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Protocol - Sexual Function and Satisfaction - Male

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Description

The PROMIS® v2.0 Brief Profile Sexual Function and Satisfaction (Male) is a 10-item, self-administered questionnaire prompting male individuals about their sexual activity and experience in the prior 30 days. The questionnaire has items asking about interest in sexual activity, if an individual has participated in sexual activity or reasons why they have not engaged in sexual activity, erectile function, and if sexual activity has been satisfying.

Specific Instructions

The Sickle Cell Disease Genitourinary Working Group notes some questions in this assessment are sensitive. Investigators should provide a private space for completing assessments and to be prepared to offer appropriate support.

The PhenX Sickle Cell Disease Genitourinary Working Group recommends this PROMIS® protocol. For additional information regarding PROMIS® instruments (including scoring, validity, and interpretation) please visit: www.healthmeasures.net. For specific information about this instrument, please visit:

https://www.healthmeasures.net/index.php?option=com_instruments&view=measure&id=891&Itemid=992

Availability

Available

Protocol

PROMIS® v2.0 Brief Profile Sexual Function and Satisfaction (Male)

Brief Profile Sexual Function and Satisfaction (Male)
Item ID Item Context Item Stem Responses and Scores Screener Question

SFINT101

In the past 30 days

How interested have you been in sexual activity?

[ ] 1 = Not at all
[ ] 2 = A little bit
[ ] 3 = Somewhat
[ ] 4 = Quite a bit
[ ] 5 = Very

SFINT201

In the past 30 days

How often have you felt like you wanted to have sexual activity?

[ ] 1 = Never
[ ] 2 = Rarely
[ ] 3 = Sometimes
[ ] 4 = Often
[ ] 5 = Always

SFSCR202

In the past 30 days

Did you have any type of sexual activity?

(Examples of sexual activity are masturbation, oral sex, and sexual intercourse.)

[ ] 1 = No
[ ] 2 = Yes

SFSCR204bpm

In the past 30 days

There are many reasons why people may not have had sexual activity during the month.

What are the reasons why you did not have sexual activity in the past 30 days?

Please read the list carefully and check every reason that applies to you, even if it happened only one time during the past 30 days.

[ ] 1 = Was not interested in having sexual activity
[ ] 2 = Difficulties with my erections (penis not hard or is painful)
[ ] 3 = Difficulties with orgasm/climax
[ ] 4 = Don't enjoy sexual activity
[ ] 5 = Health condition
[ ] 6 = No partner
[ ] 7 = Partner was away
[ ] 8 = Partner was not interested in sexual activity
[ ] 9 = Partner’s health condition
[ ] 10 = Some other reason (Specify) _______

Conditional on answer 1=no for SFSCR202 – no activity

SFEFn005r

In the past 30 days

How often were you able to get an erection (get hard) during sexual activity?

[ ] 1 = Almost never/never
[ ] 2 = A few times (much less than half the time)
[ ] 3 = Sometimes (about half the time)
[ ] 4 = Most times (much more than half the time)
[ ] 5 = Almost always/always

Conditional on answer 2 = yes for SFSCR202

SFEFN008r

In the past 30 days

During sexual intercourse how often were you able to maintain your erection (stay hard) after you had penetrated (entered) your partner?

[ ] 0 = Did not attempt intercourse
[ ] 1 = Almost never/never
[ ] 2 = A few times (much less than half the time)
[ ] 3 = Sometimes (about half the time)
[ ] 4 = Most times (much more than half the time)
[ ] 5 = Almost always/always

Conditional on answer 2 = yes for SFSCR202

SFOGA201

In the past 30 days

How often have you been able to have an orgasm/climax when you wanted to?

[ ] 0 = Have not tried to have an orgasm/climax in the past 30 days
[ ] 1 = Never
[ ] 2 = Rarely
[ ] 3 = Sometimes
[ ] 4 = Often
[ ] 5 = Always

Conditional on answer 2 = yes for SFSCR202

SFOGP203

In the past 30 days

How satisfying have your orgasms or climaxes been?

[ ] 0 = Have not had an orgasm/climax in the past 30 days
[ ] 1 = Not at all
[ ] 2 = A little bit
[ ] 3 = Somewhat
[ ] 4 = Quite a bit
[ ] 5 = Very

Conditional on answer 2 = yes for SFSCR202

SFSAT101

In the past 30 days

How satisfied have you been with your sex life?

[ ] 1 = Not at all
[ ] 2 = A little bit
[ ] 3 = Somewhat
[ ] 4 = Quite a bit
[ ] 5 = Very

Conditional on answer 2 = yes for SFSCR202

SFSAT102r

In the past 30 days

How much pleasure has your sex life given you?

[ ] 1 = None
[ ] 2 = A little bit
[ ] 3 = Some
[ ] 4 = Quite a bit
[ ] 5 = A lot

Conditional on answer 2 = yes for SFSCR202

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Adult, Senior

Participants

Adolescent and adult males

Selection Rationale

The PROMIS® v2.0 Brief Profile Sexual Function and Satisfaction (Male) survey is a validated self-administered questionnaire that is easy to administer and complete.

Language

English

Standards
StandardNameIDSource
Derived Variables

None

Process and Review

Not applicable.

