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DD = Data Dictionary
DCW = Data Collection Worksheet

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Essential Protocols

Total Protocols in My Toolkit: 66
	Adequacy of Prenatal Care Kotelchuck Index (Adequacy of Prenatal Care Utilization (APNCU)) Check all Gestational Age - Maternal Interview Gestational Age - Medical Record Abstraction Add to Toolkit Remove
	Concentrations of Flame Retardants National Health and Nutrition Examination Survey (NHANES), Laboratory Procedure Manual, 2005-2006 Check all Current Age Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Gestational Age - Maternal Interview Gestational Age - Medical Record Abstraction Add to Toolkit Remove
	Concentrations of Phenols and Parabens National Health and Nutrition Examination Survey (NHANES) Laboratory Procedure Manual, 2011-2012 Check all Current Age Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Gestational Age - Maternal Interview Gestational Age - Medical Record Abstraction Add to Toolkit Remove
	Concentrations of Polychlorinated Biphenyls (PCBs) and Persistent Pesticides National Health and Nutrition Examination Survey (NHANES), Laboratory Procedure Manual, 2005-2006 Check all Current Age Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Gestational Age - Maternal Interview Gestational Age - Medical Record Abstraction Add to Toolkit Remove
	Concentrations of Trace Metals National Health and Nutrition Examination Survey (NHANES), Laboratory Procedure Manual, 2003-2004 Check all Current Age Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Gestational Age - Maternal Interview Gestational Age - Medical Record Abstraction Add to Toolkit Remove
	Current Pregnancy Status - Bioassay National Health and Nutrition Examination Survey (NHANES) Mobile Examination Center (MEC) Laboratory Procedures Manual, 2013-2014 Check all Current Age Add to Toolkit Remove
	Current Pregnancy Status - Self-Report National Health and Nutrition Examination Survey (NHANES), Reproductive Health Module, 2021-2023 Check all Current Age Add to Toolkit Remove
	Difficulties in Pregnancy Nulliparous Pregnancy Outcomes Study Monitoring Mothers-to-Be (nuMoM2b), Difficulties in Pregnancy, 2010 Remove
	Family History of Pregnancy Complications Nulliparous Pregnancy Outcomes Study Monitoring Mothers-to-Be (nuMoM2b), Difficulties in Pregnancy, 2011 Check all Current Age Add to Toolkit Remove
	Fetal Growth Assessment - Percentiles for U.S. Populations Hadlock, F.P., et al. Racial/ethnic standards for fetal groth: the NICHD Fetal Growth Studies. Am J Obstet Gynecol, 2015 Remove
	Gestational Age - Maternal Interview Boston Medical Center, Extremely Low Gestational Age Newborns (ELGAN) Study, Maternal Interview, 2002 Check all Current Age Add to Toolkit Remove
	Gestational Age - Medical Record Abstraction Project Gestational Age Check all Current Age Add to Toolkit Remove
	Gestational Diabetes Nulliparous Pregnancy Outcomes Study Monitoring Mothers-to-Be (nuMoM2b): CLA Prenatal Labs, Version 04 Check all Current Pregnancy Status - Bioassay Current Pregnancy Status - Self-Report Add to Toolkit Remove
	Health and Wellness Before, During, and After Pregnancy Early Life Exposure Assessment Tool (ELEAT), 2015 Remove
	Mode of Conception - Interview Pregnancy Risk Assessment Monitoring System (PRAMS), Phase 7 Remove
	Mode of Conception - Medical Record Abstraction Extremely Low Gestational Age Newborns (ELGAN) Chart Abstraction Form, 2002 Remove
	Mode of Delivery - Interview Pregnancy Risk Assessment Monitoring System (PRAMS), Phase 7 Remove
	Mode of Delivery - Medical Record Abstraction A Randomized Trial of Induction Versus Expectant Management (ARRIVE), 2016 Remove
	Prenatal and Postpartum Depression The Edinburgh Postnatal Depression Scale© (EPDS) Check all Current Age Current Marital Status Ethnicity and Race Add to Toolkit Remove
	Alkaline Phosphatase National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007 Check all Current Age Add to Toolkit Remove
	Arthritis/Osteoarthritis A Knee Health Study, The Kellgren-Lawrence Grading Scale, version 2.1, August 2006 Check all Current Age Add to Toolkit Remove
	Axial Spondyloarthritis (AxSpA) Bath Ankylosing Spondylitis Disease Activity Index (BASDAI) Remove
	Fracture History Study of Osteoporotic Fractures (SOF), History of Fractures Questionnaire & Framingham Osteoporosis Study Fracture Assessment Check all Current Age Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Gout Flare Definition of Flare in Patients with Established Gout Check all Alcohol - 30-Day Quantity and Frequency Add to Toolkit Remove
	Knee Pain - Past 30 Days Multicenter Osteoarthritis Study (MOST) Baseline Telephone Screening Interview, Screening visit, 2003, Grant cycles 1 & 2. Check all Current Age Add to Toolkit Remove
	Low Back Pain Disability Index Roland-Morris Disability Questionnaire (RMDQ) Check all Current Age Add to Toolkit Remove
	Pain - Body Map Michigan Body Map (MBM) Remove
	Psoriatic Arthritis (PsA) - Impact of Disease European Alliance of Associations for Rheumatology (EULAR) Psoriatic Arthritis Impact of Disease: PsAID12 for Clinical Practice Remove
	Psoriatic Arthritis (PsA) - Screening Psoriasis Epidemiology Screening Tool (PEST) Remove
	Rheumatoid arthritis disease activity Clinical Disease Activity Index (CDAI) Remove
