Protocol - Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing
Description
A self-administered questionnaire to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with speech and language.
Specific Instructions
None
Availability
This protocol is freely available; permission not required for use.
Protocol
Speech and Language Issues
1. Have you experienced any issues with SPEECH AND LANGUAGE since the start of your COVID-19 illness?
[ ] Yes
[ ] No
1a. Which of the following speech and language symptoms have you experienced since the start of your COVID-19 illness?
[ ] Difficulty finding the right words while speaking/writing
[ ] Difficulty communicating verbally
[ ] Difficulty speaking in complete sentences
[ ] Speaking unrecognizable words
[ ] Difficulty communicating in writing
[ ] Difficulty processing/understanding what others say
[ ] Difficulty reading/processing written text
[ ] (If applicable) changes to your non-primary (second/third) language skills
[ ] None of the above
[ ] Other ________
1b. When did you experience these symptoms?
Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it.
Week 1 | Week 2 | Week 3 | Week 4 | Month 2 | Month 3 | Month 4 | Month 5 | Month 6 | Month 7 | |
Speech and Language Issues |
2. Do you speak multiple languages?
[ ] Yes
[ ] No
Optional: Please use this space to describe examples of yourl anguage issues, including speech, writing, reading, and listening to words. Please include any changes to your speech/language that are not mentioned above. For instance, if you speak multiple languages and have noticed different problems with your primary and non-primary language.
_______________________
3. Did you experience these symptoms, and when did you experience them?
Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it. If you experienced none of the symptoms in a set, select the checkbox (None of the below issues apply to me) above the grouped set.
[ ] None of the below ear and hearing symptoms apply to me
Ear and Hearing Symptoms
N/A | Week 1 | Week 2 | Week 3 | Week 4 | Month 2 | Month 3 | Month 4 | Month 5 | |
Hearing loss | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Tinnitus | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Other ear/hearing issues | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
All Other Symptoms - Checkbox
4. Have you experienced any of these symptoms since the start of your COVID-19 illness?
(Please choose all options that apply)
Ear and Hearing
[ ] Ear pain
[ ] Changes to the ear canal (such as pressure, blockage, burning, swelling)
[ ] Numbness/loss of sensation
[ ] Sensitivity to noise
[ ] Other ear/hearing symptoms
[ ] None of the above
Symptom Course
5. How severe were/are your symptoms over the course of the weeks/months?
If you experienced multiple severities for symptoms within the time period, select the most severe within that time period.
No symptom | Very Mild | Mild | Moderate | Severe | Very Severe | |
Week 1 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Week 2 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Week 3 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Week 4 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 2 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 3 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 4 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 5 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 6 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 7+ | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
6. Which of these descriptions appropriately describes your experience with relapses, and your symptom course overall? Please select all that apply:
[ ] My relapses happen in a regular pattern (monthly, daily, or weekly).
[ ] My relapses happen in an irregular pattern (randomly).
[ ] My relapses happen in response to a trigger (stress, alcohol, exercise/exertion, etc).
[ ] My relapses are getting shorter/easier over time.
[ ] My relapses are getting longer/harder over time.
[ ] My relapse severity has stayed about the same over time.
[ ] Overall, my symptoms have slowly gotten better over time.
[ ] Overall, my symptoms have stayed about the same over time.
[ ] Overall, my symptoms have slowly worsened over time.
[ ] I got worse rapidly.
[ ] I got better rapidly.
[ ] Other ___________
7. Which of these trigger a relapse or worsening of symptoms? Please select all that apply:
[ ] Stress
[ ] Alcohol
[ ] Caffeine
[ ] Heat
[ ] Period/menstruation
[ ] Week before period/menstruation
[ ] Exercise
[ ] Physical activity
[ ] Mental activity
[ ] Other ___________
Personnel and Training Required
None
Equipment Needs
None
Requirements
Requirement Category | Required |
---|---|
Major equipment | No |
Specialized training | No |
Specialized requirements for biospecimen collection | No |
Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults aged 18 years or older
Selection Rationale
PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.
Language
English, Other languages available at source
Standards
Standard | Name | ID | Source |
---|
Derived Variables
None
Process and Review
Not Applicable
Protocol Name from Source
Online Survey on Recovery from COVID-19
Source
Assaf, G., Davis, H., Akrami, A., Wei, H., McCorkell, L., Re’em, Y., Low, R., Austin, J., and Gupta, A. (2021). Online Survey on Recovery from COVID-19, Sections “Speech and Language Issues”, “All Other Symptoms – Ear and Hearing”, “Symptom Course”.
General References
NoneProtocol ID
992005
Variables
Export VariablesVariable Name | Variable ID | Variable Description | dbGaP Mapping | |
---|---|---|---|---|
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Describe_Language_Issues | ||||
PX992005020200 | Optional: Please use this space to describe more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Ear_Hearing_Symptoms_Hearing_Loss | ||||
PX992005030200 | Did you experience these symptoms, and when more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Ear_Hearing_Symptoms_None | ||||
PX992005030100 | Did you experience these symptoms, and when more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Ear_Hearing_Symptoms_Other_Ear_Hearing_Issues | ||||
PX992005030400 | Did you experience these symptoms, and when more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Ear_Hearing_Symptoms_Start | ||||
PX992005040000 | Have you experienced any of these symptoms more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Ear_Hearing_Symptoms_Tinnitus | ||||
PX992005030300 | Did you experience these symptoms, and when more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Experience_Symptoms | ||||
PX992005010300 | When did you experience these symptoms? more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Language_Speech_Issues | ||||
PX992005010100 | Have you experienced any issues with SPEECH more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Language_Symptoms | ||||
PX992005010201 | Which of the following speech and language more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Language_Symptoms_Other | ||||
PX992005010202 | Which of the following speech and language more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Multiple_Languages | ||||
PX992005020100 | Do you speak multiple languages? | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Relapse_Symptoms | ||||
PX992005060100 | Which of these descriptions appropriately more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Relapse_Symptoms_Other | ||||
PX992005060200 | Which of these descriptions appropriately more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_2 | ||||
PX992005050500 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_3 | ||||
PX992005050600 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_4 | ||||
PX992005050700 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_5 | ||||
PX992005050800 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_6 | ||||
PX992005050900 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_7 | ||||
PX992005051000 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Week_1 | ||||
PX992005050100 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Week_2 | ||||
PX992005050200 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Week_3 | ||||
PX992005050300 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Week_4 | ||||
PX992005050400 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Trigger_Relapse_Symptoms | ||||
PX992005070100 | Which of these trigger a relapse or more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Trigger_Relapse_Symptoms_Other | ||||
PX992005070200 | Which of these trigger a relapse or more | N/A |
Measure Name
Long COVID - Symptoms Due to COVID-19
Release Date
March 17, 2023
Definition
This is a measure of an individual’s new or continuing COVID-19 symptoms.
Purpose
Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.
Keywords
coronavirus, COVID, COVID-related symptoms, COVID-19, speech difficulties, writing difficulties, Hearing loss, London's Global University (UCL)
Measure Protocols
Publications
There are no publications listed for this protocol.