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Protocol - Cognitive Changes

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Description

The informant (e.g., caregiver) is asked a series of questions to ascertain changes in the subjects cognition over the past two years. The informant indicates whether the subjects cognition in relation to various situations has improved, stayed the same, or gotten worse. These questions are from the Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE).

Specific Instructions

The introduction refers to the last month or so of the subjects life. The questions can be administered to the informant before that time, perhaps when there is potential cognitive decline.

Availability

Available

Protocol

Now we want you to remember what Rs FIRST NAME was like two years ago and to compare it with what [he/she] is like now. Two years ago was in {CURRENT INTERVIEW YEAR - 2}. I will read situations where Rs FIRST NAME has to use [his/her] memory or intelligence and we would like you to indicate whether this has improved, stayed the same, or gotten worse in that situation over the past two years.

Note the importance of comparing [his/her] present performance with two years ago. So if two years ago Rs FIRST NAME always forgot where [he/she] had left things, and [he/she] still does, then this would be considered "not much change."

Now we want you to remember what Rs FIRST NAME was like [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR /two years ago] and to compare it with what [he/she] was like toward the end of [his/her] life, but leaving out the last month or so of [his/her] life. I will read situations where Rs FIRST NAME had to use [his/her] memory or intelligence and we would like you to indicate whether this had improved, stayed the same, or gotten worse in that situation over that time period.

Note the importance of comparing [his/her] performance toward the end of [his/her] life with [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR/two years ago]. So if two years ago Rs FIRST NAME always forgot where [he/she] had left things, and [he/she] still did, then this would be considered "not much change."

1. Compared with two years ago, how is Rs FIRST NAME at:

Remembering things about family and friends, such as occupations, birthdays, and addresses.

Has this improved, not much changed, or gotten worse?

Compared with [when we interviewed [him/her] in Rs LAST IW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:

Remembering things about family and friends, such as occupations, birthdays, and addresses.

Had this improved, not much changed, or gotten worse?

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q4

3[ ]GOTTEN WORSE - GO TO Q3

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY - GO TO Q4

8[ ]DK - GO TO Q4

9[ ]RF - GO TO Q4

2. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED - GO TO Q4

2[ ]A BIT IMPROVED - GO TO Q4

8[ ]DK - GO TO Q4

9[ ]RF - GO TO Q4

3. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

4. Compared with two years ago, how is Rs FIRST NAME at:

Remembering things that have happened recently?

(Has this improved, not much changed, or gotten worse?)

Compared with [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:

Remembering things that had happened recently?

(Had this improved, not much changed, or gotten worse?)

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q7

3[ ]GOTTEN WORSE- GO TO Q6

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY - GO TO Q7

8[ ]DK - GO TO Q7

9[ ]RF - GO TO Q7

5. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED

2[ ]A BIT IMPROVED

8[ ]DK

9[ ]RF

GO TO Q7

6. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

7. (Compared with two years ago, how is Rs FIRST NAME at:)

Recalling conversations a few days later?

(Has this improved, not much changed, or gotten worse?)

(Compared with [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:)

Recalling conversations a few days later?

(Had this improved, not much changed, or gotten worse?)

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q10

3[ ]GOTTEN WORSE - GO TO Q9

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY - GO TO Q10

8[ ]DK - GO TO Q10

9[ ]RF - GO TO Q10

8. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED

2[ ]A BIT IMPROVED

8[ ]DK

9[ ]RF

GO TO Q10

9. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

10. (Compared with two years ago, how is Rs FIRST NAME at:)

Remembering [his/her] address and telephone number?

(Has this improved, not much changed, or gotten worse?)

(Compared with [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:)

Remembering [his/her] address and telephone number?

(Had this improved, not much changed, or gotten worse?)

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q13

3[ ]GOTTEN WORSE- GO TO Q12

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY - GO TO Q13

8[ ]DK - GO TO Q13

9[ ]RF - GO TO Q13

11. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED

2[ ]A BIT IMPROVED

8[ ]DK

9[ ]RF

GO TO Q13

12. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

13. (Compared with two years ago, how is Rs FIRST NAME at:)

Remembering what day and month it is?

(Has this improved, not much changed, or gotten worse?)

(Compared with [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:)

Remembering what day and month it was?

(Had this improved, not much changed, or gotten worse?)

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q16

3[ ]GOTTEN WORSE - GO TO Q15

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY - GO TO Q16

8[ ]DK - GO TO Q16

9[ ]RF - GO TO Q16

14. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED

2[ ]A BIT IMPROVED

8[ ]DK

9[ ]RF

GO TO Q16

15. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

16. (Compared with two years ago, how is Rs FIRST NAME at:)

Remembering where things are usually kept?