	Spine and Femur Bone Density by Dual-Energy X-ray Absorptiometry Framingham Osteoporosis Study, Generation 3, Musculoskeletal Exam Check all Current Age Ethnicity and Race Height - Knee Height Height - Recumbent Length Height - Self-Reported Height Height - Standing Height Weight - Measured Weight Weight - Self-Reported Weight Add to Toolkit Remove
	Systemic Lupus Erythematosus Damage Index for Systemic Lupus Erythematosus Arthritis Check all Autoimmune Diseases Related to Type I Diabetes Current Age Add to Toolkit Remove
	Vertebral Fracture Assessment (VFA) Vertebral Fracture: Lateral Spine DXA or X-ray Check all Current Age Spine and Femur Bone Density by Dual-Energy X-ray Absorptiometry Add to Toolkit Remove
	Epilepsy Screener - Adult Ottman Brief Epilepsy Screener, Self-reported Version Check all Current Age Add to Toolkit Remove
	Epilepsy Screener - Child/Proxy Ottman Brief Epilepsy Screener, Proxy-reported Version Check all Current Age Add to Toolkit Remove
	Executive Function The Trail Making Test - Adult Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Child The Behavior Rating Inventory of Executive Function (BRIEF) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Direct Assessment - Adolescent The Trail Making Test (TMT) for Older Children Remove
	Executive Function - Direct Assessment - Adult The Trail Making Test (TMT) Remove
	Executive Function - Questionnaire - Adult Behavior Rating Inventory of Executive Function®-Adult Version (BRIEF®-A) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Questionnaire - Children Behavior Rating Inventory of Executive Function® (BRIEF®) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Executive Function - Questionnaire - Preschool Children The Behavior Rating Inventory of Executive Function® (BRIEF®) - Preschool Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Global Mental Status Screener - Adult Montreal Cognitive Assessment (MOCA©) Check all Current Age Educational Attainment - Individual Ethnicity and Race Add to Toolkit Remove
	Global Mental Status Screener - Child The Ages & Stages Questionnaires®, Third Edition (ASQ®-3) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Global Mental Status Screener - Older Children and Adolescents Childrens Global Assessment Scale (CGAS) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Gross Motor Function - 2-4 Years Old Gross Motor Function Classification System Family Report Questionnaire (GMFCS) Check all Current Age Add to Toolkit Remove
	Gross Motor Function - 4-6 Years Old Gross Motor Function Classification System (GMFCS), Family Report Questionnaire Check all Current Age Add to Toolkit Remove
	Gross Motor Function - 6-12 Years Old Gross Motor Function Classification System (GMFCS), Family Report Questionnaire Check all Current Age Add to Toolkit Remove
	History of Head Trauma The Ohio State University Traumatic Brain Injury Identification Method Short Form (OSU TBI-ID) Check all Current Age Add to Toolkit Remove
	History of Stroke - Ischemic Infarction and Hemorrhage Jackson Heart Study (JHS) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Migraine - Adult American Migraine Study II, Self-Administered Questionnaire for Migraine Check all Current Age Add to Toolkit Remove
	Migraine - Children The Pediatric Migraine Disability Assessment (PedMIDAS) Check all Current Age Add to Toolkit Remove
	Neuropathy - Autonomic Assessment - Adult Survey of Autonomic Symptoms (SAS) Check all Current Age Add to Toolkit Remove
	Neuropathy - Clinical Assessment Charcot-Marie-Tooth Neuropathy Score Check all Current Age Add to Toolkit Remove
	Nonverbal Reasoning Ravens Progressive Matrices Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Parkinsons Disease Screener - Questionnaire National Heart, Lung, and Blood Institute (NHLBI), & Framingham Heart Study, 2011 Check all Current Age Add to Toolkit Remove
	Parkinsons Disease Symptoms Movement Disorder Society United Parkinsons Disease Rating Scale (MDS-UPDRS) Check all Current Age Add to Toolkit Remove
	Signs of Essential Tremor Washington Heights-Inwood Genetic Study of Essential Tremor (WHIGET) Tremor Rating Scale Check all Current Age Add to Toolkit Remove
	Spatial Reasoning - Adolescents and Adults Wechsler Adult Intelligence Scale®, Block Design Test, Fourth Edition (WAIS®-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Symptoms of Restless Legs Syndrome The Restless Legs Syndrome Rating Scale Remove
	Verbal Memory - Adult Wechsler Memory Scale®, Logical Memory subtest, Fourth Edition (WMS®-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Verbal Memory - Child Childrens Memory Scale® (CMS), Verbal Memory subscales Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Visual Memory - Adult Wechsler Memory Scale®, Visual Reproductions subtest, Fourth Edition (WMS®-IV) Check all Current Age Add to Toolkit Remove
	Visual Memory - Child Childrens Memory Scale® (CMS), Visual Memory subtest Check all Current Age Add to Toolkit Remove
	Working Memory - Adult Wechsler Adult Intelligence Scale®, Digit Span subtest, Fourth Edition (WAIS®-IV) Check all Current Age Ethnicity and Race Add to Toolkit Remove
	Working Memory - Child Childrens Memory Scale® (CMS), Attention and Concentration subtests Check all Current Age Ethnicity and Race Add to Toolkit Remove
Total Protocols in My Toolkit: 66

