PhenX Toolkit: Toolkit

Essential Protocols

Total Protocols in My Toolkit: 38
	Eczema The Eczema Area and Severity Index (EASI) Check all Current Age Add to Toolkit Remove
	Personal and Family History of Psoriasis Collaborative Association Study of Psoriasis (CASP), Self Evaluation plus Medication Survey Check all Current Age Ethnicity and Race Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Skin Cancer Quereux, G., et al. Creation and test of a questionnaire for self-assessment of melanoma risk factors. EUR J CANCER PREV, 2010 Check all Current Age Current Employment Status Add to Toolkit Remove
	Burden of Cancer on Employment Medical Expenditure Panel Survey (MEPS) Check all Current Age Add to Toolkit Remove
	Chronic Medical Conditions - Self Reported Self-Administered Comorbidity Questionnaire (SCQ) Remove
	Cognitive Function Patient-Reported Outcomes Measurement Information System (PROMIS®) - Cognitive Function v2.0 - Short Form 6a Remove
	Fear of Cancer Recurrence Fear of Cancer Recurrence (FCR7) Check all Cancer: Personal and Family History Add to Toolkit Remove
	Financial Hardship Associated with Cancer Medical Expenditure Panel Survey (MEPS), Experiences with Cancer Self-Administered Questionnaire (SAQ), 2011 Remove
	Functional Performance Status Karnofsky Performance Status Scale (KPS) Check all Current Age Add to Toolkit Remove
	Patient Centered Communication - Cancer Patient-Centered Communication in Cancer Care © (PCC-Ca) - 36 items (long form) Remove
	Patient Experience with Cancer Care - Cancer Surgery Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Cancer surgery Check all Cancer: Personal and Family History Current Age Add to Toolkit Remove
	Patient Experience with Cancer Care - Drug Therapy Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Drug Therapy Check all Cancer: Personal and Family History Current Age Add to Toolkit Remove
	Patient Experience with Cancer Care - Radiation Therapy Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Radiation Therapy Check all Cancer: Personal and Family History Current Age Add to Toolkit Remove
	Quality of Life in Cancer Survivors - Active Treatment Quality of Life in Cancer Patients European Organisation for the Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire - Core 30 (QLQ-C30) Check all Current Age Add to Toolkit Remove
	Quality of Life in Cancer Survivors - Long-term Quality of Life Patient/Cancer Survivor Version (QOL-CSV) Check all Current Age Add to Toolkit Remove
	Spirituality in Chronic Illness Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being (FACIT©-Sp-12 (Version 4)) Check all Cancer: Personal and Family History Add to Toolkit Remove
	Supportive Care Needs - Cancer Supportive Care Needs Survey -Short Form 34 (SCNS-SF34) Remove
	Unmet Needs of Cancer Survivors Survivor Unmet Needs Survey (SF- SUNS) Check all Cancer: Personal and Family History Add to Toolkit Remove
	Ataxia Rating Scale Scale for the Assessment and Rating of Ataxia (SARA) Check all Current Age Add to Toolkit Remove
	Body Proportions National Health and Nutrition Examination Survey (NHANES), Anthropometry procedures, 2007-2008 Check all Arm Span Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Bone Age Tanner and Whitehouse Method (TW2) Check all Current Age Add to Toolkit Remove
	Child Oral Health Pain Child Oral Health Impact Profile-Short Form 19 (COHIP-SF 19) Check all Current Age Add to Toolkit Remove
	Complete Blood Count (CBC) National Health and Nutrition Examination Survey (NHANES), Laboratory procedures Manual, 2010 Check all Current Age History of Transfusion Medication Inventory Add to Toolkit Remove
	Disability Index Oswestry Disability Index (ODI)©, version 2.1a Check all Current Age Add to Toolkit Remove
	Disease Progression and Regression - 0-24 Months Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 0-24 months Check all Current Age Add to Toolkit Remove
	Disease Progression and Regression - 12-18 Years Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 12-18 years Check all Current Age Add to Toolkit Remove
	Disease Progression and Regression - 2-11 Years Newcastle Paediatric Mitochondrial Disease Scale (NPMDS), 2-11 years Check all Current Age Add to Toolkit Remove
	Disease Progression and Regression - Adult Newcastle Mitochondrial Disease Adult Scale (NMDAS), 12-18 years Check all Current Age Add to Toolkit Remove
	Disorders of Respiratory Control with Inherent Autonomic Dysregulation Autonomic Nervous System Questionnaire (ANSQ) American Thoracic Society (ATS) Statement on CCHS (2010) Check all Current Age Family Health History Add to Toolkit Remove
	Echocardiography Phenotypes British Society of Echocardiography (BSE) Education Committee guidelines for a standard transthoracic echocardiogram (TTE) Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Family Health History My Family Health Portrait (MFHP) Check all Current Age Add to Toolkit Remove
	Growth Charts World Health Organization (WHO) & Centers for Disease Control and Prevention (CDC) growth charts Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Quality of Life - Adult Patient-Reported Outcomes Measurement Information System® (PROMIS) 29 Profile, v. 2.0 Adult Profile Check all Current Age Add to Toolkit Remove
	Quality of Life - Pediatric Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank, v.1.1, Pediatric Profile 25 Check all Current Age Add to Toolkit Remove
	Scale of Developmental Domains of Early Childhood Mullen Scales of Early Learning Check all Current Age Add to Toolkit Remove
	Scoliosis - Physical Assessment Adams forward bend test & x-ray with Cobb technique Check all Current Age Add to Toolkit Remove
	Scoliosis - Quality of Life Pediatric Outcomes Data Collection Instrument (PODCI), v. 2.0,Parent/Child Outcomes Instrument, 2005 Check all Current Age Add to Toolkit Remove
	Sweat Chloride Test LeGrys, V.A., et al. Diagnostic sweat testing: The Cystic Fibrosis Foundation guidelines. J Pediatr, 2007 Check all Current Age Add to Toolkit Remove
Total Protocols in My Toolkit: 38

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

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