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Protocol - Long COVID - Symptoms Due to COVID-19 - Cardiovascular Symptom Course

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Description

A self-administered questionnaire to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with heavy limbs, heart rate, temperature regulation and dizziness.

Specific Instructions

None

Availability

Available

Protocol

1a. Do you still have the heavy limbs?

[ ] Yes, I still have this symptom

[ ] Yes, I still have the symptom but it is less severe

[ ] Yes, I still have the symptom but it comes and goes

[ ] No, the symptom has cleared

1b. Does/did the heavy limbs affect your ability to do your normal activities?

[ ] I have/had the symptom but I can/could still do normal activities.

[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.

[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.

[ ] Refuse to answer

1c. When did the heavy limbs clear?

[ ] Less than 3 months after symptom started

[ ] Between 3 to 6 months after symptom started

[ ] Between 6 to 9 months after symptom started

[ ] Greater than 9 months after symptom started

[ ] Don't know

[ ] Refuse to answer

2a. Do you still have the rapid heart rate?

[ ] Yes, I still have this symptom

[ ] Yes, I still have the symptom but it is less severe

[ ] Yes, I still have the symptom but it comes and goes

[ ] No, the symptom has cleared

2b. Does/did the rapid heart rate affect your ability to do your normal activities?

[ ] I have/had the symptom but I can/could still do normal activities.

[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.

[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.

[ ] Refuse to answer

2c. When did the rapid heart rate clear?

[ ] Less than 3 months after symptom started

[ ] Between 3 to 6 months after symptom started

[ ] Between 6 to 9 months after symptom started

[ ] Greater than 9 months after symptom started

[ ] Don't know

[ ] Refuse to answer

3a. Do you still have the slow heart rate?

[ ] Yes, I still have this symptom

[ ] Yes, I still have the symptom but it is less severe

[ ] Yes, I still have the symptom but it comes and goes

[ ] No, the symptom has cleared

3b. Does/did the slow heart rate affect your ability to do your normal activities?

[ ] I have/had the symptom but I can/could still do normal activities.

[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.

[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.

[ ] Refuse to answer

3c. When did the slow heart rate clear?

[ ] Less than 3 months after symptom started

[ ] Between 3 to 6 months after symptom started

[ ] Between 6 to 9 months after symptom started

[ ] Greater than 9 months after symptom started

[ ] Don't know

[ ] Refuse to answer

4a. Do you still have chills/repeated shaking with chills?

[ ] Yes, I still have this symptom

[ ] Yes, I still have the symptom but it is less severe

[ ] Yes, I still have the symptom but it comes and goes

[ ] No, the symptom has cleared

4b. Does/did the chills/repeated shaking with chills affect your ability to do your normal activities?

[ ] I have/had the symptom but I can/could still do normal activities.

[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.

[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.

[ ] Refuse to answer

4c. When did the chills/repeated shaking with chills clear?

[ ] Less than 3 months after symptom started

[ ] Between 3 to 6 months after symptom started

[ ] Between 6 to 9 months after symptom started

[ ] Greater than 9 months after symptom started

[ ] Don't know

[ ] Refuse to answer

5a. Do you still always feel hot or cold (temperature dysregulation)?

[ ] Yes, I still have this symptom

[ ] Yes, I still have the symptom but it is less severe

[ ] Yes, I still have the symptom but it comes and goes

[ ] No, the symptom has cleared

5b. Does/did the always feeling hot or cold (temperature dysregulation) affect your ability to do your normal activities?

[ ] I have/had the symptom but I can/could still do normal activities.

[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.

[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.

[ ] Refuse to answer

5c. When did the always feeling hot or cold (temperature dysregulation) clear?

[ ] Less than 3 months after symptom started

[ ] Between 3 to 6 months after symptom started

[ ] Between 6 to 9 months after symptom started

[ ] Greater than 9 months after symptom started

[ ] Don't know

[ ] Refuse to answer

6a. Do you still feel dizzy or lightheaded when standing up after sitting (orthostatic hypotension)?

[ ] Yes, I still have this symptom

[ ] Yes, I still have the symptom but it is less severe

[ ] Yes, I still have the symptom but it comes and goes

[ ] No, the symptom has cleared

6b. Does/did the feeling dizzy or lightheaded when standing up after sitting (orthostatic hypotension) affect your ability to do your normal activities?

[ ] I have/had the symptom but I can/could still do normal activities.

[ ] The symptom really bothers/bothered me. It is/was hard to do normal activities.

[ ] The symptom is/was very bad. I am/was not able to do activities that I usually do.

[ ] Refuse to answer

6c. When did the feeling dizzy or lightheaded when standing up after sitting (orthostatic hypotension) clear?

[ ] Less than 3 months after symptom started

[ ] Between 3 to 6 months after symptom started

[ ] Between 6 to 9 months after symptom started

[ ] Greater than 9 months after symptom started

[ ] Don't know

[ ] Refuse to answer

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Adult, Senior

Participants

Adults aged 18 years or older

Selection Rationale

PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.

