Protocol - Patient Satisfaction with Genetic Counseling

Personnel and Training Required

None

Equipment Needs

None

Requirements

Requirement Category	Required
Major equipment	No
Specialized training	No
Specialized requirements for biospecimen collection	No
Average time of greater than 15 minutes in an unaffected individual	No

Mode of Administration

Self-administered questionnaire

Lifestage

Infant, Toddler, Child, Adolescent, Adult, Senior, Pregnancy

Participants

Adults, age 18 years and older

Selection Rationale

The Genetic Counseling Satisfaction Scale (GCSS) is widely used and often reported—and, therefore, allows for comparison. It is also freely available.

Language

English

Standards

Standard	Name	ID	Source

Derived Variables

None

Process and Review

Not applicable

Protocol Name from Source

Genetic Counseling Satisfaction Scale (GCSS)

Source

DeMarco, T. A., Peshkin, B. N., Mars, B. D., & Tercyak, K. P. (2004). Patient satisfaction with cancer genetic counseling: A psychometric analysis of the Genetic Counseling Satisfaction Scale. Journal of genetic counseling, 13(4), 293–304.  

General References

Buchanan, A. H., Datta, S. K., Skinner, C. S., Hollowell, G. P., Beresford, H. F., Freeland, T., Rogers, B., Boling, J., Marcom, P. K., Adams, M. B. (2015). Randomized trial of telegenetics vs. in-person cancer genetic counseling: Cost, patient satisfaction and attendance. Journal of Genetic Counseling, 24(6), 961–970.

Tercyak, K. P., Demarco, T. A., Mars, B. D., & Peshkin, B. N. (2004). Women’s satisfaction with genetic counseling for hereditary breast-ovarian cancer: Psychological aspects. American Journal of Medical Genetics Part A, 131(1), 36–41.

Protocol ID

311001

Variables

Export Variables

Variable Name	Variable ID	Variable Description	dbGaP Mapping
PX311001_Genetic_Counseling_Decisions
	PX311001020000	My genetic counselor helped me to identify more what I needed to know to make decisions about what could happen to me. show less	N/A
PX311001_Genetic_Counseling_Health
	PX311001030000	I felt better about my health after meeting more with my genetic counselor. show less	N/A
PX311001_Genetic_Counseling_Stresses
	PX311001010000	My genetic counselor seemed to understand more the stresses I was facing. show less	N/A
PX311001_Genetic_Counseling_Time
	PX311001040000	The genetic counseling session was about the more right length of time I needed. show less	N/A
PX311001_Genetic_Counseling_Valuable
	PX311001060000	The genetic counseling session was valuable to me.	N/A
PX311001_Genetic_Counseling_Well_Being
	PX311001050000	My genetic counselor was truly concerned more about my well-being. show less	N/A

Genomic Medicine Implementation

Measure Name

Patient Satisfaction with Genetic Counseling

Release Date

September 10, 2020

Definition

A scale used to determine how satisfied a person is with his or her genetic counseling. 

Purpose

Health care organizations and providers can use this scale to determine if their genetic counseling met patient expectations and, if necessary, to determine how to improve the services.

Keywords

genetic counseling, genetic testing, genomic testing, satisfaction, scale, Genetic Counseling Satisfaction Scale, GCSS

Measure Protocols

Protocol ID	Protocol Name
311001	Patient Satisfaction with Genetic Counseling

Publications

There are no publications listed for this protocol.