Pain Coping - Child
Pain Coping Questionnaire - Short Form
Pain Intensity - Adolescent and Adult
Patient-Reported Outcomes Measurement Information System (PROMIS® ) Numeric Rating Scale v.1.0 - Pain Intensity - 1a
Pain Intensity - Toddler
Revised Face, Legs, Activity, Cry, Consolability (FLACC) Pain Tool
Pain Interference - Adult
Patient-Reported Outcomes Measurement Information System (PROMIS® ) Item Bank v1.1 - Pain Interference - Short Form 8a
Pain Interference - Child
Patient-Reported Outcomes Measurement Information System (PROMIS® ) Pediatric Item Bank v2.0 - Pain Interference - Short Form 8a
Pain Interference - Parent Proxy
Patient-Reported Outcome Measurement Information System (PROMIS® ) Parent Proxy Item Bank v2.0 - Pain Interference - Short Form 8a
Pain Location Body Map - Child
Childhood Arthritis and Rheumatology Research Alliance (CARRA) Pain Chart
Pain Quality Descriptors (Affective) - Children
Patient-Reported Outcomes Measurement Information System (PROMIS® ) Pediatric Short Form v2.0 - Pain Quality - Affective 8a
Pain Quality Descriptors (Neuropathic) - Adult
Patient-Reported Outcomes Measurement Information System (PROMIS® ) Scale v2.0 - Neuropathic Pain Quality 5a
Pain Quality Descriptors (Nociceptive) - Adult
Patient-Reported Outcomes Measurement Information System (PROMIS® ) Scale v2.0 - Nociceptive Pain Quality 5a
Pain Quality Descriptors (Sensory) - Children
Patient-Reported Outcomes Measurement Information System (PROMIS® ) Pediatric Short Form v2.0 - Pain Quality - Sensory 8a
Parkinsons Disease Symptoms
Movement Disorder Society United Parkinsons Disease Rating Scale (MDS-UPDRS)
Passive Exposures to Tobacco Products
National Adult Tobacco Survey (NATS), 2009 and the Population Assessment of Tobacco and Health (PATH) Survey, 2023
Passive Smoke Exposure
Molecular Epidemiology Case-Series Study of Non-Small Cell Lung Cancer in Smoking and Non-Smoking Women and Men
Patient Centered Communication - Cancer
Patient-Centered Communication in Cancer Care © (PCC-Ca) - 36 items (long form)
Patient Experience with Cancer Care - Cancer Surgery
Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Cancer surgery
Patient Experience with Cancer Care - Drug Therapy
Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Drug Therapy
Patient Experience with Cancer Care - Radiation Therapy
Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Cancer Care Survey, Version: Radiation Therapy
Patterns of Substance Use - Adults - Binge-Drinking
National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Peak Expiratory Flow Rate (PEFR)
Miller, M. R., et al, Standardization of spirometry. Series “ATS/ERS task force: Standardization of lung function testing.”, EUR RESPIR J, 2005
Pediatric School Performance
Pediatric Hydroxyurea, Phase III Clinical Trial (BABY HUG), Part VII: Education - School Questionnaire
Peer and Family Influence on Smoking
The International Tobacco Control Policy Evaluation Project (ITC). Youth and Young Adult Tobacco & Vaping Survey, Wave 7 Survey, August 2023
Percent Energy from Fat
National Cancer Institute (NCI), Percentage energy from fat short instrument (PFat), 1996
Perception of Tobacco Product Harm - Cigarettes
Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 3 Adult Annotated Instrument, 2018
Perception of Tobacco Product Harm - Cigars
Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018
Perception of Tobacco Product Harm - E-Cigarettes
Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016
Perception of Tobacco Product Harm - Pipe Tobacco
Population Assessment of Tobacco and Health (PATH) Study, PATH Wave 1 Adult Annotated Instrument, 2016
Perception of Tobacco Product Harm - Smokeless Tobacco
Population Assessment of Tobacco and Health (PATH) Study, PATH Waves 1 and 3 Adult Annotated Instrument, 2016-2018
Perceptions of Housing Insecurity
The Accountable Health Communities (AHC) Health-Related Social Needs (HRSN) Screening Tool
Peripheral Arterial Disease
Womens Health Initiative (WHI), ACC/AHA Task Force on Practice Guidelines, & Hispanic Community Health Study (HCHS)
Personal and Family History of Psoriasis
Collaborative Association Study of Psoriasis (CASP), Self Evaluation plus Medication Survey
Personal and Family History of Strabismus
Childrens Hospital Boston, Participant Contact Details and Medical Questionnaire, 2008
Personal Care Products
Study of Use of Products and Exposure-Related Behavior (SUPERB) Study, Tier 1 Adult Questionnaire
Personal History of Gastrointestinal Conditions
