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Protocol - Long COVID - Symptoms Due to COVID-19 - Screener

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Description

This screener measures new or continuing self-reported COVID-19 symptoms. There are 36 different symptoms included in the list along with the option of specifying additional not listed symptoms.

Specific Instructions

None

Availability

Available

Protocol

Now I want you to think about symptoms you may have experienced after your initial illness. Have/had you experienced any new or continuing COVID-19 symptoms?

*Select all that apply

[ ] Discomfort, tightness, or pressure in chest

[ ] New or worsening cough

[ ] Shortness of breath

[ ] Lack of energy or general tired feeling

[ ] Muscle weakness

[ ] Loss of appetite, like you just haven't been hungry

[ ] Feeling sick to your stomach or vomiting

[ ] Diarrhea

[ ] Muscle aches

[ ] Joint aches

[ ] Headache

[ ] Seizure

[ ] Dizziness

[ ] Having hallucinations, altered consciousness

[ ] Loss of ability to smell

[ ] Altered smell

[ ] Loss of ability to taste

[ ] Altered taste

[ ] Pain in teeth

[ ] Hair loss (alopecia)

[ ] Heavy limbs

[ ] Tremors

[ ] Rapid heart rate

[ ] Slow heart rate

[ ] Chills/Repeated shaking with chills

[ ] Difficulty sleeping

[ ] Insomnia (difficulty falling and staying asleep)

[ ] Hypersomnia (excessive sleepiness or drowsiness)

[ ] Disturbed sleep (nightmares, night sweats, etc.)

[ ] Foggy brain

[ ] Feeling down or depressed

[ ] Feeling anxious

[ ] Always feeling hot or cold (temperature dysregulation)

[ ] Feeling dizzy or lightheaded when standing up after sitting (orthostatic hypotension)

[ ] Eye problems

[ ] Prickling, burning, or numb sensation (neuropathy)

[ ] Ringing or buzzing in ears (tinnitus)

[ ] Skin problems

[ ] Other symptom #1 (specify)

[ ] Other symptom #2 (specify)

[ ] Other symptom #3 (specify)

[ ] Other symptom #4 (specify)

[ ] Other symptom #5 (specify)

[ ] Any additional symptoms (specify)

[ ] I have not experienced any new or continuing symptoms

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Adult, Senior

Participants

Adults aged 18 years or older

Selection Rationale

Johns Hopkins COVID Long Study - Screener module is brief and easy to interpret. It is also broadly applicable in both clinical and general populations.

Language

English

Standards
StandardNameIDSource
Derived Variables

None

Process and Review

Not applicable

Protocol Name from Source

Johns Hopkins COVID Long Study

Source

Johns Hopkins University, Johns Hopkins COVID Long Study, January 2022, COVID-19: Symptoms Module, first question from page 19

General References

None

Protocol ID

992001

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms
PX992001010000 Now I want you to think about symptoms you more
may have experienced after your initial illness. Have/had you experienced any new or continuing COVID-19 symptoms? Select all that apply show less
N/A
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Additional
PX992001010600 Now I want you to think about symptoms you more
may have experienced after your initial illness. Have/had you experienced any new or continuing COVID-19 symptoms? Select all that apply - Any additional symptoms (specify) show less
N/A
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Other_1
PX992001010100 Now I want you to think about symptoms you more
may have experienced after your initial illness. Have/had you experienced any new or continuing COVID-19 symptoms? Select all that apply - Other symptom #1 (specify) show less
N/A
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Other_2
PX992001010200 Now I want you to think about symptoms you more
may have experienced after your initial illness. Have/had you experienced any new or continuing COVID-19 symptoms? Select all that apply - Other symptom #2 (specify) show less
N/A
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Other_3
PX992001010300 Now I want you to think about symptoms you more
may have experienced after your initial illness. Have/had you experienced any new or continuing COVID-19 symptoms? Select all that apply - Other symptom #3 (specify) show less
N/A
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Other_4
PX992001010400 Now I want you to think about symptoms you more
may have experienced after your initial illness. Have/had you experienced any new or continuing COVID-19 symptoms? Select all that apply - Other symptom #4 (specify) show less
N/A
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Other_5
PX992001010500 Now I want you to think about symptoms you more
may have experienced after your initial illness. Have/had you experienced any new or continuing COVID-19 symptoms? Select all that apply - Other symptom #5 (specify) show less
N/A
Long COVID
Measure Name

Long COVID - Symptoms Due to COVID-19

Release Date

March 17, 2023

Definition

This is a measure of an individual’s new or continuing COVID-19 symptoms.

Purpose

Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.

Keywords

Johns Hopkins, COVID, long COVID, symptoms, cough, short breath, lack of energy, illness, loss of smell, loss of taste, aches

Measure Protocols
Protocol ID Protocol Name
992001 Long COVID - Symptoms Due to COVID-19 - Screener
992002 Long COVID - Symptoms Due to COVID-19 - Memory
992003 Long COVID - Symptoms Due to COVID-19 - Neurology
992004 Long COVID - Symptoms Due to COVID-19 - Psychological Risk Factors
992005 Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing
992006 Long COVID - Symptoms Due to COVID-19 - Psychiatric (Short Form)
992007 Long COVID - Symptoms Due to COVID-19 - Psychiatric (Long Form)
992008 Long COVID - Symptoms Due to COVID-19 - Temperature Regulation and Cardiovascular
992009 Long COVID - Symptoms Due to COVID-19 - Cardiovascular Symptom Course
992010 Long COVID - Symptoms Due to COVID-19 - Respiratory
992011 Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Long Form)
992012 Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Short Form)
992013 Long COVID - Symptoms Due to COVID-19 - Allergies
992014 Long COVID - Symptoms Due to COVID-19 - Skin and Hair
992015 Long COVID - Symptoms Due to COVID-19 - Ocular (Long Form)
992016 Long COVID - Symptoms Due to COVID-19 - Ocular (Short Form)
992017 Long COVID - Symptoms Due to COVID-19 - Genitourinary
992018 Long COVID - Symptoms Due to COVID-19 - Muscle and Joint
992019 Long COVID - Symptoms Due to COVID-19 - Tooth Pain
992020 Long COVID - Symptoms Due to COVID-19 - Pediatric
Publications

There are no publications listed for this protocol.