Essential Protocols are needed to interpret your data. Add all Essential Protocols to your Toolkit.

Create Citations

To cite protocols in My Toolkit, copy & paste the text below:

PhenX Toolkit. (2026 January 28). Adequacy of Prenatal Care. https://www.phenxtoolkit.org/protocols/view/240101

PhenX Toolkit. (2026 January 28). Concentrations of Flame Retardants. https://www.phenxtoolkit.org/protocols/view/240201

PhenX Toolkit. (2026 January 28). Concentrations of Phenols and Parabens. https://www.phenxtoolkit.org/protocols/view/240301

PhenX Toolkit. (2026 January 28). Concentrations of Polychlorinated Biphenyls (PCBs) and Persistent Pesticides. https://www.phenxtoolkit.org/protocols/view/240401

PhenX Toolkit. (2026 January 28). Concentrations of Trace Metals. https://www.phenxtoolkit.org/protocols/view/240501

PhenX Toolkit. (2026 January 28). Current Pregnancy Status - Bioassay. https://www.phenxtoolkit.org/protocols/view/240601

PhenX Toolkit. (2026 January 28). Current Pregnancy Status - Self-Report. https://www.phenxtoolkit.org/protocols/view/240603

PhenX Toolkit. (2026 January 28). Difficulties in Pregnancy. https://www.phenxtoolkit.org/protocols/view/240701

PhenX Toolkit. (2026 January 28). Family History of Pregnancy Complications. https://www.phenxtoolkit.org/protocols/view/240801

PhenX Toolkit. (2026 January 28). Fetal Growth Assessment - Percentiles for U.S. Populations. https://www.phenxtoolkit.org/protocols/view/241501

PhenX Toolkit. (2026 January 28). Gestational Age - Maternal Interview. https://www.phenxtoolkit.org/protocols/view/240901