National Heart, Lung, and Blood Institute (NHLBI) and National Cancer Institute (NCI), Health Professionals Follow-Up Study, 2008
Personal Well-being Index - Adult
International Wellbeing Group, Personal Wellbeing Index-Adult (PWI-A) (5th Ed.), 2013
Phonological Inventory
Goldman-Fristoe Test of Articulation™, Third Edition (GFTA™-3)
Physical Activity
International Physical Activity Questionnaire (IPAQ-7)
Physical Activity Readiness
Physical Activity Readiness Questionnaire for Everyone (PAR-Q+)
Physical Activity Self-Efficacy - Adult
McAuley, E. The role of efficacy cognitions in the prediction of exercise behavior in middle-aged adults. BEHAV MED, 1992
Physical Functioning - Subjective
National Health and Nutrition Examination Survey (NHANES), Sample Person Questionnaire: Physical Functioning Module, 2005-2006
Physical Mobility - Adult
Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank v2.1 - Mobility
Physical Mobility - Child
Patient-Reported Outcomes Measurement Information System® (PROMIS) Pediatric Item Bank v2.0 - Mobility - Short Form 8a
Pre-transfusion Antibody Testing
Sickle Cell Disease and Cardiovascular Risk—Red Cell Exchange Trial (SCD CARRE)
Pregnancy Status and Tobacco Use
Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)
Presence of Dental Fluorosis
National Institute of Dental and Craniofacial Research (NIDCR), Archive of Procedures and Methods Used in Oral Health Surveys, Tooth Surface Index of Fluorosis (TSIF)
Priapism Impact
Priapism Impact Profile (PIP) Questionnaire
Professional Dental Care
National Health and Nutrition Examination Survey (NHANES), Oral Health Questions, 2003-2004
Program Evaluation: Patient Uptake of Genetic Services
Reach Effectiveness Adoption Implementation and Maintenance (RE-AIM) Checklist for Study or Intervention Planning
Prolonged Abstinence from Tobacco Products
Adjunctive Mood Management for Telephone-based Smoking Cessation in Primary Care, 2016-2019.
Malinowski AK, et al. Prophylactic transfusion for pregnant women with sickle cell disease: a systematic review and meta-analysis. Blood. 2015
Oakley LL, et al. Serial prophylactic exchange blood transfusion in pregnant women with sickle cell disease (TAPS-2): study protocol for a randomised controlled feasibility trial. Trials. 2020
Prostate Symptoms
International Prostate Symptom Score (I-PSS)
Prothrombin Time
Prothrombin Time (PT), CPT 85610
Psoriatic Arthritis (PsA) - Impact of Disease
European Alliance of Associations for Rheumatology (EULAR) Psoriatic Arthritis Impact of Disease: PsAID12 for Clinical Practice
PTSD Symptoms, Severity, and Diagnosis - DSM 5
The Clinician-Administered PTSD Scale (CAPS-5) for The Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5)
PTSD Symptoms, Severity, and Diagnosis - DSM-IV
The Clinician-Administered PTSD Scale (CAPS-IV) for The Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV)
Pulmonary Embolism
Womens Health Initiative (WHI) & Cardiovascular Health Study (CHS)
Pulse Oximetry (Exercise)
AARC Clinical Practice Guideline: Exercise Testing for Evaluation of Hypoxemia and/or Desaturation: revision & update. Resp Care, 2001
Pulse Oximetry (Rest)
World Health Organization (WHO), Pulse oximetry training manual, 2011
Quality of Care - Adults
The Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me), Quality of Care Module
Quality of Care - Children
Consumer Assessment of Healthcare Providers and Systems (CAHPS), Health Plan Survey 4.0, Child Medicaid Questionnaire
Quality of Life - Adult
Patient-Reported Outcomes Measurement Information System® (PROMIS) 29 Profile, v. 2.0 Adult Profile
Quality of Life - Pediatric
Patient-Reported Outcomes Measurement Information System® (PROMIS) Item Bank, v.1.1, Pediatric Profile 25
Quality of Life in Cancer Survivors - Active Treatment
Quality of Life in Cancer Patients European Organisation for the Research and Treatment of Cancer (EORTC) Quality of Life Questionnaire - Core 30 (QLQ-C30)
Quality of the Childs Home Environment
Home Observation for Measurement of the Environment (HOME)-revised edition National Longitudinal Study of Youth Children & Young Adults
Reading Comprehension
Woodcock-Johnson® Tests of Achievement (WJ IV®)
Recurrent Priapism
Center for International Blood and Marrow Transplant (CIBMTR), Form 2030 (R3.0) Sickle Cell Pre-HSCT Data, 2021
Refractive Error - Adult
University of Southern California, Los Angeles Latino Eye Study (LALES), 2000-2003
Refractive Error - Children
