My Toolkit

DD = Data Dictionary
DCW = Data Collection Worksheet

Your saved My Toolkit has one or more retired protocols. Please scroll down to see which protocols were retired.

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Essential Protocols

	Sickle Cell Disease Health-Related Stigma - Child Child Stigma Scale (CSS) Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Sickle Cell Disease Health-Related Internal Stigma - Adolescent and Adult Measure of Sickle Cell Stigma (MoSCS) Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Reactions to Loss Reactions to Loss Scale (RTL) Check all Current Age Add to Toolkit Remove
	Sickle Cell Disease Responses to Stress - Youth Responses to Stress Questionnaire - Sickle Cell Disease version (RSQ-SC) Check all Current Address Current Age Add to Toolkit Remove
	Sickle Cell Disease Responses to Stress - Parent Report Responses to Stress Questionnaire - Sickle Cell Disease version (RSQ-SC), Parent Report version Check all Current Address Current Age Add to Toolkit Remove
	Sickle Cell Disease Transition Readiness Assessment Sickle Cell Transition Intervention Program - Readiness for Transition (TIP-RFT) Check all Current Age Current Employment Status Educational Attainment - Individual Add to Toolkit Remove
	Trust in the Medical Professional - Adult Wake Forest Trust in the Medical Professional Remove
	Trust in Medical Researchers - 12-Item Trust in Medical Researchers - Long Form - Adult Remove
	Trust in Medical Researchers - 4-Item Trust in Medical Researchers - Short Form - Adult Remove
	Religious Behaviors and Congregational Support Brief Multidimensional Measure of Religiousness/Spirituality (BMMRS) Check all Current Age Add to Toolkit Remove
	Sickle Cell Disease Self-Management - Adolescent Skills Checklist Adolescent and Caregiver Sickle Cell Disease Self-Management Skills Checklist - Self-Management Skills Checklist for Teens Check all Current Age Medication Inventory Add to Toolkit Remove
	Sickle Cell Disease Self-Management - Caregiver Skills Checklist Adolescent and Caregiver Sickle Cell Disease Self-Management Skills Checklist - Self-Management Skills Checklist for Caregivers Remove
	Prolonged Grief Disorder Prolonged Grief Disorder (PG-13-R) Check all Current Age Add to Toolkit Remove
	Resilience Connor-Davidson Resilience Scale (CD-RISC 25) Check all Current Age Add to Toolkit Remove
	Sickle Cell Disease Health-Related External Stigma - Adolescent and Adult Sickle Cell Disease Health-Related Stigma Scale Short Form (SCD-HRSS-SF) Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Annual Family Income National Health Interview Survey (NHIS) Family Questionnaire, 2020 Check all Current Age Household Roster-Relationships Add to Toolkit Remove
	Birthplace American Community Survey (ACS), 2008 Remove
	Birthplace of Parents American Community Survey (ACS), 2008 Remove
	Birthplace of Grandparents American Community Survey (ACS), 2008 Check all Birthplace of Parents Add to Toolkit Remove
	Educational Attainment - Individual National Health and Nutrition Examination Survey (NHANES), Demographics Module, 2019-2020 Remove
	Current Employment Status Panel Study of Income Dynamics (PSID), 2007 Check all Current Age Add to Toolkit Remove
	Current Marital Status Behavioral Risk Factor Surveillance System (BRFSS), Core Section 8: Demographics, 2018 Check all Current Age Add to Toolkit Remove
	Health Insurance Coverage Health Reform Monitoring Survey, 2015 Check all Current Age Add to Toolkit Remove
	Marital Status of Primary Caregiver Silent Cerebral Infarct Multi-Center Clinical Trial (SIT), Demographic/Phenotypic Information Check all Current Age Add to Toolkit Remove
	Pediatric School Performance Pediatric Hydroxyurea, Phase III Clinical Trial (BABY HUG), Part VII: Education - School Questionnaire Check all Current Age Add to Toolkit Remove
	Years Living in the U.S. National Health Interview Survey (NHIS), Family Questionnaire, 2007 Check all Birthplace Current Age Add to Toolkit Remove
