PhenX Toolkit: Toolkit

Essential Protocols

	Sickle Cell Disease Health-Related Stigma - Child Child Stigma Scale (CSS) Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Sickle Cell Disease Health-Related Internal Stigma - Adolescent and Adult Measure of Sickle Cell Stigma (MoSCS) Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Reactions to Loss Reactions to Loss Scale (RTL) Check all Current Age Add to Toolkit Remove
	Sickle Cell Disease Responses to Stress - Youth Responses to Stress Questionnaire - Sickle Cell Disease version (RSQ-SC) Check all Current Address Current Age Add to Toolkit Remove
	Sickle Cell Disease Responses to Stress - Parent Report Responses to Stress Questionnaire - Sickle Cell Disease version (RSQ-SC), Parent Report version Check all Current Address Current Age Add to Toolkit Remove
	Sickle Cell Disease Transition Readiness Assessment Sickle Cell Transition Intervention Program - Readiness for Transition (TIP-RFT) Check all Current Age Current Employment Status Educational Attainment - Individual Add to Toolkit Remove
	Trust in the Medical Professional - Adult Wake Forest Trust in the Medical Professional Remove
	Trust in Medical Researchers - 12-Item Trust in Medical Researchers - Long Form - Adult Remove
	Trust in Medical Researchers - 4-Item Trust in Medical Researchers - Short Form - Adult Remove
	Religious Behaviors and Congregational Support Brief Multidimensional Measure of Religiousness/Spirituality (BMMRS) Check all Current Age Add to Toolkit Remove
	Sickle Cell Disease Self-Management - Adolescent Skills Checklist Adolescent and Caregiver Sickle Cell Disease Self-Management Skills Checklist - Self-Management Skills Checklist for Teens Check all Current Age Medication Inventory Add to Toolkit Remove
	Sickle Cell Disease Self-Management - Caregiver Skills Checklist Adolescent and Caregiver Sickle Cell Disease Self-Management Skills Checklist - Self-Management Skills Checklist for Caregivers Remove
	Prolonged Grief Disorder Prolonged Grief Disorder (PG-13-R) Check all Current Age Add to Toolkit Remove
	Resilience Connor-Davidson Resilience Scale (CD-RISC 25) Check all Current Age Add to Toolkit Remove
	Sickle Cell Disease Health-Related External Stigma - Adolescent and Adult Sickle Cell Disease Health-Related Stigma Scale Short Form (SCD-HRSS-SF) Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Annual Family Income National Health Interview Survey (NHIS) Family Questionnaire, 2020 Check all Current Age Household Roster-Relationships Add to Toolkit Remove
	Birthplace American Community Survey (ACS), 2008 Remove
	Birthplace of Parents American Community Survey (ACS), 2008 Remove
	Birthplace of Grandparents American Community Survey (ACS), 2008 Check all Birthplace of Parents Add to Toolkit Remove
	Educational Attainment - Individual National Health and Nutrition Examination Survey (NHANES), Demographics Module, 2019-2020 Remove
	Current Employment Status Panel Study of Income Dynamics (PSID), 2007 Check all Current Age Add to Toolkit Remove
	Current Marital Status Behavioral Risk Factor Surveillance System (BRFSS), Core Section 8: Demographics, 2018 Check all Current Age Add to Toolkit Remove
	Health Insurance Coverage Health Reform Monitoring Survey, 2015 Check all Current Age Add to Toolkit Remove
	Marital Status of Primary Caregiver Silent Cerebral Infarct Multi-Center Clinical Trial (SIT), Demographic/Phenotypic Information Check all Current Age Add to Toolkit Remove
	Pediatric School Performance Pediatric Hydroxyurea, Phase III Clinical Trial (BABY HUG), Part VII: Education - School Questionnaire Check all Current Age Add to Toolkit Remove
	Years Living in the U.S. National Health Interview Survey (NHIS), Family Questionnaire, 2007 Check all Birthplace Current Age Add to Toolkit Remove
	Medication Inventory Multi-Ethnic Study of Arthrosclerosis (MESA), Medications, 2000 Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
	Frequency of Sickle Cell Pain Episodes Per Year Cooperative Study of Sickle Cell Disease (CSSCD), Form 25 - Painful Episodes Check all Current Age Add to Toolkit Remove
	History of Transfusion Telen, M.J., et al. Alloimmunization in sickle cell disease: changing antibody specificities and association with chronic pain and decreased survival. TRANSFUSION, 2015 Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
Total Protocols in My Toolkit: 29

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

My Toolkit