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DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols

Total Protocols in My Toolkit: 49
	Ataxia Rating Scale Scale for the Assessment and Rating of Ataxia (SARA) Check all Current Age Add to Toolkit Remove
	Body Proportions National Health and Nutrition Examination Survey (NHANES), Anthropometry procedures, 2007-2008 Check all Arm Span Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Bone Age Tanner and Whitehouse Method (TW2) Check all Current Age Add to Toolkit Remove
	Child Oral Health Pain Child Oral Health Impact Profile-Short Form 19 (COHIP-SF 19) Check all Current Age Add to Toolkit Remove
	Complete Blood Count (CBC) National Health and Nutrition Examination Survey (NHANES), Laboratory procedures Manual, 2010 Check all Current Age History of Transfusion Medication Inventory Add to Toolkit Remove
	Disability Index Oswestry Disability Index (ODI)©, version 2.1a Check all Current Age Add to Toolkit Remove
	Disease Progression and Regression - 0-24 Months Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 0-24 months Check all Current Age Add to Toolkit Remove
	Disease Progression and Regression - 12-18 Years Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 12-18 years Check all Current Age Add to Toolkit Remove
	Disease Progression and Regression - 2-11 Years Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 2-11 years Check all Current Age Add to Toolkit Remove
	Disease Progression and Regression - Adult Newcastle Mitochondrial Disease Adult Scale (NMDAS), 12-18 years Check all Current Age Add to Toolkit Remove
	Disorders of Respiratory Control with Inherent Autonomic Dysregulation Autonomic Nervous System Questionnaire (ANSQ) American Thoracic Society (ATS) Statement on CCHS (2010) Check all Current Age Family Health History Add to Toolkit Remove
	Echocardiography Phenotypes British Society of Echocardiography (BSE) Education Committee guidelines for a standard transthoracic echocardiogram (TTE) Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Family Health History My Family Health Portrait (MFHP) Check all Current Age Add to Toolkit Remove
	Growth Charts World Health Organization (WHO) & Centers for Disease Control and Prevention (CDC) growth charts Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Quality of Life - Adult Patient-Reported Outcomes Measurement Information System® (PROMIS) 29 Profile, v. 2.0 Adult Profile Check all Current Age Add to Toolkit Remove
	Quality of Life - Pediatric Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank, v.1.1, Pediatric Profile 25 Check all Current Age Add to Toolkit Remove
	Scale of Developmental Domains of Early Childhood Mullen Scales of Early Learning Check all Current Age Add to Toolkit Remove
	Scoliosis - Physical Assessment Adams forward bend test & x-ray with Cobb technique Check all Current Age Add to Toolkit Remove
	Scoliosis - Quality of Life Pediatric Outcomes Data Collection Instrument (PODCI), v. 2.0,Parent/Child Outcomes Instrument, 2005 Check all Current Age Add to Toolkit Remove
	Sweat Chloride Test LeGrys, V.A., et al. Diagnostic sweat testing: The Cystic Fibrosis Foundation guidelines. J Pediatr, 2007 Check all Current Age Add to Toolkit Remove
	Air Contaminants in the Home Environment Atmospheric and Environmental Research (AER) Inc., Relationships of Indoor, Outdoor and Personal Air (RIOPA) Study Activity Questionnaire, 1999 Remove
	Characteristics of Current Residence National Human Exposure Assessment Survey (NHEXAS), 1995 Remove
	Current Environmental Tobacco Smoke Exposure National Health and Nutrition Examination Survey (NHANES), Family Questionnaire, 2011-2012 Check all Household Roster-Relationships Add to Toolkit Remove
	Day Care Attendance University of North Carolina at Chapel Hill, Mothers Questionnaire Check all Current Age Add to Toolkit Remove
	Dust Collection - Vacuum Bag RTI International, Atrazine Exposure Study, Vacuum Cleaner Dust Collection Protocol, 2001 Remove
	Exposure at Work and in Daily Life American Cancer Society (ACS), Cancer Prevention Study II (CPS-II), Mens Baseline Questionnaire, 1982 Remove
	Exposures from Hobbies Long Island Breast Cancer Study Project (LIBCSP) Remove
	History of Being Breast-Fed - Adult National Institutes of Health (NIH), Long Island Breast Cancer Study, 1996 Remove
	History of Being Breast-Fed - Child National Immunization Survey (NIS), 2013 Remove
	Home and Workplace Exposures to Floor and Wall Materials Finnish Environment and Asthma Study, 1997-2000 Check all Current Address Add to Toolkit Remove
	Occupation/Occupational History National Health and Nutrition Examination Survey (NHANES), 2005-2006 Check all Current Age Add to Toolkit Remove
	Personal Care Products Study of Use of Products and Exposure-Related Behavior (SUPERB) Study, Tier 1 Adult Questionnaire Check all Current Age Add to Toolkit Remove
	Residential History Parkinsons Disease, Environment, and Genes Study (PEG Study), 2001 Check all Current Address Add to Toolkit Remove
	Ultraviolet Light Exposure National Cancer Institute (NCI), Non-Hodgkins Lymphoma Study (NHL), Sun Exposures Module, 2001 Remove
	Water Source The Iowa Study of Environment and Health; National Health and Nutrition Examination Survey, 2005-2006 Remove
	Adherence to Medication Regimens Adherence to Refills and Medications Scale (ARMS) Check all Medication Inventory Add to Toolkit Remove
	Cessation Milestones - Abstinence from Cigarettes Shiffman, S., et al. Analyzing milestones in smoking cessation: illustration in a nicotine patch trial in adult smokers. J Consult Clin Psych, 2006. Check all Cigarette Smoking Status - Adolescent Cigarette Smoking Status - Adult Add to Toolkit Remove
	Heaviness of Smoking Index Heaviness of Smoking Index (HSI) Check all Cigarette Smoking Status - Adult Current Age Add to Toolkit Remove
	Methods of Quitting Smoking Cigarettes - Adults Caraballo RS, et al. Quit Methods Used by US Adult Cigarette Smokers, 2014-2016. Prev Chronic Dis, 2017. Check all Cigarette Smoking Status - Adolescent Cigarette Smoking Status - Adult Add to Toolkit Remove
	Nicotine Metabolite Ratio - Serum and Saliva National Health and Nutrition Examination Survey (NHANES) Cotinine and Hydroxycotinine Analysis Check all Cigarette Smoking Status - Adult Current Age Add to Toolkit Remove
	Perception of Tobacco Product Harm - Cigarettes Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 3 Adult Annotated Instrument, 2018 Remove
	Perception of Tobacco Product Harm - Cigars Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018 Remove
	Perception of Tobacco Product Harm - E-Cigarettes Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016 Remove
	Perception of Tobacco Product Harm - Pipe Tobacco Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016 Remove
	Perception of Tobacco Product Harm - Smokeless Tobacco Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018 Remove
	Point-Prevalence Abstinence from Tobacco Products Program for Lung Cancer Screening and Tobacco Cessation (PLUTO), 2015-2020 Check all Cigarette Smoking Status - Adolescent Cigarette Smoking Status - Adult Current Age Add to Toolkit Remove
	Prolonged Abstinence from Tobacco Products Adjunctive Mood Management for Telephone-based Smoking Cessation in Primary Care, 2016-2019. Check all Cigarette Smoking Status - Adolescent Cigarette Smoking Status - Adult Current Age Add to Toolkit Remove
	Self-Efficacy for Not Smoking Smoking Self-Efficacy Questionnaire (SEQ-12) Check all Cigarette Smoking Status - Adult Current Age Add to Toolkit Remove
	Social Support for Quitting Smoking Partner Interaction Questionnaire (PIQ-20) Check all Cigarette Smoking Status - Adolescent Cigarette Smoking Status - Adult Current Age Smoking Quit Attempts Add to Toolkit Remove
Total Protocols in My Toolkit: 49