	Medication Inventory Multi-Ethnic Study of Arthrosclerosis (MESA), Medications, 2000 Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
	Frequency of Sickle Cell Pain Episodes Per Year Cooperative Study of Sickle Cell Disease (CSSCD), Form 25 - Painful Episodes Check all Current Age Add to Toolkit Remove
	History of Transfusion Telen, M.J., et al. Alloimmunization in sickle cell disease: changing antibody specificities and association with chronic pain and decreased survival. TRANSFUSION, 2015 Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
	Quality of Life - Pediatric Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank, v.1.1, Pediatric Profile 25 Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
	Quality of Life - Adult Patient-Reported Outcomes Measurement Information System® (PROMIS) 29 Profile, v. 2.0 Adult Profile Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
	Quality of Care - Adults The Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), Quality of Care Module Check all Current Age Add to Toolkit Remove
	Quality of Care - Children Consumer Assessment of Healthcare Providers and Systems (CAHPS), Health Plan Survey 4.0, Child Medicaid Questionnaire Check all Current Age Add to Toolkit Remove
	Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), short form Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
	PedsQL Sickle Cell Disease Module The PedsQL Sickle Cell Disease Module Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
	Self-efficacy in Sickle Cell Disease The Sickle Cell Disease Self-Efficacy Scale (SCSES) Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
	Intelligence Scale - 16 to 90 years Wechsler Adult Intelligence Scale, 4th ed., (WAIS-IV) Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Intelligence Scale - 2 years, 6 months to 7 years, 7 months Wechsler Preschool and Primary Scale of Intelligence, 4th ed. (WPPSI-IV) Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Intelligence Scale - 6 to 16 years 11 months Wechsler Intelligence Scale for Children, 5th ed., (WISC) Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Intelligence Scale - Birth to 3.5 years Bayley Scales of Infant and Toddler Development (BSID) Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Adaptive Behavior/Adaptive Function Vineland Adaptive Behavior Scales., 2nd ed. (VINELAND-II) Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
	Stroke Impact Scale (SIS) - Adults The Stroke Impact Scale (SIS) Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
	Recovery and Recurrence Questionnaire (RRQ) - Pediatrics The Recovery and Recurrence Questionnaire (RRQ) Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
	NIH Stroke Scale (NIHSS) National Institutes of Health Stroke Scale (NIHSS) Check all Current Age Add to Toolkit Remove
	Pediatric NIH Stroke Scale (PedNIHSS) Pediatric National Institutes of Health Stroke Scale (PedNIHSS) Check all Current Age Add to Toolkit Remove
	Stroke Risk in Children with Sickle Cell Disease - TCD Stoke Prevention in Sickle Cell Disease (STOP) Study, Transcranial Doppler (TCD) ultrasonography Check all Current Age Add to Toolkit Remove
	Stroke Risk in Children with Sickle Cell Disease - TCDi Imaging Transcranial Doppler (TCDi) ultrasonography Check all Current Age Add to Toolkit Remove
	Sustained and Selective Attention The Conners Continuous Performance Test 3 (CPT 3™) Check all Current Age Add to Toolkit Remove
	Pain Brief Pain Inventory©(BPI), Short Form Remove This protocol is retired.
	History of Stroke - Ischemic Infarction and Hemorrhage Jackson Heart Study (JHS) Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Executive Function The Trail Making Test - Adult Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Executive Function - Child The Behavior Rating Inventory of Executive Function (BRIEF) Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Migraine - Adult American Migraine Study II, Self-Administered Questionnaire for Migraine Check all Current Age Add to Toolkit Remove
