My Toolkit

DD = Data Dictionary
DCW = Data Collection Worksheet

Your saved My Toolkit has one or more retired protocols. Please scroll down to see which protocols were retired.

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Basic Report
Detailed Report
Data Collection Worksheet-English (PDF)
Data Collection Worksheet-English (Word)
Data Collection Worksheet-Spanish (PDF)
Data Collection Worksheet-Spanish (Word)
Data Collection Worksheet-Chinese (Word)
Data Dictionary (RTF)
Data Dictionary (CSV)
Data Dictionary (REDCap)

Empty My Toolkit

Essential Protocols are needed to interpret your data. Add all Essential Protocols to "My Toolkit".

Total Protocols in My Toolkit: 48
	Quality of Life - Pediatric Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank, v.1.1, Pediatric Profile 25 Remove Check all Current Age Add to Toolkit
	Quality of Life - Adult Patient-Reported Outcomes Measurement Information System® (PROMIS) 29 Profile, v. 2.0 Adult Profile Remove Check all Current Age Add to Toolkit
	Quality of Care - Adults The Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), Quality of Care Module Remove Check all Current Age Add to Toolkit
	Quality of Care - Children Consumer Assessment of Healthcare Providers and Systems (CAHPS), Health Plan Survey 4.0, Child Medicaid Questionnaire Remove Check all Current Age Add to Toolkit
	Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), short form Remove Check all Current Age Add to Toolkit
	PedsQL Sickle Cell Disease Module The PedsQL Sickle Cell Disease Module Remove Check all Current Age Add to Toolkit
	Self-efficacy in Sickle Cell Disease The Sickle Cell Disease Self-Efficacy Scale (SCSES) Remove Check all Current Age Add to Toolkit
	Intelligence Scale - 16 to 90 years Wechsler Adult Intelligence Scale, 4th ed., (WAIS-IV) Remove Check all Current Age Ethnicity and Race Add to Toolkit
	Intelligence Scale - 2 years, 6 months to 7 years, 7 months Wechsler Preschool and Primary Scale of Intelligence, 4th ed. (WPPSI-IV) Remove Check all Current Age Ethnicity and Race Add to Toolkit
	Intelligence Scale - 6 to 16 years 11 months Wechsler Intelligence Scale for Children, 5th ed., (WISC) Remove Check all Current Age Ethnicity and Race Add to Toolkit
	Intelligence Scale - Birth to 3.5 years Bayley Scales of Infant and Toddler Development (BSID) Remove Check all Current Age Ethnicity and Race Add to Toolkit
	Adaptive Behavior/Adaptive Function Vineland Adaptive Behavior Scales., 2nd ed. (VINELAND-II) Remove Check all Current Age Add to Toolkit
	Stroke Impact Scale (SIS) - Adults The Stroke Impact Scale (SIS) Remove Check all Current Age Add to Toolkit
	Recovery and Recurrence Questionnaire (RRQ) - Pediatrics The Recovery and Recurrence Questionnaire (RRQ) Remove Check all Current Age Add to Toolkit
	NIH Stroke Scale (NIHSS) National Institutes of Health Stroke Scale (NIHSS) Remove Check all Current Age Add to Toolkit
	Pediatric NIH Stroke Scale (PedNIHSS) Pediatric National Institutes of Health Stroke Scale (PedNIHSS) Remove Check all Current Age Add to Toolkit
	Stroke Risk in Children with Sickle Cell Disease - TCD Stoke Prevention in Sickle Cell Disease (STOP) Study, Transcranial Doppler (TCD) ultrasonography Remove Check all Current Age Add to Toolkit
	Stroke Risk in Children with Sickle Cell Disease - TCDi Imaging Transcranial Doppler (TCDi) ultrasonography Remove Check all Current Age Add to Toolkit
	Sustained and Selective Attention The Conners Continuous Performance Test 3 (CPT 3™) Remove Check all Current Age Add to Toolkit
	Pain Brief Pain Inventory©(BPI), Short Form Remove This protocol is retired.
	History of Stroke - Ischemic Infarction and Hemorrhage Jackson Heart Study (JHS) Remove Check all Current Age Ethnicity and Race Add to Toolkit
	Executive Function The Trail Making Test - Adult Remove Check all Current Age Ethnicity and Race Add to Toolkit
	Executive Function - Child The Behavior Rating Inventory of Executive Function (BRIEF) Remove Check all Current Age Ethnicity and Race Add to Toolkit
	Migraine - Adult American Migraine Study II, Self-Administered Questionnaire for Migraine Remove Check all Current Age Add to Toolkit
