Protocol - Long COVID - Symptoms Due to COVID-19 - Muscle and Joint
Description
A self-administered questionnaire to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with allergies.
Specific Instructions
None
Availability
Protocol
1a. Do you still have the muscle weakness?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
1b. Does/did the muscle weakness affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
1c. When did the muscle weakness clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Don't know
[ ] Refuse to answer
2a. Do you still have the muscle aches?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
2b. Does/did the muscle aches affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
2c. When did the muscle aches clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Don't know
[ ] Refuse to answer
3a. Do you still have the joint aches?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
3b. Does/did the joint aches affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
3c. When did the joint aches clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Don't know
[ ] Refuse to answer
Personnel and Training Required
None
Equipment Needs
None
Requirements
| Requirement Category | Required |
|---|---|
| Major equipment | No |
| Specialized training | No |
| Specialized requirements for biospecimen collection | No |
| Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults aged 18 years or older
Selection Rationale
PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.
Language
English
Standards
| Standard | Name | ID | Source |
|---|
Derived Variables
None
Process and Review
Not Applicable
Protocol Name from Source
Johns Hopkins COVID Long Study
Source
Johns Hopkins Bloomberg School of Public Health. (2022). Johns Hopkins COVID Long Study, Section “COVID-19: Symptoms”, questions on muscle weakness; muscle aches; joint aches.
General References
None
Protocol ID
992018
Variables
Export Variables| Variable Name | Variable ID | Variable Description | dbGaP Mapping | |
|---|---|---|---|---|
| PX992018_Long_Covid_Symptoms_Muscle_Joint_Aches_Affect_Ability_Normal_Activities | ||||
| PX992018050000 | Does/did the muscle aches affect your more | N/A | ||
| PX992018_Long_Covid_Symptoms_Muscle_Joint_Jointaches_Affect_Ability_Normal_Activities | ||||
| PX992018080000 | Does/did the joint aches affect your ability more | N/A | ||
| PX992018_Long_Covid_Symptoms_Muscle_Joint_Still_Have_Aches | ||||
| PX992018040000 | Do you still have the muscle aches? | N/A | ||
| PX992018_Long_Covid_Symptoms_Muscle_Joint_Still_Have_Jointaches | ||||
| PX992018070000 | Do you still have the joint aches? | N/A | ||
| PX992018_Long_Covid_Symptoms_Muscle_Joint_Still_Have_Weakness | ||||
| PX992018010000 | Do you still have the muscle weakness? | N/A | ||
| PX992018_Long_Covid_Symptoms_Muscle_Joint_Weakness_Affect_Ability_Normal_Activities | ||||
| PX992018020000 | Does/did the muscle weakness affect your more | N/A | ||
| PX992018_Long_Covid_Symptoms_Muscle_Joint_When_Did_Aches_Clear | ||||
| PX992018060000 | When did the muscle aches clear? | N/A | ||
| PX992018_Long_Covid_Symptoms_Muscle_Joint_When_Did_Jointaches_Clear | ||||
| PX992018090000 | When did the joint aches clear? | N/A | ||
| PX992018_Long_Covid_Symptoms_Muscle_Joint_When_Did_Weakness_Clear | ||||
| PX992018030000 | When did the muscle weakness clear? | N/A | ||
Measure Name
Long COVID - Symptoms Due to COVID-19
Release Date
March 17, 2023
Definition
This is a measure of an individual’s new or continuing COVID-19 symptoms.
Purpose
Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.
Keywords
coronavirus, COVID, COVID-related symptoms, COVID-19, muscle weakness, muscle aches, joint aches, John Hopkins
Measure Protocols
Publications
There are no publications listed for this protocol.