Language

English

Standards
StandardNameIDSource
Derived Variables

None

Process and Review

Not Applicable

Protocol Name from Source

Johns Hopkins COVID Long Study

Source

Johns Hopkins Bloomberg School of Public Health. (2022). Johns Hopkins COVID Long Study, Section “COVID-19: Symptoms”, questions on heavy limbs, rapid heart rate; slow heart rate; chills/repeated shaking with chills; temperature dysregulation; orthostatic hypotension.

General References
None
Protocol ID

992009

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX992009_Long_COVID_Symptoms_Cardiovascular_Chills
PX992009040100 Do you still have chills/repeated shaking more
with chills? show less
N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Chills_Clear
PX992009040300 When did the chills/repeated shaking with more
chills clear? show less
N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Chills_Normal_Activities
PX992009040200 Does/did the chills/repeated shaking with more
chills affect your ability to do your normal activities? show less
N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Heavy_Limbs
PX992009010100 Do you still have the heavy limbs? N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Heavy_Limbs_Clear
PX992009010300 When did the heavy limbs clear? N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Heavy_Limbs_Normal_Activities
PX992009010200 Does/did the heavy limbs affect your ability more
to do your normal activities? show less
N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Orthostatic_Hypotension
PX992009060100 Do you still feel dizzy or lightheaded when more
standing up after sitting (orthostatic hypotension)? show less
N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Orthostatic_Hypotension_Clear
PX992009060300 When did the feeling dizzy or lightheaded more
when standing up after sitting (orthostatic hypotension) clear? show less
N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Orthostatic_Hypotension_Normal_Activities
PX992009060200 Does/did the feeling dizzy or lightheaded more
when standing up after sitting (orthostatic hypotension) affect your ability to do your normal activities? show less
N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Rapid_Heart_Rate
PX992009020100 Do you still have the rapid heart rate? N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Rapid_Heart_Rate_Clear
PX992009020300 When did the rapid heart rate clear? N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Rapid_Heart_Rate_Normal_Activities
PX992009020200 Does/did the rapid heart rate affect your more
ability to do your normal activities? show less
N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Slow_Heart_Rate
PX992009030100 Do you still have the slow heart rate? N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Slow_Heart_Rate_Clear
PX992009030300 When did the slow heart rate clear? N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Slow_Heart_Rate_Normal_Activities
PX992009030200 Does/did the slow heart rate affect your more
ability to do your normal activities? show less
N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Temperature_Dysregulation
PX992009050100 Do you still always feel hot or cold more
(temperature dysregulation)? show less
N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Temperature_Dysregulation_Clear
PX992009050300 When did the always feeling hot or cold more
(temperature dysregulation) clear? show less
N/A
PX992009_Long_COVID_Symptoms_Cardiovascular_Temperature_Dysregulation_Normal_Activities
PX992009050200 Does/did the always feeling hot or cold more
(temperature dysregulation) affect your ability to do your normal activities? show less
N/A
Long COVID
Measure Name

Long COVID - Symptoms Due to COVID-19

Release Date

March 17, 2023

Definition

This is a measure of an individual’s new or continuing COVID-19 symptoms.

Purpose

Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.

Keywords

coronavirus, COVID, COVID-related symptoms, COVID-19, Heart rate, temperature, Blood pressure, John Hopkins

Measure Protocols
Protocol ID Protocol Name
992001 Long COVID - Symptoms Due to COVID-19 - Screener
992002 Long COVID - Symptoms Due to COVID-19 - Memory
992003 Long COVID - Symptoms Due to COVID-19 - Neurology
992004 Long COVID - Symptoms Due to COVID-19 - Psychological Risk Factors
992005 Long COVID - Symptoms Due to COVID-19 - Speech, Language, and Hearing
992006 Long COVID - Symptoms Due to COVID-19 - Psychiatric (Short Form)
992007 Long COVID - Symptoms Due to COVID-19 - Psychiatric (Long Form)
992008 Long COVID - Symptoms Due to COVID-19 - Temperature Regulation and Cardiovascular
992009 Long COVID - Symptoms Due to COVID-19 - Cardiovascular Symptom Course
992010 Long COVID - Symptoms Due to COVID-19 - Respiratory
992011 Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Long Form)
992012 Long COVID - Symptoms Due to COVID-19 - Gastrointestinal (Short Form)
992013 Long COVID - Symptoms Due to COVID-19 - Allergies
992014 Long COVID - Symptoms Due to COVID-19 - Skin and Hair
992015 Long COVID - Symptoms Due to COVID-19 - Ocular (Long Form)
992016 Long COVID - Symptoms Due to COVID-19 - Ocular (Short Form)
992017 Long COVID - Symptoms Due to COVID-19 - Genitourinary
992018 Long COVID - Symptoms Due to COVID-19 - Muscle and Joint
992019 Long COVID - Symptoms Due to COVID-19 - Tooth Pain
992020 Long COVID - Symptoms Due to COVID-19 - Pediatric
Publications

There are no publications listed for this protocol.