., et al. (2021) Predicting multilingual effects on executive function and individual connectomes in children: An ABCD study. Proceedings of the National Academy of Sciences of the United States of America. 2021 December; 118(49): 1-11. doi: 10.1073/pnas.2110811118
Purvis, R. S., et al. (2021) Trusted Sources of COVID-19 Vaccine Information among Hesitant Adopters in the United States. Vaccines. 2021 December; 9(12): 1418. doi: 10.3390/vaccines9121418