Protocol - Long COVID - Symptoms Due to COVID-19 - Psychological Risk Factors
Description
A self-administered questionnaire to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with tiredness and appetite.
Specific Instructions
None
Availability
Protocol
1a. Do you still have the lack of energy or general tired feeling?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
1b. Does/did the lack of energy or general tired feeling affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
1c. When did the lack of energy or general tired feeling clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Don't know
[ ] Refuse to answer
2a. Do you still have the loss of appetite?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
2b. Does/did the loss of appetite affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
2c. When did the loss of appetite clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Don't know
[ ] Refuse to answer
Personnel and Training Required
None
Equipment Needs
None
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults aged 18 years or older
Selection Rationale
PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.
Language
English
Standards
| Standard | Name | ID | Source |
|---|
Derived Variables
None
Process and Review
Not Applicable
Protocol Name from Source
Johns Hopkins COVID Long Study
Source
Johns Hopkins Bloomberg School of Public Health. (2022). Johns Hopkins COVID Long Study, Section “COVID-19: Symptoms”, questions on lack of energy or general tired feeling; loss of appetite.
General References
NoneProtocol ID
992004
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX992004_Long_Covid_Symptoms_Psychological_Lack_Energy | ||||
| PX992004010100 | Do you still have the lack of energy or more | N/A | ||
| PX992004_Long_Covid_Symptoms_Psychological_Lack_Energy_Clear | ||||
| PX992004010300 | When did the lack of energy or general tired more | N/A | ||
| PX992004_Long_Covid_Symptoms_Psychological_Lack_Energy_Normal_Activities | ||||
| PX992004010200 | Does/did the lack of energy or general tired more | N/A | ||
| PX992004_Long_Covid_Symptoms_Psychological_Loss_Appetite | ||||
| PX992004020100 | Do you still have the loss of appetite? | N/A | ||
| PX992004_Long_Covid_Symptoms_Psychological_Loss_Appetite_Clear | ||||
| PX992004020300 | When did the loss of appetite clear? | N/A | ||
| PX992004_Long_Covid_Symptoms_Psychological_Loss_Appetite_Normal_Activities | ||||
| PX992004020200 | Does/did the loss of appetite affect your more | N/A | ||
Measure Name
Long COVID - Symptoms Due to COVID-19
Release Date
March 17, 2023
Definition
This is a measure of an individual’s new or continuing COVID-19 symptoms.
Purpose
Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.
Keywords
coronavirus, COVID, COVID-related symptoms, COVID-19, lack of energy, tired feeling, loss of appetite, Johns Hopkins
Measure Protocols
Publications
There are no publications listed for this protocol.