(Has this improved, not much changed, or gotten worse?)

(Compared with [when we interviewed [him/her] in Rs LAST NTERVIEW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:)

Remembering where things were usually kept?

(Had this improved, not much changed, or gotten worse?)

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q19

3[ ]GOTTEN WORSE - GO TO Q18

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY - GO TO Q19

8[ ]DK - GO TO Q19

9[ ]RF - GO TO Q19

17. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED

2[ ]A BIT IMPROVED

GO TO Q19

18. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

19. (Compared with two years ago, how is Rs FIRST NAME at:)

Remembering where to find things which have been put in a different place than usual?

(Has this improved, not much changed, or gotten worse?)

(Compared with [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:)

Remembering where to find things which had been put in a different place than usual?

(Had this improved, not much changed, or gotten worse?)

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q22

3[ ]GOTTEN WORSE - GO TO Q21

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY - GO TO Q22

8[ ]DK - GO TO Q22

9[ ]RF - GO TO Q22

20. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED

2[ ]A BIT IMPROVED

8[ ]DK

9[ ]RF

GO TO Q22

21. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

22. (Compared with two years ago, how is Rs FIRST NAME at:)

Knowing how to work familiar machines around the house?

(Has this improved, not much changed, or gotten worse?)

(Compared with [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:)

Knowing how to work familiar machines around the house?

(Had this improved, not much changed, or gotten worse?)

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q25

3[ ]GOTTEN WORSE - GO TO Q24

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY - GO TO Q25

8[ ]DK - GO TO Q25

9[ ]RF - GO TO Q25

23. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED

2[ ]A BIT IMPROVED

8[ ]DK

9[ ]RF

GO TO Q25

24. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

25. (Compared with two years ago, how is Rs FIRST NAME at:)

Learning to use a new gadget or machine around the house?

(Has this improved, not much changed, or gotten worse?)

(Compared with [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:)

Learning to use a new gadget or machine around the house?

(Had this improved, not much changed, or gotten worse?)

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q28

3[ ]GOTTEN WORSE - GO TO Q27

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY - GO TO Q28

8[ ]DK - GO TO Q28

9[ ]RF - GO TO Q28

26. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED

2[ ]A BIT IMPROVED

8[ ]DK

9[ ]RF

GO TO Q28

27. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

28. (Compared with two years ago, how is Rs FIRST NAME at:)

Learning new things in general?

(Has this improved, not much changed, or gotten worse?)

(Compared with [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:)

Learning new things in general?

(Had this improved, not much changed, or gotten worse?)

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q31

3[ ]GOTTEN WORSE - GO TO Q30

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY - GO TO Q31

8[ ]DK - GO TO Q31

9[ ]RF - GO TO Q31

29. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED

2[ ]A BIT IMPROVED

8[ ]DK

9[ ]RF

GO TO Q31

30. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

31. (Compared with two years ago, how is Rs FIRST NAME at:)

Following a story in a book or on TV?

(Has this improved, not much changed, or gotten worse?)

(Compared with [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:)

Following a story in a book or on TV?

(Had this improved, not much changed, or gotten worse?)

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q34

3[ ]GOTTEN WORSE - GO TO Q33

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY - GO TO Q34

8[ ]DK - GO TO Q34

9[ ]RF - GO TO Q34

32. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED

2[ ]A BIT IMPROVED

8[ ]DK

9[ ]RF

GO TO Q34

33. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

34. (Compared with two years ago, how is Rs FIRST NAME at:)

Making decisions on everyday matters?

(Has this improved, not much changed, or gotten worse?)

(Compared with [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:)

Making decisions on everyday matters?

(Had this improved, not much changed, or gotten worse?)

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q37

3[ ]GOTTEN WORSE - GO TO Q36

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY- GO TO Q37

8[ ]DK - GO TO Q37

9[ ]RF - GO TO Q37

35. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED

2[ ]A BIT IMPROVED

8[ ]DK

9[ ]RF

GO TO Q37

36. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

37. (Compared with two years ago, how is Rs FIRST NAME at:)

Handling money for shopping?

(Has this improved, not much changed, or gotten worse?)

(Compared with [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:)

Handling money for shopping?

(Had this improved, not much changed, or gotten worse?)

