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Protocol - Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing

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Description

A self-administered questionnaire to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with speech and language.

Specific Instructions

None

Availability

Available

Protocol

Speech and Language Issues

1. Have you experienced any issues with SPEECH AND LANGUAGE since the start of your COVID-19 illness?

[ ] Yes

[ ] No

1a. Which of the following speech and language symptoms have you experienced since the start of your COVID-19 illness?

[ ] Difficulty finding the right words while speaking/writing

[ ] Difficulty communicating verbally

[ ] Difficulty speaking in complete sentences

[ ] Speaking unrecognizable words

[ ] Difficulty communicating in writing

[ ] Difficulty processing/understanding what others say
[ ] Difficulty reading/processing written text

[ ] (If applicable) changes to your non-primary (second/third) language skills

[ ] None of the above

[ ] Other ________

1b. When did you experience these symptoms?

Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it.

Week 1

Week 2

Week 3

Week 4

Month 2

Month 3

Month 4

Month 5

Month 6

Month 7

Speech and Language Issues

2. Do you speak multiple languages?

[ ] Yes

[ ] No

Optional: Please use this space to describe examples of yourl anguage issues, including speech, writing, reading, and listening to words. Please include any changes to your speech/language that are not mentioned above. For instance, if you speak multiple languages and have noticed different problems with your primary and non-primary language.

_______________________

3. Did you experience these symptoms, and when did you experience them?

Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it. If you experienced none of the symptoms in a set, select the checkbox (None of the below issues apply to me) above the grouped set.

[ ] None of the below ear and hearing symptoms apply to me

Ear and Hearing Symptoms

N/A

Week 1

Week 2

Week 3

Week 4

Month 2

Month 3

Month 4

Month 5

Hearing loss

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

Tinnitus

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

Other

ear/hearing

issues

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

All Other Symptoms - Checkbox

4. Have you experienced any of these symptoms since the start of your COVID-19 illness?
(Please choose all options that apply)

Ear and Hearing

[ ] Ear pain

[ ] Changes to the ear canal (such as pressure, blockage, burning, swelling)

[ ] Numbness/loss of sensation

[ ] Sensitivity to noise

[ ] Other ear/hearing symptoms

[ ] None of the above

Symptom Course

5. How severe were/are your symptoms over the course of the weeks/months?

If you experienced multiple severities for symptoms within the time period, select the most severe within that time period.

No symptom

Very Mild

Mild

Moderate

Severe

Very Severe

Week 1

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

Week 2

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

Week 3

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

Week 4

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

Month 2

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

Month 3

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

Month 4

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

Month 5

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

Month 6

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

Month 7+

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

6. Which of these descriptions appropriately describes your experience with relapses, and your symptom course overall? Please select all that apply:

[ ] My relapses happen in a regular pattern (monthly, daily, or weekly).

[ ] My relapses happen in an irregular pattern (randomly).

[ ] My relapses happen in response to a trigger (stress, alcohol, exercise/exertion, etc).

[ ] My relapses are getting shorter/easier over time.

[ ] My relapses are getting longer/harder over time.

[ ] My relapse severity has stayed about the same over time.

[ ] Overall, my symptoms have slowly gotten better over time.

[ ] Overall, my symptoms have stayed about the same over time.

[ ] Overall, my symptoms have slowly worsened over time.

[ ] I got worse rapidly.

[ ] I got better rapidly.

[ ] Other ___________

7. Which of these trigger a relapse or worsening of symptoms? Please select all that apply:

[ ] Stress

[ ] Alcohol

[ ] Caffeine

[ ] Heat

[ ] Period/menstruation

[ ] Week before period/menstruation

[ ] Exercise

[ ] Physical activity

[ ] Mental activity

[ ] Other ___________


Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Adult, Senior

Participants

Adults aged 18 years or older

Selection Rationale

PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.

Language

English, Other languages available at source

Standards
StandardNameIDSource
Derived Variables

None

Process and Review

Not Applicable

Protocol Name from Source

Online Survey on Recovery from COVID-19

Source

Assaf, G., Davis, H., Akrami, A., Wei, H., McCorkell, L., Re’em, Y., Low, R., Austin, J., and Gupta, A. (2021). Online Survey on Recovery from COVID-19, Sections “Speech and Language Issues”, “All Other Symptoms – Ear and Hearing”, “Symptom Course”.