	Migraine - Children The Pediatric Migraine Disability Assessment (PedMIDAS) Check all Current Age Add to Toolkit Remove
	Verbal Memory - Adult Wechsler Memory Scale®, Logical Memory subtest, Fourth Edition (WMS®-IV) Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Verbal Memory - Child Childrens Memory Scale® (CMS), Verbal Memory subscales Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Visual Memory - Adult Wechsler Memory Scale®, Visual Reproductions subtest, Fourth Edition (WMS®-IV) Check all Current Age Add to Toolkit Remove
	Visual Memory - Child Childrens Memory Scale® (CMS), Visual Memory subtest Check all Current Age Add to Toolkit Remove
	Working Memory - Adult Wechsler Adult Intelligence Scale®, Digit Span subtest, Fourth Edition (WAIS®-IV) Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Working Memory - Child Childrens Memory Scale® (CMS), Attention and Concentration subtests Check all Current Age Ethnicity and Race Sex Assigned at Birth Add to Toolkit Remove
	Motor and Attentional Impulsivity (Immediate and Delayed Memory Task) Immediate and Delayed Memory Task (IMT/DMT) Check all Current Age Add to Toolkit Remove
	Health Quality Index for Economic Evaluations - Child and Adolescent EuroQol Group - EQ-5D-Y Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
	Health Quality Index for Economic Evaluations - Adult EQ-5D-3L Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
	Impairment - Adolescent The Columbia Impairment Scale (CIS) Remove
	Impairment - Adult The World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) Remove
	Service Utilization and Cost Global Appraisal of Individual Needs (GAIN) Check all Current Age Add to Toolkit Remove
	Screening and Severity of Substance Use Problems - Adults - Alcohol - Past 12 Months Alcohol Use Disorders Identification Test (AUDIT) Check all Alcohol - Lifetime Use Current Age Sex Assigned at Birth Substances - Lifetime Use Add to Toolkit Remove
	Screening and Severity of Substance Use Problems - Adolescents Treatment Improvement Protocol (TIP) Services, Simple Screening Instrument for Alcohol and Other Drugs (SSI-AOD) Check all Alcohol - Lifetime Use Current Age Sex Assigned at Birth Substances - Lifetime Use Add to Toolkit Remove
	Screening and Severity of Substance Use Problems - Adults - Alcohol - Lifetime Brief Michigan Alcoholism Screening Test (Brief MAST) Check all Alcohol - Lifetime Use Current Age Sex Assigned at Birth Substances - Lifetime Use Add to Toolkit Remove
	Screening and Severity of Substance Use Problems - Adults - Drugs Drug Abuse Screening Test (DAST-10) Check all Alcohol - Lifetime Use Current Age Sex Assigned at Birth Substances - Lifetime Use Add to Toolkit Remove
	Alcohol - 30-Day Quantity and Frequency National Survey on Drug Use and Health (NSDUH), 2015 & National Institute on Alcohol Abuse and Alcoholism (NIAAA) National Epidemiologic Survey on Alcohol and Related Conditions, Wave 1 (NESARC - WAVE 1)/Alcohol Use Disorder and Associated Disabilities Interview Schedule-IV (AUDADIS-IV) Check all Alcohol - Lifetime Use Current Age Add to Toolkit Remove
	Substances - 30-Day Frequency National Survey on Drug Use and Health (NSDUH), 2015 Check all Current Age Substances - Lifetime Use Add to Toolkit Remove
	Quality of Life Enjoyment and Satisfaction - Adult Quality of Life Enjoyment and Satisfaction Questionnaire - Short Form (Q-LES-Q-SF) Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
	Quality of Life Enjoyment and Satisfaction - Children Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q) Check all Current Age Sex Assigned at Birth Add to Toolkit Remove
	Short Form-McGill Pain Questionnaire-2 (SF-MPQ-2) Short-form McGill Pain Questionnaire (SF-MPQ-2) Remove This protocol is retired.
	Adolescent Pediatric Pain Tool (APPT) Adolescent Pediatric Pain Tool (APPT) Remove This protocol is retired.
	Physical, Social, and Mental Health Functioning (SF-36V2) SF-36v2 Health Survey Check all Current Age Add to Toolkit Remove
Total Protocols in My Toolkit: 77