Protocol Name from Source

PROMIS® v2.0 Brief Profile Sexual Function and Satisfaction (Male)

Source

Cella, D., Riley, W., Stone, A., Rothrock, N., Reeve, B., Yount, S., Amtmann, D., Bode, R., Buysse, D., Choi, S., Cook, K., Devellis, R., DeWalt, D., Fries, J. F., Gershon, R., Hahn, E. A., Lai, J.-S., Pilkonis, P., Revicki, D., Rose, M., … Hays, R. (2010). The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008. Journal of Clinical Epidemiology, 63(11), 1179–1194. https://doi.org/10.1016/j.jclinepi.2010.04.011

General References

DeWalt, D. A., Rothrock, N., Yount, S., & Stone, A. A.; on behalf of the PROMIS cooperative group. (2007). Evaluation of item candidates: The PROMIS qualitative item review. Medical Care, 45(5 Suppl 1), S12–21. https://doi.org/10.1097/01.mlr.0000254567.79743.e2

Flynn, K. E., Jeffery, D. D., Keefe, F. J., Porter, L. S., Shelby, R. A., Fawzy, M. R., Gosselin, T. K., Reeve, B. B., & Weinfurt, K. P. (2011). Sexual functioning along the cancer continuum: Focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS®). Psycho-Oncology, 20(4), 378–386. https://doi.org/10.1002/pon.1738

Flynn K. E., Reese J. B., Jeffery D. D., Abernethy A. P., Lin L., Shelby R. A., Porter L. S., Dombeck C. B., & Weinfurt K. P. (2012). Patient experiences with communication about sex during and after treatment for cancer. Psycho-Oncology, 21(6), 594–601. https://doi.org/10.1002/pon.1947

Fortune-Greeley, A. K., Flynn, K. E., Jeffery, D. D., Williams, M. S., Keefe, F. J., Reeve, B. B., Willis, G. B., & Weinfurt, K. P. (2009). Using cognitive interviews to evaluate items for measuring sexual functioning across cancer populations: Improvements and remaining challenges. Quality of Life Research, 18(8), 1085–1093. https://doi.org/10.1007/s11136-009-9523-x

Jeffery, D. D., Tzeng, J. P., Keefe, F.J., Porter, L. S., Hahn, E. A., Flynn, K. E., Reeve, B. B., & Weinfurt, K. P. (2009). Initial report of the cancer Patient-Reported Outcomes Measurement Information System (PROMIS) sexual function committee: Review of sexual function measures and domains used in oncology. Cancer, 115(6), 1142–1153. https://doi.org/10.1002/cncr.24134

Protocol ID

880802

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX880802_Sexual_Function_Male_Any_Activity
PX880802030000 In the past 30 days, did you have any type more
of sexual activity? (Examples of sexual activity are masturbation, oral sex, and sexual intercourse.) show less
N/A
PX880802_Sexual_Function_Male_Intercourse_Maintain_Erection
PX880802060000 In the past 30 days, during sexual more
intercourse how often were you able to maintain your erection (stay hard) after you had penetrated (entered) your partner? show less
N/A
PX880802_Sexual_Function_Male_Interest_Activity
PX880802010000 In the past 30 days, how interested have you more
been in sexual activity? show less
N/A
PX880802_Sexual_Function_Male_No_Activity_Reason
PX880802040000 There are many reasons why people may not more
have had sexual activity during the month. What are the reasons why you did not have sexual activity in the past 30 days? Please read the list carefully and check every reason that applies to you, even if it happened only one time during the past 30 days. show less
N/A
PX880802_Sexual_Function_Male_No_Activity_Reason_Specify
PX880802040100 There are many reasons why people may not more
have had sexual activity during the month. What are the reasons why you did not have sexual activity in the past 30 days? Please read the list carefully and check every reason that applies to you, even if it happened only one time during the past 30 days. Specify show less
N/A
PX880802_Sexual_Function_Male_Often_Erection_Activity
PX880802050000 In the past 30 days, how often were you able more
to get an erection (get hard) during sexual activity? show less
N/A
PX880802_Sexual_Function_Male_Often_Orgasm
PX880802070000 In the past 30 days, how often have you been more
able to have an orgasm/climax when you wanted to? show less
N/A
PX880802_Sexual_Function_Male_Pleasure_Sex_Life
PX880802100000 In the past 30 days, how much pleasure has more
your sex life given you? show less
N/A
PX880802_Sexual_Function_Male_Satisfied_Sex_Life
PX880802090000 In the past 30 days, how satisfied have you more
been with your sex life? show less
N/A
PX880802_Sexual_Function_Male_Satisfying_Orgasm
PX880802080000 In the past 30 days, how satisfying have more
your orgasms or climaxes been? show less
N/A
PX880802_Sexual_Function_Male_Want_Activity
PX880802020000 In the past 30 days, how often have you felt more
like you wanted to have sexual activity? show less
N/A
SCD Genitourinary
Measure Name

Sexual Function

Release Date

August 15, 2023

Definition

Sexual function is the ability to achieve sexual desire, sexual arousal, and orgasm and includes satisfaction with sexual behavior.

Purpose

Sexual function is an important in quality of life and can be impacted by a variety of medications and medical conditions and disorders.

Keywords

sickle cell disease, sexual function, sexual activity, satisfaction with sex life, comfort with sexual activity, discomfort with sexual activity, orgasm, erectile function

Measure Protocols
Protocol ID Protocol Name
880801 Sexual Function and Satisfaction - Female
880802 Sexual Function and Satisfaction - Male
Publications

There are no publications listed for this protocol.