PhenX Toolkit. (2026 January 28). Gestational Age - Medical Record Abstraction. https://www.phenxtoolkit.org/protocols/view/240902

PhenX Toolkit. (2026 January 28). Gestational Diabetes. https://www.phenxtoolkit.org/protocols/view/241001

PhenX Toolkit. (2026 January 28). Health and Wellness Before, During, and After Pregnancy. https://www.phenxtoolkit.org/protocols/view/241101

PhenX Toolkit. (2026 January 28). Mode of Conception - Interview. https://www.phenxtoolkit.org/protocols/view/241201

PhenX Toolkit. (2026 January 28). Mode of Conception - Medical Record Abstraction. https://www.phenxtoolkit.org/protocols/view/241202

PhenX Toolkit. (2026 January 28). Mode of Delivery - Interview. https://www.phenxtoolkit.org/protocols/view/241301

PhenX Toolkit. (2026 January 28). Mode of Delivery - Medical Record Abstraction. https://www.phenxtoolkit.org/protocols/view/241302

PhenX Toolkit. (2026 January 28). Prenatal and Postpartum Depression. https://www.phenxtoolkit.org/protocols/view/241401

PhenX Toolkit. (2026 January 28). Alkaline Phosphatase. https://www.phenxtoolkit.org/protocols/view/170101

PhenX Toolkit. (2026 January 28). Arthritis/Osteoarthritis. https://www.phenxtoolkit.org/protocols/view/170201

PhenX Toolkit. (2026 January 28). Axial Spondyloarthritis (AxSpA). https://www.phenxtoolkit.org/protocols/view/171101

PhenX Toolkit. (2026 January 28). Fracture History. https://www.phenxtoolkit.org/protocols/view/170901

PhenX Toolkit. (2026 January 28). Gout Flare. https://www.phenxtoolkit.org/protocols/view/171401

PhenX Toolkit. (2026 January 28). Knee Pain - Past 30 Days. https://www.phenxtoolkit.org/protocols/view/171501

PhenX Toolkit. (2026 January 28). Low Back Pain Disability Index. https://www.phenxtoolkit.org/protocols/view/171601

PhenX Toolkit. (2026 January 28). Pain - Body Map. https://www.phenxtoolkit.org/protocols/view/171701

PhenX Toolkit. (2026 January 28). Psoriatic Arthritis (PsA) - Impact of Disease. https://www.phenxtoolkit.org/protocols/view/172001

PhenX Toolkit. (2026 January 28). Psoriatic Arthritis (PsA) - Screening. https://www.phenxtoolkit.org/protocols/view/171801

PhenX Toolkit. (2026 January 28). Rheumatoid arthritis disease activity. https://www.phenxtoolkit.org/protocols/view/171901

PhenX Toolkit. (2026 January 28). Spine and Femur Bone Density by Dual-Energy X-ray Absorptiometry. https://www.phenxtoolkit.org/protocols/view/170701

PhenX Toolkit. (2026 January 28). Systemic Lupus Erythematosus. https://www.phenxtoolkit.org/protocols/view/171001

PhenX Toolkit. (2026 January 28). Vertebral Fracture Assessment (VFA). https://www.phenxtoolkit.org/protocols/view/172101

PhenX Toolkit. (2026 January 28). Epilepsy Screener - Adult. https://www.phenxtoolkit.org/protocols/view/130401

PhenX Toolkit. (2026 January 28). Epilepsy Screener - Child/Proxy. https://www.phenxtoolkit.org/protocols/view/130402

PhenX Toolkit. (2026 January 28). Executive Function. https://www.phenxtoolkit.org/protocols/view/131101

PhenX Toolkit. (2026 January 28). Executive Function - Child. https://www.phenxtoolkit.org/protocols/view/131102

PhenX Toolkit. (2026 January 28). Executive Function - Direct Assessment - Adolescent. https://www.phenxtoolkit.org/protocols/view/131601

PhenX Toolkit. (2026 January 28). Executive Function - Direct Assessment - Adult. https://www.phenxtoolkit.org/protocols/view/131602

PhenX Toolkit. (2026 January 28). Executive Function - Questionnaire - Adult. https://www.phenxtoolkit.org/protocols/view/131501

PhenX Toolkit. (2026 January 28). Executive Function - Questionnaire - Children. https://www.phenxtoolkit.org/protocols/view/131502

