Protocol - Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing
Description
A self-administered questionnaire to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with speech and language.
Specific Instructions
None
Availability
Protocol
Speech and Language Issues
1. Have you experienced any issues with SPEECH AND LANGUAGE since the start of your COVID-19 illness?
[ ] Yes
[ ] No
1a. Which of the following speech and language symptoms have you experienced since the start of your COVID-19 illness?
[ ] Difficulty finding the right words while speaking/writing
[ ] Difficulty communicating verbally
[ ] Difficulty speaking in complete sentences
[ ] Speaking unrecognizable words
[ ] Difficulty communicating in writing
[ ] Difficulty processing/understanding what others say
[ ] Difficulty reading/processing written text
[ ] (If applicable) changes to your non-primary (second/third) language skills
[ ] None of the above
[ ] Other ________
1b. When did you experience these symptoms?
Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it.
Week 1 | Week 2 | Week 3 | Week 4 | Month 2 | Month 3 | Month 4 | Month 5 | Month 6 | Month 7 | |
Speech and Language Issues |
2. Do you speak multiple languages?
[ ] Yes
[ ] No
Optional: Please use this space to describe examples of yourl anguage issues, including speech, writing, reading, and listening to words. Please include any changes to your speech/language that are not mentioned above. For instance, if you speak multiple languages and have noticed different problems with your primary and non-primary language.
_______________________
3. Did you experience these symptoms, and when did you experience them?
Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it. If you experienced none of the symptoms in a set, select the checkbox (None of the below issues apply to me) above the grouped set.
[ ] None of the below ear and hearing symptoms apply to me
Ear and Hearing Symptoms
N/A | Week 1 | Week 2 | Week 3 | Week 4 | Month 2 | Month 3 | Month 4 | Month 5 | |
Hearing loss | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Tinnitus | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Other ear/hearing issues | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
All Other Symptoms - Checkbox
4. Have you experienced any of these symptoms since the start of your COVID-19 illness?
(Please choose all options that apply)
Ear and Hearing
[ ] Ear pain
[ ] Changes to the ear canal (such as pressure, blockage, burning, swelling)
[ ] Numbness/loss of sensation
[ ] Sensitivity to noise
[ ] Other ear/hearing symptoms
[ ] None of the above
Symptom Course
5. How severe were/are your symptoms over the course of the weeks/months?
If you experienced multiple severities for symptoms within the time period, select the most severe within that time period.
No symptom | Very Mild | Mild | Moderate | Severe | Very Severe | |
Week 1 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Week 2 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Week 3 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Week 4 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 2 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 3 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 4 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 5 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 6 | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
Month 7+ | [ ] | [ ] | [ ] | [ ] | [ ] | [ ] |
6. Which of these descriptions appropriately describes your experience with relapses, and your symptom course overall? Please select all that apply:
[ ] My relapses happen in a regular pattern (monthly, daily, or weekly).
[ ] My relapses happen in an irregular pattern (randomly).
[ ] My relapses happen in response to a trigger (stress, alcohol, exercise/exertion, etc).
[ ] My relapses are getting shorter/easier over time.
[ ] My relapses are getting longer/harder over time.
[ ] My relapse severity has stayed about the same over time.
[ ] Overall, my symptoms have slowly gotten better over time.
[ ] Overall, my symptoms have stayed about the same over time.
[ ] Overall, my symptoms have slowly worsened over time.
[ ] I got worse rapidly.
[ ] I got better rapidly.
[ ] Other ___________
7. Which of these trigger a relapse or worsening of symptoms? Please select all that apply:
[ ] Stress
[ ] Alcohol
[ ] Caffeine
[ ] Heat
[ ] Period/menstruation
[ ] Week before period/menstruation
[ ] Exercise
[ ] Physical activity
[ ] Mental activity
[ ] Other ___________
Personnel and Training Required
None
Equipment Needs
None
Requirements
Requirement Category | Required |
---|---|
Major equipment | No |
Specialized training | No |
Specialized requirements for biospecimen collection | No |
Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults aged 18 years or older
Selection Rationale
PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.
Language
English, Other languages available at source
Standards
Standard | Name | ID | Source |
---|
Derived Variables
None
Process and Review
Not Applicable
Protocol Name from Source
Online Survey on Recovery from COVID-19
Source
Assaf, G., Davis, H., Akrami, A., Wei, H., McCorkell, L., Re’em, Y., Low, R., Austin, J., and Gupta, A. (2021). Online Survey on Recovery from COVID-19, Sections “Speech and Language Issues”, “All Other Symptoms – Ear and Hearing”, “Symptom Course”.
General References
NoneProtocol ID
992005
Variables
Export VariablesVariable Name | Variable ID | Variable Description | dbGaP Mapping | |
---|---|---|---|---|
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Describe_Language_Issues | ||||
PX992005020200 | Optional: Please use this space to describe more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Ear_Hearing_Symptoms_Hearing_Loss | ||||
PX992005030200 | Did you experience these symptoms, and when more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Ear_Hearing_Symptoms_None | ||||
PX992005030100 | Did you experience these symptoms, and when more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Ear_Hearing_Symptoms_Other_Ear_Hearing_Issues | ||||
PX992005030400 | Did you experience these symptoms, and when more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Ear_Hearing_Symptoms_Start | ||||
PX992005040000 | Have you experienced any of these symptoms more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Ear_Hearing_Symptoms_Tinnitus | ||||
PX992005030300 | Did you experience these symptoms, and when more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Experience_Symptoms | ||||
PX992005010300 | When did you experience these symptoms? more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Language_Speech_Issues | ||||
PX992005010100 | Have you experienced any issues with SPEECH more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Language_Symptoms | ||||
PX992005010201 | Which of the following speech and language more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Language_Symptoms_Other | ||||
PX992005010202 | Which of the following speech and language more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Multiple_Languages | ||||
PX992005020100 | Do you speak multiple languages? | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Relapse_Symptoms | ||||
PX992005060100 | Which of these descriptions appropriately more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Relapse_Symptoms_Other | ||||
PX992005060200 | Which of these descriptions appropriately more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_2 | ||||
PX992005050500 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_3 | ||||
PX992005050600 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_4 | ||||
PX992005050700 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_5 | ||||
PX992005050800 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_6 | ||||
PX992005050900 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_7 | ||||
PX992005051000 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Week_1 | ||||
PX992005050100 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Week_2 | ||||
PX992005050200 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Week_3 | ||||
PX992005050300 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Week_4 | ||||
PX992005050400 | How severe were/are your symptoms over the more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Trigger_Relapse_Symptoms | ||||
PX992005070100 | Which of these trigger a relapse or more | N/A | ||
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Trigger_Relapse_Symptoms_Other | ||||
PX992005070200 | Which of these trigger a relapse or more | N/A |
Measure Name
Long COVID - Symptoms Due to COVID-19
Release Date
March 17, 2023
Definition
This is a measure of an individual’s new or continuing COVID-19 symptoms.
Purpose
Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.
Keywords
coronavirus, COVID, COVID-related symptoms, COVID-19, speech difficulties, writing difficulties, Hearing loss, London's Global University (UCL)
Measure Protocols
Publications
There are no publications listed for this protocol.