Loading…

Protocol - Self-efficacy in Sickle Cell Disease

Add to My Toolkit
Description

The Sickle Cell Disease Self-Efficacy Scale is a nine-item self-administered questionnaire that measures disease-specific perceptions of the ability to manage day-to-day issues resulting from sickle cell disease (SCD). Items are scores according to a five-point scale ranging from "1 - Not sure at all" to "5 - Very sure." Responses from individual items are summed to give an overall score with higher scores indicating greater self-efficacy.

Specific Instructions

None

Availability

Available

Download PDF

Protocol

Sickle Cell Disease Self-Efficacy Scale

The following questions ask about how sure you are in dealing day-to-day with sickle cell disease. There are no right or wrong answers; we just want to know what you think. So for each question, tell us how sure you are by circling the response that best tells how you feel. Please answer every question.

1. How sure are you that you can do something to cut down on most of the pain?

1[ ]Not Sure at All

2[ ]Not Sure

3[ ]Neither

4[ ]Sure

5[ ]Very Sure

2. How sure are you that you can keep doing most of the things you do day-to-day?

1[ ]Not Sure at All

2[ ]Not Sure

3[ ]Neither

4[ ]Sure

5[ ]Very Sure

3. How sure are you that you can keep sickle cell disease pain from interfering with your sleep?

1[ ]Not Sure at All

2[ ]Not Sure

3[ ]Neither

4[ ]Sure

5[ ]Very Sure

4. How sure are you that you can reduce your sickle cell disease pain by using methods other than taking medications?

1[ ]Not Sure at All

2[ ]Not Sure

3[ ]Neither

4[ ]Sure

5[ ]Very Sure

5. How sure are you that you can control how often or when you get tired?

1[ ]Not Sure at All

2[ ]Not Sure

3[ ]Neither

4[ ]Sure

5[ ]Very Sure

6. How sure are you that you can do something to help yourself feel better if you are feeling sad or blue?

1[ ]Not Sure at All

2[ ]Not Sure

3[ ]Neither

4[ ]Sure

5[ ]Very Sure

7. As compared with other people with sickle cell disease, how sure are you that you can manage your life from day-to-day?

1[ ]Not Sure at All

2[ ]Not Sure

3[ ]Neither

4[ ]Sure

5[ ]Very Sure

8. How sure are you that you can manage your sickle cell disease symptoms so that you can do the things you enjoy doing?

1[ ]Not Sure at All

2[ ]Not Sure

3[ ]Neither

4[ ]Sure

5[ ]Very Sure

9. How sure are you that you can deal with the frustration of having sickle cell disease?

1[ ]Not Sure at All

2[ ]Not Sure

3[ ]Neither

4[ ]Sure

5[ ]Very Sure

Scoring:

Responses from individual items are summed to give an overall score, with higher scores indicating greater self-efficacy.

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Adult

Participants

Adults, ages 18 and older

Selection Rationale

The Sickle Cell Disease Self-Efficacy Scale is a brief, reliable, and valid self-administered questionnaire that captures the participant’s ability to engage successfully in day-to-day activities despite having sickle cell disease (SCD).

Language

English

Standards
StandardNameIDSource
Human Phenotype Ontology Sickle Cell Anemia ORPHA:232 HPO
Human Phenotype Ontology Anemia OMIM:603903 HPO
caDSR Form PhenX PX820401 - Selfefficacy In Sickle Cell Disease 6253509 caDSR Form
Derived Variables

None

Process and Review

Not applicable.

Protocol Name from Source

The Sickle Cell Disease Self-Efficacy Scale (SCSES)

Source

Edwards, R., Telfair, J., Cecil, H., & Lenoci, J. (2000). Reliability and validity of a self-efficacy instrument specific to sickle cell disease. Behaviour Research and Therapy 38, 951-963.

General References

Adegbola, M. (2011). Spirituality, self-efficacy, and quality of life among adults with sickle cell disease. Southern Online Journal of Nursing Research 11(1), 5.

Barakat, L. P., Schwartz, L. A., Salamon, K. S., & Radcliffe, J. (2010). A family-based randomized controlled trial of pain intervention for adolescents with sickle cell disease. Journal of Pediatric Hematology/Oncology 32(7), 540-547.

Edwards, R., Telfair, J., Cecil, H., & Lenoci, J. (2001). Self-efficacy as a predictor of adult adjustment to sickle cell disease: One-year outcomes. Psychosomatic Medicine 63(5), 850-858.

Protocol ID

820401

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX820401_SelfEfficacySCD_Life_Management_DayToDayy
PX820401070000 As compared with other people with sickle more
cell disease, how sure are you that you can manage your life from day-to-day? show less
N/A
PX820401_SelfEfficacySCD_Sure_Control_Frequency_GetTired
PX820401050000 How sure are you that you can control how more
often or when you get tired? show less
N/A
PX820401_SelfEfficacySCD_Sure_DealFrustration_HavingDisease
PX820401090000 How sure are you that you can deal with the more
frustration of having sickle cell disease? show less
N/A
PX820401_SelfEfficacySCD_Sure_Doing_DayToDay
PX820401020000 How sure are you that you can keep doing more
most of the things you do day-to-day? show less
N/A
PX820401_SelfEfficacySCD_Sure_DoSomething_FeelBetter
PX820401060000 How sure are you that you can do something more
to help yourself feel better if you are feeling sad or blue? show less
N/A
PX820401_SelfEfficacySCD_Sure_ManageDiseaseSymptoms
PX820401080000 How sure are you that you can manage your more
sickle cell disease symptoms so that you can do the things you enjoy doing? show less
N/A
PX820401_SelfEfficacySCD_Sure_PreventPain_Interfering_Sleep
PX820401030000 How sure are you that you can keep sickle more
cell disease pain from interfering with your sleep? show less
N/A
PX820401_SelfEfficacySCD_Sure_ReducePain_NonMedication
PX820401040000 How sure are you that you can reduce your more
sickle cell disease pain by using methods other than taking medications? show less
N/A
PX820401_SelfEfficacySCD_Sure_Something_Reduce_Pain
PX820401010000 How sure are you that you can do something more
to cut down on most of the pain? show less
N/A
SCD Neurology, Quality of Life, and Health Services
Measure Name

Self-efficacy in Sickle Cell Disease

Release Date

July 30, 2015

Definition

A questionnaire to measure a participant’s ability to manage sickle cell disease symptoms on a day-to-day basis.

Purpose

Self-efficacy, or one’s perceptions that they can exercise control over their behaviors and environment, may play an important role in determining the ability to adjust to chronic conditions such as sickle cell disease (SCD).

Keywords

sickle cell disease, SCD, Sickle Cell Disease Self-Efficacy Scale, self-efficacy, coping, "Neurology, quality of life, and Health Services"

Measure Protocols
Protocol ID Protocol Name
820401 Self-efficacy in Sickle Cell Disease
Publications

There are no publications listed for this protocol.