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q40

3[ ]GOTTEN WORSE - GO TO Q439

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY - GO TO Q40

8[ ]DK - GO TO Q40

9[ ]RF - GO TO Q40

38. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED

2[ ]A BIT IMPROVED

8[ ]DK

9[ ]RF

GO TO Q40

39. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

40. (Compared with two years ago, how is Rs FIRST NAME at:)

Handling financial matters, that is, [his/her] pension or dealing with the bank?

(Has this improved, not much changed, or gotten worse?)

(Compared with [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:)

Handling financial matters, for example, a pension or dealing with the bank?

(Had this improved, not much changed, or gotten worse?)

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q43

3[ ]GOTTEN WORSE - GO TO Q42

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY - GO TO Q43

8[ ]DK - GO TO Q43

9[ ]RF - GO TO Q43

41. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED

2[ ]A BIT IMPROVED

8[ ]DK

9[ ]RF

GO TO Q43

42. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

43. (Compared with two years ago, how is Rs FIRST NAME at:)

Handling other everyday arithmetic problems, such as knowing how much food to buy, knowing how long between visits from family or friends? (Has this improved, not much changed, or gotten worse?)

(Compared with [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:)

Handling other everyday arithmetic problems, such as knowing how much food to buy, knowing how long between visits from family or friends? (Had this improved, not much changed, or gotten worse?)

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q46

3[ ]GOTTEN WORSE - GO TO Q45

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY - GO TO Q46

8[ ]DK - GO TO Q46

9[ ]RF - GO TO Q46

44. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED

2[ ]A BIT IMPROVED

8[ ]DK

9[ ]RF

GO TO Q46

45. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

46. (Compared with two years ago, how is Rs FIRST NAME at:)

Using [his/her] intelligence to understand whats going on and to reason things through?

(Has this improved, not much changed, or gotten worse?)

(Compared with [when we interviewed [him/her] in Rs LAST INTERVIEW MONTH, YEAR/two years ago], how was Rs FIRST NAME at:)

Using [his/her] intelligence to understand what was going on and to reason things through?

(Had this improved, not much changed, or gotten worse?)

1[ ]IMPROVED

2[ ]NOT MUCH CHANGED - GO TO Q49

3[ ]GOTTEN WORSE - GO TO Q48

4[ ]DOES NOT APPLY; R DOESNT DO ACTIVITY - GO TO Q49

8[ ]DK - GO TO Q49

9[ ]RF - GO TO Q49

47. Is it much improved or a bit improved?

1[ ]MUCH IMPROVED

2[ ]A BIT IMPROVED

8[ ]DK

9[ ]RF

GO TO Q49

48. Is it much worse or a bit worse?

4[ ]A BIT WORSE

5[ ]MUCH WORSE

8[ ]DK

9[ ]RF

49. Now, thinking about some current behaviors, does [he/she] ever get lost in a familiar environment?

Did [he/she] ever get lost in a familiar environment?

1[ ]YES

5[ ]NO

8[ ]DK

9[ ]RF

50. Does [he/she] ever wander off and not return by [himself/ herself]?

Did [he/she] ever wander off and not return by [himself/ herself]?

1[ ]YES

5[ ]NO

8[ ]DK

9[ ]RF

51. Can [he/she] be left alone for an hour or so?

[Since Rs LAST INTERVIEW MONTH, YEAR/In the last two years] could [he/she] be left alone for an hour or so?

1[ ]YES

5[ ]NO

8[ ]DK

9[ ]RF

52. Does [he/she] ever see or hear things that are not really there?

Did Rs FIRST NAME ever see or hear things that were not really there?

1[ ]YES

5[ ]NO

8[ ]DK

9[ ]RF

Personnel and Training Required

The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews. The interviewer should be trained to prompt respondents further if a "dont know" response is provided.

Equipment Needs
The PhenX Working Group acknowledges these questions can be administered in a computerized or noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.
Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Interviewer-administered questionnaire

Lifestage

Senior

Participants

65 years of age and older

Selection Rationale

The IQCODE is the most commonly used informant-based assessment of cognition.

Language

English, Other languages available at source

Standards
StandardNameIDSource
Human Phenotype Ontology Cognitive impairment HP:0100543 HPO
Human Phenotype Ontology Mental deterioration HP:0001268 HPO
caDSR Form PhenX PX250501 - Cognitive Changes 6886716 caDSR Form
Derived Variables

None

Process and Review

Not applicable.

>

Protocol Name from Source

Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE)

Source

Jorm, A. F. & Jacomb, P. A. (1989). The Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE): Socio-demographic correlates, reliability, validity and some norms. Psychological Medicine, 19(4), 1015-1022.

