Protocol - Long COVID - Symptoms Due to COVID-19 - Memory
Description
A self-administered questionnaire to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with memory.
Specific Instructions
None
Availability
Protocol
Memory Symptoms
1. Have you experienced any MEMORY RELATED SYMPTOMS since the start of your COVID-19 illness?
[ ] Yes
[ ] No
2. Which of the following memory symptoms have you experienced since the start of your COVID-19 illness?
[ ] Short-term memory loss (memory that lasts ~30 seconds, i.e. remembering a phone number before writing it down, or forgetting youre in the middle of a task)
[ ] Long-term memory loss (long-term memory can be anything from remembering yesterday, forgetting youve done a task, forgetting recently learned information, or forgetting your third-grade experience)
[ ] Not being able to make new memories
[ ] Forgetting how to do routine tasks (tying your shoe laces, washing your hands)
[ ] None of the above
[ ] Other __________
3. When did you experience these symptoms?
Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it.
Week 1 | Week 2 | Week 3 | Week 4 | Month 2 | Month 3 | Month 4 | Month 5 | Month 6 | Month 7 | |
Memory symptoms | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Cognitive Function/Brain Fog Symptoms
4. Have you experienced issues with BRAIN FOG (inability to focus, think clearly, plan, process, understand, and maintain a coherent stream of thought; abnormally slow or fast thoughts) since the start of your COVID-19 illness?
[ ] Yes
[ ] No
5. Which of the following brain fog/cognitive functioning symptoms have you experienced since the start of your COVID-19 illness?
[ ] Difficulty with executive functioning (planning, organizing, figuring out the sequence of actions, abstracting)
[ ] Agnosia (failure to recognize or identify objects despite intact sensory functioning)
[ ] Difficulty problem-solving or decision-making
[ ] Difficulty thinking
[ ] Thoughts moving too quickly
[ ] Slowed thoughts
[ ] Poor attention or concentration
[ ] I did NOT have any Brain Fog symptoms
[ ] Other
6. When did you experience these symptoms?
Please mark symptoms for the first 4 weeks, then months (if you havent yet reached a week/month, please leave it blank). Even if you have only experienced these symptoms for part of a week or month, please select it.
Week 1 | Week 2 | Week 3 | Week 4 | Month 2 | Month 3 | Month 4 | Month 5 | Month 6 | Month 7 | |
Brain fog/cognitive functioning symptoms | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Changes to Daily/Functional Abilities due to memory loss or brain fog
7. Have you felt significantly limited or unable to do any of the following due to MEMORY LOSS OR BRAIN FOG (including issues with attention, cognitive functioning, and awareness) specifically?
Severely unable | Moderately unable | Mildly unable | Able | Not applicable | |
Drive | |||||
Watch children | |||||
Cook or use hot items | |||||
Feed yourself | |||||
Shower or bathe regularly | |||||
Make serious decisions | |||||
Leave the house and return without getting lost | |||||
Remember the correct month or year | |||||
Have conversations with others | |||||
Maintain your medication schedule (forgetting to take medication or forgetting youve taken medication) | |||||
Work | |||||
Follow simple instructions | |||||
Communicate your thoughts and needs | |||||
Other: _________ |
8. Optional: If you have other areas of your life that were affected by memory loss or brain fog, please include them here. Please note whether they were mildly, moderately, or severely limiting.
______________________________________
9. Optional: Please use this space to describe examples of your brain fog, memory loss, and attention span.
Please do not include any identifying information (such as name or location).
______________________________________
Personnel and Training Required
None
Equipment Needs
None
Requirements
Requirement Category | Required |
---|---|
Major equipment | No |
Specialized training | No |
Specialized requirements for biospecimen collection | No |
Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults suffering COVID-19 or suspected COVID-19 infection symptoms for longer than 1 week
Selection Rationale
The Memory module extracted from the Online Survey on Recovery from COVID-19 is brief and easy to interpret. This protocol is also available in a wide variety of languages.
Language
English, Other languages available at source
Standards
Standard | Name | ID | Source |
---|
Derived Variables
None
Process and Review
Not applicable
Protocol Name from Source
Online Survey on Recovery from COVID-19
Source
Davis, H., Assaf, G., McCorkell, L., Wei, H., Low, R., Re'em, Y., & Akrami, A. (2021). Questionnaire to Characterize Long COVID: 200+ symptoms over 7 months (in 9 languages) (Version 4). figshare. https://doi.org/10.6084/m9.figshare.13642553.v4 (['http://patientresearchcovid19.com/'])
General References
None
Protocol ID
992002
Variables
Export VariablesVariable Name | Variable ID | Variable Description | dbGaP Mapping | |
---|---|---|---|---|
PX992002_Long_Covid_Symptoms_Memory_Brain_Fog | ||||
PX992002040000 | Have you experienced issues with BRAIN FOG more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Brain_Fog_Experience_Symptoms | ||||
PX992002060000 | When did you experience these symptoms? more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Brain_Fog_Symptoms | ||||
PX992002050000 | Which of the following brain fog/cognitive more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Examples_Brain_Fog | ||||
PX992002090000 | Optional: Please use this space to describe more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Experienced_Memory_Symptoms | ||||
PX992002020000 | Which of the following memory symptoms have more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Experienced_Memory_Symptoms_Other | ||||
PX992002020100 | Which of the following memory symptoms have more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Loss_Communcate | ||||
PX992002071300 | Have you felt significantly limited or more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Loss_Conversations | ||||
PX992002070900 | Have you felt significantly limited or more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Loss_Cook_Hot_Items | ||||
PX992002070300 | Have you felt significantly limited or more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Loss_Drive | ||||
PX992002070100 | Have you felt significantly limited or more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Loss_Feed_Yourself | ||||
PX992002070400 | Have you felt significantly limited or more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Loss_Follow_Instructions | ||||
PX992002071200 | Have you felt significantly limited or more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Loss_Leave_Return_House | ||||
PX992002070700 | Have you felt significantly limited or more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Loss_Limited_Medication_Schedule | ||||
PX992002071000 | Have you felt significantly limited or more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Loss_Make_Decisions | ||||
PX992002070600 | Have you felt significantly limited or more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Loss_Other | ||||
PX992002071400 | Have you felt significantly limited or more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Loss_Other_Specify | ||||
PX992002071401 | Have you felt significantly limited or more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Loss_Remember_Correct_Year_Month | ||||
PX992002070800 | Have you felt significantly limited or more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Loss_Shower_Bathe_Regularly | ||||
PX992002070500 | Have you felt significantly limited or more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Loss_Watch_Children | ||||
PX992002070200 | Have you felt significantly limited or more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Loss_Work | ||||
PX992002071100 | Have you felt significantly limited or more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Memory_Related_Symptoms | ||||
PX992002010000 | Have you experienced any MEMORY RELATED more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_Other_Affected_Areas | ||||
PX992002080000 | Optional: If you have other areas of your more | N/A | ||
PX992002_Long_Covid_Symptoms_Memory_When_Experienced_Symptoms | ||||
PX992002030000 | When did you experience these symptoms? more | N/A |
Measure Name
Long COVID - Symptoms Due to COVID-19
Release Date
March 17, 2023
Definition
This is a measure of an individual’s new or continuing COVID-19 symptoms.
Purpose
Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.
Keywords
University College London, UCL, COVID, long COVID, memory, cognitive function, brain fog, daily or function ability changes
Measure Protocols
Publications
There are no publications listed for this protocol.