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 March 27). Ataxia Rating Scale. https://www.phenxtoolkit.org/protocols/view/220101

PhenX Toolkit. (2026 March 27). Body Proportions. https://www.phenxtoolkit.org/protocols/view/220201

PhenX Toolkit. (2026 March 27). Bone Age. https://www.phenxtoolkit.org/protocols/view/220301

PhenX Toolkit. (2026 March 27). Child Oral Health Pain. https://www.phenxtoolkit.org/protocols/view/220401

PhenX Toolkit. (2026 March 27). Complete Blood Count (CBC). https://www.phenxtoolkit.org/protocols/view/220501

PhenX Toolkit. (2026 March 27). Disability Index. https://www.phenxtoolkit.org/protocols/view/220601

PhenX Toolkit. (2026 March 27). Disease Progression and Regression - 0-24 Months. https://www.phenxtoolkit.org/protocols/view/220701

PhenX Toolkit. (2026 March 27). Disease Progression and Regression - 12-18 Years. https://www.phenxtoolkit.org/protocols/view/220703

PhenX Toolkit. (2026 March 27). Disease Progression and Regression - 2-11 Years. https://www.phenxtoolkit.org/protocols/view/220702

PhenX Toolkit. (2026 March 27). Disease Progression and Regression - Adult. https://www.phenxtoolkit.org/protocols/view/220704

PhenX Toolkit. (2026 March 27). Disorders of Respiratory Control with Inherent Autonomic Dysregulation. https://www.phenxtoolkit.org/protocols/view/220801

PhenX Toolkit. (2026 March 27). Echocardiography Phenotypes. https://www.phenxtoolkit.org/protocols/view/220901

PhenX Toolkit. (2026 March 27). Family Health History. https://www.phenxtoolkit.org/protocols/view/221001

PhenX Toolkit. (2026 March 27). Growth Charts. https://www.phenxtoolkit.org/protocols/view/221201

PhenX Toolkit. (2026 March 27). Quality of Life - Adult. https://www.phenxtoolkit.org/protocols/view/221302

