Protocol - Financial Hardship Associated with Cancer
Description
This self-administered subset of the questionnaire collects data on the effects of cancer and cancer treatments on the lives of those who have been diagnosed with cancer. These questions focus on different kinds of financial hardship on the participant and participant’s family members associated with cancer.
Specific Instructions
None
Availability
Protocol
The next questions ask about different kinds of financial burden you or your family may have experienced because of your cancer, its treatment, or the lasting effects of that treatment.
Please continue to think about all the time from when you were first diagnosed with cancer to now.
If you have had more than one type of cancer please think about your experiences across all of them. If that is not possible, please focus on the most severe, and if they were equally severe, please focus on the most recent.
1. Have you or has anyone in your family had to borrow money or go into debt because of your cancer, its treatment, or the lasting effects of that treatment?
[ ] Yes
[ ] No → GO TO Question 4
2. How much did you or your family borrow, or how much debt did you incur because of your cancer, its treatment, or the lasting effects of that treatment?
[ ] Less than $10,000
[ ] $10,000 to $24,999
[ ] $25,000 to $49,999
[ ] $50,000 to $74,999
[ ] $75,000 to $99,999
[ ] $100,000 or more
3. Did you or your family ever file for bankruptcy because of your cancer, its treatment, or the lasting effects of that treatment?
[ ] Yes
[ ] No
4. Have you or your family had to make any other kinds of financial sacrifices because of your cancer, its treatment, or the lasting effects of that treatment?
[ ] Yes
[ ] No → GO TO Question 5
Please describe:
5. Have you ever worried about having to pay large medical bills related to your cancer?
[ ] Yes
[ ] No
6. Please think about medical care visits for cancer, its treatment, or the lasting effects of that treatment. Have you ever been unable to cover your share of the cost of those visits?
[ ] Yes
[ ] No
Personnel and Training Required
None
Equipment Needs
None
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult
Participants
18 years or older
Selection Rationale
Research using the MEPS Experiences with Cancer Survivorship Section 6 can be used to understand financial hardship as a result of cancer treatment.
Language
English, Other languages available at source
Standards
| Standard | Name | ID | Source |
|---|
Derived Variables
None
Process and Review
Not Applicable
Protocol Name from Source
Medical Expenditure Panel Survey (MEPS), Experiences with Cancer Self-Administered Questionnaire (SAQ), 2011
Source
The Agency for Healthcare Research and Quality and The Centers for Disease Control and Prevention of the U.S. Department of Health and Human Services.2011. Medical Expenditure Panel Survey Experiences with Cancer Supplemental Questionnaire, Section 6 (71 – 76).
General References
Yabroff, K. R., Dowling, E., Rodriguez, J., Ekwueme, D. U., Meissner, H., Soni, A., Virgo, K. S. (2012). The Medical Expenditure Panel Survey (MEPS) experiences with cancer survivorship supplement. Journal of cancer survivorship : research and practice, 6(4), 407–419. doi:10.1007/s11764-012-0221-2
Mariotto AB, Yabroff KR, Shao Y, Feuer EJ, Brown ML. Projections of the cost of cancer care in the United States: 2010–2020. J Natl Cancer Inst. 2011;103(2):117–28. [PubMed], [Google Scholar]
Guy GP, Ekwueme DU, Yabroff KR, et al. : Economic burden of cancer survivorship among adults in the United States. J. Clin Oncol 31 (30); 3749-57, 2013. [PubMed].
Guy GP, Yabroff KR, Ekwueme DU, et al.: Estimating the health and economic burden of cancer among these diagnosed as adolescents and young adults. Health Aff (Millwood) 33 (6): 1024-31, 2014 [PubMed].
Protocol ID
320501
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX320501_Financial_Hardship_Associated_Cancer_Bankruptcy | ||||
| PX320501030000 | Did you or your family ever file for more | N/A | ||
| PX320501_Financial_Hardship_Associated_Cancer_Borrow_Money_Debt | ||||
| PX320501010000 | Have you or has anyone in your family had to more | N/A | ||
| PX320501_Financial_Hardship_Associated_Cancer_Borrow_Money_Debt_Amount | ||||
| PX320501020000 | How much did you or your family borrow, or more | N/A | ||
| PX320501_Financial_Hardship_Associated_Cancer_Other_Sacrifices | ||||
| PX320501040000 | Have you or your family had to make any more | N/A | ||
| PX320501_Financial_Hardship_Associated_Cancer_Other_Sacrifices_Describe | ||||
| PX320501050000 | Please describe: | N/A | ||
| PX320501_Financial_Hardship_Associated_Cancer_Unable_Cover_Cost | ||||
| PX320501070000 | Please think about medical care visits for more | N/A | ||
| PX320501_Financial_Hardship_Associated_Cancer_Worry_Large_Medical_Bills | ||||
| PX320501060000 | Have you ever worried about having to pay more | N/A | ||
Measure Name
Financial Hardship Associated with Cancer
Release Date
December 17, 2020
Definition
Not having health insurance or having a lot of costs for medical care not covered by health insurance can cause financial problems and may lead to debt and bankruptcy. Financial toxicity can also affect a patient’s quality of life and access to medical care. For example, a patient may not take a prescription medicine or may avoid going to the doctor to save money. Cancer patients are more likely to have financial toxicity than people without cancer. Also called economic burden, economic hardship, financial burden, financial distress, financial hardship, and financial stress from NCI dictionary.
Purpose
Questions ask about different kinds of financial burden you or your family mayhave experienced because of your cancer, its treatment, or the lasting effects of thattreatment.
Keywords
Cancer outcomes and survivorship, financial toxicity, financial burden, financial distress, hardship, financial hardship, economic burden, economic hardship, finances, MEPS, Medical Expenditure Panel Survey, self-administered survey
Measure Protocols
| Protocol ID | Protocol Name |
|---|---|
| 320501 | Financial Hardship Associated with Cancer |
Publications
There are no publications listed for this protocol.