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DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols

Total Protocols in My Toolkit: 57
	Assessment of Functional Gastrointestinal Disorders (Adolescent) Questionnaire on Pediatric Gastrointestinal Symptoms, Rome III Version (QPGS-RIII) Check all Current Age Add to Toolkit Remove
	Assessment of Functional Gastrointestinal Disorders (Adult) Questionnaire for functional gastrointestinal disorders (FGIDs), Rome III, adult questionnaire Check all Current Age Add to Toolkit Remove
	Assessment of Functional Gastrointestinal Disorders (Child) Questionnaire on Pediatric Gastrointestinal Symptoms, Rome III Version (QPGS-RIII) Check all Current Age Add to Toolkit Remove
	Assessment of Gallbladder Disease and Related Conditions National Health and Nutrition Examination Survey (NHANES) III, Adult Household Questionnaire Check all Current Age Add to Toolkit Remove
	Celiac Sprue - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2009-2010 Check all Current Age Add to Toolkit Remove
	Colorectal Procedures and Outcomes (Medical Record Review) Prostate, Lung, Colorectal, and Ovarian Cancer Screening Trial (PLCO), Diagnostic Evaluation& Colorectum (DEC3/DCQ3), 07/01 Check all Current Age Add to Toolkit Remove
	Computed Tomography (CT) of the Abdominal Organs Framingham Heart Study Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Reproductive History - Female Reproductive History - Male Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Emotional Distress Patient-Reported Outcomes Measurement Information System® Item Bank, v.1.0 Remove
	Gastroesophageal Reflux Disease (GERD) Symptoms Gastroesophageal Reflux Disease Questionnaire (GerdQ) Check all Current Age Add to Toolkit Remove
	Health Impact of Inflammatory Bowel Disease Short Inflammatory Bowel Disease Questionnaire (SIBDQ)©, 1989 Check all Current Age Add to Toolkit Remove
	Liver Function - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory procedures manual, 2007 Check all Current Age Add to Toolkit Remove
	Personal History of Gastrointestinal Conditions National Heart, Lung, and Blood Institute (NHLBI) and National Cancer Institute (NCI), Health Professionals Follow-Up Study, 2008 Check all Current Age Add to Toolkit Remove
	Physical, Social, and Mental Health Functioning (SF-36V2) SF-36v2 Health Survey Check all Current Age Add to Toolkit Remove
	Chlamydia/Gonorrhea - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007 Remove
	Conditions Relevant to Immune Response - Screener, Adult Centers for Disease Control and Prevention (CDC) Screening Questionnaire for Adult Immunization, 2009 Check all Current Age Add to Toolkit Remove
	Conditions Relevant to Immune Response - Screener, Child Centers for Disease Control and Prevention (CDC), Screening Questionnaire for Child and Teen Immunization, 2009 Check all Current Age Add to Toolkit Remove
	Cytokine Panel 12 - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007 Check all Current Age Add to Toolkit Remove
	Hepatitis B - Assay National Health and Nutrition Examination Survey (NHANES), Laboratory Procedure Manual, 2007 & U.S. Food and Drug Administration (FDAs) approved laboratory assays, 2009 Check all Current Age Add to Toolkit Remove
	Hepatitis C - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2009 Check all Current Age Add to Toolkit Remove
	Herpes Simplex Virus Types 1 and 2 - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007 Check all Current Age Add to Toolkit Remove
	Human Immunodeficiency Virus (HIV) National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007 Remove
	Human Leukocyte Antigen (HLA) Genotyping - Assay Type 1 Diabetes Genetics Consortium (T1DGC), Manual Of Operations. Blood Collection and Processing, 2010 Remove
	Immunizations My Personal Health Record (MyPHR), Adult PHR Form, 2006 Check all Current Age Add to Toolkit Remove
	Injection Drug Use National Health and Nutrition Examination Survey (NHANES), 2007-2008, Drugs Use Questionnaire Remove
	International Travel History Centers for Disease Control and Prevention (CDC), GeoSentinel Questionnaire, 2008 Check all Current Age Add to Toolkit Remove
	Medical History My Personal Health Record (MyPHR), Adult PHR Form, 2006 Check all Current Age Add to Toolkit Remove