The Multi-Ethnic Pediatric Eye Disease Study (MEPEDS), 2002-2008 & Baltimore Pediatric Eye Disease Study (BPEDS), 2003-2007
Reproductive History - Female
Womens Interview Study of Health & Pregnancy Risk Assessment Monitoring System (PRAMS), 2009
Reproductive History - Male
The Longitudinal Investigation of Fertility & the Environment (LIFE) Study, 2005
Residential History
Parkinsons Disease, Environment, and Genes Study (PEG Study), 2001
Resilience
Connor-Davidson Resilience Scale (CD-RISC 25)
Respiratory Rate - Adult
Potter, P. A., et al. Fundamentals of Nursing, 1985
Respiratory Rate - Child
Wallis, L. A., Healy, et al, Age related reference ranges for respiration rate and heart rate from 4 to 16 years, ARCH DIS CHILD, 2005
Respiratory Rate - Infant
Fleming, S, et al. Normal ranges of heart rate and respiratory rate in children from birth to 18 years of age: A systemic review of observational studies. Lancer, 2011
Reticulocyte Count
National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2011
Retinal Digital Photography
National Heart, Lung and Blood Institute (NHLBI), Multi-Ethnic Study of Atherosclerosis (MESA), 2000-2008
School and Work Attendance - Adult
Work Productivity and Activity Impairment Questionnaire (WPAI), General Health (WPAI:GH), V2.0
School Risk and Protective Factors
Substance Abuse and Mental Health Services Administration (SAMHSA), Communities That Care (CTC) & Seattle Social Development Project (SSDP) longitudinal study
School Social Environment
Aullig, K., et al. School climate: Historical review, instrument development, and school assessment. J. Psychoeduc. Assess, 2010
Scoliosis - Quality of Life
Pediatric Outcomes Data Collection Instrument (PODCI), v. 2.0,Parent/Child Outcomes Instrument, 2005
Selenium
National Center for Environmental Health (NCEH), Laboratory Procedure Manual, 2004
Self-esteem
The Rosenberg Self-Esteem Scale
Self-Help Involvement
Global Appraisal of Individual Needs (GAIN), Self-Help Involvement Scale (SHIS)
Self-reported Craving - General
National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Self-reported Exposure to Tobacco Advertising at Point of Sale
Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview and Final Youth Interview, Wave 7 (January 2022 - December 2022)
Self-reported Exposure to Tobacco Product Advertisements
Population Assessment of Tobacco and Health (PATH), Adult Extended Questionnaire, Version 7.5 & International Tobacco Control 4-Country Survey, 2011
Self-Reported General Health Status
National Health Interview Survey (NHIS), Family - Family Identification, 2014
Self-reported Tobacco Product Price Paid - Cigarettes
Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)
Self-reported Tobacco Product Price Paid - Cigars
Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)
Self-reported Tobacco Product Price Paid - E-Cigarettes
Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)
Self-reported Tobacco Product Purchase Location - Cigars
Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)
Self-reported Tobacco Product Purchase Location - Pipe
Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7 (January 2022 - December 2022)
Sensitivity to Reward and Punishment - Child
Behavioral Inhibition System (BIS)/Behavioral Activation System (BAS) scale - child version
Serum Creatinine - Assay
National Health and Nutrition Examination Survey (NHANES), Laboratory Procedures Manual, 2007
Serum or Plasma Ferritin
National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2009-2010
Sex Assigned at Birth
All of Us Research Program, Participant Provided Information (PPI), 2018
Sexual Orientation
All of Us Research Program, Participant Provided Information (PPI), 2018
Sexual Risk Behavior - Female
National Health and Nutrition Examination Survey (NHANES), Sexual Behavior Module, 2011-2012
Sexual Risk Behavior - Male
National Health and Nutrition Examination Survey (NHANES), Sexual Behavior Module, 2011-2012
CollaboRATE
Sharing Genomic Information with Relatives
Family Communication from the Clinical Sequencing Evidence-Generating Research (CSER) Adult Patient Measures - Post-Return of Results Follow-up #2 (5-7 months post-Return of Results) & Electronic Medical Records and Genomics (eMERGE) Family Communication of Genetic Results
Sickle Cell Disease Pain Associated with Menstruation
Sharma et al. Acute vaso-occlusive pain is temporally associated with the onset of menstruation in women with sickle cell disease. J Women’s Health (Larchmt), 2019. Demographic survey.