	Migraine - Children The Pediatric Migraine Disability Assessment (PedMIDAS) Remove Check all Current Age Add to Toolkit
	Verbal Memory - Adult Wechsler Memory Scale®, Logical Memory subtest, Fourth Edition (WMS®-IV) Remove Check all Current Age Ethnicity and Race Add to Toolkit
	Verbal Memory - Child Childrens Memory Scale® (CMS), Verbal Memory subscales Remove Check all Current Age Ethnicity and Race Add to Toolkit
	Visual Memory - Adult Wechsler Memory Scale®, Visual Reproductions subtest, Fourth Edition (WMS®-IV) Remove Check all Current Age Add to Toolkit
	Visual Memory - Child Childrens Memory Scale® (CMS), Visual Memory subtest Remove Check all Current Age Add to Toolkit
	Working Memory - Adult Wechsler Adult Intelligence Scale®, Digit Span subtest, Fourth Edition (WAIS®-IV) Remove Check all Current Age Ethnicity and Race Add to Toolkit
	Working Memory - Child Childrens Memory Scale® (CMS), Attention and Concentration subtests Remove Check all Current Age Ethnicity and Race Add to Toolkit
	Motor and Attentional Impulsivity (Immediate and Delayed Memory Task) Immediate and Delayed Memory Task (IMT/DMT) Remove Check all Current Age Add to Toolkit
	Health Quality Index for Economic Evaluations - Child and Adolescent EuroQol Group - EQ-5D-Y Remove Check all Current Age Add to Toolkit
	Health Quality Index for Economic Evaluations - Adult EQ-5D-3L Remove Check all Current Age Add to Toolkit
	Impairment - Adolescent The Columbia Impairment Scale (CIS) Remove
	Impairment - Adult The World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) Remove
	Service Utilization and Cost Global Appraisal of Individual Needs (GAIN) Remove Check all Current Age Add to Toolkit
	Screening and Severity of Substance Use Problems - Adults - Alcohol - Past 12 Months Alcohol Use Disorders Identification Test (AUDIT) Remove Check all Alcohol - Lifetime Use Current Age Substances - Lifetime Use Add to Toolkit
	Screening and Severity of Substance Use Problems - Adolescents Treatment Improvement Protocol (TIP) Services, Simple Screening Instrument for Alcohol and Other Drugs (SSI-AOD) Remove Check all Alcohol - Lifetime Use Current Age Substances - Lifetime Use Add to Toolkit
	Screening and Severity of Substance Use Problems - Adults - Alcohol - Lifetime Brief Michigan Alcoholism Screening Test (Brief MAST) Remove Check all Alcohol - Lifetime Use Current Age Substances - Lifetime Use Add to Toolkit
	Screening and Severity of Substance Use Problems - Adults - Drugs Drug Abuse Screening Test (DAST-10) Remove Check all Alcohol - Lifetime Use Current Age Substances - Lifetime Use Add to Toolkit
	Alcohol - 30-Day Quantity and Frequency National Survey on Drug Use and Health (NSDUH), 2015 & National Institute on Alcohol Abuse and Alcoholism (NIAAA) National Epidemiologic Survey on Alcohol and Related Conditions, Wave 1 (NESARC - WAVE 1)/Alcohol Use Disorder and Associated Disabilities Interview Schedule-IV (AUDADIS-IV) Remove Check all Alcohol - Lifetime Use Current Age Add to Toolkit
	Substances - 30-Day Frequency National Survey on Drug Use and Health (NSDUH), 2015 Remove Check all Current Age Substances - Lifetime Use Add to Toolkit
	Quality of Life Enjoyment and Satisfaction - Adult Quality of Life Enjoyment and Satisfaction Questionnaire - Short Form (Q-LES-Q-SF) Remove Check all Current Age Add to Toolkit
	Quality of Life Enjoyment and Satisfaction - Children Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q) Remove Check all Current Age Add to Toolkit
	Short Form-McGill Pain Questionnaire-2 (SF-MPQ-2) Short-form McGill Pain Questionnaire (SF-MPQ-2) Remove This protocol is retired.
	Adolescent Pediatric Pain Tool (APPT) Adolescent Pediatric Pain Tool (APPT) Remove This protocol is retired.
	Physical, Social, and Mental Health Functioning (SF-36V2) SF-36v2 Health Survey Remove Check all Current Age Add to Toolkit
Total Protocols in My Toolkit: 48

Cite My Toolkit

Click the Copy button to copy the citation(s) for all protocols in My Toolkit.

Click the Zotero or Endnote buttons to download the citation(s) for all protocols in My Toolkit in a format that can be imported into an external citation manager.

