Protocol - Long COVID - Daily Living
Description
A self-administered questionnaire that asks about Long COVID symptoms, persistence of symptoms and the ability to perform daily living activities.
Specific Instructions
None
Availability
Protocol
1. Climbing stairs and transferring
This includes any of the following: getting into/out of bed, standing up/sitting down in a chair, getting into/out of a car, getting on/off a toilet, stepping onto a curb.
None, I can perform these tasks independently | A little help | A Lot of help | Unable to perform task | |
BEFORE you were diagnosed with COVID-19, how much help did you need climbing stairs/transferring? | [ ] | [ ] | [ ] | [ ] |
TODAY, how much help do you need climbing stairs/transferring? | [ ] | [ ] | [ ] | [ ] |
1a. Please state which activities, if any, have been impacted and describe
how they have been impacted.
_______________________
(Ex: Prior to my illness, I would need to sit for a moment before rising out of
bed independently. Now I require another persons help to get out of bed.)
2. Personal grooming and dressing
This includes any of the following: brushing/flossing teeth, denture care, skin care, shaving, putting on socks and shoes, taking off underwear, putting on pants, putting on a jacket.
None, I can perform these tasks independently | A little help | A Lot of help | Unable to perform task | |
BEFORE you were diagnosed with COVID-19, how much help did you need with personal grooming and dressing? | [ ] | [ ] | [ ] | [ ] |
TODAY, how much help do you need with personal grooming and dressing? | [ ] | [ ] | [ ] | [ ] |
2a. Please state which activities, if any, have been impacted and describe
how they have been impacted.
_______________________
(Ex: Prior to my illness, I would need to sit for a moment before rising out of
bed independently. Now I require another persons help to get out of bed.)
3. Using the toilet and bathing
This includes any of the following: wiping your body with wipes, taking a shower or bath, scrubbing and rinsing your body, wiping after you use the toilet.
None, I can perform these tasks independently | A little help | A Lot of help | Unable to perform task | |
BEFORE you were diagnosed with COVID-19, how much help did you need using the restroom and bathing? | [ ] | [ ] | [ ] | [ ] |
TODAY, how much help do you need using the restroom and bathing? | [ ] | [ ] | [ ] | [ ] |
3a. Please state which activities, if any, have been impacted and describe
how they have been impacted.
_______________________
(Ex: Prior to my illness, I would need to sit for a moment before rising out of
bed independently. Now I require another persons help to get out of bed.)
4. Doing household chores
This includes any of the following: food preparation, cooking, folding laundry, vacuuming the floor, making the bed, feeding pets, wiping a table, loading the dishwasher, tidying up a room.
None, I can perform these tasks independently | A little help | A Lot of help | Unable to perform task | |
BEFORE you were diagnosed with COVID-19, how much help did you need doing household chores? | [ ] | [ ] | [ ] | [ ] |
TODAY, how much help do you need doing household chores? | [ ] | [ ] | [ ] | [ ] |
4a. Please state which activities, if any, have been impacted and describe
how they have been impacted.
_______________________
(Ex: Prior to my illness, I would need to sit for a moment before rising out of
bed independently. Now I require another persons help to get out of bed.)
5. Managing personal affairs
This includes any of the following: using the phone or computer, paying bills, scheduling a doctor appointment, managing medications, refilling a prescription, making a shopping list
None, I can perform these tasks independently | A little help | A Lot of help | Unable to perform task | |
BEFORE you were diagnosed with COVID-19, how much help did you need managing your personal affairs? | [ ] | [ ] | [ ] | [ ] |
TODAY, how much help do you need managing your personal affairs? | [ ] | [ ] | [ ] | [ ] |
5a. Please state which activities, if any, have been impacted and describe
how they have been impacted.
_______________________
(Ex: Prior to my illness, I would need to sit for a moment before rising out of
bed independently. Now I require another persons help to get out of bed.)
6. Do you experience shortness of breath or fatigue when performing any activities in the following categories? Please select all that apply.
[ ] Climbing stairs or transferring
[ ] Personal grooming and dressing
[ ] Using the toilet and bathing
[ ] Doing household chores
[ ] Managing personal affairs
7. When you are climbing stairs or transferring, how often do you feel shortness of breath/fatigue?
[ ] 0-25% of the time
[ ] 25-50% of the time
[ ] 50-75% of the time
[ ] 75-100% of the time
8. When you are dressing or performing personal grooming, how often do you feel shortness of breath/fatigue?
[ ] 0-25% of the time
[ ] 25-50% of the time
[ ] 50-75% of the time
[ ] 75-100% of the time
9. When you are using the toilet or bathing, how often do you feel shortness of breath/fatigue?
[ ] 0-25% of the time
[ ] 25-50% of the time
[ ] 50-75% of the time
[ ] 75-100% of the time
10. When you are doing household chores, how often do you feel shortness of breath/fatigue?
[ ] 0-25% of the time
[ ] 25-50% of the time
[ ] 50-75% of the time
[ ] 75-100% of the time
11. When you are managing your personal affairs, how often do you feel shortness of breath/fatigue?
[ ] 0-25% of the time
[ ] 25-50% of the time
[ ] 50-75% of the time
[ ] 75-100% of the time
Personnel and Training Required
None
Equipment Needs
None
Requirements
Requirement Category | Required |
---|---|
Major equipment | No |
Specialized training | No |
Specialized requirements for biospecimen collection | No |
Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult
Participants
Adult
Selection Rationale
PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.