	Personal and Family History of Autoimmune and Inflammatory Disorders Lupus Family Registry and Repository (LFRR) Questionnaire, 2007 Check all Current Age Add to Toolkit Remove
	Personal History of Allergies, Infectious Diseases, and Immunizations - Adult My Personal Health Record (MyPHR), Adult PHR Form, 2006 Check all Current Age Add to Toolkit Remove
	Personal Medical History of Allergies, Infectious Diseases, and Immunizations - Child My Personal Health Record (MyPHR), Child PHR Form, 2006 Check all Current Age Add to Toolkit Remove
	Syphilis - Assay National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007 Check all Current Age Add to Toolkit Remove
	Chronic Stress The Chronic Stress Scale Check all Current Age Current Marital Status Household Roster-Relationships Life Events - Adult Life Events - Child Add to Toolkit Remove
	Coping Styles - Adolescent The Coping Responses Inventory for Youth (CRI-Youth) Check all Current Age Add to Toolkit Remove
	Coping Styles - Adult The Coping Responses Inventory for Youth (CRI-Youth) Check all Current Age Add to Toolkit Remove
	Crime and Delinquency - Adolescent Huizinga, D., et al, Are there multiple paths to delinquency?, J CRIM LAW CRIM, 1991 Check all Current Age Add to Toolkit Remove
	Crime and Delinquency - Adult Dunedin Multidisciplinary Health and Development Research Unit (DMHDRU), Dunedin Multidisciplinary Health and Development Study, 1993 Check all Current Age Add to Toolkit Remove
	Disinhibiting Behaviors - Impulsivity - Adolescent and Adult UPPS Impulsive Behavior Scale Check all Current Age Add to Toolkit Remove
	Disinhibiting Behaviors - Impulsivity - Child UPPS-P Impulsive Behavior Scale for Children Check all Current Age Add to Toolkit Remove
	Emotional State - Adult Check all Current Age Add to Toolkit Remove
	Emotional State - Child Check all Current Age Add to Toolkit Remove
	Exposures to Violence, Trauma, and Victimization - Adult Lifetime Traumatic and Victimization History (LTVH) Check all Current Age Add to Toolkit Remove
	Exposures to Violence, Trauma, and Victimization - Child Lifetime Traumatic and Victimization History (LTVH) Check all Current Age Add to Toolkit Remove
	General Self-efficacy - Adolescent NIH Toolbox Item Bank/Fixed Form v2.0 - Self-Efficacy (Ages 13-17) Check all Current Age Add to Toolkit Remove
	General Self-efficacy - Adult NIH Toolbox Item Bank/Fixed Form v2.0 - Self-Efficacy (Ages 18+) Check all Current Age Add to Toolkit Remove
	General Self-efficacy - Child NIH Toolbox Item Bank/Fixed Form v2.0 - Self-Efficacy (Ages 8-12) Check all Current Age Add to Toolkit Remove
	General Self-efficacy - Child Parent Report NIH Toolbox Item Bank/Fixed Form v2.0 - Self-Efficacy (Ages 8-12) Parent Report Check all Current Age Add to Toolkit Remove
	Perceived Social Support Conflict Midlife in the United States II (MIDUS II) Check all Current Age Add to Toolkit Remove
	Perceived Stress Perceived Stress Scale Check all Current Age Add to Toolkit Remove
	Quality of Life Enjoyment and Satisfaction - Adult Quality of Life Enjoyment and Satisfaction Questionnaire - Short Form (Q-LES-Q-SF) Check all Current Age Add to Toolkit Remove
	Quality of Life Enjoyment and Satisfaction - Children Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q) Check all Current Age Add to Toolkit Remove
	Self-esteem The Rosenberg Self-Esteem Scale Check all Current Age Add to Toolkit Remove
	Social Capital The Position Generator Check all Current Age Add to Toolkit Remove
	Social Isolation UCLA Loneliness Scale Check all Current Age Add to Toolkit Remove
	Temperament - Adolescent Early Adolescent Temperament Questionnaire (EATQ-R) Check all Current Age Add to Toolkit Remove
	Temperament - Adult Adult Temperament Questionnaire (ATQ) Check all Current Age Add to Toolkit Remove
	Temperament - Child Childrens Behavior Questionnaire-Very Short Form (CBQ-VSF) Check all Current Age Add to Toolkit Remove
	Temperament - Early Childhood Early Childhood Behavior Questionnaire (ECBQ) Check all Current Age Add to Toolkit Remove
	Temperament - Infant Infant Behavior Questionnaire-Revised (IBQ-R) Check all Current Age Add to Toolkit Remove
Total Protocols in My Toolkit: 57