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2025 March 31). Sickle Cell Disease Health-Related Stigma - Child. https://www.phenxtoolkit.org/protocols/view/870101

PhenX Toolkit. (2025 March 31). Sickle Cell Disease Health-Related Internal Stigma - Adolescent and Adult. https://www.phenxtoolkit.org/protocols/view/870301

PhenX Toolkit. (2025 March 31). Reactions to Loss. https://www.phenxtoolkit.org/protocols/view/870501

PhenX Toolkit. (2025 March 31). Sickle Cell Disease Responses to Stress - Youth. https://www.phenxtoolkit.org/protocols/view/870701

PhenX Toolkit. (2025 March 31). Sickle Cell Disease Responses to Stress - Parent Report. https://www.phenxtoolkit.org/protocols/view/870702

PhenX Toolkit. (2025 March 31). Sickle Cell Disease Transition Readiness Assessment. https://www.phenxtoolkit.org/protocols/view/870901

PhenX Toolkit. (2025 March 31). Trust in the Medical Professional - Adult. https://www.phenxtoolkit.org/protocols/view/871001

PhenX Toolkit. (2025 March 31). Trust in Medical Researchers - 12-Item. https://www.phenxtoolkit.org/protocols/view/871101

PhenX Toolkit. (2025 March 31). Trust in Medical Researchers - 4-Item. https://www.phenxtoolkit.org/protocols/view/871102

PhenX Toolkit. (2025 March 31). Religious Behaviors and Congregational Support. https://www.phenxtoolkit.org/protocols/view/281601

PhenX Toolkit. (2025 March 31). Sickle Cell Disease Self-Management - Adolescent Skills Checklist. https://www.phenxtoolkit.org/protocols/view/870801

PhenX Toolkit. (2025 March 31). Sickle Cell Disease Self-Management - Caregiver Skills Checklist. https://www.phenxtoolkit.org/protocols/view/870802

PhenX Toolkit. (2025 March 31). Prolonged Grief Disorder. https://www.phenxtoolkit.org/protocols/view/871201

PhenX Toolkit. (2025 March 31). Resilience. https://www.phenxtoolkit.org/protocols/view/870601

PhenX Toolkit. (2025 March 31). Sickle Cell Disease Health-Related External Stigma - Adolescent and Adult. https://www.phenxtoolkit.org/protocols/view/870202

PhenX Toolkit. (2025 March 31). Annual Family Income. https://www.phenxtoolkit.org/protocols/view/11102

PhenX Toolkit. (2025 March 31). Birthplace. https://www.phenxtoolkit.org/protocols/view/10201

PhenX Toolkit. (2025 March 31). Birthplace of Parents. https://www.phenxtoolkit.org/protocols/view/10301

PhenX Toolkit. (2025 March 31). Birthplace of Grandparents. https://www.phenxtoolkit.org/protocols/view/10401

PhenX Toolkit. (2025 March 31). Educational Attainment - Individual. https://www.phenxtoolkit.org/protocols/view/11002

PhenX Toolkit. (2025 March 31). Current Employment Status. https://www.phenxtoolkit.org/protocols/view/11301

PhenX Toolkit. (2025 March 31). Current Marital Status. https://www.phenxtoolkit.org/protocols/view/10903

PhenX Toolkit. (2025 March 31). Health Insurance Coverage. https://www.phenxtoolkit.org/protocols/view/11502

PhenX Toolkit. (2025 March 31). Marital Status of Primary Caregiver. https://www.phenxtoolkit.org/protocols/view/840101

PhenX Toolkit. (2025 March 31). Pediatric School Performance. https://www.phenxtoolkit.org/protocols/view/840201

