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My Toolkit

DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols     

Total Protocols in My Toolkit: 35

Scale for the Assessment and Rating of Ataxia (SARA)

Tanner and Whitehouse Method (TW2)

Child Oral Health Impact Profile-Short Form 19 (COHIP-SF 19)

National Health and Nutrition Examination Survey (NHANES), Laboratory procedures Manual, 2010

Oswestry Disability Index (ODI)©, version 2.1a

Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 0-24 months

Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 12-18 years

Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 2-11 years

Newcastle Mitochondrial Disease Adult Scale (NMDAS), 12-18 years

Autonomic Nervous System Questionnaire (ANSQ) American Thoracic Society (ATS) Statement on CCHS (2010)

British Society of Echocardiography (BSE) Education Committee guidelines for a standard transthoracic echocardiogram (TTE)

My Family Health Portrait (MFHP)

World Health Organization (WHO) & Centers for Disease Control and Prevention (CDC) growth charts

Patient-Reported Outcomes Measurement Information System® (PROMIS) 29 Profile, v. 2.0 Adult Profile

Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank, v.1.1, Pediatric Profile 25

Mullen Scales of Early Learning

Adams forward bend test & x-ray with Cobb technique

Pediatric Outcomes Data Collection Instrument (PODCI), v. 2.0,Parent/Child Outcomes Instrument, 2005

LeGrys, V.A., et al. Diagnostic sweat testing: The Cystic Fibrosis Foundation guidelines. J Pediatr, 2007

Atmospheric and Environmental Research (AER) Inc., Relationships of Indoor, Outdoor and Personal Air (RIOPA) Study Activity Questionnaire, 1999

National Human Exposure Assessment Survey (NHEXAS), 1995

National Health and Nutrition Examination Survey (NHANES), Family Questionnaire, 2011-2012

University of North Carolina at Chapel Hill, Mothers Questionnaire

RTI International, Atrazine Exposure Study, Vacuum Cleaner Dust Collection Protocol, 2001

American Cancer Society (ACS), Cancer Prevention Study II (CPS-II), Mens Baseline Questionnaire, 1982

Long Island Breast Cancer Study Project (LIBCSP)

National Institutes of Health (NIH), Long Island Breast Cancer Study, 1996

National Immunization Survey (NIS), 2013

Finnish Environment and Asthma Study, 1997-2000

National Health and Nutrition Examination Survey (NHANES), 2005-2006

Study of Use of Products and Exposure-Related Behavior (SUPERB) Study, Tier 1 Adult Questionnaire

Parkinsons Disease, Environment, and Genes Study (PEG Study), 2001

National Cancer Institute (NCI), Non-Hodgkins Lymphoma Study (NHL), Sun Exposures Module, 2001

The Iowa Study of Environment and Health; National Health and Nutrition Examination Survey, 2005-2006
Total Protocols in My Toolkit: 35

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.