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Protocol - Physical Mobility - Hospitalized Individuals

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Description

The Youth Acute Pain Functional Ability Questionnaire (YAPFAQ) is a 12-item self-administered questionnaire, with items prompting responses on a five-point rating scale (from "Not Difficult" to "Extremely Difficult") regarding how difficult a specified task is for a hospitalized patient. This protocol was validated in hospitalized individuals aged 7- to 21-years-old.

Specific Instructions

None

Availability

Available

Protocol

Youth Acute Pain Functional Ability Questionnaire-Final 12 items

When people are in the hospital they sometimes are too sick or uncomfortable to do all of their normal activities. We want you to think about how difficult it would be to do these things today—not whether or not you like to do these things, or whether you did them today.

Today how difficult are these things for you to do?

Not
Difficult

A Little
Difficult

Somewhat
Difficult

Very
Difficult

Extremely
Difficult

  1. Take a bath or shower?
  1. Put on or change your hospital gown or clothes?
  1. Wash your body?
  1. Get up from the bed?
  1. Walk around in the room?
  1. Wash or shampoo your hair?
  1. Go outside your room?
  1. Be up without needing to rest?
  1. Put on or change pants?
  1. Do homework or schoolwork?
  1. Turn over or roll over in bed?
  1. Put on or change your shirt?

Patients rate their level of difficulty performing each activity during the day using a 5-point Likert scale (0 = Not difficult, 1 = A little difficult, 2 = Somewhat difficult, 3 = Very difficult, 4 = Extremely difficult). Higher scores indicate greater difficulty performing functional activities.

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Child, Adolescent, Adult

Participants

Hospitalized individuals aged 7- to 21-years-old

Selection Rationale

This protocol was validated in hospitalized individuals with sickle cell disease who were experiencing a vaso-occlusive pain episode. It is also easy to administer and can be done daily.

Language

English

Standards
StandardNameIDSource
Derived Variables

None

Process and Review

Not Applicable

Protocol Name from Source

Youth Acute Pain Functional Ability Questionnaire (YAPFAQ)

Source

Zempsky, W. T., OHara, E. A., Santanelli, J. P., New, T., Smith-Whitley, K., Casella, J., & Palermo, T. M. (2014). Development and validation of the Youth Acute Pain Functional Ability Questionnaire (YAPFAQ). Journal of Pain, 15(12), 1319-1327.

General References

Bernier, K. M., Strobel, M., & Lucas, R. (2018). Assessing the Effect of an Educational Intervention on Nurses and Patient Care Assistants Comprehension and documentation of functional ability in pediatric patients with sickle cell disease. Journal of Pediatric Nursing, 41, 117-122.

Rabbitts, J. A., Aaron, R. V., Zempsky, W. T., & Palermo, T. M. (2017). Validation of the Youth Acute Pain Functional Ability Questionnaire in children and adolescents undergoing inpatient surgery. Journal of Pain, 18(10), 1209-1215.

Protocol ID

860903

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX860903_Physical_Mobility_Hospitalized_Bath_Shower
PX860903010000 Today how difficult are these things for you more
to do? Take a bath or shower? show less
N/A
PX860903_Physical_Mobility_Hospitalized_Be_Up
PX860903080000 Today how difficult are these things for you more
to do? Be up without needing to rest? show less
N/A
PX860903_Physical_Mobility_Hospitalized_Change_Clothes
PX860903020000 Today how difficult are these things for you more
to do? Put on or change your hospital gown or clothes? show less
N/A
PX860903_Physical_Mobility_Hospitalized_Change_Pants
PX860903090000 Today how difficult are these things for you more
to do? Put on or change pants? show less
N/A
PX860903_Physical_Mobility_Hospitalized_Change_Shirt
PX860903120000 Today how difficult are these things for you more
to do? Put on or change your shirt? show less
N/A
PX860903_Physical_Mobility_Hospitalized_Get_Up_From_Bed
PX860903040000 Today how difficult are these things for you more
to do? Get up from the bed? show less
N/A
PX860903_Physical_Mobility_Hospitalized_Go_Outside_Room
PX860903070000 Today how difficult are these things for you more
to do? Go outside your room? show less
N/A
PX860903_Physical_Mobility_Hospitalized_Schoolwork
PX860903100000 Today how difficult are these things for you more
to do? Do homework or schoolwork? show less
N/A
PX860903_Physical_Mobility_Hospitalized_Turn_Over
PX860903110000 Today how difficult are these things for you more
to do? Turn over or roll over in bed? show less
N/A
PX860903_Physical_Mobility_Hospitalized_Walk_Room
PX860903050000 Today how difficult are these things for you more
to do? Walk around in the room? show less
N/A
PX860903_Physical_Mobility_Hospitalized_Wash_Body
PX860903030000 Today how difficult are these things for you more
to do? Wash your body? show less
N/A
PX860903_Physical_Mobility_Hospitalized_Wash_Hair
PX860903060000 Today how difficult are these things for you more
to do? Wash or shampoo your hair? show less
N/A
SCD Pain
Measure Name

Physical Mobility

Release Date

May 18, 2022

Definition

Measure that rates an individual's overall physical mobility.

Purpose

Ratings from this measure can be used to determine if an individual's physical ability or mobility is limited.

Keywords

Physical function, mobility, Adult, PROMIS, Patient-Reported Outcomes Measurement Information System, sickle cell disease, pain, functional assessment

Measure Protocols
Protocol ID Protocol Name
860901 Physical Mobility - Adult
860902 Physical Mobility - Child
860903 Physical Mobility - Hospitalized Individuals
Publications

There are no publications listed for this protocol.