Protocol - Parkinsons Disease Screener - Questionnaire
- Balance
- Gross Motor Function - 2-4 Years Old
- Gross Motor Function - 4-6 Years Old
- Gross Motor Function - 6-12 Years Old
- Parkinsons Disease Symptoms
- Signs of Essential Tremor
Description
This protocol includes one question from the Framingham Heart Study that assess whether the participant has ever been told by a doctor that her or she has Parkinson’s disease.
Specific Instructions
None
Availability
Protocol
1. Have you been told by a doctor you have Parkinson Disease?
0[ ]= No
1[ ]= Yes
9[ ]= Unknown
Scoring:
The respondent is considered to be a Parkinson’s Disease case if they reply "Yes"
Personnel and Training Required
None
Equipment Needs
None
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults, ages 18 and older
Selection Rationale
This question from the Framingham Heart Study was selected because it has been used in a large US population-based study and subsequently validated as a screen for Parkinson’s Disease.
Language
English
Standards
| Standard | Name | ID | Source |
|---|---|---|---|
| Human Phenotype Ontology | Parkinsonism | HP:0001300 | HPO |
| caDSR Form | PhenX PX131901 - Parkinsons Disease Screener Questionnaire | 6910452 | caDSR Form |
Derived Variables
None
Process and Review
Expert Review Panel 4 (ERP 4) reviewed the measures in the Neurology, Psychiatric, and Psychosocial domains.
Guidance from ERP 4 included the following:
- Added new protocol
- Created new data dictionary
Protocol Name from Source
National Heart, Lung, and Blood Institute (NHLBI), & Framingham Heart Study, 2011
Source
National Heart, Lung, and Blood Institute (NHLBI), & Boston University. (2011). Framingham Heart Study, Cohort Examination 29: Medical History-Hospitalizations, ER Visits, MD Visits. Question number fw132.
General References
Jain, S., Himali, J., Beiser, A., Ton, T.G., Kelly-Hayes, M., Biggs, M.L., Delaney, J.A., Rosano, C., Seshadri, S., & Frank, S.A. (2015). Validation of secondary data sources to identify Parkinson disease against clinical diagnostic criteria. American Journal of Epidemiology, 181(3), 185-190.
Protocol ID
131901
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX131901_Parkinsons_Disease_Screener_Questionnaire | ||||
| PX131901000000 | Have you been told by a doctor you have more | N/A | ||
Measure Name
Parkinsons Disease Screener
Release Date
November 28, 2017
Definition
A questionnaire to screen for Parkinson’s disease.
Purpose
This measure can be used to screen participants quickly in large, population-based cohorts for the presence of Parkinson’s disease. Parkinsonism occurs in about 0.2% of the population, and the risk increases with age. Parkinsonism can be caused by genetics, vascular disease, certain medications, and environmental contaminants such as manganese dust, carbon monoxide, or pesticides (Aminoff et al., 2005).
Keywords
Neurology, parkinsonism, Parkinson’s disease, movement disorders,
Measure Protocols
| Protocol ID | Protocol Name |
|---|---|
| 131901 | Parkinsons Disease Screener - Questionnaire |
Publications
There are no publications listed for this protocol.