PhenX Toolkit. (2025 March 31). Years Living in the U.S.. https://www.phenxtoolkit.org/protocols/view/11201

PhenX Toolkit. (2025 March 31). Medication Inventory. https://www.phenxtoolkit.org/protocols/view/140301

PhenX Toolkit. (2025 March 31). Frequency of Sickle Cell Pain Episodes Per Year. https://www.phenxtoolkit.org/protocols/view/830101

PhenX Toolkit. (2025 March 31). History of Transfusion. https://www.phenxtoolkit.org/protocols/view/830201

PhenX Toolkit. (2025 March 31). Quality of Life - Pediatric. https://www.phenxtoolkit.org/protocols/view/221301

PhenX Toolkit. (2025 March 31). Quality of Life - Adult. https://www.phenxtoolkit.org/protocols/view/221302

PhenX Toolkit. (2025 March 31). Quality of Care - Adults. https://www.phenxtoolkit.org/protocols/view/820101

PhenX Toolkit. (2025 March 31). Quality of Care - Children. https://www.phenxtoolkit.org/protocols/view/820102

PhenX Toolkit. (2025 March 31). Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). https://www.phenxtoolkit.org/protocols/view/820201

PhenX Toolkit. (2025 March 31). PedsQL Sickle Cell Disease Module. https://www.phenxtoolkit.org/protocols/view/820202

PhenX Toolkit. (2025 March 31). Self-efficacy in Sickle Cell Disease. https://www.phenxtoolkit.org/protocols/view/820401

PhenX Toolkit. (2025 March 31). Intelligence Scale - 16 to 90 years. https://www.phenxtoolkit.org/protocols/view/820501

PhenX Toolkit. (2025 March 31). Intelligence Scale - 2 years, 6 months to 7 years, 7 months. https://www.phenxtoolkit.org/protocols/view/820502

PhenX Toolkit. (2025 March 31). Intelligence Scale - 6 to 16 years 11 months. https://www.phenxtoolkit.org/protocols/view/820503

PhenX Toolkit. (2025 March 31). Intelligence Scale - Birth to 3.5 years. https://www.phenxtoolkit.org/protocols/view/820504

PhenX Toolkit. (2025 March 31). Adaptive Behavior/Adaptive Function. https://www.phenxtoolkit.org/protocols/view/820601

PhenX Toolkit. (2025 March 31). Stroke Impact Scale (SIS) - Adults. https://www.phenxtoolkit.org/protocols/view/820701

PhenX Toolkit. (2025 March 31). Recovery and Recurrence Questionnaire (RRQ) - Pediatrics. https://www.phenxtoolkit.org/protocols/view/820702

PhenX Toolkit. (2025 March 31). NIH Stroke Scale (NIHSS). https://www.phenxtoolkit.org/protocols/view/820801

PhenX Toolkit. (2025 March 31). Pediatric NIH Stroke Scale (PedNIHSS). https://www.phenxtoolkit.org/protocols/view/820802

PhenX Toolkit. (2025 March 31). Stroke Risk in Children with Sickle Cell Disease - TCD. https://www.phenxtoolkit.org/protocols/view/821001

PhenX Toolkit. (2025 March 31). Stroke Risk in Children with Sickle Cell Disease - TCDi. https://www.phenxtoolkit.org/protocols/view/821002

PhenX Toolkit. (2025 March 31). Sustained and Selective Attention. https://www.phenxtoolkit.org/protocols/view/821201

PhenX Toolkit. (2025 March 31). Pain. https://www.phenxtoolkit.org/protocols/view/170401

PhenX Toolkit. (2025 March 31). History of Stroke - Ischemic Infarction and Hemorrhage. https://www.phenxtoolkit.org/protocols/view/130301

PhenX Toolkit. (2025 March 31). Executive Function. https://www.phenxtoolkit.org/protocols/view/131101