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 March 27). Assessment of Functional Gastrointestinal Disorders (Adolescent). https://www.phenxtoolkit.org/protocols/view/190102

PhenX Toolkit. (2026 March 27). Assessment of Functional Gastrointestinal Disorders (Adult). https://www.phenxtoolkit.org/protocols/view/190101

PhenX Toolkit. (2026 March 27). Assessment of Functional Gastrointestinal Disorders (Child). https://www.phenxtoolkit.org/protocols/view/190103

PhenX Toolkit. (2026 March 27). Assessment of Gallbladder Disease and Related Conditions. https://www.phenxtoolkit.org/protocols/view/190201

PhenX Toolkit. (2026 March 27). Celiac Sprue - Assay. https://www.phenxtoolkit.org/protocols/view/190301

PhenX Toolkit. (2026 March 27). Colorectal Procedures and Outcomes (Medical Record Review). https://www.phenxtoolkit.org/protocols/view/190401

PhenX Toolkit. (2026 March 27). Computed Tomography (CT) of the Abdominal Organs. https://www.phenxtoolkit.org/protocols/view/190501

PhenX Toolkit. (2026 March 27). Emotional Distress. https://www.phenxtoolkit.org/protocols/view/190601

PhenX Toolkit. (2026 March 27). Gastroesophageal Reflux Disease (GERD) Symptoms. https://www.phenxtoolkit.org/protocols/view/191101

PhenX Toolkit. (2026 March 27). Health Impact of Inflammatory Bowel Disease. https://www.phenxtoolkit.org/protocols/view/190701

PhenX Toolkit. (2026 March 27). Liver Function - Assay. https://www.phenxtoolkit.org/protocols/view/190801

PhenX Toolkit. (2026 March 27). Personal History of Gastrointestinal Conditions. https://www.phenxtoolkit.org/protocols/view/191001

PhenX Toolkit. (2026 March 27). Physical, Social, and Mental Health Functioning (SF-36V2). https://www.phenxtoolkit.org/protocols/view/191201

PhenX Toolkit. (2026 March 27). Chlamydia/Gonorrhea - Assay. https://www.phenxtoolkit.org/protocols/view/160101

PhenX Toolkit. (2026 March 27). Conditions Relevant to Immune Response - Screener, Adult. https://www.phenxtoolkit.org/protocols/view/160801

PhenX Toolkit. (2026 March 27). Conditions Relevant to Immune Response - Screener, Child. https://www.phenxtoolkit.org/protocols/view/160802

PhenX Toolkit. (2026 March 27). Cytokine Panel 12 - Assay. https://www.phenxtoolkit.org/protocols/view/160201

PhenX Toolkit. (2026 March 27). Hepatitis B - Assay. https://www.phenxtoolkit.org/protocols/view/160401

PhenX Toolkit. (2026 March 27). Hepatitis C - Assay. https://www.phenxtoolkit.org/protocols/view/160301

PhenX Toolkit. (2026 March 27). Herpes Simplex Virus Types 1 and 2 - Assay. https://www.phenxtoolkit.org/protocols/view/160501

PhenX Toolkit. (2026 March 27). Human Immunodeficiency Virus (HIV). https://www.phenxtoolkit.org/protocols/view/160901

PhenX Toolkit. (2026 March 27). Human Leukocyte Antigen (HLA) Genotyping - Assay. https://www.phenxtoolkit.org/protocols/view/160601

PhenX Toolkit. (2026 March 27). Immunizations. https://www.phenxtoolkit.org/protocols/view/161001

PhenX Toolkit. (2026 March 27). Injection Drug Use. https://www.phenxtoolkit.org/protocols/view/161101

PhenX Toolkit. (2026 March 27). International Travel History. https://www.phenxtoolkit.org/protocols/view/161201

PhenX Toolkit. (2026 March 27). Medical History. https://www.phenxtoolkit.org/protocols/view/161301

PhenX Toolkit. (2026 March 27). Personal and Family History of Autoimmune and Inflammatory Disorders. https://www.phenxtoolkit.org/protocols/view/161401