PhenX Toolkit. (2015). Quality of Life - Pediatric. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/221301

PhenX Toolkit. (2015). Quality of Life - Adult. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/221302

PhenX Toolkit. (2015). Quality of Care - Adults. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/820101

PhenX Toolkit. (2015). Quality of Care - Children. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/820102

PhenX Toolkit. (2015). Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/820201

PhenX Toolkit. (2015). PedsQL Sickle Cell Disease Module. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/820202

PhenX Toolkit. (2015). Self-efficacy in Sickle Cell Disease. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/820401

PhenX Toolkit. (2015). Intelligence Scale - 16 to 90 years. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/820501

PhenX Toolkit. (2015). Intelligence Scale - 2 years, 6 months to 7 years, 7 months. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/820502

PhenX Toolkit. (2015). Intelligence Scale - 6 to 16 years 11 months. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/820503

PhenX Toolkit. (2015). Intelligence Scale - Birth to 3.5 years. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/820504

PhenX Toolkit. (2015). Adaptive Behavior/Adaptive Function. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/820601

PhenX Toolkit. (2015). Stroke Impact Scale (SIS) - Adults. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/820701

PhenX Toolkit. (2015). Recovery and Recurrence Questionnaire (RRQ) - Pediatrics. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/820702

PhenX Toolkit. (2015). NIH Stroke Scale (NIHSS). Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/820801

PhenX Toolkit. (2015). Pediatric NIH Stroke Scale (PedNIHSS). Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/820802

PhenX Toolkit. (2015). Stroke Risk in Children with Sickle Cell Disease - TCD. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/821001

PhenX Toolkit. (2015). Stroke Risk in Children with Sickle Cell Disease - TCDi. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/821002

PhenX Toolkit. (2015). Sustained and Selective Attention. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/821201

PhenX Toolkit. (2010). Pain. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/170401

PhenX Toolkit. (2010). History of Stroke - Ischemic Infarction and Hemorrhage. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/130301

PhenX Toolkit. (2010). Executive Function. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/131101

PhenX Toolkit. (2015). Executive Function - Child. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/131102

PhenX Toolkit. (2010). Migraine - Adult. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/130501

PhenX Toolkit. (2010). Migraine - Children. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/130502

PhenX Toolkit. (2010). Verbal Memory - Adult. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/130801

PhenX Toolkit. (2017). Verbal Memory - Child. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/130802

PhenX Toolkit. (2010). Visual Memory - Adult. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/130901

PhenX Toolkit. (2010). Visual Memory - Child. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/130902

PhenX Toolkit. (2010). Working Memory - Adult. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/131001

PhenX Toolkit. (2010). Working Memory - Child. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/131002

PhenX Toolkit. (2016). Motor and Attentional Impulsivity (Immediate and Delayed Memory Task). Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/530602

PhenX Toolkit. (2012). Health Quality Index for Economic Evaluations - Child and Adolescent. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/560402

PhenX Toolkit. (2016). Health Quality Index for Economic Evaluations - Adult. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/560403

PhenX Toolkit. (2014). Impairment - Adolescent. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/610101

PhenX Toolkit. (2014). Impairment - Adult. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/610102

PhenX Toolkit. (2016). Service Utilization and Cost. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/560702

PhenX Toolkit. (2012). Screening and Severity of Substance Use Problems - Adults - Alcohol - Past 12 Months. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/510201

PhenX Toolkit. (2012). Screening and Severity of Substance Use Problems - Adolescents. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/510202

PhenX Toolkit. (2012). Screening and Severity of Substance Use Problems - Adults - Alcohol - Lifetime. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/510203

PhenX Toolkit. (2012). Screening and Severity of Substance Use Problems - Adults - Drugs. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/510204

PhenX Toolkit. (2009). Alcohol - 30-Day Quantity and Frequency. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/030301

PhenX Toolkit. (2016). Substances - 30-Day Frequency. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/031302

PhenX Toolkit. (2017). Quality of Life Enjoyment and Satisfaction - Adult. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/180302

PhenX Toolkit. (2017). Quality of Life Enjoyment and Satisfaction - Children. Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/180303

PhenX Toolkit. (2010). Short Form-McGill Pain Questionnaire-2 (SF-MPQ-2). Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/190901

PhenX Toolkit. (2015). Adolescent Pediatric Pain Tool (APPT). Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/190902

PhenX Toolkit. (2010). Physical, Social, and Mental Health Functioning (SF-36V2). Retrieved October 12, 2026, from https://doi.org/10.82568/phenx_toolkit/191201

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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