Protocol - Long COVID - Symptoms Due to COVID-19 - Pediatric
Description
A self-administered questionnaire to better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience in children and young people.
Specific Instructions
None
Availability
Protocol
1. If you have had symptoms of COVID-19, how much do you agree with the following statement?
"I have fully recovered from COVID-19"
[ ] 0
[ ] 1
[ ] 2
[ ] 3
[ ] 4
[ ] 5
[ ] 6
[ ] 7
[ ] 8
[ ] 9
[ ] 10
2. How do you feel right now?
[ ] I feel as healthy as normal
[ ] I am not feeling quite right
3. Do you have a fever?
[ ] Yes
[ ] No
4. Do you feel chills or shivers (feel too cold)?
[ ] Yes
[ ] No
5. If you are able to measure it, what is your temperature?
________
6. Do you have a persistent cough (coughing a lot for more than an hour, or 3 or more coughing episodes in 24 hours)?
[ ] Yes
[ ] No
7. Are you experiencing unusual fatigue/tiredness?
[ ] No
[ ] Mild fatigue
[ ] Severe fatigue - I struggle to get out of bed
8. Are you experiencing problems with your sleep, including getting to sleep, waking in the night or waking early?
[ ] Yes
[ ] No
8a. If yes, please describe
______________________
9. Are you experiencing unusual shortness of breath?
[ ] No
[ ] Yes, mild symptoms - slight shortness of breath during ordinary activity
[ ] Yes, significant symptoms - breathing is comfortable only at rest
[ ] Yes, severe symptoms - breathing is difficult even at rest
10. What are your current symptoms? (Please tick all that apply)
[ ] loss of smell/taste
[ ] unusually hoarse voice
[ ] unusual chest pain or tightness in your chest
[ ] unusual abdominal pain
[ ] diarrhoea
[ ] headache
[ ] confusion, disorientation or drowsiness
[ ] unusual eye-soreness or discomfort (e.g. light sensitivity, excessive tears, or pink/red eye)
[ ] skipping meals
[ ] dizziness or light-headedness
[ ] sore throat
[ ] unusual strong muscle pains
[ ] earache or ringing in your ears (tinnitus)
[ ] raised, red, itchy welts on the skin or sudden swelling of the face or lips
[ ] red/purple sores or blisters on your feet, including your toes
[ ] no symptoms
[ ] other
10a. Are there other important symptoms you want to share with us?
____________
11. Since the start of your COVID-19 symptoms, have you had a period longer than one week with none of the above symptoms at all (where you were back to how you were pre-COVID)
[ ] Yes (I have had a period of one week or more since my test with none of the above symptoms)
[ ] No (My symptoms have been continuous since Covid test)
[ ] Not applicable
Personnel and Training Required
None
Equipment Needs
None
Requirements
Requirement Category | Required |
---|---|
Major equipment | No |
Specialized training | No |
Specialized requirements for biospecimen collection | No |
Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Child, Adolescent
Participants
Children and young adults, aged 11 to 17 years old
Selection Rationale
PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.
Language
English
Standards
Standard | Name | ID | Source |
---|
Derived Variables
None
Process and Review
Protocol Name from Source
Long COVID in Children and Young People (The CLoCk Study)
Source
UCL Great Ormond Street Institute of Child Health, Long COVID in Children and Young People (The CLoCk Study), May 9, 2022, Questions from section “About your health at the moment”.
General References
NoneProtocol ID
992020
Variables
Export VariablesVariable Name | Variable ID | Variable Description | dbGaP Mapping | |
---|---|---|---|---|
PX992020_Long_Covid_Symptoms_Pediatric_Current_Symptoms | ||||
PX992020100000 | What are your current symptoms? (Please tick more | N/A | ||
PX992020_Long_Covid_Symptoms_Pediatric_Current_Symptoms_Other | ||||
PX992020100100 | What are your current symptoms? (Please tick more | N/A | ||
PX992020_Long_Covid_Symptoms_Pediatric_Do_You_Have_Chills_Shiver | ||||
PX992020040000 | Do you feel chills or shivers (feel too cold)? | N/A | ||
PX992020_Long_Covid_Symptoms_Pediatric_Do_You_Have_Fever | ||||
PX992020030000 | Do you have a fever? | N/A | ||
PX992020_Long_Covid_Symptoms_Pediatric_Experiencing_Problems_Sleep | ||||
PX992020080000 | Are you experiencing problems with your more | N/A | ||
PX992020_Long_Covid_Symptoms_Pediatric_Experiencing_Problems_Sleep_Describe | ||||
PX992020080100 | Are you experiencing problems with your more | N/A | ||
PX992020_Long_Covid_Symptoms_Pediatric_Experiencing_Shortness_Breath | ||||
PX992020090000 | Are you experiencing unusual shortness of breath? | N/A | ||
PX992020_Long_Covid_Symptoms_Pediatric_Experiencing_Unusual_Fatigue_Tiredness | ||||
PX992020070000 | Are you experiencing unusual fatigue/tiredness? | N/A | ||
PX992020_Long_Covid_Symptoms_Pediatric_How_Feel_Right_Now | ||||
PX992020020000 | How do you feel right now? | N/A | ||
PX992020_Long_Covid_Symptoms_Pediatric_Persistent_Cough | ||||
PX992020060000 | Do you have a persistent cough (coughing a more | N/A | ||
PX992020_Long_Covid_Symptoms_Pediatric_Start_Period_Longer_Week_No_Symptom | ||||
PX992020110000 | Since the start of your COVID-19 symptoms, more | N/A | ||
PX992020_Long_Covid_Symptoms_Pediatric_Symptoms_Covid_How_Much_Agree_Recovered | ||||
PX992020010000 | If you have had symptoms of COVID-19, how more | N/A | ||
PX992020_Long_Covid_Symptoms_Pediatric_What_Your_Temperature | ||||
PX992020050000 | If you are able to measure it, what is your more | N/A |
Measure Name
Long COVID - Symptoms Due to COVID-19
Release Date
March 17, 2023
Definition
This is a measure of an individual’s new or continuing COVID-19 symptoms.
Purpose
Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.
Keywords
coronavirus, symptoms, CLoCk, COVID, long COVID, symptoms
Measure Protocols
Publications
There are no publications listed for this protocol.