PhenX Toolkit. (2025 March 31). Executive Function - Child. https://www.phenxtoolkit.org/protocols/view/131102

PhenX Toolkit. (2025 March 31). Migraine - Adult. https://www.phenxtoolkit.org/protocols/view/130501

PhenX Toolkit. (2025 March 31). Migraine - Children. https://www.phenxtoolkit.org/protocols/view/130502

PhenX Toolkit. (2025 March 31). Verbal Memory - Adult. https://www.phenxtoolkit.org/protocols/view/130801

PhenX Toolkit. (2025 March 31). Verbal Memory - Child. https://www.phenxtoolkit.org/protocols/view/130802

PhenX Toolkit. (2025 March 31). Visual Memory - Adult. https://www.phenxtoolkit.org/protocols/view/130901

PhenX Toolkit. (2025 March 31). Visual Memory - Child. https://www.phenxtoolkit.org/protocols/view/130902

PhenX Toolkit. (2025 March 31). Working Memory - Adult. https://www.phenxtoolkit.org/protocols/view/131001

PhenX Toolkit. (2025 March 31). Working Memory - Child. https://www.phenxtoolkit.org/protocols/view/131002

PhenX Toolkit. (2025 March 31). Motor and Attentional Impulsivity (Immediate and Delayed Memory Task). https://www.phenxtoolkit.org/protocols/view/530602

PhenX Toolkit. (2025 March 31). Health Quality Index for Economic Evaluations - Child and Adolescent. https://www.phenxtoolkit.org/protocols/view/560402

PhenX Toolkit. (2025 March 31). Health Quality Index for Economic Evaluations - Adult. https://www.phenxtoolkit.org/protocols/view/560403

PhenX Toolkit. (2025 March 31). Impairment - Adolescent. https://www.phenxtoolkit.org/protocols/view/610101

PhenX Toolkit. (2025 March 31). Impairment - Adult. https://www.phenxtoolkit.org/protocols/view/610102

PhenX Toolkit. (2025 March 31). Service Utilization and Cost. https://www.phenxtoolkit.org/protocols/view/560702

PhenX Toolkit. (2025 March 31). Screening and Severity of Substance Use Problems - Adults - Alcohol - Past 12 Months. https://www.phenxtoolkit.org/protocols/view/510201

PhenX Toolkit. (2025 March 31). Screening and Severity of Substance Use Problems - Adolescents. https://www.phenxtoolkit.org/protocols/view/510202

PhenX Toolkit. (2025 March 31). Screening and Severity of Substance Use Problems - Adults - Alcohol - Lifetime. https://www.phenxtoolkit.org/protocols/view/510203

PhenX Toolkit. (2025 March 31). Screening and Severity of Substance Use Problems - Adults - Drugs. https://www.phenxtoolkit.org/protocols/view/510204

PhenX Toolkit. (2025 March 31). Alcohol - 30-Day Quantity and Frequency. https://www.phenxtoolkit.org/protocols/view/30301

PhenX Toolkit. (2025 March 31). Substances - 30-Day Frequency. https://www.phenxtoolkit.org/protocols/view/31302

PhenX Toolkit. (2025 March 31). Quality of Life Enjoyment and Satisfaction - Adult. https://www.phenxtoolkit.org/protocols/view/180302

PhenX Toolkit. (2025 March 31). Quality of Life Enjoyment and Satisfaction - Children. https://www.phenxtoolkit.org/protocols/view/180303

PhenX Toolkit. (2025 March 31). Short Form-McGill Pain Questionnaire-2 (SF-MPQ-2). https://www.phenxtoolkit.org/protocols/view/190901

PhenX Toolkit. (2025 March 31). Adolescent Pediatric Pain Tool (APPT). https://www.phenxtoolkit.org/protocols/view/190902

PhenX Toolkit. (2025 March 31). Physical, Social, and Mental Health Functioning (SF-36V2). https://www.phenxtoolkit.org/protocols/view/191201

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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