PhenX Toolkit. (2026 January 28). Executive Function - Questionnaire - Preschool Children. https://www.phenxtoolkit.org/protocols/view/131503

PhenX Toolkit. (2026 January 28). Global Mental Status Screener - Adult. https://www.phenxtoolkit.org/protocols/view/130701

PhenX Toolkit. (2026 January 28). Global Mental Status Screener - Child. https://www.phenxtoolkit.org/protocols/view/130702

PhenX Toolkit. (2026 January 28). Global Mental Status Screener - Older Children and Adolescents. https://www.phenxtoolkit.org/protocols/view/130703

PhenX Toolkit. (2026 January 28). Gross Motor Function - 2-4 Years Old. https://www.phenxtoolkit.org/protocols/view/131201

PhenX Toolkit. (2026 January 28). Gross Motor Function - 4-6 Years Old. https://www.phenxtoolkit.org/protocols/view/131202

PhenX Toolkit. (2026 January 28). Gross Motor Function - 6-12 Years Old. https://www.phenxtoolkit.org/protocols/view/131203

PhenX Toolkit. (2026 January 28). History of Head Trauma. https://www.phenxtoolkit.org/protocols/view/130601

PhenX Toolkit. (2026 January 28). History of Stroke - Ischemic Infarction and Hemorrhage. https://www.phenxtoolkit.org/protocols/view/130301

PhenX Toolkit. (2026 January 28). Migraine - Adult. https://www.phenxtoolkit.org/protocols/view/130501

PhenX Toolkit. (2026 January 28). Migraine - Children. https://www.phenxtoolkit.org/protocols/view/130502

PhenX Toolkit. (2026 January 28). Neuropathy - Autonomic Assessment - Adult. https://www.phenxtoolkit.org/protocols/view/130202

PhenX Toolkit. (2026 January 28). Neuropathy - Clinical Assessment. https://www.phenxtoolkit.org/protocols/view/130201

PhenX Toolkit. (2026 January 28). Nonverbal Reasoning. https://www.phenxtoolkit.org/protocols/view/131701

PhenX Toolkit. (2026 January 28). Parkinsons Disease Screener - Questionnaire. https://www.phenxtoolkit.org/protocols/view/131901

PhenX Toolkit. (2026 January 28). Parkinsons Disease Symptoms. https://www.phenxtoolkit.org/protocols/view/130102

PhenX Toolkit. (2026 January 28). Signs of Essential Tremor. https://www.phenxtoolkit.org/protocols/view/131301

PhenX Toolkit. (2026 January 28). Spatial Reasoning - Adolescents and Adults. https://www.phenxtoolkit.org/protocols/view/131801

PhenX Toolkit. (2026 January 28). Symptoms of Restless Legs Syndrome. https://www.phenxtoolkit.org/protocols/view/131401

PhenX Toolkit. (2026 January 28). Verbal Memory - Adult. https://www.phenxtoolkit.org/protocols/view/130801

PhenX Toolkit. (2026 January 28). Verbal Memory - Child. https://www.phenxtoolkit.org/protocols/view/130802

PhenX Toolkit. (2026 January 28). Visual Memory - Adult. https://www.phenxtoolkit.org/protocols/view/130901

PhenX Toolkit. (2026 January 28). Visual Memory - Child. https://www.phenxtoolkit.org/protocols/view/130902

PhenX Toolkit. (2026 January 28). Working Memory - Adult. https://www.phenxtoolkit.org/protocols/view/131001

PhenX Toolkit. (2026 January 28). Working Memory - Child. https://www.phenxtoolkit.org/protocols/view/131002

Data Dictionary and Data Collection Worksheet

Data Collection Worksheet (DCW): The DCW identifies each data and metadata item to be collected as required by the protocol. The DCW is provided as an MS Word document to facilitate easy integration into existing study documentation.

Data Dictionary (DD): The DD lists each variable collected by a protocol data collection worksheet (DCW) and its attributes. DDs are available in three formats: 1) RTF format captures skip patterns commonly used in epidemiologic studies; 2) CSV format is compatible with the database of Genotypes and Phenotypes (dbGaP) data submission packet; 3) REDCap ZIP file format is suitable for upload to studies being implemented in REDCap.

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