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Protocol - Trust in Medical Researchers - 12-Item

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Description

The Trust in Medical Researchers 12-Item scale is a validated interviewer-administered 12-item questionnaire. Items are scored 1-5, strongly disagree to strongly agree, with negative items reverse-coded so that higher score indicates more trust. The scores from the 12 items are summed unweighted, and 12 is subtracted from the total. The total will range from 0 to 48, with the higher the score the greater the trust in medical researchers.

Specific Instructions

Investigators may choose the 12-item scale over the 4-item scale in situations when they want to more fully capture and measure trust of medical care and research. The Trust in Medical Researchers scale has not been validated in non-U.S. populations.

The Trust in Medical Researchers scale is for academic and nonprofit purposes only. For documentation and instructions, contact bioethics@wfu.edu. If your intention is to use the protocol in a for-profit or commercial environment, please contact bioethics@wfu.edu to request permission and obtain licensing information before use. Also, a license is required for any research that is subject to 3rd-party rights (e.g., industry-sponsored research that grants rights to the sponsor). For permitted uses, you may make minor adaptations of the phrasing to fit particular circumstances or modes of survey administration. Otherwise, you may not translate or substantially modify the tool without additional permission. If a derivative work is created based on the scale, the work will be owned by Wake Forest University.

Availability

Available

Protocol

Trust in Medical Researchers 12-Item

Participants are first asked the following item regarding willingness to participate: “If you were approached by someone at the [university/institute] to participate in a study, how likely would you be to volunteer to participate in the next 3 months?” Responses were likely, somewhat likely, not likely, or not likely at all to participate.

1 2 3 4 5
Strongly
Disagree
Disagree Neutral Agree Strongly
Agree

12-Item Survey
No. Item Participant Responses
1 Doctors who do medical research care only about what is best for each patient. 1 2 3 4 5
2 Medical researchers treat people like “guinea pigs.” 1 2 3 4 5
3 It’s safe to be in a medical research study. 1 2 3 4 5
4 Some doctors do medical research for selfish reasons. 1 2 3 4 5
5 Doctors tell their patients everything they need to know about being in a research study. 1 2 3 4 5
6 A doctor would never ask me to be in a medical research study if the doctor thought there was any chance it might harm me. 1 2 3 4 5
7 There are some things about medical research that I do not trust at all. 1 2 3 4 5
8 A doctor would never recommend something that is not the best treatment, just so he or she can study how it works. 1 2 3 4 5
9 Medical researchers have no selfish reasons for doing research studies. 1 2 3 4 5
10 Medical researchers do not tell people everything they really need to know about being in a research study. 1 2 3 4 5
11 The only reason doctors do medical research is to help people. 1 2 3 4 5
12 I completely trust doctors who do medical research. 1 2 3 4 5

Scoring: The scores from the 12 items are summed unweighted, and 12 is subtracted from the total. The total will range from 0-48, with the higher the score, the greater the trust in medical researchers. Items # 2, 4, 7, 10 and 3 are reverse-coded.

Personnel and Training Required

The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer should be trained to prompt respondents further if a “don’t know” response is provided. The interviewer must be found to be competent (i.e., performance approved by an expert) at the completion of the interviews.

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Interviewer-administered questionnaire

Lifestage

Adult, Senior

Participants

Ages 18 and older

Selection Rationale

This is a low-burden protocol that allows investigators to assess trust in physicians doing medical research in addition to assessing trust in medical research or research generally.

Language

English

Standards
StandardNameIDSource
Derived Variables

None

Process and Review

Not applicable

Protocol Name from Source

Trust in Medical Researchers - Long Form - Adult

Source

Hall, M. A., Camacho, F., Lawlor, J. S., Depuy, V., Sugarman, J., & Weinfurt, K. (2006). Measuring trust in medical researchers. Medical Care, 44(11), 1048-1053.

General References

Dugan, E., Trachtenberg, F., & Hall, M. A. (2005). Development of abbreviated measures to assess patient trust in a physician, a health insurer, and the medical profession. BMC Health Services Research, 5, 64. doi:10.1186/1472-6963-5-64

Mainous, A. G., 3rd, Smith, D. W., Geesey, M. E., & Tilley, B. C. (2006). Development of a measure to assess patient trust in medical researchers. Annals of Family Medicine, 4(3), 247-252. doi:10.1370/afm.541

Protocol ID

871101

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX871101_Trust_Medical_Care_Research_12_Item_Completely_Trust_Doctors_Who_Do
PX871101120000 "I completely trust doctors who do medical more
research." show less
N/A
PX871101_Trust_Medical_Care_Research_12_Item_Doctors_Care_Only_Best_Patient
PX871101010000 "Doctors who do medical research care only more
about what is best for each patient." show less
N/A
PX871101_Trust_Medical_Care_Research_12_Item_Doctors_Do_Help_People
PX871101110000 "The only reason doctors do medical research more
is to help people." show less
N/A
PX871101_Trust_Medical_Care_Research_12_Item_Doctors_Tell_Patients_Everything_Need_Being_In_Study
PX871101050000 "Doctors tell their patients everything they more
need to know about being in a research study." show less
N/A
PX871101_Trust_Medical_Care_Research_12_Item_Doctor_Never_Ask_Be_In_Study_Thoght_Chance_Harm
PX871101060000 "A doctor would never ask me to be in a more
medical research study if the doctor thought there was any chance it might harm me." show less
N/A
PX871101_Trust_Medical_Care_Research_12_Item_Doctor_Never_Recommend_Something_Not_Best_Treatment
PX871101080000 "A doctor would never recommend something more
that is not the best treatment, just so he or she can study how it works." show less
N/A
PX871101_Trust_Medical_Care_Research_12_Item_Have_No_Selfish_Reasons_Doing_Studies
PX871101090000 "Medical researchers have no selfish reasons more
for doing research studies." show less
N/A
PX871101_Trust_Medical_Care_Research_12_Item_Not_Tell_People_Everything_Need_About_Being_In_Study
PX871101100000 "Medical researchers do not tell people more
everything they really need to know about being in a research study." show less
N/A
PX871101_Trust_Medical_Care_Research_12_Item_Safe_Be_In_Study
PX871101030000 "It's safe to be in a medical research study." N/A
PX871101_Trust_Medical_Care_Research_12_Item_Some_Doctors_Selfish_Reasons
PX871101040000 "Some doctors do medical research for more
selfish reasons." show less
N/A
PX871101_Trust_Medical_Care_Research_12_Item_Some_Things_About_Do_Not_Trust
PX871101070000 "There are some things about medical more
research that I do not trust at all." show less
N/A
PX871101_Trust_Medical_Care_Research_12_Item_Treat_People_Like_Guinea_Pig
PX871101020000 "Medical researchers treat people like more
"guinea pigs."" show less
N/A
SCD Psychosocial and Social Determinants of Health
Measure Name

Trust in Medical Care and Research

Release Date

February 6, 2023

Definition

This measure assesses adults’ trust in medical researchers.

Purpose

To assess individuals’ trust of medical care and research as it relates to their concern with safety of research participant, fidelity of the purpose of conducting the research, and global trust in research and researchers.

Keywords

Medical research

Measure Protocols
Protocol ID Protocol Name
871101 Trust in Medical Researchers - 12-Item
871102 Trust in Medical Researchers - 4-Item
Publications

There are no publications listed for this protocol.