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Protocol - Long COVID - Daily Living

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Description

A self-administered questionnaire that asks about Long COVID symptoms, persistence of symptoms and the ability to perform daily living activities.

Specific Instructions

None

Availability

Available

Protocol

1. Climbing stairs and transferring

This includes any of the following: getting into/out of bed, standing up/sitting down in a chair, getting into/out of a car, getting on/off a toilet, stepping onto a curb.

None, I can perform these tasks independently

A little help

A Lot of help

Unable to perform task

BEFORE you were diagnosed with COVID-19, how much help did you need climbing stairs/transferring?

[ ]

[ ]

[ ]

[ ]

TODAY, how much help do you need climbing stairs/transferring?

[ ]

[ ]

[ ]

[ ]

 1a. Please state which activities, if any, have been impacted and describe

 how they have been impacted.

 _______________________

 (Ex: Prior to my illness, I would need to sit for a moment before rising out of

 bed independently. Now I require another persons help to get out of bed.)

2. Personal grooming and dressing

This includes any of the following: brushing/flossing teeth, denture care, skin care, shaving, putting on socks and shoes, taking off underwear, putting on pants, putting on a jacket.

None, I can perform these tasks independently

A little help

A Lot of help

Unable to perform task

BEFORE you were diagnosed with COVID-19, how much help did you need with personal grooming and dressing?

[ ]

[ ]

[ ]

[ ]

TODAY, how much help do you need with personal grooming and dressing?

[ ]

[ ]

[ ]

[ ]

 2a. Please state which activities, if any, have been impacted and describe

 how they have been impacted.

 _______________________

 (Ex: Prior to my illness, I would need to sit for a moment before rising out of

 bed independently. Now I require another persons help to get out of bed.)

3. Using the toilet and bathing

This includes any of the following: wiping your body with wipes, taking a shower or bath, scrubbing and rinsing your body, wiping after you use the toilet.

None, I can perform these tasks independently

A little help

A Lot of help

Unable to perform task

BEFORE you were diagnosed with COVID-19, how much help did you need using the restroom and bathing?

[ ]

[ ]

[ ]

[ ]

TODAY, how much help do you need using the restroom and bathing?

[ ]

[ ]

[ ]

[ ]

 3a. Please state which activities, if any, have been impacted and describe

 how they have been impacted.

 _______________________

 (Ex: Prior to my illness, I would need to sit for a moment before rising out of

 bed independently. Now I require another persons help to get out of bed.)

4. Doing household chores

This includes any of the following: food preparation, cooking, folding laundry, vacuuming the floor, making the bed, feeding pets, wiping a table, loading the dishwasher, tidying up a room.

None, I can perform these tasks independently

A little help

A Lot of help

Unable to perform task

BEFORE you were diagnosed with COVID-19, how much help did you need doing household chores?

[ ]

[ ]

[ ]

[ ]

TODAY, how much help do you need doing household chores?

[ ]

[ ]

[ ]

[ ]

 4a. Please state which activities, if any, have been impacted and describe

 how they have been impacted.

 _______________________

 (Ex: Prior to my illness, I would need to sit for a moment before rising out of

 bed independently. Now I require another persons help to get out of bed.)

5. Managing personal affairs

This includes any of the following: using the phone or computer, paying bills, scheduling a doctor appointment, managing medications, refilling a prescription, making a shopping list

None, I can perform these tasks independently

A little help

A Lot of help

Unable to perform task

BEFORE you were diagnosed with COVID-19, how much help did you need managing your personal affairs?

[ ]

[ ]

[ ]

[ ]

TODAY, how much help do you need managing your personal affairs?

[ ]

[ ]

[ ]

[ ]

 5a. Please state which activities, if any, have been impacted and describe

 how they have been impacted.

 _______________________

 (Ex: Prior to my illness, I would need to sit for a moment before rising out of

 bed independently. Now I require another persons help to get out of bed.)

6. Do you experience shortness of breath or fatigue when performing any activities in the following categories? Please select all that apply.

[ ] Climbing stairs or transferring

[ ] Personal grooming and dressing

[ ] Using the toilet and bathing

[ ] Doing household chores

[ ] Managing personal affairs

7. When you are climbing stairs or transferring, how often do you feel shortness of breath/fatigue?

[ ] 0-25% of the time

[ ] 25-50% of the time

[ ] 50-75% of the time

[ ] 75-100% of the time

8. When you are dressing or performing personal grooming, how often do you feel shortness of breath/fatigue?

[ ] 0-25% of the time

[ ] 25-50% of the time

[ ] 50-75% of the time

[ ] 75-100% of the time

9. When you are using the toilet or bathing, how often do you feel shortness of breath/fatigue?

[ ] 0-25% of the time

[ ] 25-50% of the time

[ ] 50-75% of the time

[ ] 75-100% of the time

10. When you are doing household chores, how often do you feel shortness of breath/fatigue?

[ ] 0-25% of the time

[ ] 25-50% of the time

[ ] 50-75% of the time

[ ] 75-100% of the time

11. When you are managing your personal affairs, how often do you feel shortness of breath/fatigue?

[ ] 0-25% of the time

[ ] 25-50% of the time

[ ] 50-75% of the time

[ ] 75-100% of the time


Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Adult

Participants

Adult

Selection Rationale

PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.

Language

English

Standards
StandardNameIDSource
Derived Variables

None

Process and Review

Not applicable

Protocol Name from Source

Sequelae in Adults at 6 Months After COVID-19 Infection

Source

University of Washington. (2021). Sequelae in Adults at 6 Months After COVID-19 Infection, "Questionnaire", pages 1-4.