Health and Retirement Survey, 2016, Section D. Cognition Questions D505 to D557

General References

Jorm, A. F. (2004). The Informant Questionnaire on cognitive decline in the elderly (IQCODE): A review. International Psychogeriatrics, 16(3), 275-293.

Protocol ID

250501

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX250501_Cognitive_Changes_Address_Phone_Decreased
PX250501120000 (Compared with two years ago, how is R's more
FIRST NAME at:) Remembering [his/her] address and telephone number? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/t show less
N/A
PX250501_Cognitive_Changes_Address_Phone_Improved
PX250501110000 (Compared with two years ago, how is R's more
FIRST NAME at:) Remembering [his/her] address and telephone number? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/t show less
N/A
PX250501_Cognitive_Changes_Address_Phone_Status
PX250501100000 (Compared with two years ago, how is R's more
FIRST NAME at:) Remembering [his/her] address and telephone number? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/t show less
N/A
PX250501_Cognitive_Changes_Conversations_Decreased
PX250501090000 (Compared with two years ago, how is R's more
FIRST NAME at:) Recalling conversations a few days later? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years a show less
N/A
PX250501_Cognitive_Changes_Conversations_Improved
PX250501080000 (Compared with two years ago, how is R's more
FIRST NAME at:) Recalling conversations a few days later? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years a show less
N/A
PX250501_Cognitive_Changes_Conversations_Status
PX250501070000 (Compared with two years ago, how is R's more
FIRST NAME at:) Recalling conversations a few days later? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years a show less
N/A
PX250501_Cognitive_Changes_Everyday_Arithmetic_Decreased
PX250501450000 (Compared with two years ago, how is R's more
FIRST NAME at:) Handling other everyday arithmetic problems, such as knowing how much food to buy, knowing how long between visits from family or friends? (Has this improved, not much changed, or gotten wors show less
N/A
PX250501_Cognitive_Changes_Everyday_Arithmetic_Improved
PX250501440000 (Compared with two years ago, how is R's more
FIRST NAME at:) Handling other everyday arithmetic problems, such as knowing how much food to buy, knowing how long between visits from family or friends? (Has this improved, not much changed, or gotten wors show less
N/A
PX250501_Cognitive_Changes_Everyday_Arithmetic_Status
PX250501430000 (Compared with two years ago, how is R's more
FIRST NAME at:) Handling other everyday arithmetic problems, such as knowing how much food to buy, knowing how long between visits from family or friends? (Has this improved, not much changed, or gotten wors show less
N/A
PX250501_Cognitive_Changes_Everyday_Decisions_Decreased
PX250501360000 (Compared with two years ago, how is R's more
FIRST NAME at:) Making decisions on everyday matters? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years ago], show less
N/A
PX250501_Cognitive_Changes_Everyday_Decisions_Improved
PX250501350000 (Compared with two years ago, how is R's more
FIRST NAME at:) Making decisions on everyday matters? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years ago], show less
N/A
PX250501_Cognitive_Changes_Everyday_Decisions_Status
PX250501340000 (Compared with two years ago, how is R's more
FIRST NAME at:) Making decisions on everyday matters? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years ago], show less
N/A
PX250501_Cognitive_Changes_Familiar_Environment
PX250501490000 Now, thinking about some current behaviors, more
does [he/she] ever get lost in a familiar environment? Did [he/she] ever get lost in a familiar environment? show less
N/A
PX250501_Cognitive_Changes_Familiar_Household_Machines_Decreased
PX250501240000 (Compared with two years ago, how is R's more
FIRST NAME at:) Knowing how to work familiar machines around the house? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YE show less
N/A
PX250501_Cognitive_Changes_Familiar_Household_Machines_Improved
PX250501230000 (Compared with two years ago, how is R's more
FIRST NAME at:) Knowing how to work familiar machines around the house? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YE show less
N/A
PX250501_Cognitive_Changes_Familiar_Household_Machines_Status
PX250501220000 (Compared with two years ago, how is R's more
FIRST NAME at:) Knowing how to work familiar machines around the house? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YE show less
N/A
PX250501_Cognitive_Changes_Family_Memory_Decreased
PX250501030000 Compared with two years ago, how is R's more
FIRST NAME at: Remembering things about family and friends, such as occupations, birthdays, and addresses. Has this improved, not much changed, or gotten worse? Compared with [when we interviewed [him/her] in show less
N/A
PX250501_Cognitive_Changes_Family_Memory_Improved
PX250501020000 Compared with two years ago, how is R's more
