PhenX Toolkit: Toolkit

Essential Protocols

Total Protocols in My Toolkit: 25
	Prothrombin Time Prothrombin Time (PT), CPT 85610 Check all Current Age Medication Inventory Add to Toolkit Remove
	Left Ventricular Global Longitudinal Strain by Speckle Tracking Echocardiography Voigt, et al. Definitions for a common standard for 2D speckle tracking echocardiography: Consensus document of the EACVI/ASE/Industry Task Force to standardize deformation imaging. European Heart Journal - Cardiovascular Imaging, 16(1), 1-11. Check all Current Age Add to Toolkit Remove
	Psychosocial Assessment of Candidates for Transplantation (PACT) Psychosocial Assessment of Candidates for Transplantation (PACT) Remove
	Sickle Cell Disease Transplant Conditioning Regimen Cure Sickle Cell Initiative (CureSCi) Transplant Conditioning Case Report Form (CRF) Check all Current Age Add to Toolkit Remove
	Sickle Cell Disease Stem Cell Source and Cell Manipulation Cure Sickle Cell Initiative (CureSCi) Drug Product Case Report Form and Center for International Blood and Marrow Transplant Research (CIBMTR) Form 2400 (R8.0) Pre-Transplant Essential Data, 2021 Remove
	Recurrent Priapism Center for International Blood and Marrow Transplant (CIBMTR), Form 2030 (R3.0) Sickle Cell Pre-HSCT Data, 2021 Remove
	White Cell Chimerism and Graft Failure Center for International Blood and Marrow Transplant Research (CIBMTR), Form 2450 (R5.0) Post-Transplant Essential Data, 2020 Remove
	Graft versus Host Disease Center for International Blood and Marrow Transplant Research (CIBMTR),Form 2450 (R5.0) Post-Transplant Essential Data, 2021 Remove
	Pre-transfusion Antibody Testing Sickle Cell Disease and Cardiovascular Risk—Red Cell Exchange Trial (SCD CARRE) Remove
	Transfusion Reaction Reporting The Sickle Cell Disease and Cardiovascular Risk—Red Cell Exchange Trial (SCD CARRE) Remove This protocol is retired.
	Thyroid Stimulating Hormone (hTSH) in Serum Thyroid Stimulating Hormone (TSH), CPT 84443 Remove
	Determination of Liver Iron Concentration by R2* Garbowski, M. W., Carpenter, J.-P., Smith, G., Roughton, M., Alam, M. H., He, T., Pennell, D. J., & Porter, J. B. (2014). Biopsy-based calibration of T2* magnetic resonance for estimation of liver iron concentration and comparison with R2 Ferriscan. Journal of Cardiovascular Magnetic Resonance, 16, 40. Remove
	Determination of Liver Iron Concentration by Ferriscan St. Pierre, T. G., et al. Single spin-echo proton transverse relaxometry of iron-loaded liver. NMR Biomedicine, 2004 Remove
	Overactive Bladder Symptoms and Quality of Life Overactive Bladder Short Form Questionnaire (OAB-q SF) Check all Current Age Add to Toolkit Remove
	Testosterone Level - Bioassay National Health and Nutrition Examination Survey (NHANES) 2011-2012, Total Testosterone Check all Current Age Add to Toolkit Remove
	Priapism Impact Priapism Impact Profile (PIP) Questionnaire Check all Current Age Add to Toolkit Remove
	Perimenopausal Symptoms The Greene Climacteric Scale Check all Current Age Add to Toolkit Remove
	Fertility and Quality of Life FertiQoL (Fertility Quality of Life tool) Check all Current Age Add to Toolkit Remove
	Female Contraception Use and Preference in Sickle Cell Disease Female Contraception Survey Check all Current Age Add to Toolkit Remove
	Offspring and Fertility History Childhood Cancer Survivor Study (CCSS) Check all Current Age Add to Toolkit Remove
	Sexual Function and Satisfaction - Female PROMIS® v2.0 Brief Profile Sexual Function and Satisfaction (Female) Check all Current Age Add to Toolkit Remove
	Sexual Function and Satisfaction - Male PROMIS® v2.0 Brief Profile Sexual Function and Satisfaction (Male) Check all Current Age Add to Toolkit Remove
	Hormone Therapy National Health and Nutrition Examination Survey (NHANES) Check all Current Age Add to Toolkit Remove
	Sickle Cell Disease Pain Associated with Menstruation Sharma et al. Acute vaso-occlusive pain is temporally associated with the onset of menstruation in women with sickle cell disease. J Women’s Health (Larchmt), 2019. Demographic survey. Check all Current Age Menstrual History Sickle Cell Disease Pain Associated with Menstruation - Quality of Life Add to Toolkit Remove
	Sickle Cell Disease Pain Associated with Menstruation - Quality of Life Modified version of the Sickle Cell Disease Pain Burden Interview-Youth (SCPBI-Y) Check all Current Age Menstrual History Sickle Cell Disease Pain Associated with Menstruation Add to Toolkit Remove
Total Protocols in My Toolkit: 25

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

My Toolkit