Protocol - Parkinsons Disease Screener - Questionnaire
- Balance
- Gross Motor Function - 2-4 Years Old
- Gross Motor Function - 4-6 Years Old
- Gross Motor Function - 6-12 Years Old
- Parkinsons Disease Symptoms
- Signs of Essential Tremor
Description
This protocol includes one question from the Framingham Heart Study that assess whether the participant has ever been told by a doctor that her or she has Parkinson’s disease.
Specific Instructions
None
Availability
This protocol is freely available; permission not required for use.
Protocol
1. Have you been told by a doctor you have Parkinson Disease?
0[ ]= No
1[ ]= Yes
9[ ]= Unknown
Scoring:
The respondent is considered to be a Parkinson’s Disease case if they reply "Yes"
Personnel and Training Required
None
Equipment Needs
None
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults, ages 18 and older
Selection Rationale
This question from the Framingham Heart Study was selected because it has been used in a large US population-based study and subsequently validated as a screen for Parkinson’s Disease.
Language
English
Standards
| Standard | Name | ID | Source |
|---|---|---|---|
| Human Phenotype Ontology | Parkinsonism | HP:0001300 | HPO |
| caDSR Form | PhenX PX131901 - Parkinsons Disease Screener Questionnaire | 6910452 | caDSR Form |
Derived Variables
None
Process and Review
Expert Review Panel 4 (ERP 4) reviewed the measures in the Neurology, Psychiatric, and Psychosocial domains.
Guidance from ERP 4 included the following:
- Added new protocol
- Created new data dictionary
Protocol Name from Source
National Heart, Lung, and Blood Institute (NHLBI), & Framingham Heart Study, 2011
Source
National Heart, Lung, and Blood Institute (NHLBI), & Boston University. (2011). Framingham Heart Study, Cohort Examination 29: Medical History-Hospitalizations, ER Visits, MD Visits. Question number fw132.
General References
Jain, S., Himali, J., Beiser, A., Ton, T.G., Kelly-Hayes, M., Biggs, M.L., Delaney, J.A., Rosano, C., Seshadri, S., & Frank, S.A. (2015). Validation of secondary data sources to identify Parkinson disease against clinical diagnostic criteria. American Journal of Epidemiology, 181(3), 185-190.
Protocol ID
131901
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX131901_Parkinsons_Disease_Screener_Questionnaire | ||||
| PX131901000000 | Have you been told by a doctor you have more | N/A | ||