PhenX Toolkit. (2026 March 27). Quality of Life - Pediatric. https://www.phenxtoolkit.org/protocols/view/221301

PhenX Toolkit. (2026 March 27). Scale of Developmental Domains of Early Childhood. https://www.phenxtoolkit.org/protocols/view/221401

PhenX Toolkit. (2026 March 27). Scoliosis - Physical Assessment. https://www.phenxtoolkit.org/protocols/view/221601

PhenX Toolkit. (2026 March 27). Scoliosis - Quality of Life. https://www.phenxtoolkit.org/protocols/view/221501

PhenX Toolkit. (2026 March 27). Sweat Chloride Test. https://www.phenxtoolkit.org/protocols/view/221701

PhenX Toolkit. (2026 March 27). Air Contaminants in the Home Environment. https://www.phenxtoolkit.org/protocols/view/61101

PhenX Toolkit. (2026 March 27). Characteristics of Current Residence. https://www.phenxtoolkit.org/protocols/view/60101

PhenX Toolkit. (2026 March 27). Current Environmental Tobacco Smoke Exposure. https://www.phenxtoolkit.org/protocols/view/60702

PhenX Toolkit. (2026 March 27). Day Care Attendance. https://www.phenxtoolkit.org/protocols/view/60901

PhenX Toolkit. (2026 March 27). Dust Collection - Vacuum Bag. https://www.phenxtoolkit.org/protocols/view/61201

PhenX Toolkit. (2026 March 27). Exposure at Work and in Daily Life. https://www.phenxtoolkit.org/protocols/view/60401

PhenX Toolkit. (2026 March 27). Exposures from Hobbies. https://www.phenxtoolkit.org/protocols/view/60601

PhenX Toolkit. (2026 March 27). History of Being Breast-Fed - Adult. https://www.phenxtoolkit.org/protocols/view/61001

PhenX Toolkit. (2026 March 27). History of Being Breast-Fed - Child. https://www.phenxtoolkit.org/protocols/view/61002

PhenX Toolkit. (2026 March 27). Home and Workplace Exposures to Floor and Wall Materials. https://www.phenxtoolkit.org/protocols/view/61401

PhenX Toolkit. (2026 March 27). Occupation/Occupational History. https://www.phenxtoolkit.org/protocols/view/60501

PhenX Toolkit. (2026 March 27). Personal Care Products. https://www.phenxtoolkit.org/protocols/view/61501

PhenX Toolkit. (2026 March 27). Residential History. https://www.phenxtoolkit.org/protocols/view/60301

PhenX Toolkit. (2026 March 27). Ultraviolet Light Exposure. https://www.phenxtoolkit.org/protocols/view/61301

PhenX Toolkit. (2026 March 27). Water Source. https://www.phenxtoolkit.org/protocols/view/60201

PhenX Toolkit. (2026 March 27). Adherence to Medication Regimens. https://www.phenxtoolkit.org/protocols/view/331001

PhenX Toolkit. (2026 March 27). Cessation Milestones - Abstinence from Cigarettes. https://www.phenxtoolkit.org/protocols/view/330101

PhenX Toolkit. (2026 March 27). Heaviness of Smoking Index. https://www.phenxtoolkit.org/protocols/view/330201

PhenX Toolkit. (2026 March 27). Methods of Quitting Smoking Cigarettes - Adults. https://www.phenxtoolkit.org/protocols/view/330301

PhenX Toolkit. (2026 March 27). Nicotine Metabolite Ratio - Serum and Saliva. https://www.phenxtoolkit.org/protocols/view/330401

PhenX Toolkit. (2026 March 27). Perception of Tobacco Product Harm - Cigarettes. https://www.phenxtoolkit.org/protocols/view/330501

PhenX Toolkit. (2026 March 27). Perception of Tobacco Product Harm - Cigars. https://www.phenxtoolkit.org/protocols/view/330503

PhenX Toolkit. (2026 March 27). Perception of Tobacco Product Harm - E-Cigarettes. https://www.phenxtoolkit.org/protocols/view/330502

PhenX Toolkit. (2026 March 27). Perception of Tobacco Product Harm - Pipe Tobacco. https://www.phenxtoolkit.org/protocols/view/330504

PhenX Toolkit. (2026 March 27). Perception of Tobacco Product Harm - Smokeless Tobacco. https://www.phenxtoolkit.org/protocols/view/330505

PhenX Toolkit. (2026 March 27). Point-Prevalence Abstinence from Tobacco Products. https://www.phenxtoolkit.org/protocols/view/330601

PhenX Toolkit. (2026 March 27). Prolonged Abstinence from Tobacco Products. https://www.phenxtoolkit.org/protocols/view/330701

PhenX Toolkit. (2026 March 27). Self-Efficacy for Not Smoking. https://www.phenxtoolkit.org/protocols/view/330801

PhenX Toolkit. (2026 March 27). Social Support for Quitting Smoking. https://www.phenxtoolkit.org/protocols/view/330901

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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