FIRST NAME at: Remembering things about family and friends, such as occupations, birthdays, and addresses. Has this improved, not much changed, or gotten worse? Compared with [when we interviewed [him/her] in show less
N/A
PX250501_Cognitive_Changes_Family_Memory_Status
PX250501010000 Compared with two years ago, how is R's more
FIRST NAME at: Remembering things about family and friends, such as occupations, birthdays, and addresses. Has this improved, not much changed, or gotten worse? Compared with [when we interviewed [him/her] in show less
N/A
PX250501_Cognitive_Changes_Financial_Matters_Decreased
PX250501420000 (Compared with two years ago, how is R's more
FIRST NAME at:) Handling financial matters, that is, [his/her] pension or dealing with the bank? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's show less
N/A
PX250501_Cognitive_Changes_Financial_Matters_Improved
PX250501410000 (Compared with two years ago, how is R's more
FIRST NAME at:) Handling financial matters, that is, [his/her] pension or dealing with the bank? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's show less
N/A
PX250501_Cognitive_Changes_Financial_Matters_Status
PX250501400000 (Compared with two years ago, how is R's more
FIRST NAME at:) Handling financial matters, that is, [his/her] pension or dealing with the bank? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's show less
N/A
PX250501_Cognitive_Changes_Hallucinations
PX250501520000 Does [he/she] ever see or hear things that more
are not really there? Did R's FIRST NAME ever see or hear things that were not really there? show less
N/A
PX250501_Cognitive_Changes_Intelligence_Reasoning_Decreased
PX250501480000 (Compared with two years ago, how is R's more
FIRST NAME at:) Using [his/her] intelligence to understand what's going on and to reason things through? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her show less
N/A
PX250501_Cognitive_Changes_Intelligence_Reasoning_Improved
PX250501470000 (Compared with two years ago, how is R's more
FIRST NAME at:) Using [his/her] intelligence to understand what's going on and to reason things through? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her show less
N/A
PX250501_Cognitive_Changes_Intelligence_Reasoning_Status
PX250501460000 (Compared with two years ago, how is R's more
FIRST NAME at:) Using [his/her] intelligence to understand what's going on and to reason things through? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her show less
N/A
PX250501_Cognitive_Changes_Items_Elsewhere_Decreased
PX250501210000 (Compared with two years ago, how is R's more
FIRST NAME at:) Remembering where to find things which have been put in a different place than usual? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in show less
N/A
PX250501_Cognitive_Changes_Items_Elsewhere_Improved
PX250501200000 (Compared with two years ago, how is R's more
FIRST NAME at:) Remembering where to find things which have been put in a different place than usual? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in show less
N/A
PX250501_Cognitive_Changes_Items_Elsewhere_Status
PX250501190000 (Compared with two years ago, how is R's more
FIRST NAME at:) Remembering where to find things which have been put in a different place than usual? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in show less
N/A
PX250501_Cognitive_Changes_Keep_Items_Decreased
PX250501180000 (Compared with two years ago, how is R's more
FIRST NAME at:) Remembering where things are usually kept? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST NTERVIEW MONTH, YEAR/two years a show less
N/A
PX250501_Cognitive_Changes_Keep_Items_Improved
PX250501170000 (Compared with two years ago, how is R's more
FIRST NAME at:) Remembering where things are usually kept? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST NTERVIEW MONTH, YEAR/two years a show less
N/A
PX250501_Cognitive_Changes_Keep_Items_Status
PX250501160000 (Compared with two years ago, how is R's more
FIRST NAME at:) Remembering where things are usually kept? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST NTERVIEW MONTH, YEAR/two years a show less
N/A
PX250501_Cognitive_Changes_Left_Alone
PX250501510000 Can [he/she] be left alone for an hour or more
so? [Since R's LAST INTERVIEW MONTH, YEAR/In the last two years] could [he/she] be left alone for an hour or so? show less
N/A
PX250501_Cognitive_Changes_Month_Day_Decreased
PX250501150000 (Compared with two years ago, how is R's more
FIRST NAME at:) Remembering what day and month it is? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years ago], show less
N/A
PX250501_Cognitive_Changes_Month_Day_Improved
PX250501140000 (Compared with two years ago, how is R's more
FIRST NAME at:) Remembering what day and month it is? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years ago], show less
N/A
PX250501_Cognitive_Changes_Month_Day_Status
PX250501130000 (Compared with two years ago, how is R's more
FIRST NAME at:) Remembering what day and month it is? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years ago], show less