Language
English
Standards
Standard | Name | ID | Source |
---|
Derived Variables
None
Process and Review
Not applicable
Protocol Name from Source
Sequelae in Adults at 6 Months After COVID-19 Infection
Source
University of Washington. (2021). Sequelae in Adults at 6 Months After COVID-19 Infection, "Questionnaire", pages 1-4.
General References
NoneProtocol ID
992101
Variables
Export VariablesVariable Name | Variable ID | Variable Description | dbGaP Mapping | |
---|---|---|---|---|
PX992101_Long_Covid_Daily_Living_Climb_Stairs_Transfer_Before_Help_Need_Before_Help_Need | ||||
PX992101010100 | Climbing stairs and transferring - BEFORE more | N/A | ||
PX992101_Long_Covid_Daily_Living_Climb_Stairs_Transfer_Impact | ||||
PX992101010300 | Climbing stairs and transferring - Please more | N/A | ||
PX992101_Long_Covid_Daily_Living_Climb_Stairs_Transfer_Today_Help_Need_Today_Help_Need | ||||
PX992101010200 | Climbing stairs and transferring - TODAY, more | N/A | ||
PX992101_Long_Covid_Daily_Living_Household_Chores_Before_Help_Need | ||||
PX992101040100 | Doing household chores - BEFORE you were more | N/A | ||
PX992101_Long_Covid_Daily_Living_Household_Chores_Impact | ||||
PX992101040300 | Doing household chores - Please state which more | N/A | ||
PX992101_Long_Covid_Daily_Living_Household_Chores_Today_Help_Need | ||||
PX992101040200 | Doing household chores - TODAY, how much more | N/A | ||
PX992101_Long_Covid_Daily_Living_Personal_Affairs_Before_Help_Need | ||||
PX992101050100 | Managing personal affairs - BEFORE you were more | N/A | ||
PX992101_Long_Covid_Daily_Living_Personal_Affairs_Impact | ||||
PX992101050300 | Managing personal affairs - Please state more | N/A | ||
PX992101_Long_Covid_Daily_Living_Personal_Affairs_Today_Help_Need | ||||
PX992101050200 | Managing personal affairs - TODAY, how much more | N/A | ||
PX992101_Long_Covid_Daily_Living_Personal_Grooming_Dressing_Before_Help_Need | ||||
PX992101020100 | Personal grooming and dressing - BEFORE you more | N/A | ||
PX992101_Long_Covid_Daily_Living_Personal_Grooming_Dressing_Impact | ||||
PX992101020300 | Personal grooming and dressing - Please more | N/A | ||
PX992101_Long_Covid_Daily_Living_Personal_Grooming_Dressing_Today_Help_Need | ||||
PX992101020200 | Personal grooming and dressing - TODAY, how more | N/A | ||
PX992101_Long_Covid_Daily_Living_Shortness_Breath | ||||
PX992101060000 | Do you experience shortness of breath or more | N/A | ||
PX992101_Long_Covid_Daily_Living_Shortness_Breath_Climb_Stairs_Transfer | ||||
PX992101070000 | When you are climbing stairs or more | N/A | ||
PX992101_Long_Covid_Daily_Living_Shortness_Breath_Household_Chores | ||||
PX992101100000 | When you are doing household chores, how more | N/A | ||
PX992101_Long_Covid_Daily_Living_Shortness_Breath_Personal_Affairs | ||||
PX992101110000 | When you are managing your personal affairs, more | N/A | ||
PX992101_Long_Covid_Daily_Living_Shortness_Breath_Personal_Grooming_Dressing | ||||
PX992101080000 | When you are dressing or performing personal more | N/A | ||
PX992101_Long_Covid_Daily_Living_Shortness_Breath_Toilet_Bath | ||||
PX992101090000 | When you are using the toilet or bathing, more | N/A | ||
PX992101_Long_Covid_Daily_Living_Toilet_Bath_Before_Help_Need | ||||
PX992101030100 | Using the toilet and bathing - BEFORE you more | N/A | ||
PX992101_Long_Covid_Daily_Living_Toilet_Bath_Impact | ||||
PX992101030300 | Using the toilet and bathing - Please state more | N/A | ||
PX992101_Long_Covid_Daily_Living_Toilet_Bath_Today_Help_Need | ||||
PX992101030200 | Using the toilet and bathing - TODAY, how more | N/A |
Measure Name
Long COVID - Daily Living
Release Date
March 17, 2023
Definition
This protocol assesses long COVID symptoms related to testing, symptoms, treatments and medications, comorbidities, and the ability to perform some of the activities of daily living.
Purpose
This questionnaire from the University of Washington aims to gather data about people’s experience with COVID-19 and the implications of Long COVID/PASC on daily living.
Keywords
coronavirus, COVID, daily activities, daily living
Measure Protocols
Protocol ID | Protocol Name |
---|---|
992101 | Long COVID - Daily Living |
Publications
There are no publications listed for this protocol.