SCD Genitourinary
| Select | Protocol | ID |
|---|---|---|
|
#880601 |
|
|
#880501 |
|
|
#880901 |
|
|
#880701 |
|
|
#880101 |
|
|
#880401 |
|
|
#850602 |
|
|
#880801 |
|
|
#880802 |
|
|
#881001 |
|
|
#881101 |
|
|
#880201 |
Release Date:
August 15, 2023
Scope of Collection
| Element Considered | Final Measures in Toolkit |
|---|---|
| Puberty | |
| Menstruation | Sickle Cell Disease Pain Associated with Menstruation |
| Sickle Cell Disease Pain Associated with Menstruation - Quality of Life | |
| Contraception | Female Contraception Use |
| Priapism | Priapism |
| Fertility | Fertility and Quality of Life |
| Fertility History | |
| Infertility | |
| Testosterone Deficiency | Testosterone Level |
| Sexual Function | Sexual Function |
| Sexual, Romantic, and Partner Satisfaction | |
| Exogenous hormone use | Hormone Therapy |
| Menopause | Perimenopausal Symptoms |
| Voiding Dysfunction | Overactive Bladder |
Working Group Roster:
WG Members:
|
Lillian Meacham, MD, Co-Chair Emory University School of Medicine Atlanta, GA |
Lydia Pecker, MD, Co-Chair Johns Hopkins University School of Medicine Baltimore, MD |
|
Leslie Appiah, MD University of Colorado, Anschutz Aurora, CO |
Andrea Roe, MD, MPH University of Pennsylvania School of Medicine Philadelphia, PA |
|
Arthur (Bud) Burnett, MD Johns Hopkins University School of Medicine Baltimore, MD |
Zora R. Rogers, MD University of Texas, Southwestern Dallas, TX |
|
Adrienne Mishkin, MD, MPH, MBE, FAPA Columbia University Medical Center New York, NY |
Sickle Cell Disease Panel Liaison, WG Manager and WG Supervisor:
|
Lauren Wood, MS, WG Manager RTI International Research Triangle Park, NC |
Michelle E. Engle, PhD, WG Supervisor RTI International Research Triangle Park, NC |
Supplemental Information includes protocols that the Working Group or Expert Review Panel considered useful and highly relevant to the domain but do not meet the criteria for inclusion in the Toolkit.
Additional Information:
There is no additional information for this collection.