PhenX Toolkit. (2026 March 27). Personal History of Allergies, Infectious Diseases, and Immunizations - Adult. https://www.phenxtoolkit.org/protocols/view/161602

PhenX Toolkit. (2026 March 27). Personal Medical History of Allergies, Infectious Diseases, and Immunizations - Child. https://www.phenxtoolkit.org/protocols/view/161601

PhenX Toolkit. (2026 March 27). Syphilis - Assay. https://www.phenxtoolkit.org/protocols/view/160701

PhenX Toolkit. (2026 March 27). Chronic Stress. https://www.phenxtoolkit.org/protocols/view/181301

PhenX Toolkit. (2026 March 27). Coping Styles - Adolescent. https://www.phenxtoolkit.org/protocols/view/180201

PhenX Toolkit. (2026 March 27). Coping Styles - Adult. https://www.phenxtoolkit.org/protocols/view/180202

PhenX Toolkit. (2026 March 27). Crime and Delinquency - Adolescent. https://www.phenxtoolkit.org/protocols/view/181201

PhenX Toolkit. (2026 March 27). Crime and Delinquency - Adult. https://www.phenxtoolkit.org/protocols/view/181202

PhenX Toolkit. (2026 March 27). Disinhibiting Behaviors - Impulsivity - Adolescent and Adult. https://www.phenxtoolkit.org/protocols/view/180401

PhenX Toolkit. (2026 March 27). Disinhibiting Behaviors - Impulsivity - Child. https://www.phenxtoolkit.org/protocols/view/180402

PhenX Toolkit. (2026 March 27). Emotional State - Adult. https://www.phenxtoolkit.org/protocols/view/180501

PhenX Toolkit. (2026 March 27). Emotional State - Child. https://www.phenxtoolkit.org/protocols/view/180502

PhenX Toolkit. (2026 March 27). Exposures to Violence, Trauma, and Victimization - Adult. https://www.phenxtoolkit.org/protocols/view/181401

PhenX Toolkit. (2026 March 27). Exposures to Violence, Trauma, and Victimization - Child. https://www.phenxtoolkit.org/protocols/view/181402

PhenX Toolkit. (2026 March 27). General Self-efficacy - Adolescent. https://www.phenxtoolkit.org/protocols/view/180604

PhenX Toolkit. (2026 March 27). General Self-efficacy - Adult. https://www.phenxtoolkit.org/protocols/view/180606

PhenX Toolkit. (2026 March 27). General Self-efficacy - Child. https://www.phenxtoolkit.org/protocols/view/180603

PhenX Toolkit. (2026 March 27). General Self-efficacy - Child Parent Report. https://www.phenxtoolkit.org/protocols/view/180605

PhenX Toolkit. (2026 March 27). Perceived Social Support Conflict. https://www.phenxtoolkit.org/protocols/view/180701

PhenX Toolkit. (2026 March 27). Perceived Stress. https://www.phenxtoolkit.org/protocols/view/180801

PhenX Toolkit. (2026 March 27). Quality of Life Enjoyment and Satisfaction - Adult. https://www.phenxtoolkit.org/protocols/view/180302

PhenX Toolkit. (2026 March 27). Quality of Life Enjoyment and Satisfaction - Children. https://www.phenxtoolkit.org/protocols/view/180303

PhenX Toolkit. (2026 March 27). Self-esteem. https://www.phenxtoolkit.org/protocols/view/180901

PhenX Toolkit. (2026 March 27). Social Capital. https://www.phenxtoolkit.org/protocols/view/181501

PhenX Toolkit. (2026 March 27). Social Isolation. https://www.phenxtoolkit.org/protocols/view/181001

PhenX Toolkit. (2026 March 27). Temperament - Adolescent. https://www.phenxtoolkit.org/protocols/view/181104

PhenX Toolkit. (2026 March 27). Temperament - Adult. https://www.phenxtoolkit.org/protocols/view/181105

PhenX Toolkit. (2026 March 27). Temperament - Child. https://www.phenxtoolkit.org/protocols/view/181101

PhenX Toolkit. (2026 March 27). Temperament - Early Childhood. https://www.phenxtoolkit.org/protocols/view/181102

PhenX Toolkit. (2026 March 27). Temperament - Infant. https://www.phenxtoolkit.org/protocols/view/181103

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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