Protocol - Sickle Cell Disease Pain Location Body Map - Adult
Description
The Sickle Cell Disease Pain Location Body Map - Adult protocol is one question from a wider self-administered pain diary that is completed daily. This protocol is used to record the previous days level of sickle cell disease (SCD)-related pain. Additionally, the wider Sickle Cell Pain Diary captures data about an individuals medication use, responses to pain, and SCD-related disability and distress. This protocol was validated in individuals aged 16 years and older.
Specific Instructions
The PISCES Body Map is useful for capturing acute sickle cell disease pain during the past 24 hours. The Michigan Body Map is more relevant for general populations to assess persistent or recurrent pain over the last 3 months.
Availability
Protocol
On the body diagrams, place an X in each box where, due to sickle cell pain, you hurt yesterday
Personnel and Training Required
None
Equipment Needs
None
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adolescent, Adult
Participants
Adolescents and Adults aged 16 years and older
Selection Rationale
The self-administered pain diary from Smith et al. is a valid and reliable instrument for capturing the location of pain.
Language
English
Standards
| Standard | Name | ID | Source |
|---|
Derived Variables
None
Process and Review
Not Applicable
Protocol Name from Source
Sickle Cell Pain Diary
Source
McClish, D. K., Smith, W. R., Dahman, B. A., Levenson, J. L., Roberts, J. D., Penberthy, L. T., Aisiku, I. P., Roseff, S. D., & Bovbjerg, V. E. (2009). Pain site frequency and location in sickle cell disease: The PiSCES project. Pain, 145(1-2), 246-251.
Smith, W. R., Bovbjerg, V. E., Penberthy, L. T., McClish, D. K., Levenson, J. L., Roberts, J. D., Gil, K., Roseff, S. D., & Aisiku, I. P. (2005). Understanding pain and improving management of sickle cell disease: The PiSCES study. Journal of the National Medical Association, 97(2), 183-193.
General References
McClish, D. K., Smith, W. R., Levenson, J. L., Aisiku, I. P., Roberts, J. D., Roseff, S. D., & Bovbjerg, V. E. (2017). Comorbidity, pain, utilization, and psychosocial outcomes in older versus younger sickle cell adults: The PiSCES project. BioMed Research International, 2017, 4070547.
Protocol ID
860601
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX860601_Sickle_Cell_Pain_Location_Body | ||||
| PX860601010000 | Due to sickle cell pain, where on your body more | N/A | ||
Measure Name
Pain Location
Release Date
May 18, 2022
Definition
This measure assesses the number and location of sites on the body where pain symptoms are felt.
Purpose
The number and location of pain sites vary significantly by age, frequency of pain, crisis, and utilization. Pain location can predict important behavioral outcomes, number of days where an individual experiences subjective vaso-occlusive crises, and unplanned utilization of hospitals.
Keywords
pain, response to pain, sickle cell disease, SCD, location, site of pain, Sickle Cell Disease Pain Diary, PiSCES project
Measure Protocols
| Protocol ID | Protocol Name |
|---|---|
| 860601 | Sickle Cell Disease Pain Location Body Map - Adult |
| 860602 | Pain Location Body Map - Child |
Publications
There are no publications listed for this protocol.