Protocol - Pain Catastrophizing - Parent Proxy

Personnel and Training Required

None

Equipment Needs

None

Requirements

Requirement Category	Required
Major equipment	No
Specialized training	No
Specialized requirements for biospecimen collection	No
Average time of greater than 15 minutes in an unaffected individual	No

Mode of Administration

Self-administered questionnaire

Lifestage

Adult

Participants

Parents of children with acute and/or chronic pain

Selection Rationale

The Pain Catastrophizing Scale is a brief, reliable, and valid self-administered questionnaire with child, adult, and parent versions that is broadly applicable to catastrophizing in both clinical and general populations. 

Language

English

Standards

Standard	Name	ID	Source

Derived Variables

None

Process and Review

Not Applicable

Protocol Name from Source

Pain Catastrophizing Scale - Parent Version (PCS-P)

Source

Goubert, L., Eccleston, C., Vervoort, T., Jordan, A., & Crombez, G. (2006). Parental catastrophizing about their childs pain. The parent version of the Pain Catastrophizing Scale (PCS-P): A preliminary validation. Pain, 123(3), 254-263.

General References

Brandelli, Y. N., Chambers, C. T., Tutelman, P. R., Stinson, J. N., Huber, A. M., & Wilson, J. P. (2019). Parent pain cognitions and treatment adherence in juvenile idiopathic arthritis. Journal of Pediatric Psychology, 44(9), 1111-1119.  

Hechler, T., Vervoort, T., Hamann, M., Tietze, A. L., Vocks, S., Goubert, L., Hermann, C., Wager, J., Blankenburg, M., Schroeder, S., & Zernikow, B. (2011). Parental catastrophizing about their childs chronic pain: Are mothers and fathers different? European Journal of Pain (London, England), 15(5), 515.e1-9.

Sil, S., Dampier, C., & Cohen, L. L. (2016). Pediatric sickle cell disease and parent and child catastrophizing. Journal of Pain, 17(9), 963-971.

Sullivan, M.J., Bishop, S.R., & Pivik, J. (1995). The pain catastrophizing scale: Development and validation. Psychological Assessment 7, 524-532.

Vervoort, T., Goubert, L., Vandenbossche, H., Van Aken, S., Matthys, D., & Crombez, G. (2011). Childs and parents catastrophizing about pain is associated with procedural fear in children: A study in children with diabetes and their mothers. Psychological Reports, 109(3), 879-895.

Protocol ID

860203

Variables

Export Variables

Variable Name	Variable ID	Variable Description	dbGaP Mapping
PX860203_Pain_Catastrophizing_Parent_Proxy_Afraid_Worse
	PX860203060000	When my child is in pain, I become afraid more that the pain will get worse. show less	N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Cant_Go_On
	PX860203020000	When my child is in pain, I feel I can†more t go on like this much longer. show less	N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Cant_Keep_Out_Mind
	PX860203090000	When my child is in pain, I can’t keep more t out of my mind. show less	N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Cant_Stand
	PX860203050000	When my child is in pain, I can’t stand more t anymore. show less	N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Go_Away
	PX860203080000	When my child is in pain, I want the pain to more go away. show less	N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Never_Better
	PX860203030000	When my child is in pain, it’s terrib more e and I think it’s never going to get better. show less	N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Nothing_Stop
	PX860203120000	When my child is in pain, there is nothing I more can do to stop the pain. show less	N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Other_Painful_Events
	PX860203070000	When my child is in pain, I keep thinking of more other painful events. show less	N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Overwhelms
	PX860203040000	When my child is in pain, it’s awful and more I feel that it overwhelms me. show less	N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Suffering
	PX860203100000	When my child is in pain, I keep thinking more about how much he/she is suffering. show less	N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Want_Stop
	PX860203110000	When my child is in pain, I keep thinking more about how much I want the pain to stop. show less	N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Whether_End
	PX860203010000	When my child is in pain, I worry all the more time about whether the pain will end. show less	N/A
PX860203_Pain_Catastrophizing_Parent_Proxy_Wonder
	PX860203130000	When my child is in pain, I wonder whether more something serious may happen. show less	N/A

SCD Pain

Measure Name

Pain Catastrophizing

Release Date

May 18, 2022

Definition

Pain catastrophizing is an amplified negative experience of pain including ruminating on the pain, magnifying the pain, and feelings of helplessness about the experience.

Purpose

Pain catastrophizing is associated with poor pain outcomes, including an increase in pain sensitivity, greater use of opioids, longer hospital stays, and increased health care utilization. Individuals with sickle cell disease report higher levels of pain catastrophizing when compared with other chronic conditions such as arthritis and back pain.  

Keywords

pain, catastrophizing, sickle cell disease, SCD, quality of life, helplessness, rumination, magnification of pain, pain experience

Measure Protocols

Protocol ID	Protocol Name
860201	Pain Catastrophizing - Adult
860202	Pain Catastrophizing - Child
860203	Pain Catastrophizing - Parent Proxy

Publications

There are no publications listed for this protocol.