PhenX Toolkit: Toolkit

Essential Protocols

Total Protocols in My Toolkit: 34
	Sickle Cell Pain Burden Interview Sickle Cell Pain Burden Interview (SCPBI) Check all Medications (Current and Past Use of Pain Relievers, Statins, and Steroids) Add to Toolkit Remove
	Pain Catastrophizing - Adult Pain Catastrophizing Scale Remove
	Pain Catastrophizing - Child Pain Catastrophizing Scale - Child Version (PCS-C) Remove
	Pain Catastrophizing - Parent Proxy Pain Catastrophizing Scale - Parent Version (PCS-P) Remove
	Pain Coping - Adult Coping Strategies Questionnaire Remove
	Pain Coping - Child Pain Coping Questionnaire - Short Form Remove
	Pain Intensity - Adolescent and Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Numeric Rating Scale v.1.0 - Pain Intensity - 1a Remove
	Pain Intensity - Child Faces Pain Scale-Revised (FPS-R) Remove
	Pain Intensity - Toddler Revised Face, Legs, Activity, Cry, Consolability (FLACC) Pain Tool Check all Current Age Add to Toolkit Remove
	Pain Interference - Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Item Bank v1.1 - Pain Interference - Short Form 8a Remove
	Pain Interference - Child Patient-Reported Outcomes Measurement Information System (PROMIS^®) Pediatric Item Bank v2.0 - Pain Interference - Short Form 8a Remove
	Pain Interference - Parent Proxy Patient-Reported Outcome Measurement Information System (PROMIS^®) Parent Proxy Item Bank v2.0 - Pain Interference - Short Form 8a Remove
	Sickle Cell Disease Pain Location Body Map - Adult Sickle Cell Pain Diary Check all Current Age Add to Toolkit Remove
	Pain Location Body Map - Child Childhood Arthritis and Rheumatology Research Alliance (CARRA) Pain Chart Check all Current Age Add to Toolkit Remove
	Pain Quality Descriptors (Affective) - Children Patient-Reported Outcomes Measurement Information System (PROMIS^®) Pediatric Short Form v2.0 - Pain Quality - Affective 8a Remove
	Pain Quality Descriptors (Sensory) - Children Patient-Reported Outcomes Measurement Information System (PROMIS^®) Pediatric Short Form v2.0 - Pain Quality - Sensory 8a Remove
	Pain Quality Descriptors (Nociceptive) - Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Scale v2.0 - Nociceptive Pain Quality 5a Remove
	Pain Quality Descriptors (Neuropathic) - Adult Patient-Reported Outcomes Measurement Information System (PROMIS^®) Scale v2.0 - Neuropathic Pain Quality 5a Remove
	Patient Global Impression of Change Patient Global Impression of Change (PGIC) Remove
	Physical Mobility - Adult Patient-Reported Outcomes Measurement Information System^® (PROMIS) Item Bank v2.1 - Mobility Remove
	Physical Mobility - Child Patient-Reported Outcomes Measurement Information System^® (PROMIS) Pediatric Item Bank v2.0 - Mobility - Short Form 8a Remove
	Physical Mobility - Hospitalized Individuals Youth Acute Pain Functional Ability Questionnaire (YAPFAQ) Remove
	Overactive Bladder Symptoms and Quality of Life Overactive Bladder Short Form Questionnaire (OAB-q SF) Check all Current Age Add to Toolkit Remove
	Testosterone Level - Bioassay National Health and Nutrition Examination Survey (NHANES) 2011-2012, Total Testosterone Check all Current Age Add to Toolkit Remove
	Priapism Impact Priapism Impact Profile (PIP) Questionnaire Check all Current Age Add to Toolkit Remove
	Perimenopausal Symptoms The Greene Climacteric Scale Check all Current Age Add to Toolkit Remove
	Fertility and Quality of Life FertiQoL (Fertility Quality of Life tool) Check all Current Age Add to Toolkit Remove
	Female Contraception Use and Preference in Sickle Cell Disease Female Contraception Survey Check all Current Age Add to Toolkit Remove
	Offspring and Fertility History Childhood Cancer Survivor Study (CCSS) Check all Current Age Add to Toolkit Remove
	Sexual Function and Satisfaction - Female PROMIS® v2.0 Brief Profile Sexual Function and Satisfaction (Female) Check all Current Age Add to Toolkit Remove
	Sexual Function and Satisfaction - Male PROMIS® v2.0 Brief Profile Sexual Function and Satisfaction (Male) Check all Current Age Add to Toolkit Remove
	Hormone Therapy National Health and Nutrition Examination Survey (NHANES) Check all Current Age Add to Toolkit Remove
	Sickle Cell Disease Pain Associated with Menstruation Sharma et al. Acute vaso-occlusive pain is temporally associated with the onset of menstruation in women with sickle cell disease. J Women’s Health (Larchmt), 2019. Demographic survey. Check all Current Age Menstrual History Sickle Cell Disease Pain Associated with Menstruation - Quality of Life Add to Toolkit Remove
	Sickle Cell Disease Pain Associated with Menstruation - Quality of Life Modified version of the Sickle Cell Disease Pain Burden Interview-Youth (SCPBI-Y) Check all Current Age Menstrual History Sickle Cell Disease Pain Associated with Menstruation Add to Toolkit Remove
Total Protocols in My Toolkit: 34

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

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