Protocol - Gender Identity
Description
A multi-tiered question asking participants to describe their gender identity. Multiple response options are provided along with open-ended self-defined options. It can be self-administered or interviewer administered.
Specific Instructions
Availability
This protocol is freely available; permission not required for use.
Protocol
1a. What terms best express how you describe your gender identity? (Check all that apply)
[ ] Man
[ ] Woman
[ ] Non-binary
[ ] Transgender
[ ] None of these describe me, and I’d like to consider additional options
[ ] Prefer not to answer
Branching logic: If ‘non-binary’, ‘transgender,’ or ‘none of these describe me and I’d like to consider additional options’ selected:
1b. Are any of these a closer description to your gender identity?
[ ] Trans man/Transgender Man/FTM
[ ] Trans woman/Transgender Woman/MTF
[ ] Genderqueer
[ ] Genderfluid
[ ] Gender variant
[ ] Questioning or unsure of your gender identity
[ ] None of these describe me, and I want to specify __________________
Personnel and Training Required
None
Equipment Needs
The PhenX Steering Committee acknowledges these questions can be administered in a computerized or noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered or interviewer-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults aged 18 and older
Selection Rationale
This protocol was selected because it is both the most up-to-date protocol on gender identity in the literature and it is in use by the All of Us research program, which is a National Precision Medicine Cohort Program.
Language
English, Other languages available at source
Standards
| Standard | Name | ID | Source |
|---|
Derived Variables
None
Process and Review
The NIH Sexual and Gender Minority Research Office (SGMRO) reviewed this protocol in August 2023.
- Made Gender Identity and Sex Assigned at Birth protocols “essential” to one another
- Added NASEM report reference
- Removed The Precision Medicine Initiative Cohort Program, Collins, F.S. and Varmus, H., and National Research Council references
- Updated Specific Instructions
- Updated Protocol Definition
- Updated Purpose
- Updated Keywords
Protocol Name from Source
All of Us Research Program, Participant Provided Information (PPI), 2018
Source
All of Us Research Program Participant Provided Information (PPI) Version: December 17, 2018
General References
National Academies of Sciences, Engineering, and Medicine; Division of Behavioral and Social Sciences and Education; Committee on National Statistics; Committee on Measuring Sex, Gender Identity, and Sexual Orientation. Measuring Sex, Gender Identity, and Sexual Orientation. Becker T, Chin M, Bates N, editors. Washington (DC): National Academies Press (US); 2022 Mar 9. PMID: 35286054.
The GenIUSS Group. (2014). Best Practices for Asking Questions to Identify Transgender and Other Gender Minority Respondents on Population-Based Surveys. J.L. Herman (Ed.). Los Angeles, CA: The Williams Institute.
Protocol ID
11801
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX011801_Gender_Identity_Description | ||||
| PX011801020100 | Are any of these a closer description to more | N/A | ||
| PX011801_Gender_Identity_Description_Other | ||||
| PX011801020200 | Are any of these a closer description to more | N/A | ||
| PX011801_Gender_Identity_Term | ||||
| PX011801010000 | What terms best express how you describe more | N/A | ||
Measure Name
Gender Identity
Release Date
June 4, 2019
Definition
A multidimensional construct that links gender identity, gender expression, and social and cultural expectations about status, characteristics, and behavior that are associated with sex traits. If gender identity and sex assigned at birth are different, it may indicate that a person is transgender.
Purpose
To obtain a person’s self-reported current gender identity. Gender Identity is intended to be used in conjunction with the Sex Assigned at Birth protocol.
Keywords
sex assigned at birth, transgender, nonbinary, identity, gender fluid, gender diverse, LGBTQ, LGBTQIA
Measure Protocols
| Protocol ID | Protocol Name |
|---|---|
| 11801 | Gender Identity |