Protocol - Long COVID - Symptoms Due to COVID-19 - Cardiovascular Symptom Course
Description
A self-administered questionnaire to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with heavy limbs, heart rate, temperature regulation and dizziness.
Specific Instructions
None
Availability
Protocol
1a. Do you still have the heavy limbs?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
1b. Does/did the heavy limbs affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
1c. When did the heavy limbs clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Don't know
[ ] Refuse to answer
2a. Do you still have the rapid heart rate?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
2b. Does/did the rapid heart rate affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
2c. When did the rapid heart rate clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Don't know
[ ] Refuse to answer
3a. Do you still have the slow heart rate?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
3b. Does/did the slow heart rate affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
3c. When did the slow heart rate clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Don't know
[ ] Refuse to answer
4a. Do you still have chills/repeated shaking with chills?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
4b. Does/did the chills/repeated shaking with chills affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
4c. When did the chills/repeated shaking with chills clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Don't know
[ ] Refuse to answer
5a. Do you still always feel hot or cold (temperature dysregulation)?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
5b. Does/did the always feeling hot or cold (temperature dysregulation) affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
5c. When did the always feeling hot or cold (temperature dysregulation) clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Don't know
[ ] Refuse to answer
6a. Do you still feel dizzy or lightheaded when standing up after sitting (orthostatic hypotension)?
[ ] Yes, I still have this symptom
[ ] Yes, I still have the symptom but it is less severe
[ ] Yes, I still have the symptom but it comes and goes
[ ] No, the symptom has cleared
6b. Does/did the feeling dizzy or lightheaded when standing up after sitting (orthostatic hypotension) affect your ability to do your normal activities?
[ ] I have/had the symptom but I can/could still do normal activities.
[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.
[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.
[ ] Refuse to answer
6c. When did the feeling dizzy or lightheaded when standing up after sitting (orthostatic hypotension) clear?
[ ] Less than 3 months after symptom started
[ ] Between 3 to 6 months after symptom started
[ ] Between 6 to 9 months after symptom started
[ ] Greater than 9 months after symptom started
[ ] Don't know
[ ] Refuse to answer
Personnel and Training Required
None
Equipment Needs
None
Requirements
Requirement Category | Required |
---|---|
Major equipment | No |
Specialized training | No |
Specialized requirements for biospecimen collection | No |
Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults aged 18 years or older
Selection Rationale
PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.
Language
English
Standards
Standard | Name | ID | Source |
---|
Derived Variables
None
Process and Review
Not Applicable
Protocol Name from Source
Johns Hopkins COVID Long Study
Source
Johns Hopkins Bloomberg School of Public Health. (2022). Johns Hopkins COVID Long Study, Section “COVID-19: Symptoms”, questions on heavy limbs, rapid heart rate; slow heart rate; chills/repeated shaking with chills; temperature dysregulation; orthostatic hypotension.
General References
NoneProtocol ID
992009
Variables
Export VariablesVariable Name | Variable ID | Variable Description | dbGaP Mapping | |
---|---|---|---|---|
PX992009_Long_COVID_Symptoms_Cardiovascular_Chills | ||||
PX992009040100 | Do you still have chills/repeated shaking more | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Chills_Clear | ||||
PX992009040300 | When did the chills/repeated shaking with more | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Chills_Normal_Activities | ||||
PX992009040200 | Does/did the chills/repeated shaking with more | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Heavy_Limbs | ||||
PX992009010100 | Do you still have the heavy limbs? | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Heavy_Limbs_Clear | ||||
PX992009010300 | When did the heavy limbs clear? | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Heavy_Limbs_Normal_Activities | ||||
PX992009010200 | Does/did the heavy limbs affect your ability more | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Orthostatic_Hypotension | ||||
PX992009060100 | Do you still feel dizzy or lightheaded when more | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Orthostatic_Hypotension_Clear | ||||
PX992009060300 | When did the feeling dizzy or lightheaded more | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Orthostatic_Hypotension_Normal_Activities | ||||
PX992009060200 | Does/did the feeling dizzy or lightheaded more | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Rapid_Heart_Rate | ||||
PX992009020100 | Do you still have the rapid heart rate? | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Rapid_Heart_Rate_Clear | ||||
PX992009020300 | When did the rapid heart rate clear? | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Rapid_Heart_Rate_Normal_Activities | ||||
PX992009020200 | Does/did the rapid heart rate affect your more | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Slow_Heart_Rate | ||||
PX992009030100 | Do you still have the slow heart rate? | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Slow_Heart_Rate_Clear | ||||
PX992009030300 | When did the slow heart rate clear? | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Slow_Heart_Rate_Normal_Activities | ||||
PX992009030200 | Does/did the slow heart rate affect your more | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Temperature_Dysregulation | ||||
PX992009050100 | Do you still always feel hot or cold more | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Temperature_Dysregulation_Clear | ||||
PX992009050300 | When did the always feeling hot or cold more | N/A | ||
PX992009_Long_COVID_Symptoms_Cardiovascular_Temperature_Dysregulation_Normal_Activities | ||||
PX992009050200 | Does/did the always feeling hot or cold more | N/A |
Measure Name
Long COVID - Symptoms Due to COVID-19
Release Date
March 17, 2023
Definition
This is a measure of an individual’s new or continuing COVID-19 symptoms.
Purpose
Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.
Keywords
coronavirus, COVID, COVID-related symptoms, COVID-19, Heart rate, temperature, Blood pressure, John Hopkins
Measure Protocols
Publications
There are no publications listed for this protocol.