Protocol - History of Prepubertal Development - Female
- Assessment of Pubertal Development - Teenage Female
- Assessment of Pubertal Development - Teenage Male
Description
Female participants answer questions about when menstruation began and when they reached full height.
Specific Instructions
The PhenX Reproductive Health Working Group recommends adding the response categories "can’t remember" and "don’t know" to Question 1 for females.
Availability
Protocol
1. How old were you when your menstrual periods began?
[ ] 9 or less
[ ] 10
[ ] 11
[ ] 12
[ ] 13
[ ] 14
[ ] 15
[ ] 16
[ ] 17 or more
[ ] never had periods
2. At about what age did you reach your full height?
[ ] Before age 13
[ ] 13 - 17 years of age
[ ] after age 17
[ ] don’t know
Personnel and Training Required
None
Equipment Needs
Pencil and paper for self-administered questions.
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult
Participants
Females aged 21-64
Selection Rationale
The protocols are from well-established studies with questions that have been used for more than a decade.
Language
Chinese, English
Standards
| Standard | Name | ID | Source |
|---|---|---|---|
| Logical Observation Identifiers Names and Codes (LOINC) | Hx prepubertal devel female proto | 62657-2 | LOINC |
| Human Phenotype Ontology | Puberty and gonadal disorders | HP:0008373 | HPO |
| caDSR Form | PhenX PX100601 - History Of Prepubertal Development Female | 5970771 | caDSR Form |
Derived Variables
None
Process and Review
The Expert Review Panel #5 (ERP 5) reviewed the measures in the Reproductive Health domain.
Guidance from ERP 5 includes:
- Revised descriptions of the measure
Back-compatible: no changes to Data Dictionary.
Previous version in Toolkit archive (link).
Protocol Name from Source
Black Womens Health Study (BWHS), 1995
Source
Slone Epidemiology Center at Boston University. (1995). Black Women’s Health Study 1995. Boston, MA: Author. Question 7 (question 1). Slone Epidemiology Center at Boston University. (1999). Black Women’s Health Study 1999. Boston, MA: Author. Question 5 (question 2).
General References
Jenner, M. R., Kelch, R. P., Kaplan, S. L., & Grümbach, M. M. (1972). Hormonal changes in puberty. IV. Plasma estradiol, LH, and FSH in prepubertal children, pubertal females, and in precocious puberty, premature thelarche, hypogonadism, and in a child with a feminizing ovarian tumor. Journal of Clinical Endocrinology and Metabolism, 34(3), 521-530.
Jost, A. (1970). Hormonal factors in the sex differentiation of the mammalian foetus. Philosophical Transactions of the Royal Society of London. Series B, Biological Sciences, 259(828), 119-130.
MacLaughlin, D. T., & Donahoe, P. K. (2004). Sex determination and differentiation. New England Journal of Medicine, 350(4), 367-378.
Maliqueo, M., Sir-Petermann, T., Perez, V., Echiburu, B., Guevara, L. A., Galvez, C., Crisosto, N., & Azziz, R. (2009). Adrenal Function during Childhood and Puberty in Daughters of Women with Polycystic Ovary Syndrome. Journal of Clinical Endocrinology and Metabolism, 94: 3282-3288.
Marshall, W., & Tanner, J. (1969). Variations in the pattern of pubertal changes in girls. Archives of Disease in Childhood, 44, 291-303.
Sizonenko, P. C., Burr, I. M., Kaplan, S. L., & Grumbach, M. M. (1970). Hormonal changes in puberty. II. Correlation of serum luteinizing hormone and follicle stimulating hormone with stages of puberty and bone age in normal girls. Pediatric Research, 4(1), 36-45.
Protocol ID
100601
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX100601_Menstrual_Period_Began_First_Age | ||||
| PX100601010000 | How old were you when your menstrual periods more | Variable Mapping | ||
| PX100601_Reach_Full_Height_Age | ||||
| PX100601020000 | At about what age did you reach your full height? | N/A | ||
Measure Name
History of Prepubertal Development
Release Date
February 26, 2010
Definition
Questions to assess how old participants were when they reached puberty.
Purpose
The purpose of these questions is to determine when participants reached puberty. It is important to measure because it is linked to sexual development and maturity.
Keywords
Reproductive health, puberty, Black Women’s Health Study, BWHS, Study for Future Families, SFF, National Longitudinal Survey of Youth, NLSY
Measure Protocols
| Protocol ID | Protocol Name |
|---|---|
| 100601 | History of Prepubertal Development - Female |
| 100602 | History of Prepubertal Development - Male |
Publications
There are no publications listed for this protocol.