General References
None
Protocol ID

992005

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Describe_Language_Issues
PX992005020200 Optional: Please use this space to describe more
examples of your language issues, including speech, writing, reading, and listening to words. Please include any changes to your speech/language that are not mentioned above. For instance, if you speak multiple languages and have noticed different problems with your primary and non-primary language. show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Ear_Hearing_Symptoms_Hearing_Loss
PX992005030200 Did you experience these symptoms, and when more
did you experience them? Ear and Hearing Symptoms: Hearing Loss show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Ear_Hearing_Symptoms_None
PX992005030100 Did you experience these symptoms, and when more
did you experience them? Ear and Hearing Symptoms: None of the below ear and hearing symptoms apply to me show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Ear_Hearing_Symptoms_Other_Ear_Hearing_Issues
PX992005030400 Did you experience these symptoms, and when more
did you experience them? Ear and Hearing Symptoms: Other ear/hearing issues show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Ear_Hearing_Symptoms_Start
PX992005040000 Have you experienced any of these symptoms more
since the start of your COVID-19 illness? (Please choose all options that apply): Ear and Hearing show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Ear_Hearing_Symptoms_Tinnitus
PX992005030300 Did you experience these symptoms, and when more
did you experience them? Ear and Hearing Symptoms: Tinnitus show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Experience_Symptoms
PX992005010300 When did you experience these symptoms? more
Please mark symptoms for the first 4 weeks, then months (if applicable). Even if you have only experienced these symptoms for part of a week or month, please select it. show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Language_Speech_Issues
PX992005010100 Have you experienced any issues with SPEECH more
AND LANGUAGE since the start of your COVID-19 illness? show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Language_Symptoms
PX992005010201 Which of the following speech and language more
symptoms have you experienced since the start of your COVID-19 illness? show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Language_Symptoms_Other
PX992005010202 Which of the following speech and language more
symptoms have you experienced since the start of your COVID-19 illness? Other show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Multiple_Languages
PX992005020100 Do you speak multiple languages? N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Relapse_Symptoms
PX992005060100 Which of these descriptions appropriately more
describes your experience with relapses, and your symptom course overall? Please select all that apply: show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Relapse_Symptoms_Other
PX992005060200 Which of these descriptions appropriately more
describes your experience with relapses, and your symptom course overall? Please select all that apply: Other show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_2
PX992005050500 How severe were/are your symptoms over the more
course of the weeks/months? If you experienced multiple severities for symptoms within the time period, select the most severe within that time period. Month 2 show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_3
PX992005050600 How severe were/are your symptoms over the more
course of the weeks/months? If you experienced multiple severities for symptoms within the time period, select the most severe within that time period. Month 3 show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_4
PX992005050700 How severe were/are your symptoms over the more
course of the weeks/months? If you experienced multiple severities for symptoms within the time period, select the most severe within that time period. Month 4 show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_5
PX992005050800 How severe were/are your symptoms over the more
course of the weeks/months? If you experienced multiple severities for symptoms within the time period, select the most severe within that time period. Month 5 show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_6
PX992005050900 How severe were/are your symptoms over the more
course of the weeks/months? If you experienced multiple severities for symptoms within the time period, select the most severe within that time period. Month 6 show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Month_7
PX992005051000 How severe were/are your symptoms over the more
course of the weeks/months? If you experienced multiple severities for symptoms within the time period, select the most severe within that time period. Month 7+ show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Week_1
PX992005050100 How severe were/are your symptoms over the more
course of the weeks/months? If you experienced multiple severities for symptoms within the time period, select the most severe within that time period. Week 1 show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Week_2
PX992005050200 How severe were/are your symptoms over the more
course of the weeks/months? If you experienced multiple severities for symptoms within the time period, select the most severe within that time period. Week 2 show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Week_3
PX992005050300 How severe were/are your symptoms over the more
course of the weeks/months? If you experienced multiple severities for symptoms within the time period, select the most severe within that time period. Week 3 show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Symptom_Severity_Week_4
PX992005050400 How severe were/are your symptoms over the more
course of the weeks/months? If you experienced multiple severities for symptoms within the time period, select the most severe within that time period. Week 4 show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Trigger_Relapse_Symptoms
PX992005070100 Which of these trigger a relapse or more
worsening of symptoms? Please select all that apply: show less
N/A
PX992005_Long_Covid_Symptoms_Speech_Language_Hearing_Trigger_Relapse_Symptoms_Other
PX992005070200 Which of these trigger a relapse or more
worsening of symptoms? Please select all that apply: Other show less
N/A
Long COVID
Measure Name

Long COVID - Symptoms Due to COVID-19

Release Date

March 17, 2023

Definition

This is a measure of an individual’s new or continuing COVID-19 symptoms.

Purpose

Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.

Keywords

coronavirus, COVID, COVID-related symptoms, COVID-19, speech difficulties, writing difficulties, Hearing loss, London's Global University (UCL)

Measure Protocols
Protocol ID Protocol Name
992001 Long COVID - Symptoms Due to COVID-19 - Screener
992002 Long COVID - Symptoms Due to COVID-19 - Memory
992003 Long COVID - Symptoms Due to COVID-19 - Neurology
992004 Long COVID - Symptoms Due to COVID-19 - Psychological Risk Factors
992005 Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing
992006 Long COVID - Symptoms Due to COVID-19 - Psychiatric (Short Form)
992007 Long COVID - Symptoms Due to COVID-19 - Psychiatric (Long Form)
992008 Long COVID - Symptoms Due to COVID-19 - Temperature Regulation and Cardiovascular
992009 Long COVID - Symptoms Due to COVID-19 - Cardiovascular Symptom Course
992010 Long COVID - Symptoms Due to COVID-19 - Respiratory
992011 Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Long Form)
992012 Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Short Form)
992013 Long COVID - Symptoms Due to COVID-19 - Allergies
992014 Long COVID - Symptoms Due to COVID-19 - Skin and Hair
992015 Long COVID - Symptoms Due to COVID-19 - Ocular (Long Form)
992016 Long COVID - Symptoms Due to COVID-19 - Ocular (Short Form)
992017 Long COVID - Symptoms Due to COVID-19 - Genitourinary
992018 Long COVID - Symptoms Due to COVID-19 - Muscle and Joint
992019 Long COVID - Symptoms Due to COVID-19 - Tooth Pain
992020 Long COVID - Symptoms Due to COVID-19 - Pediatric
Publications

There are no publications listed for this protocol.