General References
None
Protocol ID

992101

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX992101_Long_Covid_Daily_Living_Climb_Stairs_Transfer_Before_Help_Need_Before_Help_Need
PX992101010100 Climbing stairs and transferring - BEFORE more
you were diagnosed with COVID-19, how much help did you need climbing stairs/transferring? show less
N/A
PX992101_Long_Covid_Daily_Living_Climb_Stairs_Transfer_Impact
PX992101010300 Climbing stairs and transferring - Please more
state which activities, if any, have been impacted and describe how they have been impacted. show less
N/A
PX992101_Long_Covid_Daily_Living_Climb_Stairs_Transfer_Today_Help_Need_Today_Help_Need
PX992101010200 Climbing stairs and transferring - TODAY, more
how much help do you need climbing stairs/transferring? show less
N/A
PX992101_Long_Covid_Daily_Living_Household_Chores_Before_Help_Need
PX992101040100 Doing household chores - BEFORE you were more
diagnosed with COVID-19, how much help did you need doing household chores? show less
N/A
PX992101_Long_Covid_Daily_Living_Household_Chores_Impact
PX992101040300 Doing household chores - Please state which more
activities, if any, have been impacted and describe how they have been impacted. show less
N/A
PX992101_Long_Covid_Daily_Living_Household_Chores_Today_Help_Need
PX992101040200 Doing household chores - TODAY, how much more
help do you need doing household chores? show less
N/A
PX992101_Long_Covid_Daily_Living_Personal_Affairs_Before_Help_Need
PX992101050100 Managing personal affairs - BEFORE you were more
diagnosed with COVID-19, how much help did you need managing your personal affairs? show less
N/A
PX992101_Long_Covid_Daily_Living_Personal_Affairs_Impact
PX992101050300 Managing personal affairs - Please state more
which activities, if any, have been impacted and describe how they have been impacted. show less
N/A
PX992101_Long_Covid_Daily_Living_Personal_Affairs_Today_Help_Need
PX992101050200 Managing personal affairs - TODAY, how much more
help do you need managing your personal affairs? show less
N/A
PX992101_Long_Covid_Daily_Living_Personal_Grooming_Dressing_Before_Help_Need
PX992101020100 Personal grooming and dressing - BEFORE you more
were diagnosed with COVID-19, how much help did you need with personal grooming and dressing? show less
N/A
PX992101_Long_Covid_Daily_Living_Personal_Grooming_Dressing_Impact
PX992101020300 Personal grooming and dressing - Please more
state which activities, if any, have been impacted and describe how they have been impacted. show less
N/A
PX992101_Long_Covid_Daily_Living_Personal_Grooming_Dressing_Today_Help_Need
PX992101020200 Personal grooming and dressing - TODAY, how more
much help do you need with personal grooming and dressing? show less
N/A
PX992101_Long_Covid_Daily_Living_Shortness_Breath
PX992101060000 Do you experience shortness of breath or more
fatigue when performing any activities in the following categories? Please select all that apply. show less
N/A
PX992101_Long_Covid_Daily_Living_Shortness_Breath_Climb_Stairs_Transfer
PX992101070000 When you are climbing stairs or more
transferring, how often do you feel shortness of breath/fatigue? show less
N/A
PX992101_Long_Covid_Daily_Living_Shortness_Breath_Household_Chores
PX992101100000 When you are doing household chores, how more
often do you feel shortness of breath/fatigue? show less
N/A
PX992101_Long_Covid_Daily_Living_Shortness_Breath_Personal_Affairs
PX992101110000 When you are managing your personal affairs, more
how often do you feel shortness of breath/fatigue? show less
N/A
PX992101_Long_Covid_Daily_Living_Shortness_Breath_Personal_Grooming_Dressing
PX992101080000 When you are dressing or performing personal more
grooming, how often do you feel shortness of breath/fatigue? show less
N/A
PX992101_Long_Covid_Daily_Living_Shortness_Breath_Toilet_Bath
PX992101090000 When you are using the toilet or bathing, more
how often do you feel shortness of breath/fatigue? show less
N/A
PX992101_Long_Covid_Daily_Living_Toilet_Bath_Before_Help_Need
PX992101030100 Using the toilet and bathing - BEFORE you more
were diagnosed with COVID-19, how much help did you need using the restroom and bathing? show less
N/A
PX992101_Long_Covid_Daily_Living_Toilet_Bath_Impact
PX992101030300 Using the toilet and bathing - Please state more
which activities, if any, have been impacted and describe how they have been impacted. show less
N/A
PX992101_Long_Covid_Daily_Living_Toilet_Bath_Today_Help_Need
PX992101030200 Using the toilet and bathing - TODAY, how more
much help do you need using the restroom and bathing? show less
N/A
Long COVID
Measure Name

Long COVID - Daily Living

Release Date

March 17, 2023

Definition

This protocol assesses long COVID symptoms related to testing, symptoms, treatments and medications, comorbidities, and the ability to perform some of the activities of daily living.

Purpose

This questionnaire from the University of Washington aims to gather data about people’s experience with COVID-19 and the implications of Long COVID/PASC on daily living.

Keywords

coronavirus, COVID, daily activities, daily living

Measure Protocols
Protocol ID Protocol Name
992101 Long COVID - Daily Living
Publications

There are no publications listed for this protocol.