Protocol - Access to Health Technology

Personnel and Training Required

None

Equipment Needs

None

Requirements

Requirement Category	Required
Major equipment	No
Specialized training	No
Specialized requirements for biospecimen collection	No
Average time of greater than 15 minutes in an unaffected individual	No

Mode of Administration

Self-administered questionnaire

Lifestage

Adult

Participants

Adults aged 18 or older

Selection Rationale

The Health Information National Trends Survey (HINTS) is a nationally representative survey that has been administered by the National Cancer Institute (NCI) since 2003. It is administered via single-mode mail survey and is comprehensive in its coverage of topics regarding knowledge of, attitudes toward, and use of cancer- and health-related information by the American public. The data are publicly available. 

Language

English, Spanish

Standards

Standard	Name	ID	Source

Derived Variables

None

Process and Review

Not applicable

Protocol Name from Source

Health Information National Trends Survey (HINTS), Annotated Form, Full-Content, Cycle 2, 2018

Source

National Institutes of Health, U.S. Department of Health and Human Services. (2018). Health Information National Trends Survey Annotated Form, Cycle 2, Full-content, English version.

General References

Emanuel, A. S., Kiviniemi, M. T., Howell, J. L., Hay, J. L., Waters, E. A., Orom, H., & Shepperd, J. A. (2015). Avoiding cancer risk information. Social Science & Medicine, 147, 113–120. 

Hay, J. L., Orom, H., Kiviniemi, M. T., & Waters, E. A. (2015). "I don't know" my cancer risk: Exploring deficits in cancer knowledge and information-seeking skills to explain an often-overlooked participant response. Medical Decision Making, 35(4), 436–445.

National Institutes of Health, U.S. Department of Health and Human Services. (2007). On-line communication with health care providers: eHealth behaviors and trends. HINTS Brief No. 8.

National Institutes of Health, U.S. Department of Health and Human Services. (2013). Health information technology and meaningful use. HINTS Brief No. 23.

National Institutes of Health, U.S. Department of Health and Human Services. (2014). Developing an electronic information system for high-quality cancer care. HINTS Brief No. 27.

National Institutes of Health, U.S. Department of Health and Human Services. (2018). HINTS 5 Cycle 2 public codebook.

National Institutes of Health, U.S. Department of Health and Human Services. (2018). HINTS factsheet.

Tennant, B., Stellefson, M., Dodd, V., Chaney, B., Chaney, D., Paige, S., & Alber, J. (2015). eHealth literacy and web 2.0 health information seeking behaviors among baby boomers and older adults. Journal of Medical Internet Research, 17(3), e70. 