N/A
PX250501_Cognitive_Changes_New_Household_Machine_Decreased
PX250501270000 (Compared with two years ago, how is R's more
FIRST NAME at:) Learning to use a new gadget or machine around the house? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, show less
N/A
PX250501_Cognitive_Changes_New_Household_Machine_Improved
PX250501260000 (Compared with two years ago, how is R's more
FIRST NAME at:) Learning to use a new gadget or machine around the house? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, show less
N/A
PX250501_Cognitive_Changes_New_Household_Machine_Status
PX250501250000 (Compared with two years ago, how is R's more
FIRST NAME at:) Learning to use a new gadget or machine around the house? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, show less
N/A
PX250501_Cognitive_Changes_New_Things_General_Decreased
PX250501300000 (Compared with two years ago, how is R's more
FIRST NAME at:) Learning new things in general? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years ago], how w show less
N/A
PX250501_Cognitive_Changes_New_Things_General_Improved
PX250501290000 (Compared with two years ago, how is R's more
FIRST NAME at:) Learning new things in general? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years ago], how w show less
N/A
PX250501_Cognitive_Changes_New_Things_General_Status
PX250501280000 (Compared with two years ago, how is R's more
FIRST NAME at:) Learning new things in general? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years ago], how w show less
N/A
PX250501_Cognitive_Changes_Recent_Events_Decreased
PX250501060000 Compared with two years ago, how is R's more
FIRST NAME at: Remembering things that have happened recently? (Has this improved, not much changed, or gotten worse?) Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two year show less
N/A
PX250501_Cognitive_Changes_Recent_Events_Improved
PX250501050000 Compared with two years ago, how is R's more
FIRST NAME at: Remembering things that have happened recently? (Has this improved, not much changed, or gotten worse?) Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two year show less
N/A
PX250501_Cognitive_Changes_Recent_Events_Status
PX250501040000 Compared with two years ago, how is R's more
FIRST NAME at: Remembering things that have happened recently? (Has this improved, not much changed, or gotten worse?) Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two year show less
N/A
PX250501_Cognitive_Changes_Shopping_Money_Decreased
PX250501390000 (Compared with two years ago, how is R's more
FIRST NAME at:) Handling money for shopping? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years ago], how was show less
N/A
PX250501_Cognitive_Changes_Shopping_Money_Improved
PX250501380000 (Compared with two years ago, how is R's more
FIRST NAME at:) Handling money for shopping? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years ago], how was show less
N/A
PX250501_Cognitive_Changes_Shopping_Money_Status
PX250501370000 (Compared with two years ago, how is R's more
FIRST NAME at:) Handling money for shopping? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years ago], how was show less
N/A
PX250501_Cognitive_Changes_Story_Book_Television_Decreased
PX250501330000 (Compared with two years ago, how is R's more
FIRST NAME at:) Following a story in a book or on TV? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years ago], show less
N/A
PX250501_Cognitive_Changes_Story_Book_Television_Improved
PX250501320000 (Compared with two years ago, how is R's more
FIRST NAME at:) Following a story in a book or on TV? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years ago], show less
N/A
PX250501_Cognitive_Changes_Story_Book_Television_Status
PX250501310000 (Compared with two years ago, how is R's more
FIRST NAME at:) Following a story in a book or on TV? (Has this improved, not much changed, or gotten worse?) (Compared with [when we interviewed [him/her] in R's LAST INTERVIEW MONTH, YEAR/two years ago], show less
N/A
PX250501_Cognitive_Changes_Wander_Off
PX250501500000 Does [he/she] ever wander off and not return more
by [himself/ herself]? Did [he/she] ever wander off and not return by [himself/ herself]? show less
N/A
Geriatrics
Measure Name

Cognitive Changes

Release Date

July 2, 2018

Definition

A screening tool used to determine whether the subject's cognition has improved, stayed the same, or declined over the past two years.

Purpose

This assessment may be used to screen a person for cognitive changes and dementia.

Keywords

cognition, memory, Health and Retirement Survey, HRS, Informant Questionnaire on Cognitive Decline in the Elderly, IQCODE, gerontology, aging

Measure Protocols
Protocol ID Protocol Name
250501 Cognitive Changes
Publications

Oyedeji, C. I., et al. (2022) The Sickle Cell Disease Functional Assessment (SCD-FA) tool: a feasibility pilot study. Pilot and Feasibility Studies. 2022 March; 8(1): 14. doi: 10.1186/s40814-022-01005-3