Sickle Cell Disease Stem Cell Source and Cell Manipulation
Cure Sickle Cell Initiative (CureSCi) Drug Product Case Report Form and Center for International Blood and Marrow Transplant Research (CIBMTR) Form 2400 (R8.0) Pre-Transplant Essential Data, 2021
Signs of Essential Tremor
Washington Heights-Inwood Genetic Study of Essential Tremor (WHIGET) Tremor Rating Scale
Sitting-Sedentary Behavior - Adult
Marshall, A. Leat al, Measuring total and domain-specific sitting: A study of reliability and validity, MED SCI SPORT EXER, 2010
Skin Cancer
Quereux, G., et al. Creation and test of a questionnaire for self-assessment of melanoma risk factors. EUR J CANCER PREV, 2010
Sleep Apnea - Child
The Pediatric Sleep Questionnaire (PSQ), Version 070424
Sleep Disorders Screener
National Institute of Mental Health (NIMH), Sleep Patterns and Problems
Smell and Taste
National Health and Nutrition Examination Survey (NHANES), Modified Pocket Smell Test (M-PST), 2013
Smoking Quit Attempts
Prostate, Lung, Colorectal and Ovarian (PLCO), Cancer Screening Trial, Supplemental Questionnaire, 1/06
Social and Role Dysfunction in Psychosis and Schizophrenia
Cornblatt, B.A., et al. Preliminary findings for two new measures of social and role functioning in the prodromal phase of schizophrenia. Schizophr. Bull., 2007
Social Networks
Indianapolis Network Mental Health Study (INMHS), 1990-1991
Social Norms about Tobacco - Adult
Population Assessment of Tobacco and Health (PATH) Study: Final Adult Interview, Wave 7
Social Norms about Tobacco - Youth
Population Assessment of Tobacco and Health (PATH) Study, Wave 7, Youth Survey
Social Support
The Medical Outcomes Study (MOS) Social Support Survey
Sodium
Pan American Health Organization (PAHO), Regional Expert Group for Cardiovascular Disease Prevention through Population-wide Dietary Salt Reduction, (2010)
Spirituality
World Health Organization’s Quality of Life Measure (WHOQOL) Spirituality, Religion and Personal Beliefs (SRPB)
Spirituality in Chronic Illness
Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being (FACIT©-Sp-12 (Version 4))
Spirometry - Adult
Miller, M. R., et al, Standardization of spirometry. Series “ATS/ERS task force: Standardization of lung function testing.”, EUR RESPIR J, 2005
Spirometry - Child
Beydon, N., et al, An official American Thoracic Society/European Respiratory Society statement: Pulmonary function testing in preschool children, AM J RESP CRIT CARE, 2007
Stuttering
The Stuttering Severity Instrument-Fourth Edition (SSI-4)
Substance Abuse and Dependence - Past Year - Alcohol
National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Substance Abuse and Dependence - Past Year - Drugs
National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Substance Abuse Treatment Quality
National Committee for Quality Assurance (NCQA) Quality Compass Tool
Substances - Lifetime Use
National Epidemiologic Survey on Alcohol and Related Conditions-III (NESARC-III)
Sudden Cardiac Arrest
Atherosclerosis Risk in Communities (ARIC), Physician Questionnaire & Multi-Ethnic Study of Atherosclerosis (MESA), Mortality Review Form
Sugar Intake (Added)
National Cancer Institute (NCI) Five-Factor Screener, 2005
Susceptibility to Tobacco Products
Population Assessment of Tobacco and Health (PATH) Study: Final Youth Interview, Wave 7 (January 2022 - December 2022)
Sweat Chloride Test
LeGrys, V.A., et al. Diagnostic sweat testing: The Cystic Fibrosis Foundation guidelines. J Pediatr, 2007
Syphilis - Assay
National Health and Nutrition Examination Survey Questionnaire (NHANES), Laboratory Procedures Manual, 2007