Protocol - Removal of Female Reproductive Organs

Description

The participant answers a question about whether she has had a hysterectomy. If so, she answers a question about whether she has also had any ovaries removed.

Specific Instructions

The Expert Review Panel notes that although the National Survey of Family Growth (NSFG) only includes women 18-44, this protocol could be used for all women who are over 18.

Availability

Available

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Protocol

Have you ever had a hysterectomy, that is, surgery to remove your uterus?

1[ ]Yes

5[ ]No

Asked if Respondent is not currently pregnant

Have you ever had both of your ovaries removed?

1[ ]Yes

5[ ]No

{Asked for all Respondents}

Personnel and Training Required

None

Equipment Needs

Pencil and paper

Requirements

Requirement Category	Required
Major equipment	No
Specialized training	No
Specialized requirements for biospecimen collection	No
Average time of greater than 15 minutes in an unaffected individual	No

Mode of Administration

Self-administered questionnaire

Lifestage

Adult

Participants

Women aged 18-44

Selection Rationale

The National Survey of Family Growth (NSFG) 2013-2015 includes questions that address the causes and treatment of infertility. The survey includes both male and female respondents and represents the household population of the United States aged 15-44 years.

Language

English

Standards

Standard	Name	ID	Source
caDSR Form	PhenX PX100502 - Removal Of Female Reproductive Organs	6910404	caDSR Form

Derived Variables

None

Process and Review

The Expert Review Panel #5 (ERP 5) reviewed the measures in the Reproductive Health domain.

Guidance from ERP 5 includes the following:

· Replaced protocol

· Changed name of measure

· New Data Dictionary

Back-compatible: there are changes to the Data Dictionary, previous version of the Data Dictionary and Variable mapping in Toolkit archive (link)

Protocol Name from Source

National Survey of Family Growth (NSFG), 2011-2013

Source

National Survey of Family Growth (NSFG) 2011-2013, Female Questionnaire, Part D, Questions DA-2 and DA-3. http://www.cdc.gov/nchs/nsfg/nsfg_questionnaires.htm

General References

Merrill, R. M. (2006). Impact of hysterectomy and bilateral oophorectomy on race-specific rates of corpus, cervical, and ovarian cancers in the United States. Annals of Epidemiology, 16(12), 880-887.

Wu, J. M., Wechter, M. E., Geller, E. J., Nguyen, T. V., & Visco, A. G. (2007). Hysterectomy rates in the United States, 2003. Obstetrics & Gynecology, 110, 1091-1095.

Protocol ID

100502

Variables

Export Variables

Variable Name	Variable ID	Variable Description	dbGaP Mapping
PX100502_Removal_Female_Reproductive_Organs_Hysterectomy_Uterus
	PX100502010000	Have you ever had a hysterectomy, that is, more surgery to remove your uterus? show less	N/A
PX100502_Removal_Female_Reproductive_Organs_Ovaries
	PX100502020000	Have you ever had both of your ovaries removed?	N/A

Reproductive Health

Measure Name

Removal of Female Reproductive Organs

Release Date

April 11, 2017

Definition

Questions to assess whether the participant has had a hysterectomy or has had her ovaries removed.

Purpose

The purpose of these questions is to assess the occurrence of hysterectomies with or without ovary removal. This measure identifies the impact of surgery on a woman’s hormonal system and will be important in any gene/environmental studies of hormones or hormonal-related diseases.

Keywords

Reproductive health, hysterectomy, ovaries, oophorectomy, National Survey of Family Growth, NSFG

Measure Protocols

Protocol ID	Protocol Name
100502	Removal of Female Reproductive Organs

Publications

Modibbo, F., et al. (2017) Randomized trial evaluating self-sampling for HPV DNA based tests for cervical cancer screening in Nigeria. Infect Agent Cancer. 2017 February; 12: 11. doi: 10.1186/s13027-017-0123-z