Protocol ID

280401

Variables

Export Variables

Variable Name	Variable ID	Variable Description	dbGaP Mapping
PX280401_Access_Health_Technology_Electronic_Device_Past_Year_Health_Monitoring
	PX280401020000	Other than a tablet or smartphone, have you more used an electronic device to monitor or track your health within the last 12 months? Examples include Fitbit, blood glucose meters, and blood pressure monitors. show less	N/A
PX280401_Access_Health_Technology_Electronic_Device_Share_Information_Past_Year
	PX280401030000	Have you shared health information from more either an electronic monitoring device or smartphone with a health professional within the last 12 months? show less	N/A
PX280401_Access_Health_Technology_Health_Information_Privacy
	PX280401080000	Have you ever kept information from your more health care provider because you were concerned about the privacy or security of your medical record? show less	N/A
PX280401_Access_Health_Technology_Internet_Past_Year_Blog
	PX280401040300	Sometimes people use the Internet to connect more with other people online through social networks like Facebook or Twitter. This is often called social media. In the past 12 months, have you used the Internet for any of the following reasons? To write in show less	N/A
PX280401_Access_Health_Technology_Internet_Past_Year_Forum
	PX280401040400	Sometimes people use the Internet to connect more with other people online through social networks like Facebook or Twitter. This is often called social media. In the past 12 months, have you used the Internet for any of the following reasons? To particip show less	N/A
PX280401_Access_Health_Technology_Internet_Past_Year_Share_Health_Information
	PX280401040200	Sometimes people use the Internet to connect more with other people online through social networks like Facebook or Twitter. This is often called social media. In the past 12 months, have you used the Internet for any of the following reasons? To share he show less	N/A
PX280401_Access_Health_Technology_Internet_Past_Year_Social_Media
	PX280401040100	Sometimes people use the Internet to connect more with other people online through social networks like Facebook or Twitter. This is often called social media. In the past 12 months, have you used the Internet for any of the following reasons? To visit a show less	N/A
PX280401_Access_Health_Technology_Internet_Past_Year_Youtube
	PX280401040500	Sometimes people use the Internet to connect more with other people online through social networks like Facebook or Twitter. This is often called social media. In the past 12 months, have you used the Internet for any of the following reasons? To watch a show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Accessed_Past_Year
	PX280401110000	How many times did you access your online more medical record in the last 12 months? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Computer
	PX280401060000	Do any of your doctors or other health care more providers maintain your medical records in a computerized system? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Access
	PX280401090000	Have you ever been offered online access to more your medical records by your health care provider or health insurer? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Access_Details
	PX280401100100	Who offered you online access to your more medical records? Mark all that apply. show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Access_Details_Specify
	PX280401100200	Who offered you online access to your more medical records? Mark all that apply. Specify: show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Access_Direct_Communication
	PX280401120100	Why have you not accessed your medical more record online? Is it because... You prefer to speak to your health care provider directly? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Access_Lack_Means
	PX280401120200	Why have you not accessed your medical more record online? Is it because... You do not have a way to access the website? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Access_Necessity
	PX280401120300	Why have you not accessed your medical more record online? Is it because... You did not have a need to use your online medical record? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Access_Nonexistent
	PX280401120500	Why have you not accessed your medical more record online? Is it because... You don't have an online medical record? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Access_Other
	PX280401120601	Why have you not accessed your medical more record online? Is it because... Other show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Access_Other_Specify
	PX280401120602	Why have you not accessed your medical more record online? Is it because... Other, specify: show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Access_Privacy_Concerns
	PX280401120400	Why have you not accessed your medical more record online? Is it because... You were concerned about the privacy or security of the website that had your medical records? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Allergy
	PX280401140200	Do any of your online medical records more include the following types of medical information? Allergy list show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Clinical_Notes
	PX280401140400	Do any of your online medical records more include the following types of medical information? Clinical notes show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Different_Provider
	PX280401150100	Have you electronically sent your medical more information to... Another health care provider? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Family_Person
	PX280401150200	Have you electronically sent your medical more information to... A family member or another person involved with your care? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_History
	PX280401140100	Do any of your online medical records more include the following types of medical information? List of health/medical problems show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Immunization
	PX280401140500	Do any of your online medical records more include the following types of medical information? Immunization or vaccination history show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Office_Visit
	PX280401140300	Do any of your online medical records more include the following types of medical information? Summaries of your office visit show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Past_Year_Add_Information
	PX280401130600	In the past 12 months, have you used your more online medical record to... Add health information to share with your health care provider, such as health concerns, symptoms, and side effects? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Past_Year_Decision_Making
	PX280401130700	In the past 12 months, have you used your more online medical record to... Help you make a decision about how to treat an illness or condition? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Past_Year_Download
	PX280401130500	In the past 12 months, have you used your more online medical record to... Download your health information to your computer or mobile device, such as a cell phone or tablet? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Past_Year_Inaccuracy
	PX280401130300	In the past 12 months, have you used your more online medical record to... Request correction of inaccurate information? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Past_Year_Medication
	PX280401130100	In the past 12 months, have you used your more online medical record to... Request refill of medications? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Past_Year_Paperwork
	PX280401130200	In the past 12 months, have you used your more online medical record to... Fill out forms or paperwork related to your health care? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Past_Year_Secure_Messaging
	PX280401130400	In the past 12 months, have you used your more online medical record to... Securely message health care provider and staff (for example, e-mail)? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Service_App
	PX280401150300	Have you electronically sent your medical more information to... A service or app that can help manage and store your health information? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Online_Useful
	PX280401160000	In general, how useful is your online more medical record for monitoring your health? show less	N/A
PX280401_Access_Health_Technology_Medical_Records_Safeguards
	PX280401070000	How confident are you that safeguards more (including the use of technology) are in place to protect your medical records from being seen by people who aren't permitted to see them? show less	N/A
PX280401_Access_Health_Technology_Mobile_Device_Assist_Healthcare_Provider
	PX280401010300	Has your tablet or smartphone... helped you more in discussions with your health care provider? show less	N/A
PX280401_Access_Health_Technology_Mobile_Device_Track_Health_Goal
	PX280401010100	Has your tablet or smartphone... helped you more track progress on a health-related goal, such as quitting smoking, losing weight, or increasing physical activity? show less	N/A
PX280401_Access_Health_Technology_Mobile_Device_Treatment_Illness
	PX280401010200	Has your tablet or smartphone... helped you more make a decision about how to treat an illness or condition? show less	N/A
PX280401_Access_Health_Technology_Text_Message_Doctor_Past_Year
	PX280401050000	Have you sent a text message to or received more a text message from a doctor or other health care professional within the last 12 months? show less	N/A

Individual Social Determinants of Health

Measure Name

Use of Technology for Health

Release Date

May 11, 2020

Definition

Use of Technology for Health is a measure of access to health technology, including the use of smartphones and computers for accessing the Internet and electronic medical records, based on data from a nationally representative survey.

Purpose

This measure can be used to assess use of the Internet for finding and sharing health information, including social networking, and use of electronic medical records for monitoring health.

Keywords

National Cancer Institute, NCI, Health Information National Trends Survey, HINTS, Social Determinants of Health, Access to Health Care

Measure Protocols

Protocol ID	Protocol Name
280401	Access to Health Technology

Publications

Burnett-Bowie, S. A. M., et al. (2024) The American Society for Bone and Mineral Research Task Force on clinical algorithms for fracture risk report. Journal of Bone and Mineral Research. 2024 May; 39(5): 517-530. doi: 10.1093/jbmr/zjae048

Bartholomew, T. S., et al. (2024) Project CHARIOT: study protocol for a hybrid type 1 effectiveness-implementation study of comprehensive tele-harm reduction for engagement of people who inject drugs in HIV prevention services Addiction Science & Clinical Practice. 2024 March; 19(1). doi: 10.1186/s13722-024-00447-9

Chan, N. W., et al. (2022) Social determinants of health data in solid organ transplantation: National data sources and future directions. Am J Transplant. 2022 October; 22(10): 2293-2301. doi: 10.1111/ajt.17096

Windsor, L., et al. (2022) Optimization of a new adaptive intervention using the SMART Design to increase COVID-19 testing among people a high risk in an urban community. Trials. 2022 April; 23(1): 16. doi: 10.1186/s13063-022-06216-w